Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study
Background: Functional disorders, defined as disorders with no clear medical explanation, are common and impose a significant burden on youths, their families, healthcare services and society as a whole. Currently, the literature describes resistance among patients and their families towards psychol...
Gespeichert in:
| Veröffentlicht in: | Clinical child psychology and psychiatry 2020-01, Vol.25 (1), p.45-61 |
|---|---|
| Hauptverfasser: | , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 61 |
|---|---|
| container_issue | 1 |
| container_start_page | 45 |
| container_title | Clinical child psychology and psychiatry |
| container_volume | 25 |
| creator | Hulgaard, Ditte Roth Rask, Charlotte Ulrikka Risor, Mette Bech Dehlholm, Gitte |
| description | Background:
Functional disorders, defined as disorders with no clear medical explanation, are common and impose a significant burden on youths, their families, healthcare services and society as a whole. Currently, the literature describes resistance among patients and their families towards psychological symptom explanations and treatments. More knowledge about the thoughts and understandings of youths with functional disorders and their parents is needed. The aim of this study was to explore the illness perceptions of youths with severe functional disorders and their parents.
Methods:
A qualitative interview study using interpretative phenomenological analyses. The study included 11 youths aged 11–15 years with functional disorders and their parents, where interviews were performed at the point of referral from a somatic to a psychiatric treatment setting.
Results:
Analyses identified three main themes. Themes 1(Ascribing identity to the disorder) and 2 (Monocausal explanations) explore key elements of the participants’ illness perceptions, and theme 3 (Mutable illness perceptions) explores how illness perceptions are influenced by experiences from healthcare encounters.
Conclusions:
The label ‘functional disorder’ was poorly integrated in the illness perceptions of the youths and their parents. Participants used a monocausal and typically physical explanation rather than a multicausal biopsychosocial explanation for their symptoms. |
| doi_str_mv | 10.1177/1359104519846194 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmed_primary_31079473</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_1359104519846194</sage_id><sourcerecordid>2318586734</sourcerecordid><originalsourceid>FETCH-LOGICAL-c407t-e4df6a40835d86af8bd52e578b90cc1d606cf2c234340ad0b636af0451d293643</originalsourceid><addsrcrecordid>eNqNkcFrFTEQxhdRbK3ePUnAi1C2TTbZJOutPKwWCl7qeckms30p-5I1k7U88I83y6sVCkIPIQPz-z5m5quq94yeMabUOeNtx6hoWaeFZJ14UR2zUtSKNuxlqUu7XvtH1RvEO0qpahl9XR1xRlUnFD-ufl9NUwBEMkOyMGcfA5I4kn1c8hbJvc9bMi7Brg0zEecxJgcJiQmO5C34RGaTIGT8TC4C8SFDmhNkk_0vIPMWQtyVN8Vbb4veFJM9eiSYF7d_W70azYTw7uE_qX5cfrnZfKuvv3-92lxc11ZQlWsQbpRGUM1bp6UZ9eDaBlqlh45ay5yk0o6NbbjgghpHB8kLtZ7FNR2Xgp9Unw6-c4o_F8Dc7zxamCYTIC7YNw1nneSaNwX9-AS9i0sqUxeKM91qqfhqSA-UTRExwdjPye9M2veM9msy_dNkiuTDg_Ey7MA9Cv5GUQB9AO5hiCNaD8HCI1ayE51WrO3oGuPGrxeOYROXkIv09PnSQtcHGs0t_Fvvv5P_Ad3guEU</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2318586734</pqid></control><display><type>article</type><title>Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study</title><source>MEDLINE</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>SAGE Publications</source><source>Web of Science - Science Citation Index Expanded - 2020<img src="https://exlibris-pub.s3.amazonaws.com/fromwos-v2.jpg" /></source><source>Web of Science - Social Sciences Citation Index – 2020<img src="https://exlibris-pub.s3.amazonaws.com/fromwos-v2.jpg" /></source><creator>Hulgaard, Ditte Roth ; Rask, Charlotte Ulrikka ; Risor, Mette Bech ; Dehlholm, Gitte</creator><creatorcontrib>Hulgaard, Ditte Roth ; Rask, Charlotte Ulrikka ; Risor, Mette Bech ; Dehlholm, Gitte</creatorcontrib><description>Background:
Functional disorders, defined as disorders with no clear medical explanation, are common and impose a significant burden on youths, their families, healthcare services and society as a whole. Currently, the literature describes resistance among patients and their families towards psychological symptom explanations and treatments. More knowledge about the thoughts and understandings of youths with functional disorders and their parents is needed. The aim of this study was to explore the illness perceptions of youths with severe functional disorders and their parents.
Methods:
A qualitative interview study using interpretative phenomenological analyses. The study included 11 youths aged 11–15 years with functional disorders and their parents, where interviews were performed at the point of referral from a somatic to a psychiatric treatment setting.
Results:
Analyses identified three main themes. Themes 1(Ascribing identity to the disorder) and 2 (Monocausal explanations) explore key elements of the participants’ illness perceptions, and theme 3 (Mutable illness perceptions) explores how illness perceptions are influenced by experiences from healthcare encounters.
Conclusions:
The label ‘functional disorder’ was poorly integrated in the illness perceptions of the youths and their parents. Participants used a monocausal and typically physical explanation rather than a multicausal biopsychosocial explanation for their symptoms.</description><identifier>ISSN: 1359-1045</identifier><identifier>EISSN: 1461-7021</identifier><identifier>DOI: 10.1177/1359104519846194</identifier><identifier>PMID: 31079473</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Adolescent ; Adult ; Ascription ; Biopsychosocial aspects ; Child ; Child & adolescent psychiatry ; Family Therapy ; Female ; Health care ; Humans ; Identity ; Illnesses ; Interpretative phenomenological analysis ; Interviews ; Life Sciences & Biomedicine ; Male ; Medically Unexplained Symptoms ; Middle Aged ; Parents ; Parents & parenting ; Perceptions ; Phenomenological research ; Psychiatry ; Psychology ; Psychology, Clinical ; Psychology, Developmental ; Qualitative Research ; Resistance ; Science & Technology ; Social Sciences ; Somatoform Disorders - psychology ; Somatoform Disorders - therapy ; Stress, Psychological - psychology ; Stress, Psychological - therapy</subject><ispartof>Clinical child psychology and psychiatry, 2020-01, Vol.25 (1), p.45-61</ispartof><rights>The Author(s) 2019</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>true</woscitedreferencessubscribed><woscitedreferencescount>14</woscitedreferencescount><woscitedreferencesoriginalsourcerecordid>wos000498715900007</woscitedreferencesoriginalsourcerecordid><citedby>FETCH-LOGICAL-c407t-e4df6a40835d86af8bd52e578b90cc1d606cf2c234340ad0b636af0451d293643</citedby><cites>FETCH-LOGICAL-c407t-e4df6a40835d86af8bd52e578b90cc1d606cf2c234340ad0b636af0451d293643</cites><orcidid>0000-0002-7426-0353 ; 0000-0002-5301-5295 ; 0000-0002-7912-5804</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/1359104519846194$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/1359104519846194$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>315,782,786,21826,27931,27932,28255,28256,31006,43628,43629</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31079473$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Hulgaard, Ditte Roth</creatorcontrib><creatorcontrib>Rask, Charlotte Ulrikka</creatorcontrib><creatorcontrib>Risor, Mette Bech</creatorcontrib><creatorcontrib>Dehlholm, Gitte</creatorcontrib><title>Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study</title><title>Clinical child psychology and psychiatry</title><addtitle>CLIN CHILD PSYCHOL P</addtitle><addtitle>Clin Child Psychol Psychiatry</addtitle><description>Background:
Functional disorders, defined as disorders with no clear medical explanation, are common and impose a significant burden on youths, their families, healthcare services and society as a whole. Currently, the literature describes resistance among patients and their families towards psychological symptom explanations and treatments. More knowledge about the thoughts and understandings of youths with functional disorders and their parents is needed. The aim of this study was to explore the illness perceptions of youths with severe functional disorders and their parents.
Methods:
A qualitative interview study using interpretative phenomenological analyses. The study included 11 youths aged 11–15 years with functional disorders and their parents, where interviews were performed at the point of referral from a somatic to a psychiatric treatment setting.
Results:
Analyses identified three main themes. Themes 1(Ascribing identity to the disorder) and 2 (Monocausal explanations) explore key elements of the participants’ illness perceptions, and theme 3 (Mutable illness perceptions) explores how illness perceptions are influenced by experiences from healthcare encounters.
Conclusions:
The label ‘functional disorder’ was poorly integrated in the illness perceptions of the youths and their parents. Participants used a monocausal and typically physical explanation rather than a multicausal biopsychosocial explanation for their symptoms.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Ascription</subject><subject>Biopsychosocial aspects</subject><subject>Child</subject><subject>Child & adolescent psychiatry</subject><subject>Family Therapy</subject><subject>Female</subject><subject>Health care</subject><subject>Humans</subject><subject>Identity</subject><subject>Illnesses</subject><subject>Interpretative phenomenological analysis</subject><subject>Interviews</subject><subject>Life Sciences & Biomedicine</subject><subject>Male</subject><subject>Medically Unexplained Symptoms</subject><subject>Middle Aged</subject><subject>Parents</subject><subject>Parents & parenting</subject><subject>Perceptions</subject><subject>Phenomenological research</subject><subject>Psychiatry</subject><subject>Psychology</subject><subject>Psychology, Clinical</subject><subject>Psychology, Developmental</subject><subject>Qualitative Research</subject><subject>Resistance</subject><subject>Science & Technology</subject><subject>Social Sciences</subject><subject>Somatoform Disorders - psychology</subject><subject>Somatoform Disorders - therapy</subject><subject>Stress, Psychological - psychology</subject><subject>Stress, Psychological - therapy</subject><issn>1359-1045</issn><issn>1461-7021</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>AOWDO</sourceid><sourceid>ARHDP</sourceid><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNkcFrFTEQxhdRbK3ePUnAi1C2TTbZJOutPKwWCl7qeckms30p-5I1k7U88I83y6sVCkIPIQPz-z5m5quq94yeMabUOeNtx6hoWaeFZJ14UR2zUtSKNuxlqUu7XvtH1RvEO0qpahl9XR1xRlUnFD-ufl9NUwBEMkOyMGcfA5I4kn1c8hbJvc9bMi7Brg0zEecxJgcJiQmO5C34RGaTIGT8TC4C8SFDmhNkk_0vIPMWQtyVN8Vbb4veFJM9eiSYF7d_W70azYTw7uE_qX5cfrnZfKuvv3-92lxc11ZQlWsQbpRGUM1bp6UZ9eDaBlqlh45ay5yk0o6NbbjgghpHB8kLtZ7FNR2Xgp9Unw6-c4o_F8Dc7zxamCYTIC7YNw1nneSaNwX9-AS9i0sqUxeKM91qqfhqSA-UTRExwdjPye9M2veM9msy_dNkiuTDg_Ey7MA9Cv5GUQB9AO5hiCNaD8HCI1ayE51WrO3oGuPGrxeOYROXkIv09PnSQtcHGs0t_Fvvv5P_Ad3guEU</recordid><startdate>202001</startdate><enddate>202001</enddate><creator>Hulgaard, Ditte Roth</creator><creator>Rask, Charlotte Ulrikka</creator><creator>Risor, Mette Bech</creator><creator>Dehlholm, Gitte</creator><general>SAGE Publications</general><general>Sage</general><general>SAGE PUBLICATIONS, INC</general><scope>17B</scope><scope>AOWDO</scope><scope>ARHDP</scope><scope>BLEPL</scope><scope>DTL</scope><scope>DVR</scope><scope>EGQ</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-7426-0353</orcidid><orcidid>https://orcid.org/0000-0002-5301-5295</orcidid><orcidid>https://orcid.org/0000-0002-7912-5804</orcidid></search><sort><creationdate>202001</creationdate><title>Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study</title><author>Hulgaard, Ditte Roth ; Rask, Charlotte Ulrikka ; Risor, Mette Bech ; Dehlholm, Gitte</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c407t-e4df6a40835d86af8bd52e578b90cc1d606cf2c234340ad0b636af0451d293643</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Ascription</topic><topic>Biopsychosocial aspects</topic><topic>Child</topic><topic>Child & adolescent psychiatry</topic><topic>Family Therapy</topic><topic>Female</topic><topic>Health care</topic><topic>Humans</topic><topic>Identity</topic><topic>Illnesses</topic><topic>Interpretative phenomenological analysis</topic><topic>Interviews</topic><topic>Life Sciences & Biomedicine</topic><topic>Male</topic><topic>Medically Unexplained Symptoms</topic><topic>Middle Aged</topic><topic>Parents</topic><topic>Parents & parenting</topic><topic>Perceptions</topic><topic>Phenomenological research</topic><topic>Psychiatry</topic><topic>Psychology</topic><topic>Psychology, Clinical</topic><topic>Psychology, Developmental</topic><topic>Qualitative Research</topic><topic>Resistance</topic><topic>Science & Technology</topic><topic>Social Sciences</topic><topic>Somatoform Disorders - psychology</topic><topic>Somatoform Disorders - therapy</topic><topic>Stress, Psychological - psychology</topic><topic>Stress, Psychological - therapy</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Hulgaard, Ditte Roth</creatorcontrib><creatorcontrib>Rask, Charlotte Ulrikka</creatorcontrib><creatorcontrib>Risor, Mette Bech</creatorcontrib><creatorcontrib>Dehlholm, Gitte</creatorcontrib><collection>Web of Knowledge</collection><collection>Web of Science - Science Citation Index Expanded - 2020</collection><collection>Web of Science - Social Sciences Citation Index – 2020</collection><collection>Web of Science Core Collection</collection><collection>Science Citation Index Expanded</collection><collection>Social Sciences Citation Index</collection><collection>Web of Science Primary (SCIE, SSCI & AHCI)</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><jtitle>Clinical child psychology and psychiatry</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hulgaard, Ditte Roth</au><au>Rask, Charlotte Ulrikka</au><au>Risor, Mette Bech</au><au>Dehlholm, Gitte</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study</atitle><jtitle>Clinical child psychology and psychiatry</jtitle><stitle>CLIN CHILD PSYCHOL P</stitle><addtitle>Clin Child Psychol Psychiatry</addtitle><date>2020-01</date><risdate>2020</risdate><volume>25</volume><issue>1</issue><spage>45</spage><epage>61</epage><pages>45-61</pages><issn>1359-1045</issn><eissn>1461-7021</eissn><abstract>Background:
Functional disorders, defined as disorders with no clear medical explanation, are common and impose a significant burden on youths, their families, healthcare services and society as a whole. Currently, the literature describes resistance among patients and their families towards psychological symptom explanations and treatments. More knowledge about the thoughts and understandings of youths with functional disorders and their parents is needed. The aim of this study was to explore the illness perceptions of youths with severe functional disorders and their parents.
Methods:
A qualitative interview study using interpretative phenomenological analyses. The study included 11 youths aged 11–15 years with functional disorders and their parents, where interviews were performed at the point of referral from a somatic to a psychiatric treatment setting.
Results:
Analyses identified three main themes. Themes 1(Ascribing identity to the disorder) and 2 (Monocausal explanations) explore key elements of the participants’ illness perceptions, and theme 3 (Mutable illness perceptions) explores how illness perceptions are influenced by experiences from healthcare encounters.
Conclusions:
The label ‘functional disorder’ was poorly integrated in the illness perceptions of the youths and their parents. Participants used a monocausal and typically physical explanation rather than a multicausal biopsychosocial explanation for their symptoms.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>31079473</pmid><doi>10.1177/1359104519846194</doi><tpages>17</tpages><orcidid>https://orcid.org/0000-0002-7426-0353</orcidid><orcidid>https://orcid.org/0000-0002-5301-5295</orcidid><orcidid>https://orcid.org/0000-0002-7912-5804</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1359-1045 |
| ispartof | Clinical child psychology and psychiatry, 2020-01, Vol.25 (1), p.45-61 |
| issn | 1359-1045 1461-7021 |
| language | eng |
| recordid | cdi_pubmed_primary_31079473 |
| source | MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA); SAGE Publications; Web of Science - Science Citation Index Expanded - 2020<img src="https://exlibris-pub.s3.amazonaws.com/fromwos-v2.jpg" />; Web of Science - Social Sciences Citation Index – 2020<img src="https://exlibris-pub.s3.amazonaws.com/fromwos-v2.jpg" /> |
| subjects | Adolescent Adult Ascription Biopsychosocial aspects Child Child & adolescent psychiatry Family Therapy Female Health care Humans Identity Illnesses Interpretative phenomenological analysis Interviews Life Sciences & Biomedicine Male Medically Unexplained Symptoms Middle Aged Parents Parents & parenting Perceptions Phenomenological research Psychiatry Psychology Psychology, Clinical Psychology, Developmental Qualitative Research Resistance Science & Technology Social Sciences Somatoform Disorders - psychology Somatoform Disorders - therapy Stress, Psychological - psychology Stress, Psychological - therapy |
| title | Illness perceptions of youths with functional disorders and their parents: An interpretative phenomenological analysis study |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-06T19%3A08%3A09IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_pubme&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Illness%20perceptions%20of%20youths%20with%20functional%20disorders%20and%20their%20parents:%20An%20interpretative%20phenomenological%20analysis%20study&rft.jtitle=Clinical%20child%20psychology%20and%20psychiatry&rft.au=Hulgaard,%20Ditte%20Roth&rft.date=2020-01&rft.volume=25&rft.issue=1&rft.spage=45&rft.epage=61&rft.pages=45-61&rft.issn=1359-1045&rft.eissn=1461-7021&rft_id=info:doi/10.1177/1359104519846194&rft_dat=%3Cproquest_pubme%3E2318586734%3C/proquest_pubme%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2318586734&rft_id=info:pmid/31079473&rft_sage_id=10.1177_1359104519846194&rfr_iscdi=true |