Clarity and Appeal of a Multimedia Informed Consent Tool for Biobanking

Researchers report on the results of a formative evaluation study of a multimedia informed consent tool developed for a biobank. Formative evaluations are used to gather information to guide the development of a program. The used this approach to identify areas of the multimedia consent tool that ne...

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Veröffentlicht in:	IRB 2012-01, Vol.34 (1), p.9-19
Hauptverfasser:	McGraw, Sarah A., Wood-Nutter, Carol A., Solomon, Mildred Z., Maschke, Karen J., Bensen, Jeannette T., Irwin, Debra E., Benson, Jeannette T.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Attitude to Health Bioethics Biological specimen banks Biological Specimen Banks - ethics Biological Specimen Banks - organization & administration Biological Specimen Banks - standards Biomedical research Consent forms Female Genetic research Human Experimentation - ethics Human Experimentation - standards Human genetics Human influences Humans Informed consent Informed Consent - ethics Informed Consent - standards Institutional review boards Interviews as Topic Male Medical genetics Medical research Multimedia - ethics Multimedia - standards Multimedia materials Neoplasms - genetics Neoplasms - pathology North Carolina Patient confidentiality Research Subjects - psychology Survival Analysis
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