A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services

Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pha...

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Veröffentlicht in:Journal of genetic counseling 2012-02, Vol.21 (1), p.85-100
Hauptverfasser: Abad-Perotín, Reyes, Asúnsolo-Del Barco, Ángel, Silva-Mato, Agustín
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container_title Journal of genetic counseling
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creator Abad-Perotín, Reyes
Asúnsolo-Del Barco, Ángel
Silva-Mato, Agustín
description Genetic testing is increasingly applied for diagnosis and clinical treatment. In some countries, genetic counseling services are provided by professionals with specific training in this discipline, whereas other countries have no teaching programs and counseling is offered by physicians, nurses, pharmacists or biochemists. This counseling raises more and more ethical dilemmas for health professionals at their clinics. The purpose of this study was to analyze the characteristics of Spanish professionals devoted to providing genetic counseling services and to investigate the frequency of the ethical dilemmas they face. Results from 72 survey respondents revealed this counseling is provided by an almost even number of male and female professionals, mostly physicians with many years of professional experience. The overall frequency of the ethical dilemmas encountered was not high. The most frequent dilemmas corresponded to emotional responses by patients, informed consent, uncertainty about test results, and limitations on health-care resources. The frequency of dilemmas involving discrimination and provider directiveness was very low. Additional findings, practice implications, and research recommendations are presented.
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subjects Adult
Aged
Attitude of Health Personnel
Biomedical and Life Sciences
Biomedicine
Clinical Psychology
Confidentiality
Counselling
Doctors
Emotions
Ethical and professional challenges
Ethical dilemmas
Ethics
Ethics, Clinical
Female
Genetic counseling
Genetic Counseling - ethics
Genetic counselling
Genetic screening
Genetic Testing - ethics
Gynecology
Health care
Health professionals
Health services
Human Genetics
Humans
Male
Middle Aged
Original Research
Population Surveillance
Practice Patterns, Physicians' - ethics
Professional ethics
Professional-Family Relations - ethics
Professional-Patient Relations - ethics
Public Health
Social Support
Social Values
Spain
Spanish health‐care providers
Surveys and Questionnaires
title A Survey of Ethical and Professional Challenges Experienced by Spanish Health-Care Professionals that Provide Genetic Counseling Services
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