A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services
Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pha...
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| Veröffentlicht in: | Journal of genetic counseling 2012-02, Vol.21 (1), p.85-100 |
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| container_title | Journal of genetic counseling |
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| creator | Abad-Perotín, Reyes Asúnsolo-Del Barco, Ángel Silva-Mato, Agustín |
| description | Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pharmacists or biochemists. This counseling raises more and more ethical dilemmas for health professionals at their clinics. The purpose of this study was to analyze the characteristics of Spanish professionals devoted to providing genetic counseling services and to investigate the frequency of the ethical dilemmas they face. Results from 72 survey respondents revealed this counseling is provided by an almost even number of male and female professionals, mostly physicians with many years of professional experience. The overall frequency of the ethical dilemmas encountered was not high. The most frequent dilemmas corresponded to emotional responses by patients, informed consent, uncertainty about test results, and limitations on health-care resources. The frequency of dilemmas involving discrimination and provider directiveness was very low. Additional findings, practice implications, and research recommendations are presented. |
| doi_str_mv | 10.1007/s10897-011-9382-9 |
| format | Article |
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In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pharmacists or biochemists. This counseling raises more and more ethical dilemmas for health professionals at their clinics. The purpose of this study was to analyze the characteristics of Spanish professionals devoted to providing genetic counseling services and to investigate the frequency of the ethical dilemmas they face. Results from 72 survey respondents revealed this counseling is provided by an almost even number of male and female professionals, mostly physicians with many years of professional experience. The overall frequency of the ethical dilemmas encountered was not high. The most frequent dilemmas corresponded to emotional responses by patients, informed consent, uncertainty about test results, and limitations on health-care resources. The frequency of dilemmas involving discrimination and provider directiveness was very low. Additional findings, practice implications, and research recommendations are presented.</description><identifier>ISSN: 1059-7700</identifier><identifier>EISSN: 1573-3599</identifier><identifier>DOI: 10.1007/s10897-011-9382-9</identifier><identifier>PMID: 21701955</identifier><identifier>CODEN: JGCOET</identifier><language>eng</language><publisher>Boston: Springer US</publisher><subject>Adult ; Aged ; Attitude of Health Personnel ; Biomedical and Life Sciences ; Biomedicine ; Clinical Psychology ; Confidentiality ; Counselling ; Doctors ; Emotions ; Ethical and professional challenges ; Ethical dilemmas ; Ethics ; Ethics, Clinical ; Female ; Genetic counseling ; Genetic Counseling - ethics ; Genetic counselling ; Genetic screening ; Genetic Testing - ethics ; Gynecology ; Health care ; Health professionals ; Health services ; Human Genetics ; Humans ; Male ; Middle Aged ; Original Research ; Population Surveillance ; Practice Patterns, Physicians' - ethics ; Professional ethics ; Professional-Family Relations - ethics ; Professional-Patient Relations - ethics ; Public Health ; Social Support ; Social Values ; Spain ; Spanish health‐care providers ; Surveys and Questionnaires</subject><ispartof>Journal of genetic counseling, 2012-02, Vol.21 (1), p.85-100</ispartof><rights>National Society of Genetic Counselors, Inc. 2011</rights><rights>2012 National Society of Genetic Counselors, Inc.</rights><rights>National Society of Genetic Counselors, Inc. 2012</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5265-69a5c8028e693d8f46aaf1ed316067359d8172de8bd1f10e185b10e4a920ddfb3</citedby><cites>FETCH-LOGICAL-c5265-69a5c8028e693d8f46aaf1ed316067359d8172de8bd1f10e185b10e4a920ddfb3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10897-011-9382-9$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10897-011-9382-9$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>315,782,786,1419,12853,27931,27932,31006,31007,41495,42564,45581,45582,51326</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21701955$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Abad-Perotín, Reyes</creatorcontrib><creatorcontrib>Asúnsolo-Del Barco, Ángel</creatorcontrib><creatorcontrib>Silva-Mato, Agustín</creatorcontrib><title>A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services</title><title>Journal of genetic counseling</title><addtitle>J Genet Counsel</addtitle><addtitle>J Genet Couns</addtitle><description>Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pharmacists or biochemists. This counseling raises more and more ethical dilemmas for health professionals at their clinics. The purpose of this study was to analyze the characteristics of Spanish professionals devoted to providing genetic counseling services and to investigate the frequency of the ethical dilemmas they face. Results from 72 survey respondents revealed this counseling is provided by an almost even number of male and female professionals, mostly physicians with many years of professional experience. The overall frequency of the ethical dilemmas encountered was not high. The most frequent dilemmas corresponded to emotional responses by patients, informed consent, uncertainty about test results, and limitations on health-care resources. The frequency of dilemmas involving discrimination and provider directiveness was very low. Additional findings, practice implications, and research recommendations are presented.</description><subject>Adult</subject><subject>Aged</subject><subject>Attitude of Health Personnel</subject><subject>Biomedical and Life Sciences</subject><subject>Biomedicine</subject><subject>Clinical Psychology</subject><subject>Confidentiality</subject><subject>Counselling</subject><subject>Doctors</subject><subject>Emotions</subject><subject>Ethical and professional challenges</subject><subject>Ethical dilemmas</subject><subject>Ethics</subject><subject>Ethics, Clinical</subject><subject>Female</subject><subject>Genetic counseling</subject><subject>Genetic Counseling - ethics</subject><subject>Genetic counselling</subject><subject>Genetic screening</subject><subject>Genetic Testing - ethics</subject><subject>Gynecology</subject><subject>Health care</subject><subject>Health professionals</subject><subject>Health services</subject><subject>Human Genetics</subject><subject>Humans</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Original Research</subject><subject>Population Surveillance</subject><subject>Practice Patterns, Physicians' - ethics</subject><subject>Professional ethics</subject><subject>Professional-Family Relations - ethics</subject><subject>Professional-Patient Relations - ethics</subject><subject>Public Health</subject><subject>Social Support</subject><subject>Social Values</subject><subject>Spain</subject><subject>Spanish health‐care providers</subject><subject>Surveys and Questionnaires</subject><issn>1059-7700</issn><issn>1573-3599</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNqFksFu1DAQhi0EomXhAbggiwtcAjNJHNvHKlq2oEogLZwjJ550XWWTxU627CPw1jhKAYEEvXis0ff_mvFvxp4jvEEA-TYgKC0TQEx0ptJEP2DnKGSWZELrh_EOQidSApyxJyHcAIBWAh-zsxQloBbinH2_4NvJH-nEh5avx51rTMdNb_knP7QUghv62Ch3puuov6bA198O5B31DVlen_j2YHoXdvySTDfuktJ4-kMa-Lgz49w6Okt8Qz2NruHlMPWBOtdf8y35o2soPGWP2sjTs7u6Yl_erT-Xl8nVx8378uIqaURaiKTQRjQKUkWFzqxq88KYFslmWEAh4-JWoUwtqdpii0CoRB1LbnQK1rZ1tmKvFt-DH75OFMZq70JDXWd6GqZQaZEXIoXofi-JWotM5DP5-r8kAqpMChXPFXv5F3ozTH5-qdmvUEUqZYRwgRo_hOCprQ7e7Y0_Radqjr5aoq9i9NUcfTXP8OLOeKr3ZH8pfmYdAbkAt66j0_2O1YdNmQOoWZkuyhBF8Rf43zP_e54f207Jtg</recordid><startdate>201202</startdate><enddate>201202</enddate><creator>Abad-Perotín, Reyes</creator><creator>Asúnsolo-Del Barco, Ángel</creator><creator>Silva-Mato, Agustín</creator><general>Springer US</general><general>Blackwell Publishing Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8FD</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>HEHIP</scope><scope>K9.</scope><scope>KB0</scope><scope>LK8</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>M2S</scope><scope>M7P</scope><scope>NAPCQ</scope><scope>P64</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>RC3</scope><scope>7X8</scope></search><sort><creationdate>201202</creationdate><title>A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services</title><author>Abad-Perotín, Reyes ; Asúnsolo-Del Barco, Ángel ; Silva-Mato, Agustín</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5265-69a5c8028e693d8f46aaf1ed316067359d8172de8bd1f10e185b10e4a920ddfb3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Attitude of Health Personnel</topic><topic>Biomedical and Life Sciences</topic><topic>Biomedicine</topic><topic>Clinical Psychology</topic><topic>Confidentiality</topic><topic>Counselling</topic><topic>Doctors</topic><topic>Emotions</topic><topic>Ethical and professional challenges</topic><topic>Ethical dilemmas</topic><topic>Ethics</topic><topic>Ethics, Clinical</topic><topic>Female</topic><topic>Genetic counseling</topic><topic>Genetic Counseling - 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Academic</collection><jtitle>Journal of genetic counseling</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Abad-Perotín, Reyes</au><au>Asúnsolo-Del Barco, Ángel</au><au>Silva-Mato, Agustín</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services</atitle><jtitle>Journal of genetic counseling</jtitle><stitle>J Genet Counsel</stitle><addtitle>J Genet Couns</addtitle><date>2012-02</date><risdate>2012</risdate><volume>21</volume><issue>1</issue><spage>85</spage><epage>100</epage><pages>85-100</pages><issn>1059-7700</issn><eissn>1573-3599</eissn><coden>JGCOET</coden><abstract>Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pharmacists or biochemists. This counseling raises more and more ethical dilemmas for health professionals at their clinics. The purpose of this study was to analyze the characteristics of Spanish professionals devoted to providing genetic counseling services and to investigate the frequency of the ethical dilemmas they face. Results from 72 survey respondents revealed this counseling is provided by an almost even number of male and female professionals, mostly physicians with many years of professional experience. The overall frequency of the ethical dilemmas encountered was not high. The most frequent dilemmas corresponded to emotional responses by patients, informed consent, uncertainty about test results, and limitations on health-care resources. The frequency of dilemmas involving discrimination and provider directiveness was very low. Additional findings, practice implications, and research recommendations are presented.</abstract><cop>Boston</cop><pub>Springer US</pub><pmid>21701955</pmid><doi>10.1007/s10897-011-9382-9</doi><tpages>16</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | Journal of genetic counseling, 2012-02, Vol.21 (1), p.85-100 |
| issn | 1059-7700 1573-3599 |
| language | eng |
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| subjects | Adult Aged Attitude of Health Personnel Biomedical and Life Sciences Biomedicine Clinical Psychology Confidentiality Counselling Doctors Emotions Ethical and professional challenges Ethical dilemmas Ethics Ethics, Clinical Female Genetic counseling Genetic Counseling - ethics Genetic counselling Genetic screening Genetic Testing - ethics Gynecology Health care Health professionals Health services Human Genetics Humans Male Middle Aged Original Research Population Surveillance Practice Patterns, Physicians' - ethics Professional ethics Professional-Family Relations - ethics Professional-Patient Relations - ethics Public Health Social Support Social Values Spain Spanish health‐care providers Surveys and Questionnaires |
| title | A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services |
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