Place of death and palliative care following discharge from paediatric intensive care units
Objective To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. Design National cohort of PICU admissions linked to Office of National Statistics death certificate data. Set...
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| Veröffentlicht in: | Archives of disease in childhood 2011-12, Vol.96 (12), p.1195-1198 |
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| creator | Fraser, Lorna K Miller, Michael Draper, Elizabeth S McKinney, Patricia A Parslow, Roger C |
| description | Objective To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. Design National cohort of PICU admissions linked to Office of National Statistics death certificate data. Setting 31 PICUs in Great Britain. Participants A cohort of 35 383 children admitted to PICUs between 1 November 2002 until 25 January 2007. Main Outcome Measures Place of death by palliative care discharge status. Results 2346 (6.6%) deaths occurred after discharge during the study period, which is more than 10 times the normal child population mortality of 6.0 per 1000. Discharge to palliative care resulted in fewer deaths in hospital (44.1%) (compared to non-palliative care discharges (77.7%)), a greater proportion of deaths were at home (33.3% compared to non-palliative discharges 16.1%) and in a hospice (22.5% compared to non-palliative discharges 5.8%). Conclusions Children referred to palliative care services at discharge from PICU are more likely to die in the community (home or hospice) than children not referred to palliative care. |
| doi_str_mv | 10.1136/adc.2009.178269 |
| format | Article |
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Design National cohort of PICU admissions linked to Office of National Statistics death certificate data. Setting 31 PICUs in Great Britain. Participants A cohort of 35 383 children admitted to PICUs between 1 November 2002 until 25 January 2007. Main Outcome Measures Place of death by palliative care discharge status. Results 2346 (6.6%) deaths occurred after discharge during the study period, which is more than 10 times the normal child population mortality of 6.0 per 1000. Discharge to palliative care resulted in fewer deaths in hospital (44.1%) (compared to non-palliative care discharges (77.7%)), a greater proportion of deaths were at home (33.3% compared to non-palliative discharges 16.1%) and in a hospice (22.5% compared to non-palliative discharges 5.8%). Conclusions Children referred to palliative care services at discharge from PICU are more likely to die in the community (home or hospice) than children not referred to palliative care.</description><identifier>ISSN: 0003-9888</identifier><identifier>EISSN: 1468-2044</identifier><identifier>DOI: 10.1136/adc.2009.178269</identifier><identifier>PMID: 20605865</identifier><identifier>CODEN: ADCHAK</identifier><language>eng</language><publisher>London: BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health</publisher><subject><![CDATA[Adolescent ; Age ; Biological and medical sciences ; Child ; Child Mortality ; Child, Preschool ; Children & youth ; Cohort Studies ; Company business management ; Death & dying ; Ethics ; Ethnicity ; Evidence ; Families & family life ; Female ; General aspects ; Home Care Services - statistics & numerical data ; Hospice care ; Hospice Care - statistics & numerical data ; Hospices (Terminal Care) ; Hospitalization - statistics & numerical data ; Hospitals ; Humans ; Infant ; Infant, Newborn ; Intensive care ; Intensive care units ; Intensive Care Units, Pediatric - statistics & numerical data ; Male ; Management ; Medical sciences ; Methods ; Miscellaneous ; Mortality ; Outcome Measures ; Palliative care ; Palliative Care - statistics & numerical data ; Palliative treatment ; Parents ; Patient Discharge - statistics & numerical data ; Prevention and actions ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Quality ; Referral and Consultation - statistics & numerical data ; Statistical Analysis ; Statistical Significance ; Studies ; Sudden infant death syndrome ; United Kingdom - epidemiology ; Variables]]></subject><ispartof>Archives of disease in childhood, 2011-12, Vol.96 (12), p.1195-1198</ispartof><rights>Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</rights><rights>2015 INIST-CNRS</rights><rights>Copyright: 2011 Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b497t-71e581ad6a99ff9b7ba6f1a5c6c506741cf7d19ce8be3a9370a9cbfe14ec30b23</citedby></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttp://adc.bmj.com/content/96/12/1195.full.pdf$$EPDF$$P50$$Gbmj$$H</linktopdf><linktohtml>$$Uhttp://adc.bmj.com/content/96/12/1195.full$$EHTML$$P50$$Gbmj$$H</linktohtml><link.rule.ids>114,115,314,776,780,3183,23550,27901,27902,77569,77600</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=24770737$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/20605865$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Fraser, Lorna K</creatorcontrib><creatorcontrib>Miller, Michael</creatorcontrib><creatorcontrib>Draper, Elizabeth S</creatorcontrib><creatorcontrib>McKinney, Patricia A</creatorcontrib><creatorcontrib>Parslow, Roger C</creatorcontrib><creatorcontrib>Paediatric Intensive Care Audit Network</creatorcontrib><creatorcontrib>on behalf of the Paediatric Intensive Care Audit Network</creatorcontrib><title>Place of death and palliative care following discharge from paediatric intensive care units</title><title>Archives of disease in childhood</title><addtitle>Arch Dis Child</addtitle><description>Objective To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. Design National cohort of PICU admissions linked to Office of National Statistics death certificate data. Setting 31 PICUs in Great Britain. Participants A cohort of 35 383 children admitted to PICUs between 1 November 2002 until 25 January 2007. Main Outcome Measures Place of death by palliative care discharge status. Results 2346 (6.6%) deaths occurred after discharge during the study period, which is more than 10 times the normal child population mortality of 6.0 per 1000. Discharge to palliative care resulted in fewer deaths in hospital (44.1%) (compared to non-palliative care discharges (77.7%)), a greater proportion of deaths were at home (33.3% compared to non-palliative discharges 16.1%) and in a hospice (22.5% compared to non-palliative discharges 5.8%). Conclusions Children referred to palliative care services at discharge from PICU are more likely to die in the community (home or hospice) than children not referred to palliative care.</description><subject>Adolescent</subject><subject>Age</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Child Mortality</subject><subject>Child, Preschool</subject><subject>Children & youth</subject><subject>Cohort Studies</subject><subject>Company business management</subject><subject>Death & dying</subject><subject>Ethics</subject><subject>Ethnicity</subject><subject>Evidence</subject><subject>Families & family life</subject><subject>Female</subject><subject>General aspects</subject><subject>Home Care Services - statistics & numerical data</subject><subject>Hospice care</subject><subject>Hospice Care - statistics & numerical data</subject><subject>Hospices (Terminal Care)</subject><subject>Hospitalization - statistics & numerical data</subject><subject>Hospitals</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Newborn</subject><subject>Intensive care</subject><subject>Intensive care units</subject><subject>Intensive Care Units, Pediatric - statistics & numerical data</subject><subject>Male</subject><subject>Management</subject><subject>Medical sciences</subject><subject>Methods</subject><subject>Miscellaneous</subject><subject>Mortality</subject><subject>Outcome Measures</subject><subject>Palliative care</subject><subject>Palliative Care - statistics & numerical data</subject><subject>Palliative treatment</subject><subject>Parents</subject><subject>Patient Discharge - statistics & numerical data</subject><subject>Prevention and actions</subject><subject>Public health. Hygiene</subject><subject>Public health. Hygiene-occupational medicine</subject><subject>Quality</subject><subject>Referral and Consultation - statistics & numerical data</subject><subject>Statistical Analysis</subject><subject>Statistical Significance</subject><subject>Studies</subject><subject>Sudden infant death syndrome</subject><subject>United Kingdom - epidemiology</subject><subject>Variables</subject><issn>0003-9888</issn><issn>1468-2044</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNqF0c1rFDEYBvAgil2rZ28yICIIs83X5ONYBq1CsQrai4fwTibZZs3OrMmMH_-9KbNuwUtPgeSX8OR9EHpO8JoQJs6gt2uKsV4TqajQD9CKcKFqijl_iFYYY1ZrpdQJepLzFmNClWKP0QnFAjdKNCv07VME66rRV72D6aaCoa_2EGOAKfx0lYXkKj_GOP4Kw6bqQ7Y3kDZlL427Al1fYAq2CsPkhny8Mg9hyk_RIw8xu2eH9RR9fff2S_u-vry6-NCeX9Yd13KqJXGNItAL0Np73ckOhCfQWGEbLCQn1sueaOtU5xhoJjFo23lHuLMMd5SdotfLu_s0_phdnsyu5HQxwuDGORstmKaNVOR-SSjBihNc5Mv_5Hac01C-YYgqU8QSS11UvagNRGfCYMcyht-TLQNzG2fKL9src04V4aQRXBR_tnibxpyT82afwg7SH0OwuS3UlELNbaFmKbTceHHIMXc71x_9vwYLeHUAkC1En2CwId85LktSJu-ihlwiHs8hfTeinDfm43Vrrj9rilvWmovi3yy-223vTfkXAYDDiQ</recordid><startdate>20111201</startdate><enddate>20111201</enddate><creator>Fraser, Lorna K</creator><creator>Miller, Michael</creator><creator>Draper, Elizabeth S</creator><creator>McKinney, Patricia A</creator><creator>Parslow, Roger C</creator><general>BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health</general><general>BMJ Publishing Group</general><general>BMJ Publishing Group Ltd</general><general>BMJ Publishing Group LTD</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88B</scope><scope>88E</scope><scope>88I</scope><scope>8A4</scope><scope>8AF</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>BTHHO</scope><scope>CCPQU</scope><scope>CJNVE</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>K9-</scope><scope>K9.</scope><scope>LK8</scope><scope>M0P</scope><scope>M0R</scope><scope>M0S</scope><scope>M1P</scope><scope>M2P</scope><scope>M7P</scope><scope>PQEDU</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>Q9U</scope><scope>7X8</scope></search><sort><creationdate>20111201</creationdate><title>Place of death and palliative care following discharge from paediatric intensive care units</title><author>Fraser, Lorna K ; Miller, Michael ; Draper, Elizabeth S ; McKinney, Patricia A ; Parslow, Roger C</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-b497t-71e581ad6a99ff9b7ba6f1a5c6c506741cf7d19ce8be3a9370a9cbfe14ec30b23</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Adolescent</topic><topic>Age</topic><topic>Biological and medical sciences</topic><topic>Child</topic><topic>Child Mortality</topic><topic>Child, Preschool</topic><topic>Children & youth</topic><topic>Cohort Studies</topic><topic>Company business management</topic><topic>Death & dying</topic><topic>Ethics</topic><topic>Ethnicity</topic><topic>Evidence</topic><topic>Families & family life</topic><topic>Female</topic><topic>General aspects</topic><topic>Home Care Services - statistics & numerical data</topic><topic>Hospice care</topic><topic>Hospice Care - statistics & numerical data</topic><topic>Hospices (Terminal Care)</topic><topic>Hospitalization - statistics & numerical data</topic><topic>Hospitals</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Newborn</topic><topic>Intensive care</topic><topic>Intensive care units</topic><topic>Intensive Care Units, Pediatric - statistics & numerical data</topic><topic>Male</topic><topic>Management</topic><topic>Medical sciences</topic><topic>Methods</topic><topic>Miscellaneous</topic><topic>Mortality</topic><topic>Outcome Measures</topic><topic>Palliative care</topic><topic>Palliative Care - statistics & numerical data</topic><topic>Palliative treatment</topic><topic>Parents</topic><topic>Patient Discharge - statistics & numerical data</topic><topic>Prevention and actions</topic><topic>Public health. 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Hygiene-occupational medicine</topic><topic>Quality</topic><topic>Referral and Consultation - statistics & numerical data</topic><topic>Statistical Analysis</topic><topic>Statistical Significance</topic><topic>Studies</topic><topic>Sudden infant death syndrome</topic><topic>United Kingdom - epidemiology</topic><topic>Variables</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Fraser, Lorna K</creatorcontrib><creatorcontrib>Miller, Michael</creatorcontrib><creatorcontrib>Draper, Elizabeth S</creatorcontrib><creatorcontrib>McKinney, Patricia A</creatorcontrib><creatorcontrib>Parslow, Roger C</creatorcontrib><creatorcontrib>Paediatric Intensive Care Audit Network</creatorcontrib><creatorcontrib>on behalf of the Paediatric Intensive Care Audit Network</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Education Database (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Science Database (Alumni Edition)</collection><collection>Education Periodicals</collection><collection>STEM Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>British Nursing Database</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>BMJ Journals</collection><collection>ProQuest One Community College</collection><collection>Education Collection</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>SciTech Premium Collection</collection><collection>Consumer Health Database (Alumni Edition)</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>ProQuest Biological Science Collection</collection><collection>Education Database</collection><collection>Consumer Health Database</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Science Database</collection><collection>Biological Science Database</collection><collection>ProQuest One Education</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>Archives of disease in childhood</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Fraser, Lorna K</au><au>Miller, Michael</au><au>Draper, Elizabeth S</au><au>McKinney, Patricia A</au><au>Parslow, Roger C</au><aucorp>Paediatric Intensive Care Audit Network</aucorp><aucorp>on behalf of the Paediatric Intensive Care Audit Network</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Place of death and palliative care following discharge from paediatric intensive care units</atitle><jtitle>Archives of disease in childhood</jtitle><addtitle>Arch Dis Child</addtitle><date>2011-12-01</date><risdate>2011</risdate><volume>96</volume><issue>12</issue><spage>1195</spage><epage>1198</epage><pages>1195-1198</pages><issn>0003-9888</issn><eissn>1468-2044</eissn><coden>ADCHAK</coden><abstract>Objective To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. Design National cohort of PICU admissions linked to Office of National Statistics death certificate data. Setting 31 PICUs in Great Britain. Participants A cohort of 35 383 children admitted to PICUs between 1 November 2002 until 25 January 2007. Main Outcome Measures Place of death by palliative care discharge status. Results 2346 (6.6%) deaths occurred after discharge during the study period, which is more than 10 times the normal child population mortality of 6.0 per 1000. Discharge to palliative care resulted in fewer deaths in hospital (44.1%) (compared to non-palliative care discharges (77.7%)), a greater proportion of deaths were at home (33.3% compared to non-palliative discharges 16.1%) and in a hospice (22.5% compared to non-palliative discharges 5.8%). Conclusions Children referred to palliative care services at discharge from PICU are more likely to die in the community (home or hospice) than children not referred to palliative care.</abstract><cop>London</cop><pub>BMJ Publishing Group Ltd and Royal College of Paediatrics and Child Health</pub><pmid>20605865</pmid><doi>10.1136/adc.2009.178269</doi><tpages>4</tpages></addata></record> |
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| source | MEDLINE; BMJ Journals - NESLi2 |
| subjects | Adolescent Age Biological and medical sciences Child Child Mortality Child, Preschool Children & youth Cohort Studies Company business management Death & dying Ethics Ethnicity Evidence Families & family life Female General aspects Home Care Services - statistics & numerical data Hospice care Hospice Care - statistics & numerical data Hospices (Terminal Care) Hospitalization - statistics & numerical data Hospitals Humans Infant Infant, Newborn Intensive care Intensive care units Intensive Care Units, Pediatric - statistics & numerical data Male Management Medical sciences Methods Miscellaneous Mortality Outcome Measures Palliative care Palliative Care - statistics & numerical data Palliative treatment Parents Patient Discharge - statistics & numerical data Prevention and actions Public health. Hygiene Public health. Hygiene-occupational medicine Quality Referral and Consultation - statistics & numerical data Statistical Analysis Statistical Significance Studies Sudden infant death syndrome United Kingdom - epidemiology Variables |
| title | Place of death and palliative care following discharge from paediatric intensive care units |
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