Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community
Objective: To identify barriers to access healthcare services and reveal determinants of satisfaction with healthcare services in people with chronic spinal cord injury (SCI). Design: Cross-sectional survey. Setting: Community setting in Switzerland. Participants: People with chronic SCI. Interventi...
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| Veröffentlicht in: | The journal of spinal cord medicine 2020-01, Vol.43 (1), p.111-121 |
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| container_title | The journal of spinal cord medicine |
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| creator | Ronca, Elias Scheel-Sailer, Anke Koch, Hans Georg Essig, Stefan Brach, Mirjam Münzel, Nadja Gemperli, Armin |
| description | Objective: To identify barriers to access healthcare services and reveal determinants of satisfaction with healthcare services in people with chronic spinal cord injury (SCI).
Design: Cross-sectional survey.
Setting: Community setting in Switzerland.
Participants: People with chronic SCI.
Interventions: Non-applicable.
Outcome Measures: Questionnaire-based evaluation of availability and quality of healthcare services for secondary health conditions, satisfaction with fulfillment of healthcare needs, and preference for care from a hypothetical service provider with limited specialized SCI care expertise but in close proximity over comprehensive care from an existing specialized SCI center located at a greater distance.
Results: Close to three-quarter of participants (70%) indicated satisfaction with healthcare services received for SCI related health conditions. Elderly individuals (61+ years old) rated the availability and quality of healthcare 6% to 11% higher than younger individuals. The perceived fulfillment of healthcare needs was lower in people with incomplete paraplegia (odds ratio (OR) 2.11, 95%-credibility interval (CI) 1.18-3.84), chronic pain (OR 1.85, CI 1.12-3.08), insufficient access to long distance transportation (OR 5.81, CI 2.74-12.82), and longer travel distances to specialized SCI centers.
Conclusion: Perceived inadequateness of access to healthcare services was partly related to transportation barriers, suggesting that outreach services or support with transportation are possible solutions. People with incomplete paralysis and pain consistently rated the fulfillment of care needs associated with SCI less favorably, pointing to the need for enhanced advocacy for this vulnerable groups. |
| doi_str_mv | 10.1080/10790268.2018.1486623 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_pubme</sourceid><recordid>TN_cdi_pubmed_primary_29965779</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2063716141</sourcerecordid><originalsourceid>FETCH-LOGICAL-c468t-46ce41b678ff0a67e8046823837d2b719759dad80df9cb8c969896e67d523b753</originalsourceid><addsrcrecordid>eNp9kUtv1DAUhS0EotOBnwDykk0GPxI_NghUQUGqxAJYW47jNK4cO7Wdqebf16OZVrBhZV3f75x7dQ8A7zDaYSTQR4y4RISJHUFY7HArGCP0BdgQ1HYN54S-BJsj0xyhC3CZ8x1CnZSUvgYXRErWcS43YP9LF5dHbYqLAT64MkFtjM0Z6jDA-1V7Vw4wjnCy2pfJ6GRhtmnvKgPHmOBi4-LtSZkXF7SHJqYBunC3pgP0bu_Cba1gmWztzPMaquMb8GrUPtu353cL_nz7-vvqe3Pz8_rH1ZebxrRMlKZlxra4Z1yMI9KMW4HqP6GC8oH0HEveyUEPAg2jNL0wkkkhmWV86AjteUe34NPJd1n72Q7GhpK0V0tys04HFbVT_3aCm9Rt3CuOEGP1ilvw4WyQ4v1qc1Gzy8Z6r4ONa1YEMcoxwy2uaHdCTYo5Jzs-j8FIHTNTT5mpY2bqnFnVvf97x2fVU0gV-HwCXKgXn_VDTH5QRR98TGPSwbis6P9nPALp56kb</addsrcrecordid><sourcetype>Open Access Repository</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2063716141</pqid></control><display><type>article</type><title>Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community</title><source>MEDLINE</source><source>EZB-FREE-00999 freely available EZB journals</source><source>PubMed Central</source><source>Alma/SFX Local Collection</source><creator>Ronca, Elias ; Scheel-Sailer, Anke ; Koch, Hans Georg ; Essig, Stefan ; Brach, Mirjam ; Münzel, Nadja ; Gemperli, Armin</creator><creatorcontrib>Ronca, Elias ; Scheel-Sailer, Anke ; Koch, Hans Georg ; Essig, Stefan ; Brach, Mirjam ; Münzel, Nadja ; Gemperli, Armin ; SwiSCI Study Group ; SwiSCI Study Group</creatorcontrib><description>Objective: To identify barriers to access healthcare services and reveal determinants of satisfaction with healthcare services in people with chronic spinal cord injury (SCI).
Design: Cross-sectional survey.
Setting: Community setting in Switzerland.
Participants: People with chronic SCI.
Interventions: Non-applicable.
Outcome Measures: Questionnaire-based evaluation of availability and quality of healthcare services for secondary health conditions, satisfaction with fulfillment of healthcare needs, and preference for care from a hypothetical service provider with limited specialized SCI care expertise but in close proximity over comprehensive care from an existing specialized SCI center located at a greater distance.
Results: Close to three-quarter of participants (70%) indicated satisfaction with healthcare services received for SCI related health conditions. Elderly individuals (61+ years old) rated the availability and quality of healthcare 6% to 11% higher than younger individuals. The perceived fulfillment of healthcare needs was lower in people with incomplete paraplegia (odds ratio (OR) 2.11, 95%-credibility interval (CI) 1.18-3.84), chronic pain (OR 1.85, CI 1.12-3.08), insufficient access to long distance transportation (OR 5.81, CI 2.74-12.82), and longer travel distances to specialized SCI centers.
Conclusion: Perceived inadequateness of access to healthcare services was partly related to transportation barriers, suggesting that outreach services or support with transportation are possible solutions. People with incomplete paralysis and pain consistently rated the fulfillment of care needs associated with SCI less favorably, pointing to the need for enhanced advocacy for this vulnerable groups.</description><identifier>ISSN: 1079-0268</identifier><identifier>EISSN: 2045-7723</identifier><identifier>DOI: 10.1080/10790268.2018.1486623</identifier><identifier>PMID: 29965779</identifier><language>eng</language><publisher>England: Taylor & Francis</publisher><subject>Age Factors ; Cross-Sectional Studies ; Female ; Health Services Accessibility - statistics & numerical data ; Healthcare availability ; Healthcare quality ; Humans ; Independent Living ; Male ; Middle Aged ; Pain ; Patient satisfaction ; Personal Satisfaction ; Quality of Health Care - statistics & numerical data ; Spatial analysis ; Spinal Cord Injuries - rehabilitation ; Spinal cord injury ; Surveys and Questionnaires ; Switzerland ; Transportation</subject><ispartof>The journal of spinal cord medicine, 2020-01, Vol.43 (1), p.111-121</ispartof><rights>The Academy of Spinal Cord Injury Professionals, Inc. 2018 2018</rights><rights>The Academy of Spinal Cord Injury Professionals, Inc. 2018 2018 The Academy of Spinal Cord Injury Professionals, Inc.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c468t-46ce41b678ff0a67e8046823837d2b719759dad80df9cb8c969896e67d523b753</citedby><cites>FETCH-LOGICAL-c468t-46ce41b678ff0a67e8046823837d2b719759dad80df9cb8c969896e67d523b753</cites><orcidid>0000-0003-3820-6664 ; 0000-0001-9345-9002 ; 0000-0003-3228-7010 ; 0000-0003-3790-7039 ; 0000-0002-2363-0625</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7006672/pdf/$$EPDF$$P50$$Gpubmedcentral$$H</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC7006672/$$EHTML$$P50$$Gpubmedcentral$$H</linktohtml><link.rule.ids>230,314,727,780,784,885,27924,27925,53791,53793</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/29965779$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ronca, Elias</creatorcontrib><creatorcontrib>Scheel-Sailer, Anke</creatorcontrib><creatorcontrib>Koch, Hans Georg</creatorcontrib><creatorcontrib>Essig, Stefan</creatorcontrib><creatorcontrib>Brach, Mirjam</creatorcontrib><creatorcontrib>Münzel, Nadja</creatorcontrib><creatorcontrib>Gemperli, Armin</creatorcontrib><creatorcontrib>SwiSCI Study Group</creatorcontrib><creatorcontrib>SwiSCI Study Group</creatorcontrib><title>Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community</title><title>The journal of spinal cord medicine</title><addtitle>J Spinal Cord Med</addtitle><description>Objective: To identify barriers to access healthcare services and reveal determinants of satisfaction with healthcare services in people with chronic spinal cord injury (SCI).
Design: Cross-sectional survey.
Setting: Community setting in Switzerland.
Participants: People with chronic SCI.
Interventions: Non-applicable.
Outcome Measures: Questionnaire-based evaluation of availability and quality of healthcare services for secondary health conditions, satisfaction with fulfillment of healthcare needs, and preference for care from a hypothetical service provider with limited specialized SCI care expertise but in close proximity over comprehensive care from an existing specialized SCI center located at a greater distance.
Results: Close to three-quarter of participants (70%) indicated satisfaction with healthcare services received for SCI related health conditions. Elderly individuals (61+ years old) rated the availability and quality of healthcare 6% to 11% higher than younger individuals. The perceived fulfillment of healthcare needs was lower in people with incomplete paraplegia (odds ratio (OR) 2.11, 95%-credibility interval (CI) 1.18-3.84), chronic pain (OR 1.85, CI 1.12-3.08), insufficient access to long distance transportation (OR 5.81, CI 2.74-12.82), and longer travel distances to specialized SCI centers.
Conclusion: Perceived inadequateness of access to healthcare services was partly related to transportation barriers, suggesting that outreach services or support with transportation are possible solutions. People with incomplete paralysis and pain consistently rated the fulfillment of care needs associated with SCI less favorably, pointing to the need for enhanced advocacy for this vulnerable groups.</description><subject>Age Factors</subject><subject>Cross-Sectional Studies</subject><subject>Female</subject><subject>Health Services Accessibility - statistics & numerical data</subject><subject>Healthcare availability</subject><subject>Healthcare quality</subject><subject>Humans</subject><subject>Independent Living</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Pain</subject><subject>Patient satisfaction</subject><subject>Personal Satisfaction</subject><subject>Quality of Health Care - statistics & numerical data</subject><subject>Spatial analysis</subject><subject>Spinal Cord Injuries - rehabilitation</subject><subject>Spinal cord injury</subject><subject>Surveys and Questionnaires</subject><subject>Switzerland</subject><subject>Transportation</subject><issn>1079-0268</issn><issn>2045-7723</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kUtv1DAUhS0EotOBnwDykk0GPxI_NghUQUGqxAJYW47jNK4cO7Wdqebf16OZVrBhZV3f75x7dQ8A7zDaYSTQR4y4RISJHUFY7HArGCP0BdgQ1HYN54S-BJsj0xyhC3CZ8x1CnZSUvgYXRErWcS43YP9LF5dHbYqLAT64MkFtjM0Z6jDA-1V7Vw4wjnCy2pfJ6GRhtmnvKgPHmOBi4-LtSZkXF7SHJqYBunC3pgP0bu_Cba1gmWztzPMaquMb8GrUPtu353cL_nz7-vvqe3Pz8_rH1ZebxrRMlKZlxra4Z1yMI9KMW4HqP6GC8oH0HEveyUEPAg2jNL0wkkkhmWV86AjteUe34NPJd1n72Q7GhpK0V0tys04HFbVT_3aCm9Rt3CuOEGP1ilvw4WyQ4v1qc1Gzy8Z6r4ONa1YEMcoxwy2uaHdCTYo5Jzs-j8FIHTNTT5mpY2bqnFnVvf97x2fVU0gV-HwCXKgXn_VDTH5QRR98TGPSwbis6P9nPALp56kb</recordid><startdate>20200102</startdate><enddate>20200102</enddate><creator>Ronca, Elias</creator><creator>Scheel-Sailer, Anke</creator><creator>Koch, Hans Georg</creator><creator>Essig, Stefan</creator><creator>Brach, Mirjam</creator><creator>Münzel, Nadja</creator><creator>Gemperli, Armin</creator><general>Taylor & Francis</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>5PM</scope><orcidid>https://orcid.org/0000-0003-3820-6664</orcidid><orcidid>https://orcid.org/0000-0001-9345-9002</orcidid><orcidid>https://orcid.org/0000-0003-3228-7010</orcidid><orcidid>https://orcid.org/0000-0003-3790-7039</orcidid><orcidid>https://orcid.org/0000-0002-2363-0625</orcidid></search><sort><creationdate>20200102</creationdate><title>Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community</title><author>Ronca, Elias ; Scheel-Sailer, Anke ; Koch, Hans Georg ; Essig, Stefan ; Brach, Mirjam ; Münzel, Nadja ; Gemperli, Armin</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c468t-46ce41b678ff0a67e8046823837d2b719759dad80df9cb8c969896e67d523b753</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Age Factors</topic><topic>Cross-Sectional Studies</topic><topic>Female</topic><topic>Health Services Accessibility - statistics & numerical data</topic><topic>Healthcare availability</topic><topic>Healthcare quality</topic><topic>Humans</topic><topic>Independent Living</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Pain</topic><topic>Patient satisfaction</topic><topic>Personal Satisfaction</topic><topic>Quality of Health Care - statistics & numerical data</topic><topic>Spatial analysis</topic><topic>Spinal Cord Injuries - rehabilitation</topic><topic>Spinal cord injury</topic><topic>Surveys and Questionnaires</topic><topic>Switzerland</topic><topic>Transportation</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ronca, Elias</creatorcontrib><creatorcontrib>Scheel-Sailer, Anke</creatorcontrib><creatorcontrib>Koch, Hans Georg</creatorcontrib><creatorcontrib>Essig, Stefan</creatorcontrib><creatorcontrib>Brach, Mirjam</creatorcontrib><creatorcontrib>Münzel, Nadja</creatorcontrib><creatorcontrib>Gemperli, Armin</creatorcontrib><creatorcontrib>SwiSCI Study Group</creatorcontrib><creatorcontrib>SwiSCI Study Group</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>The journal of spinal cord medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ronca, Elias</au><au>Scheel-Sailer, Anke</au><au>Koch, Hans Georg</au><au>Essig, Stefan</au><au>Brach, Mirjam</au><au>Münzel, Nadja</au><au>Gemperli, Armin</au><aucorp>SwiSCI Study Group</aucorp><aucorp>SwiSCI Study Group</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community</atitle><jtitle>The journal of spinal cord medicine</jtitle><addtitle>J Spinal Cord Med</addtitle><date>2020-01-02</date><risdate>2020</risdate><volume>43</volume><issue>1</issue><spage>111</spage><epage>121</epage><pages>111-121</pages><issn>1079-0268</issn><eissn>2045-7723</eissn><abstract>Objective: To identify barriers to access healthcare services and reveal determinants of satisfaction with healthcare services in people with chronic spinal cord injury (SCI).
Design: Cross-sectional survey.
Setting: Community setting in Switzerland.
Participants: People with chronic SCI.
Interventions: Non-applicable.
Outcome Measures: Questionnaire-based evaluation of availability and quality of healthcare services for secondary health conditions, satisfaction with fulfillment of healthcare needs, and preference for care from a hypothetical service provider with limited specialized SCI care expertise but in close proximity over comprehensive care from an existing specialized SCI center located at a greater distance.
Results: Close to three-quarter of participants (70%) indicated satisfaction with healthcare services received for SCI related health conditions. Elderly individuals (61+ years old) rated the availability and quality of healthcare 6% to 11% higher than younger individuals. The perceived fulfillment of healthcare needs was lower in people with incomplete paraplegia (odds ratio (OR) 2.11, 95%-credibility interval (CI) 1.18-3.84), chronic pain (OR 1.85, CI 1.12-3.08), insufficient access to long distance transportation (OR 5.81, CI 2.74-12.82), and longer travel distances to specialized SCI centers.
Conclusion: Perceived inadequateness of access to healthcare services was partly related to transportation barriers, suggesting that outreach services or support with transportation are possible solutions. People with incomplete paralysis and pain consistently rated the fulfillment of care needs associated with SCI less favorably, pointing to the need for enhanced advocacy for this vulnerable groups.</abstract><cop>England</cop><pub>Taylor & Francis</pub><pmid>29965779</pmid><doi>10.1080/10790268.2018.1486623</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0003-3820-6664</orcidid><orcidid>https://orcid.org/0000-0001-9345-9002</orcidid><orcidid>https://orcid.org/0000-0003-3228-7010</orcidid><orcidid>https://orcid.org/0000-0003-3790-7039</orcidid><orcidid>https://orcid.org/0000-0002-2363-0625</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | The journal of spinal cord medicine, 2020-01, Vol.43 (1), p.111-121 |
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| source | MEDLINE; EZB-FREE-00999 freely available EZB journals; PubMed Central; Alma/SFX Local Collection |
| subjects | Age Factors Cross-Sectional Studies Female Health Services Accessibility - statistics & numerical data Healthcare availability Healthcare quality Humans Independent Living Male Middle Aged Pain Patient satisfaction Personal Satisfaction Quality of Health Care - statistics & numerical data Spatial analysis Spinal Cord Injuries - rehabilitation Spinal cord injury Surveys and Questionnaires Switzerland Transportation |
| title | Satisfaction with access and quality of healthcare services for people with spinal cord injury living in the community |
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