A qualitative study of families of a child with a nut allergy
Objectives: The aim of this study was to explore, using qualitative methods, the experiences of children and their parents living with nut allergy. Methods: Children with a confirmed diagnosis of peanut allergy were identified from a database of patients maintained at an allergy clinic at a large te...
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Veröffentlicht in: | Chronic illness 2011-12, Vol.7 (4), p.255-266 |
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creator | Pitchforth, Emma Weaver, Simon Willars, Janet Wawrzkowicz, Emilia Luyt, David Dixon-Woods, Mary |
description | Objectives: The aim of this study was to explore, using qualitative methods, the experiences of children and their parents living with nut allergy.
Methods: Children with a confirmed diagnosis of peanut allergy were identified from a database of patients maintained at an allergy clinic at a large teaching hospital. Interviews with 26 families were conducted involving 11 children, 25 mothers and 12 fathers.
Results: The diagnosis of nut allergy signalled a critical transition—or biographical disruption—in the life of the family. Parents took on the role of ‘alert assistant’ and sought to create ‘safe places’ where nuts were not permitted, but often struggled when outside the home environment. The option of ‘passing as normal’, often used by people with a chronic illness to avoid stigma, was not available to them. Consequently, parents often reported being treated as faddy, demanding, and neurotic, and children suffered from teasing and exclusion. The social consequences of nut allergy were worsened by poor labelling and control of foods and products containing nuts.
Discussion: In many ways, nut allergy may be considered a form of disability, because it imposes social barriers on participating fully in society. |
doi_str_mv | 10.1177/1742395311411591 |
format | Article |
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Methods: Children with a confirmed diagnosis of peanut allergy were identified from a database of patients maintained at an allergy clinic at a large teaching hospital. Interviews with 26 families were conducted involving 11 children, 25 mothers and 12 fathers.
Results: The diagnosis of nut allergy signalled a critical transition—or biographical disruption—in the life of the family. Parents took on the role of ‘alert assistant’ and sought to create ‘safe places’ where nuts were not permitted, but often struggled when outside the home environment. The option of ‘passing as normal’, often used by people with a chronic illness to avoid stigma, was not available to them. Consequently, parents often reported being treated as faddy, demanding, and neurotic, and children suffered from teasing and exclusion. The social consequences of nut allergy were worsened by poor labelling and control of foods and products containing nuts.
Discussion: In many ways, nut allergy may be considered a form of disability, because it imposes social barriers on participating fully in society.</description><identifier>ISSN: 1742-3953</identifier><identifier>EISSN: 1745-9206</identifier><identifier>DOI: 10.1177/1742395311411591</identifier><identifier>PMID: 21846662</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Allergies ; Child ; Child, Preschool ; Children ; Diagnosis ; Family ; Female ; Food Labeling ; Humans ; Interviews as Topic ; Labelling ; Male ; Nut Hypersensitivity - diagnosis ; Nut Hypersensitivity - physiopathology ; Nuts ; Parents ; Stereotyping ; United Kingdom</subject><ispartof>Chronic illness, 2011-12, Vol.7 (4), p.255-266</ispartof><rights>The Author(s) 2011 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c400t-f400e599651af47be8ed19e17167ff4e2a6ded6edfcfa68ea6dadf5c4001c86e3</citedby><cites>FETCH-LOGICAL-c400t-f400e599651af47be8ed19e17167ff4e2a6ded6edfcfa68ea6dadf5c4001c86e3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/1742395311411591$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/1742395311411591$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21798,27901,27902,30977,43597,43598</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21846662$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Pitchforth, Emma</creatorcontrib><creatorcontrib>Weaver, Simon</creatorcontrib><creatorcontrib>Willars, Janet</creatorcontrib><creatorcontrib>Wawrzkowicz, Emilia</creatorcontrib><creatorcontrib>Luyt, David</creatorcontrib><creatorcontrib>Dixon-Woods, Mary</creatorcontrib><title>A qualitative study of families of a child with a nut allergy</title><title>Chronic illness</title><addtitle>Chronic Illn</addtitle><description>Objectives: The aim of this study was to explore, using qualitative methods, the experiences of children and their parents living with nut allergy.
Methods: Children with a confirmed diagnosis of peanut allergy were identified from a database of patients maintained at an allergy clinic at a large teaching hospital. Interviews with 26 families were conducted involving 11 children, 25 mothers and 12 fathers.
Results: The diagnosis of nut allergy signalled a critical transition—or biographical disruption—in the life of the family. Parents took on the role of ‘alert assistant’ and sought to create ‘safe places’ where nuts were not permitted, but often struggled when outside the home environment. The option of ‘passing as normal’, often used by people with a chronic illness to avoid stigma, was not available to them. Consequently, parents often reported being treated as faddy, demanding, and neurotic, and children suffered from teasing and exclusion. The social consequences of nut allergy were worsened by poor labelling and control of foods and products containing nuts.
Discussion: In many ways, nut allergy may be considered a form of disability, because it imposes social barriers on participating fully in society.</description><subject>Allergies</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Children</subject><subject>Diagnosis</subject><subject>Family</subject><subject>Female</subject><subject>Food Labeling</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Labelling</subject><subject>Male</subject><subject>Nut Hypersensitivity - diagnosis</subject><subject>Nut Hypersensitivity - physiopathology</subject><subject>Nuts</subject><subject>Parents</subject><subject>Stereotyping</subject><subject>United Kingdom</subject><issn>1742-3953</issn><issn>1745-9206</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqFkbtPwzAQxi0EoqWwM6FsTAGf40cyMFQVL6kSC8yRG59bV07Txgmo_z1JWxiQUBffw7_v0-mOkGugdwBK3YPiLMlEAsABRAYnZNi1RJwxKk93OYv7_wG5CGFJKZeJUudkwCDlUko2JA_jaNNq7xrduE-MQtOabVTZyOrSeYehz3VULJw30ZdrFl2xaptIe4_1fHtJzqz2Aa8OcUQ-nh7fJy_x9O35dTKexgWntIlt96LIMilAW65mmKKBDEGBVNZyZFoaNBKNLayWKXalNlb0YihSicmI3O5913W1aTE0eelCgd7rFVZtyDMmFIeUseMkcJV1k6jjJFXARboj6Z4s6iqEGm2-rl2p620ONO_vkP-9Qye5OZi3sxLNr-Bn8R0Q74Gg55gvq7ZedQv83_AbP46OfQ</recordid><startdate>20111201</startdate><enddate>20111201</enddate><creator>Pitchforth, Emma</creator><creator>Weaver, Simon</creator><creator>Willars, Janet</creator><creator>Wawrzkowicz, Emilia</creator><creator>Luyt, David</creator><creator>Dixon-Woods, Mary</creator><general>SAGE Publications</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>7QJ</scope></search><sort><creationdate>20111201</creationdate><title>A qualitative study of families of a child with a nut allergy</title><author>Pitchforth, Emma ; Weaver, Simon ; Willars, Janet ; Wawrzkowicz, Emilia ; Luyt, David ; Dixon-Woods, Mary</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c400t-f400e599651af47be8ed19e17167ff4e2a6ded6edfcfa68ea6dadf5c4001c86e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Allergies</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Children</topic><topic>Diagnosis</topic><topic>Family</topic><topic>Female</topic><topic>Food Labeling</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Labelling</topic><topic>Male</topic><topic>Nut Hypersensitivity - diagnosis</topic><topic>Nut Hypersensitivity - physiopathology</topic><topic>Nuts</topic><topic>Parents</topic><topic>Stereotyping</topic><topic>United Kingdom</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Pitchforth, Emma</creatorcontrib><creatorcontrib>Weaver, Simon</creatorcontrib><creatorcontrib>Willars, Janet</creatorcontrib><creatorcontrib>Wawrzkowicz, Emilia</creatorcontrib><creatorcontrib>Luyt, David</creatorcontrib><creatorcontrib>Dixon-Woods, Mary</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><jtitle>Chronic illness</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Pitchforth, Emma</au><au>Weaver, Simon</au><au>Willars, Janet</au><au>Wawrzkowicz, Emilia</au><au>Luyt, David</au><au>Dixon-Woods, Mary</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A qualitative study of families of a child with a nut allergy</atitle><jtitle>Chronic illness</jtitle><addtitle>Chronic Illn</addtitle><date>2011-12-01</date><risdate>2011</risdate><volume>7</volume><issue>4</issue><spage>255</spage><epage>266</epage><pages>255-266</pages><issn>1742-3953</issn><eissn>1745-9206</eissn><abstract>Objectives: The aim of this study was to explore, using qualitative methods, the experiences of children and their parents living with nut allergy.
Methods: Children with a confirmed diagnosis of peanut allergy were identified from a database of patients maintained at an allergy clinic at a large teaching hospital. Interviews with 26 families were conducted involving 11 children, 25 mothers and 12 fathers.
Results: The diagnosis of nut allergy signalled a critical transition—or biographical disruption—in the life of the family. Parents took on the role of ‘alert assistant’ and sought to create ‘safe places’ where nuts were not permitted, but often struggled when outside the home environment. The option of ‘passing as normal’, often used by people with a chronic illness to avoid stigma, was not available to them. Consequently, parents often reported being treated as faddy, demanding, and neurotic, and children suffered from teasing and exclusion. The social consequences of nut allergy were worsened by poor labelling and control of foods and products containing nuts.
Discussion: In many ways, nut allergy may be considered a form of disability, because it imposes social barriers on participating fully in society.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>21846662</pmid><doi>10.1177/1742395311411591</doi><tpages>12</tpages></addata></record> |
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source | Applied Social Sciences Index & Abstracts (ASSIA); MEDLINE; SAGE Journals |
subjects | Allergies Child Child, Preschool Children Diagnosis Family Female Food Labeling Humans Interviews as Topic Labelling Male Nut Hypersensitivity - diagnosis Nut Hypersensitivity - physiopathology Nuts Parents Stereotyping United Kingdom |
title | A qualitative study of families of a child with a nut allergy |
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