Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer
ABSTRACT Background A cancer diagnosis, especially advanced cancer, interferes with adolescent/young adult (AYA) peer relationships. AYAs increasingly use digital technologies (i.e., social media, video games) as a social instrument; little is known about the role of digital technologies in the AYA...
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| Veröffentlicht in: | Pediatric blood & cancer 2022-11, Vol.69 (11), p.e29938-n/a |
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| container_title | Pediatric blood & cancer |
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| creator | Steineck, Angela Lau, Nancy Fladeboe, Kaitlyn M. Walsh, Casey A. Rosenberg, Abby R. Yi‐Frazier, Joyce P. Barton, Krysta S. |
| description | ABSTRACT
Background
A cancer diagnosis, especially advanced cancer, interferes with adolescent/young adult (AYA) peer relationships. AYAs increasingly use digital technologies (i.e., social media, video games) as a social instrument; little is known about the role of digital technologies in the AYA cancer experience. The objective of this analysis was to describe the use and impact of digital technologies among AYAs with advanced cancer.
Procedure
As part of the “Exploring the Concept of a ‘Good Death’” study, semi‐structured interviews were conducted with 32 English‐speaking AYAs (14–25 years) with advanced cancer (relapsed/refractory disease, estimated survival |
| doi_str_mv | 10.1002/pbc.29938 |
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Background
A cancer diagnosis, especially advanced cancer, interferes with adolescent/young adult (AYA) peer relationships. AYAs increasingly use digital technologies (i.e., social media, video games) as a social instrument; little is known about the role of digital technologies in the AYA cancer experience. The objective of this analysis was to describe the use and impact of digital technologies among AYAs with advanced cancer.
Procedure
As part of the “Exploring the Concept of a ‘Good Death’” study, semi‐structured interviews were conducted with 32 English‐speaking AYAs (14–25 years) with advanced cancer (relapsed/refractory disease, estimated survival <50%). Interviews were audio recorded, deidentified, and transcribed verbatim. Questions focused on communication and sources of psychosocial support. Directed content analysis was used for codebook creation. Three reviewers completed transcript coding and reconciled discrepancies. Thematic analysis identified hierarchical themes. The present analysis focused on the specific theme of “digital technologies as a support mechanism.”
Results
When asked about sources of support, social media and multiplayer online games were most often recognized by AYAs. Three themes emerged regarding the role of digital technologies: distraction, maintaining existing peer support, and connecting with peers with cancer. Two AYAs acknowledged negative consequences of social media.
Conclusions
AYAs with advanced cancer cite digital technologies as a mechanism for maintaining and seeking peer support. Digital technologies may be leveraged to provide psychosocial support for AYAs with advanced cancer.</description><identifier>ISSN: 1545-5009</identifier><identifier>EISSN: 1545-5017</identifier><identifier>DOI: 10.1002/pbc.29938</identifier><identifier>PMID: 36069542</identifier><language>eng</language><publisher>United States: Wiley Subscription Services, Inc</publisher><subject>Adolescent ; adolescent and young adult ; Cancer ; Digital Technology ; Hematology ; Humans ; Neoplasms - psychology ; Neoplasms - therapy ; Oncology ; Pediatrics ; Peer Group ; Peer tutoring ; social media ; Social networks ; Young Adult ; Young adults</subject><ispartof>Pediatric blood & cancer, 2022-11, Vol.69 (11), p.e29938-n/a</ispartof><rights>2022 Wiley Periodicals LLC.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4448-b2623476baa870fd4f8821770e29802f866dae5f271875bffdc4766cbaf371cb3</citedby><cites>FETCH-LOGICAL-c4448-b2623476baa870fd4f8821770e29802f866dae5f271875bffdc4766cbaf371cb3</cites><orcidid>0000-0002-7608-607X ; 0000-0002-8000-0179 ; 0000-0001-5434-7980</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fpbc.29938$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fpbc.29938$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>230,314,776,780,881,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36069542$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Steineck, Angela</creatorcontrib><creatorcontrib>Lau, Nancy</creatorcontrib><creatorcontrib>Fladeboe, Kaitlyn M.</creatorcontrib><creatorcontrib>Walsh, Casey A.</creatorcontrib><creatorcontrib>Rosenberg, Abby R.</creatorcontrib><creatorcontrib>Yi‐Frazier, Joyce P.</creatorcontrib><creatorcontrib>Barton, Krysta S.</creatorcontrib><title>Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer</title><title>Pediatric blood & cancer</title><addtitle>Pediatr Blood Cancer</addtitle><description>ABSTRACT
Background
A cancer diagnosis, especially advanced cancer, interferes with adolescent/young adult (AYA) peer relationships. AYAs increasingly use digital technologies (i.e., social media, video games) as a social instrument; little is known about the role of digital technologies in the AYA cancer experience. The objective of this analysis was to describe the use and impact of digital technologies among AYAs with advanced cancer.
Procedure
As part of the “Exploring the Concept of a ‘Good Death’” study, semi‐structured interviews were conducted with 32 English‐speaking AYAs (14–25 years) with advanced cancer (relapsed/refractory disease, estimated survival <50%). Interviews were audio recorded, deidentified, and transcribed verbatim. Questions focused on communication and sources of psychosocial support. Directed content analysis was used for codebook creation. Three reviewers completed transcript coding and reconciled discrepancies. Thematic analysis identified hierarchical themes. The present analysis focused on the specific theme of “digital technologies as a support mechanism.”
Results
When asked about sources of support, social media and multiplayer online games were most often recognized by AYAs. Three themes emerged regarding the role of digital technologies: distraction, maintaining existing peer support, and connecting with peers with cancer. Two AYAs acknowledged negative consequences of social media.
Conclusions
AYAs with advanced cancer cite digital technologies as a mechanism for maintaining and seeking peer support. Digital technologies may be leveraged to provide psychosocial support for AYAs with advanced cancer.</description><subject>Adolescent</subject><subject>adolescent and young adult</subject><subject>Cancer</subject><subject>Digital Technology</subject><subject>Hematology</subject><subject>Humans</subject><subject>Neoplasms - psychology</subject><subject>Neoplasms - therapy</subject><subject>Oncology</subject><subject>Pediatrics</subject><subject>Peer Group</subject><subject>Peer tutoring</subject><subject>social media</subject><subject>Social networks</subject><subject>Young Adult</subject><subject>Young adults</subject><issn>1545-5009</issn><issn>1545-5017</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kV1PHCEUhknTpn5e-AcMSW_ai1VgZoDxxrRrP0xMNGm9JgwDuygLIwxr9t-Xde1Gm3h1Tg7PeXlPXgCOMDrBCJHToVMnpG0r_g7s4qZuJg3C7P22R-0O2EvprqAUNfwj2Kkoom1Tk12gfmt9b_0MLm0cs3Qw5WEIcTyDF3ZmxzIYtZr74MJsBXPS0Hoo--B0UtqPUPoerkIu-7LPbkzw0Y7z0i-lV7qHal3iAfhgpEv68Lnug9sf3_9Mf02urn9eTr9eTVRd13zSEUqqmtFOSs6Q6WvDOcGMIU1ajojhlPZSN4YwzFnTGdOrQlPVSVMxrLpqH5xvdIfcLXS_NhilE0O0CxlXIkgrXr94OxezsBQYVaSmhBSFz88KMTxknUaxsOVQ56TXISdRvsYVahtMC_rpP_Qu5OjLfWuKc1wRygr1ZUOpGFKK2mzdYCTW2YmSnXjKrrDHL-1vyX9hFeB0Azxap1dvK4mbb9ON5F8rwaSH</recordid><startdate>202211</startdate><enddate>202211</enddate><creator>Steineck, Angela</creator><creator>Lau, Nancy</creator><creator>Fladeboe, Kaitlyn M.</creator><creator>Walsh, Casey A.</creator><creator>Rosenberg, Abby R.</creator><creator>Yi‐Frazier, Joyce P.</creator><creator>Barton, Krysta S.</creator><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T5</scope><scope>7TK</scope><scope>7TO</scope><scope>8FD</scope><scope>FR3</scope><scope>H94</scope><scope>K9.</scope><scope>P64</scope><scope>RC3</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0002-7608-607X</orcidid><orcidid>https://orcid.org/0000-0002-8000-0179</orcidid><orcidid>https://orcid.org/0000-0001-5434-7980</orcidid></search><sort><creationdate>202211</creationdate><title>Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer</title><author>Steineck, Angela ; Lau, Nancy ; Fladeboe, Kaitlyn M. ; Walsh, Casey A. ; Rosenberg, Abby R. ; Yi‐Frazier, Joyce P. ; Barton, Krysta S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4448-b2623476baa870fd4f8821770e29802f866dae5f271875bffdc4766cbaf371cb3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Adolescent</topic><topic>adolescent and young adult</topic><topic>Cancer</topic><topic>Digital Technology</topic><topic>Hematology</topic><topic>Humans</topic><topic>Neoplasms - psychology</topic><topic>Neoplasms - therapy</topic><topic>Oncology</topic><topic>Pediatrics</topic><topic>Peer Group</topic><topic>Peer tutoring</topic><topic>social media</topic><topic>Social networks</topic><topic>Young Adult</topic><topic>Young adults</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Steineck, Angela</creatorcontrib><creatorcontrib>Lau, Nancy</creatorcontrib><creatorcontrib>Fladeboe, Kaitlyn M.</creatorcontrib><creatorcontrib>Walsh, Casey A.</creatorcontrib><creatorcontrib>Rosenberg, Abby R.</creatorcontrib><creatorcontrib>Yi‐Frazier, Joyce P.</creatorcontrib><creatorcontrib>Barton, Krysta S.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Immunology Abstracts</collection><collection>Neurosciences Abstracts</collection><collection>Oncogenes and Growth Factors Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Pediatric blood & cancer</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Steineck, Angela</au><au>Lau, Nancy</au><au>Fladeboe, Kaitlyn M.</au><au>Walsh, Casey A.</au><au>Rosenberg, Abby R.</au><au>Yi‐Frazier, Joyce P.</au><au>Barton, Krysta S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer</atitle><jtitle>Pediatric blood & cancer</jtitle><addtitle>Pediatr Blood Cancer</addtitle><date>2022-11</date><risdate>2022</risdate><volume>69</volume><issue>11</issue><spage>e29938</spage><epage>n/a</epage><pages>e29938-n/a</pages><issn>1545-5009</issn><eissn>1545-5017</eissn><abstract>ABSTRACT
Background
A cancer diagnosis, especially advanced cancer, interferes with adolescent/young adult (AYA) peer relationships. AYAs increasingly use digital technologies (i.e., social media, video games) as a social instrument; little is known about the role of digital technologies in the AYA cancer experience. The objective of this analysis was to describe the use and impact of digital technologies among AYAs with advanced cancer.
Procedure
As part of the “Exploring the Concept of a ‘Good Death’” study, semi‐structured interviews were conducted with 32 English‐speaking AYAs (14–25 years) with advanced cancer (relapsed/refractory disease, estimated survival <50%). Interviews were audio recorded, deidentified, and transcribed verbatim. Questions focused on communication and sources of psychosocial support. Directed content analysis was used for codebook creation. Three reviewers completed transcript coding and reconciled discrepancies. Thematic analysis identified hierarchical themes. The present analysis focused on the specific theme of “digital technologies as a support mechanism.”
Results
When asked about sources of support, social media and multiplayer online games were most often recognized by AYAs. Three themes emerged regarding the role of digital technologies: distraction, maintaining existing peer support, and connecting with peers with cancer. Two AYAs acknowledged negative consequences of social media.
Conclusions
AYAs with advanced cancer cite digital technologies as a mechanism for maintaining and seeking peer support. Digital technologies may be leveraged to provide psychosocial support for AYAs with advanced cancer.</abstract><cop>United States</cop><pub>Wiley Subscription Services, Inc</pub><pmid>36069542</pmid><doi>10.1002/pbc.29938</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0002-7608-607X</orcidid><orcidid>https://orcid.org/0000-0002-8000-0179</orcidid><orcidid>https://orcid.org/0000-0001-5434-7980</orcidid><oa>free_for_read</oa></addata></record> |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Adolescent adolescent and young adult Cancer Digital Technology Hematology Humans Neoplasms - psychology Neoplasms - therapy Oncology Pediatrics Peer Group Peer tutoring social media Social networks Young Adult Young adults |
| title | Seeking virtual support: Digital technology use in adolescent and young adults with advanced cancer |
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