Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families
Background Limited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two‐spirit, and other sexual and gender‐minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy...
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| Veröffentlicht in: | Birth (Berkeley, Calif.) Calif.), 2023-03, Vol.50 (1), p.109-119 |
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| container_title | Birth (Berkeley, Calif.) |
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| creator | Altman, Molly R. Cragg, Kase Winkle, Teresa Julian, Zoë Obedin‐Maliver, Juno Tarasoff, Lesley A. Eagen‐Torkko, Meghan K. Ferrell, Brittany L. Rubashkin, Nicholas A. Lusero, Indra Vedam, Saraswathi |
| description | Background
Limited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two‐spirit, and other sexual and gender‐minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy loss.
Methods
We describe the participatory research methods used to develop the Birth Includes Us survey, an online survey study to capture experiences of respectful perinatal care for LGBTQ2S+ individuals. From 2019 to 2021, our research team in collaboration with a multi‐stakeholder Community Steering Council identified, adapted, and/or designed survey items which were reviewed and then content validated by community members with lived experience.
Results
The final survey instrument spans the perinatal care experience, from preconception to early parenthood, and includes items to capture experiences of care across different pregnancy roles (eg, pregnant person, partner/co‐parent, intended parent using surrogacy) and pregnancy outcomes (eg, live birth, stillbirth, miscarriage, and abortion). Three validated measures of respectful perinatal care are included, as well as measures to assess experiences of racism, discrimination, and bias across intersections of identity.
Discussion and Conclusions
By centering diverse perspectives in the review process, the Birth Includes Us instrument is the first survey to assess the range of experiences within LGBTQ2S+ communities. This instrument is ready for implementation in studies that seek to examine geographic and identity‐based perinatal health outcomes and care experiences among LGBTQ2S+ people. |
| doi_str_mv | 10.1111/birt.12704 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10332260</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2763332902</sourcerecordid><originalsourceid>FETCH-LOGICAL-c4134-fc2e117473634a08ec75e93b24fe2fd3b7bd62569e47924d86da28cadb4b13983</originalsourceid><addsrcrecordid>eNp9kc1u1DAURi0EotPChgdAltigohT_xU66QUyBUmkkBAwSO8txbqaukjjYyUDEhkfgGXkSPEypgAXeeHHPPbqfPoQeUHJC03tauTCeUKaIuIUWNGc8y7n8eBstiOIkUzIvD9BhjFeEECWEvIsOuJQsz3mxQF-XafkSu962Uw0RT_EUv4AttH7ooB-xb7DB1nfd1Ltx_vHtews1jlPYwoxHj60ZxikAhi8DBAe9TYq0MgTY9Ka3cwLS1HS-3-DV-XL9lr1_ghvTudZBvIfuNKaNcP_6P0IfXr1cn73OVm_OL86erzIrKBdZYxlQqoTikgtDCrAqh5JXTDTAmppXqqpTHFmCUCUTdSFrwwpr6kpUlJcFP0LP9t5hqjqobcoVTKuH4DoTZu2N039PenepN36rKeGcMUmS4fG1IfhPE8RRdy5aaFvTg5-iZkryhJaEJfTRP-iVn0Kf8iVKlaVMzO6k4z1lg48xQHNzDSV6V6relap_lZrgh3_ef4P-bjEBdA98di3M_1Hp5cW79V76E_jtryE</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2779960238</pqid></control><display><type>article</type><title>Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families</title><source>MEDLINE</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>Wiley Online Library All Journals</source><creator>Altman, Molly R. ; Cragg, Kase ; Winkle, Teresa ; Julian, Zoë ; Obedin‐Maliver, Juno ; Tarasoff, Lesley A. ; Eagen‐Torkko, Meghan K. ; Ferrell, Brittany L. ; Rubashkin, Nicholas A. ; Lusero, Indra ; Vedam, Saraswathi</creator><creatorcontrib>Altman, Molly R. ; Cragg, Kase ; Winkle, Teresa ; Julian, Zoë ; Obedin‐Maliver, Juno ; Tarasoff, Lesley A. ; Eagen‐Torkko, Meghan K. ; Ferrell, Brittany L. ; Rubashkin, Nicholas A. ; Lusero, Indra ; Vedam, Saraswathi</creatorcontrib><description>Background
Limited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two‐spirit, and other sexual and gender‐minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy loss.
Methods
We describe the participatory research methods used to develop the Birth Includes Us survey, an online survey study to capture experiences of respectful perinatal care for LGBTQ2S+ individuals. From 2019 to 2021, our research team in collaboration with a multi‐stakeholder Community Steering Council identified, adapted, and/or designed survey items which were reviewed and then content validated by community members with lived experience.
Results
The final survey instrument spans the perinatal care experience, from preconception to early parenthood, and includes items to capture experiences of care across different pregnancy roles (eg, pregnant person, partner/co‐parent, intended parent using surrogacy) and pregnancy outcomes (eg, live birth, stillbirth, miscarriage, and abortion). Three validated measures of respectful perinatal care are included, as well as measures to assess experiences of racism, discrimination, and bias across intersections of identity.
Discussion and Conclusions
By centering diverse perspectives in the review process, the Birth Includes Us instrument is the first survey to assess the range of experiences within LGBTQ2S+ communities. This instrument is ready for implementation in studies that seek to examine geographic and identity‐based perinatal health outcomes and care experiences among LGBTQ2S+ people.</description><identifier>ISSN: 0730-7659</identifier><identifier>EISSN: 1523-536X</identifier><identifier>DOI: 10.1111/birt.12704</identifier><identifier>PMID: 36625538</identifier><language>eng</language><publisher>United States: Wiley Subscription Services, Inc</publisher><subject>Abortion ; Adolescent parents ; Bisexuality ; Childbirth & labor ; Clinical outcomes ; Community ; community‐based participatory research ; Discrimination ; Female ; Health status ; Homosexuality, Female ; Humans ; Identity ; Intersectionality ; Lesbianism ; LGBTQ people ; LGBTQ persons ; Parents & parenting ; Participatory research ; Parturition ; Perinatal care ; Perinatal mortality ; Polls & surveys ; Pregnancy ; Racial bias ; Racism ; Research methodology ; respectful care ; Sexual and Gender Minorities ; Sexual Behavior ; Sexual orientation ; Stillbirth ; Teams ; Transgender Persons ; Two-Spirit</subject><ispartof>Birth (Berkeley, Calif.), 2023-03, Vol.50 (1), p.109-119</ispartof><rights>2023 Wiley Periodicals LLC.</rights><rights>Copyright © 2023 Wiley Periodicals LLC</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4134-fc2e117473634a08ec75e93b24fe2fd3b7bd62569e47924d86da28cadb4b13983</citedby><cites>FETCH-LOGICAL-c4134-fc2e117473634a08ec75e93b24fe2fd3b7bd62569e47924d86da28cadb4b13983</cites><orcidid>0000-0002-0453-0469 ; 0000-0002-0945-2842 ; 0000-0001-8799-5431 ; 0000-0001-6396-3638 ; 0000-0001-9064-6494 ; 0000-0001-5130-8660</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fbirt.12704$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fbirt.12704$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>230,314,780,784,885,1417,27923,27924,30998,45573,45574</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36625538$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Altman, Molly R.</creatorcontrib><creatorcontrib>Cragg, Kase</creatorcontrib><creatorcontrib>Winkle, Teresa</creatorcontrib><creatorcontrib>Julian, Zoë</creatorcontrib><creatorcontrib>Obedin‐Maliver, Juno</creatorcontrib><creatorcontrib>Tarasoff, Lesley A.</creatorcontrib><creatorcontrib>Eagen‐Torkko, Meghan K.</creatorcontrib><creatorcontrib>Ferrell, Brittany L.</creatorcontrib><creatorcontrib>Rubashkin, Nicholas A.</creatorcontrib><creatorcontrib>Lusero, Indra</creatorcontrib><creatorcontrib>Vedam, Saraswathi</creatorcontrib><title>Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families</title><title>Birth (Berkeley, Calif.)</title><addtitle>Birth</addtitle><description>Background
Limited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two‐spirit, and other sexual and gender‐minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy loss.
Methods
We describe the participatory research methods used to develop the Birth Includes Us survey, an online survey study to capture experiences of respectful perinatal care for LGBTQ2S+ individuals. From 2019 to 2021, our research team in collaboration with a multi‐stakeholder Community Steering Council identified, adapted, and/or designed survey items which were reviewed and then content validated by community members with lived experience.
Results
The final survey instrument spans the perinatal care experience, from preconception to early parenthood, and includes items to capture experiences of care across different pregnancy roles (eg, pregnant person, partner/co‐parent, intended parent using surrogacy) and pregnancy outcomes (eg, live birth, stillbirth, miscarriage, and abortion). Three validated measures of respectful perinatal care are included, as well as measures to assess experiences of racism, discrimination, and bias across intersections of identity.
Discussion and Conclusions
By centering diverse perspectives in the review process, the Birth Includes Us instrument is the first survey to assess the range of experiences within LGBTQ2S+ communities. This instrument is ready for implementation in studies that seek to examine geographic and identity‐based perinatal health outcomes and care experiences among LGBTQ2S+ people.</description><subject>Abortion</subject><subject>Adolescent parents</subject><subject>Bisexuality</subject><subject>Childbirth & labor</subject><subject>Clinical outcomes</subject><subject>Community</subject><subject>community‐based participatory research</subject><subject>Discrimination</subject><subject>Female</subject><subject>Health status</subject><subject>Homosexuality, Female</subject><subject>Humans</subject><subject>Identity</subject><subject>Intersectionality</subject><subject>Lesbianism</subject><subject>LGBTQ people</subject><subject>LGBTQ persons</subject><subject>Parents & parenting</subject><subject>Participatory research</subject><subject>Parturition</subject><subject>Perinatal care</subject><subject>Perinatal mortality</subject><subject>Polls & surveys</subject><subject>Pregnancy</subject><subject>Racial bias</subject><subject>Racism</subject><subject>Research methodology</subject><subject>respectful care</subject><subject>Sexual and Gender Minorities</subject><subject>Sexual Behavior</subject><subject>Sexual orientation</subject><subject>Stillbirth</subject><subject>Teams</subject><subject>Transgender Persons</subject><subject>Two-Spirit</subject><issn>0730-7659</issn><issn>1523-536X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp9kc1u1DAURi0EotPChgdAltigohT_xU66QUyBUmkkBAwSO8txbqaukjjYyUDEhkfgGXkSPEypgAXeeHHPPbqfPoQeUHJC03tauTCeUKaIuIUWNGc8y7n8eBstiOIkUzIvD9BhjFeEECWEvIsOuJQsz3mxQF-XafkSu962Uw0RT_EUv4AttH7ooB-xb7DB1nfd1Ltx_vHtews1jlPYwoxHj60ZxikAhi8DBAe9TYq0MgTY9Ka3cwLS1HS-3-DV-XL9lr1_ghvTudZBvIfuNKaNcP_6P0IfXr1cn73OVm_OL86erzIrKBdZYxlQqoTikgtDCrAqh5JXTDTAmppXqqpTHFmCUCUTdSFrwwpr6kpUlJcFP0LP9t5hqjqobcoVTKuH4DoTZu2N039PenepN36rKeGcMUmS4fG1IfhPE8RRdy5aaFvTg5-iZkryhJaEJfTRP-iVn0Kf8iVKlaVMzO6k4z1lg48xQHNzDSV6V6relap_lZrgh3_ef4P-bjEBdA98di3M_1Hp5cW79V76E_jtryE</recordid><startdate>202303</startdate><enddate>202303</enddate><creator>Altman, Molly R.</creator><creator>Cragg, Kase</creator><creator>Winkle, Teresa</creator><creator>Julian, Zoë</creator><creator>Obedin‐Maliver, Juno</creator><creator>Tarasoff, Lesley A.</creator><creator>Eagen‐Torkko, Meghan K.</creator><creator>Ferrell, Brittany L.</creator><creator>Rubashkin, Nicholas A.</creator><creator>Lusero, Indra</creator><creator>Vedam, Saraswathi</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-0453-0469</orcidid><orcidid>https://orcid.org/0000-0002-0945-2842</orcidid><orcidid>https://orcid.org/0000-0001-8799-5431</orcidid><orcidid>https://orcid.org/0000-0001-6396-3638</orcidid><orcidid>https://orcid.org/0000-0001-9064-6494</orcidid><orcidid>https://orcid.org/0000-0001-5130-8660</orcidid></search><sort><creationdate>202303</creationdate><title>Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families</title><author>Altman, Molly R. ; Cragg, Kase ; Winkle, Teresa ; Julian, Zoë ; Obedin‐Maliver, Juno ; Tarasoff, Lesley A. ; Eagen‐Torkko, Meghan K. ; Ferrell, Brittany L. ; Rubashkin, Nicholas A. ; Lusero, Indra ; Vedam, Saraswathi</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4134-fc2e117473634a08ec75e93b24fe2fd3b7bd62569e47924d86da28cadb4b13983</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Abortion</topic><topic>Adolescent parents</topic><topic>Bisexuality</topic><topic>Childbirth & labor</topic><topic>Clinical outcomes</topic><topic>Community</topic><topic>community‐based participatory research</topic><topic>Discrimination</topic><topic>Female</topic><topic>Health status</topic><topic>Homosexuality, Female</topic><topic>Humans</topic><topic>Identity</topic><topic>Intersectionality</topic><topic>Lesbianism</topic><topic>LGBTQ people</topic><topic>LGBTQ persons</topic><topic>Parents & parenting</topic><topic>Participatory research</topic><topic>Parturition</topic><topic>Perinatal care</topic><topic>Perinatal mortality</topic><topic>Polls & surveys</topic><topic>Pregnancy</topic><topic>Racial bias</topic><topic>Racism</topic><topic>Research methodology</topic><topic>respectful care</topic><topic>Sexual and Gender Minorities</topic><topic>Sexual Behavior</topic><topic>Sexual orientation</topic><topic>Stillbirth</topic><topic>Teams</topic><topic>Transgender Persons</topic><topic>Two-Spirit</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Altman, Molly R.</creatorcontrib><creatorcontrib>Cragg, Kase</creatorcontrib><creatorcontrib>Winkle, Teresa</creatorcontrib><creatorcontrib>Julian, Zoë</creatorcontrib><creatorcontrib>Obedin‐Maliver, Juno</creatorcontrib><creatorcontrib>Tarasoff, Lesley A.</creatorcontrib><creatorcontrib>Eagen‐Torkko, Meghan K.</creatorcontrib><creatorcontrib>Ferrell, Brittany L.</creatorcontrib><creatorcontrib>Rubashkin, Nicholas A.</creatorcontrib><creatorcontrib>Lusero, Indra</creatorcontrib><creatorcontrib>Vedam, Saraswathi</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Birth (Berkeley, Calif.)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Altman, Molly R.</au><au>Cragg, Kase</au><au>Winkle, Teresa</au><au>Julian, Zoë</au><au>Obedin‐Maliver, Juno</au><au>Tarasoff, Lesley A.</au><au>Eagen‐Torkko, Meghan K.</au><au>Ferrell, Brittany L.</au><au>Rubashkin, Nicholas A.</au><au>Lusero, Indra</au><au>Vedam, Saraswathi</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families</atitle><jtitle>Birth (Berkeley, Calif.)</jtitle><addtitle>Birth</addtitle><date>2023-03</date><risdate>2023</risdate><volume>50</volume><issue>1</issue><spage>109</spage><epage>119</epage><pages>109-119</pages><issn>0730-7659</issn><eissn>1523-536X</eissn><abstract>Background
Limited research captures the intersectional and nuanced experiences of lesbian, gay, bisexual, transgender, queer, two‐spirit, and other sexual and gender‐minoritized (LGBTQ2S+) people when accessing perinatal care services, including care for pregnancy, birth, abortion, and/or pregnancy loss.
Methods
We describe the participatory research methods used to develop the Birth Includes Us survey, an online survey study to capture experiences of respectful perinatal care for LGBTQ2S+ individuals. From 2019 to 2021, our research team in collaboration with a multi‐stakeholder Community Steering Council identified, adapted, and/or designed survey items which were reviewed and then content validated by community members with lived experience.
Results
The final survey instrument spans the perinatal care experience, from preconception to early parenthood, and includes items to capture experiences of care across different pregnancy roles (eg, pregnant person, partner/co‐parent, intended parent using surrogacy) and pregnancy outcomes (eg, live birth, stillbirth, miscarriage, and abortion). Three validated measures of respectful perinatal care are included, as well as measures to assess experiences of racism, discrimination, and bias across intersections of identity.
Discussion and Conclusions
By centering diverse perspectives in the review process, the Birth Includes Us instrument is the first survey to assess the range of experiences within LGBTQ2S+ communities. This instrument is ready for implementation in studies that seek to examine geographic and identity‐based perinatal health outcomes and care experiences among LGBTQ2S+ people.</abstract><cop>United States</cop><pub>Wiley Subscription Services, Inc</pub><pmid>36625538</pmid><doi>10.1111/birt.12704</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0002-0453-0469</orcidid><orcidid>https://orcid.org/0000-0002-0945-2842</orcidid><orcidid>https://orcid.org/0000-0001-8799-5431</orcidid><orcidid>https://orcid.org/0000-0001-6396-3638</orcidid><orcidid>https://orcid.org/0000-0001-9064-6494</orcidid><orcidid>https://orcid.org/0000-0001-5130-8660</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0730-7659 |
| ispartof | Birth (Berkeley, Calif.), 2023-03, Vol.50 (1), p.109-119 |
| issn | 0730-7659 1523-536X |
| language | eng |
| recordid | cdi_pubmedcentral_primary_oai_pubmedcentral_nih_gov_10332260 |
| source | MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA); Wiley Online Library All Journals |
| subjects | Abortion Adolescent parents Bisexuality Childbirth & labor Clinical outcomes Community community‐based participatory research Discrimination Female Health status Homosexuality, Female Humans Identity Intersectionality Lesbianism LGBTQ people LGBTQ persons Parents & parenting Participatory research Parturition Perinatal care Perinatal mortality Polls & surveys Pregnancy Racial bias Racism Research methodology respectful care Sexual and Gender Minorities Sexual Behavior Sexual orientation Stillbirth Teams Transgender Persons Two-Spirit |
| title | Birth includes us: Development of a community‐led survey to capture experiences of pregnancy care among LGBTQ2S+ families |
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