Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff
Purpose: Quality of Life (QoL) has become increasingly valued as a key outcome in dementia both in clinical practice and in research. This study compares the QoL of long-term residents with dementia as assessed by the individuals, their relatives, and their care staff. Design and Methods: Data on re...
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| Veröffentlicht in: | The Gerontologist 2012-02, Vol.52 (1), p.56-65 |
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| container_title | The Gerontologist |
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| creator | Crespo, Maria Bernaldo de Quirós, Mónica Gómez, M. Mar Hornillos, Carlos |
| description | Purpose:
Quality of Life (QoL) has become increasingly valued as a key outcome in dementia both in clinical practice and in research. This study compares the QoL of long-term residents with dementia as assessed by the individuals, their relatives, and their care staff.
Design and Methods:
Data on residents with dementia were collected in 11 nursing homes. The Quality of Life-Alzheimer's Disease Scale (QOL-AD) residential version was directly applied to residents with dementia diagnosis and Mini-Mental State Examination scores under 27, randomly selected in each canter. Residents' QoL was further assessed from the perspective of some close relative and of some staff member. Altogether, 102 data sets from residents, 184 from relatives, and 197 from staff members were collected.
Results:
The completion rate for the resident QOL-AD was 48.8%. Residents' QoL ratings were significantly higher than proxies' ratings. Proxy (i.e., family and staff) scores in the QOL-AD tended to correlate with each other and did not correlate with resident scores.
Implications:
Various sources of data provided different perspectives on resident's QoL. Each perspective is relatively independent and somewhat unique. In those patients with mild to moderate cognitive impairment, direct measures of QoL should be considered. |
| doi_str_mv | 10.1093/geront/gnr080 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_918034558</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><ericid>EJ954622</ericid><oup_id>10.1093/geront/gnr080</oup_id><sourcerecordid>1023027152</sourcerecordid><originalsourceid>FETCH-LOGICAL-c541t-d884f85d521170ec45d72657f6cbcee880c347a8dc3c0edda35b5434e23f164c3</originalsourceid><addsrcrecordid>eNqN0ktv1DAQAGALgehSOHJDyKqE4NBQv-Nwq5aWgla8EcfI64wXV0kc7ARp_z1eZVkQB8ppNPLnGT8GoYeUPKek4mcbiKEfzzZ9JJrcQgtaSl1ILuhttCCEqqIilB-heyldk5wzVt5FR4xWhCsqFmj6MJnWj1scHF55B7v4dorJ9xt8FTrAHyH5Bvox4a9-_IZfQpcTb17gc7wM3WCiT6Hf7XoPMQ1gR_8D0i4_bDzFl6bz7fYUm77Bn0bj3H10x5k2wYN9PEZfLi8-L6-K1btXr5fnq8JKQcei0Vo4LRvJKC0JWCGbkilZOmXXFkBrYrkojW4stwSaxnC5loILYNxRJSw_Rk_nukMM3ydIY935ZKFtTQ9hSnVFNeFCSp3ls39KKpQilaSC3EwJ44SVVLL_pKIUVaYnf9HrMMU-v05dMZK_em5dzMjGkFIEVw_RdyZuc6V6Nw71PA71PA7ZP94XndYdNAf96_8zeLIHJlnTumh669Nvp4jIzVV2j2YH0dvD8sWbSgrF_rhnmIYbjvQTjR_T6A</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>920109140</pqid></control><display><type>article</type><title>Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff</title><source>Oxford University Press Journals All Titles (1996-Current)</source><source>MEDLINE</source><source>Alma/SFX Local Collection</source><source>Sociological Abstracts</source><creator>Crespo, Maria ; Bernaldo de Quirós, Mónica ; Gómez, M. Mar ; Hornillos, Carlos</creator><creatorcontrib>Crespo, Maria ; Bernaldo de Quirós, Mónica ; Gómez, M. Mar ; Hornillos, Carlos</creatorcontrib><description>Purpose:
Quality of Life (QoL) has become increasingly valued as a key outcome in dementia both in clinical practice and in research. This study compares the QoL of long-term residents with dementia as assessed by the individuals, their relatives, and their care staff.
Design and Methods:
Data on residents with dementia were collected in 11 nursing homes. The Quality of Life-Alzheimer's Disease Scale (QOL-AD) residential version was directly applied to residents with dementia diagnosis and Mini-Mental State Examination scores under 27, randomly selected in each canter. Residents' QoL was further assessed from the perspective of some close relative and of some staff member. Altogether, 102 data sets from residents, 184 from relatives, and 197 from staff members were collected.
Results:
The completion rate for the resident QOL-AD was 48.8%. Residents' QoL ratings were significantly higher than proxies' ratings. Proxy (i.e., family and staff) scores in the QOL-AD tended to correlate with each other and did not correlate with resident scores.
Implications:
Various sources of data provided different perspectives on resident's QoL. Each perspective is relatively independent and somewhat unique. In those patients with mild to moderate cognitive impairment, direct measures of QoL should be considered.</description><identifier>ISSN: 0016-9013</identifier><identifier>EISSN: 1758-5341</identifier><identifier>DOI: 10.1093/geront/gnr080</identifier><identifier>PMID: 21903614</identifier><identifier>CODEN: GRNTA3</identifier><language>eng</language><publisher>Cary, NC: Oxford University Press</publisher><subject>Activities of Daily Living - psychology ; Adult ; Aged ; Aged, 80 and over ; Allied Health Personnel - psychology ; Alzheimers Disease ; Attitude Measures ; Biological and medical sciences ; Cognition ; Comparative Analysis ; Dementia ; Dementia - diagnosis ; Dementia - psychology ; Family ; Family - psychology ; Female ; Gerontology ; Health Professions ; Health Status ; Humans ; Male ; Medical sciences ; Middle Aged ; Miscellaneous ; Nursing Homes ; Older Adults ; Patients ; Physicians ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Quality of Health Care ; Quality of Life ; Rating Scales ; Senility ; Sickness Impact Profile ; Spain</subject><ispartof>The Gerontologist, 2012-02, Vol.52 (1), p.56-65</ispartof><rights>The Author 2011. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com. 2012</rights><rights>Copyright Oxford University Press, UK Feb 2012</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c541t-d884f85d521170ec45d72657f6cbcee880c347a8dc3c0edda35b5434e23f164c3</citedby><cites>FETCH-LOGICAL-c541t-d884f85d521170ec45d72657f6cbcee880c347a8dc3c0edda35b5434e23f164c3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,1578,27901,27902,33751,33752</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ954622$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=26042016$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21903614$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Crespo, Maria</creatorcontrib><creatorcontrib>Bernaldo de Quirós, Mónica</creatorcontrib><creatorcontrib>Gómez, M. Mar</creatorcontrib><creatorcontrib>Hornillos, Carlos</creatorcontrib><title>Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff</title><title>The Gerontologist</title><addtitle>Gerontologist</addtitle><description>Purpose:
Quality of Life (QoL) has become increasingly valued as a key outcome in dementia both in clinical practice and in research. This study compares the QoL of long-term residents with dementia as assessed by the individuals, their relatives, and their care staff.
Design and Methods:
Data on residents with dementia were collected in 11 nursing homes. The Quality of Life-Alzheimer's Disease Scale (QOL-AD) residential version was directly applied to residents with dementia diagnosis and Mini-Mental State Examination scores under 27, randomly selected in each canter. Residents' QoL was further assessed from the perspective of some close relative and of some staff member. Altogether, 102 data sets from residents, 184 from relatives, and 197 from staff members were collected.
Results:
The completion rate for the resident QOL-AD was 48.8%. Residents' QoL ratings were significantly higher than proxies' ratings. Proxy (i.e., family and staff) scores in the QOL-AD tended to correlate with each other and did not correlate with resident scores.
Implications:
Various sources of data provided different perspectives on resident's QoL. Each perspective is relatively independent and somewhat unique. In those patients with mild to moderate cognitive impairment, direct measures of QoL should be considered.</description><subject>Activities of Daily Living - psychology</subject><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Allied Health Personnel - psychology</subject><subject>Alzheimers Disease</subject><subject>Attitude Measures</subject><subject>Biological and medical sciences</subject><subject>Cognition</subject><subject>Comparative Analysis</subject><subject>Dementia</subject><subject>Dementia - diagnosis</subject><subject>Dementia - psychology</subject><subject>Family</subject><subject>Family - psychology</subject><subject>Female</subject><subject>Gerontology</subject><subject>Health Professions</subject><subject>Health Status</subject><subject>Humans</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Miscellaneous</subject><subject>Nursing Homes</subject><subject>Older Adults</subject><subject>Patients</subject><subject>Physicians</subject><subject>Public health. Hygiene</subject><subject>Public health. Hygiene-occupational medicine</subject><subject>Quality of Health Care</subject><subject>Quality of Life</subject><subject>Rating Scales</subject><subject>Senility</subject><subject>Sickness Impact Profile</subject><subject>Spain</subject><issn>0016-9013</issn><issn>1758-5341</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2012</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BHHNA</sourceid><recordid>eNqN0ktv1DAQAGALgehSOHJDyKqE4NBQv-Nwq5aWgla8EcfI64wXV0kc7ARp_z1eZVkQB8ppNPLnGT8GoYeUPKek4mcbiKEfzzZ9JJrcQgtaSl1ILuhttCCEqqIilB-heyldk5wzVt5FR4xWhCsqFmj6MJnWj1scHF55B7v4dorJ9xt8FTrAHyH5Bvox4a9-_IZfQpcTb17gc7wM3WCiT6Hf7XoPMQ1gR_8D0i4_bDzFl6bz7fYUm77Bn0bj3H10x5k2wYN9PEZfLi8-L6-K1btXr5fnq8JKQcei0Vo4LRvJKC0JWCGbkilZOmXXFkBrYrkojW4stwSaxnC5loILYNxRJSw_Rk_nukMM3ydIY935ZKFtTQ9hSnVFNeFCSp3ls39KKpQilaSC3EwJ44SVVLL_pKIUVaYnf9HrMMU-v05dMZK_em5dzMjGkFIEVw_RdyZuc6V6Nw71PA71PA7ZP94XndYdNAf96_8zeLIHJlnTumh669Nvp4jIzVV2j2YH0dvD8sWbSgrF_rhnmIYbjvQTjR_T6A</recordid><startdate>20120201</startdate><enddate>20120201</enddate><creator>Crespo, Maria</creator><creator>Bernaldo de Quirós, Mónica</creator><creator>Gómez, M. Mar</creator><creator>Hornillos, Carlos</creator><general>Oxford University Press</general><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7U3</scope><scope>7U4</scope><scope>ASE</scope><scope>BHHNA</scope><scope>DWI</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>WZK</scope><scope>7X8</scope></search><sort><creationdate>20120201</creationdate><title>Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff</title><author>Crespo, Maria ; Bernaldo de Quirós, Mónica ; Gómez, M. Mar ; Hornillos, Carlos</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c541t-d884f85d521170ec45d72657f6cbcee880c347a8dc3c0edda35b5434e23f164c3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2012</creationdate><topic>Activities of Daily Living - psychology</topic><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Allied Health Personnel - psychology</topic><topic>Alzheimers Disease</topic><topic>Attitude Measures</topic><topic>Biological and medical sciences</topic><topic>Cognition</topic><topic>Comparative Analysis</topic><topic>Dementia</topic><topic>Dementia - diagnosis</topic><topic>Dementia - psychology</topic><topic>Family</topic><topic>Family - psychology</topic><topic>Female</topic><topic>Gerontology</topic><topic>Health Professions</topic><topic>Health Status</topic><topic>Humans</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Miscellaneous</topic><topic>Nursing Homes</topic><topic>Older Adults</topic><topic>Patients</topic><topic>Physicians</topic><topic>Public health. Hygiene</topic><topic>Public health. Hygiene-occupational medicine</topic><topic>Quality of Health Care</topic><topic>Quality of Life</topic><topic>Rating Scales</topic><topic>Senility</topic><topic>Sickness Impact Profile</topic><topic>Spain</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Crespo, Maria</creatorcontrib><creatorcontrib>Bernaldo de Quirós, Mónica</creatorcontrib><creatorcontrib>Gómez, M. Mar</creatorcontrib><creatorcontrib>Hornillos, Carlos</creatorcontrib><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Social Services Abstracts</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>British Nursing Index</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><jtitle>The Gerontologist</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Crespo, Maria</au><au>Bernaldo de Quirós, Mónica</au><au>Gómez, M. Mar</au><au>Hornillos, Carlos</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ954622</ericid><atitle>Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff</atitle><jtitle>The Gerontologist</jtitle><addtitle>Gerontologist</addtitle><date>2012-02-01</date><risdate>2012</risdate><volume>52</volume><issue>1</issue><spage>56</spage><epage>65</epage><pages>56-65</pages><issn>0016-9013</issn><eissn>1758-5341</eissn><coden>GRNTA3</coden><abstract>Purpose:
Quality of Life (QoL) has become increasingly valued as a key outcome in dementia both in clinical practice and in research. This study compares the QoL of long-term residents with dementia as assessed by the individuals, their relatives, and their care staff.
Design and Methods:
Data on residents with dementia were collected in 11 nursing homes. The Quality of Life-Alzheimer's Disease Scale (QOL-AD) residential version was directly applied to residents with dementia diagnosis and Mini-Mental State Examination scores under 27, randomly selected in each canter. Residents' QoL was further assessed from the perspective of some close relative and of some staff member. Altogether, 102 data sets from residents, 184 from relatives, and 197 from staff members were collected.
Results:
The completion rate for the resident QOL-AD was 48.8%. Residents' QoL ratings were significantly higher than proxies' ratings. Proxy (i.e., family and staff) scores in the QOL-AD tended to correlate with each other and did not correlate with resident scores.
Implications:
Various sources of data provided different perspectives on resident's QoL. Each perspective is relatively independent and somewhat unique. In those patients with mild to moderate cognitive impairment, direct measures of QoL should be considered.</abstract><cop>Cary, NC</cop><pub>Oxford University Press</pub><pmid>21903614</pmid><doi>10.1093/geront/gnr080</doi><tpages>10</tpages><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0016-9013 |
| ispartof | The Gerontologist, 2012-02, Vol.52 (1), p.56-65 |
| issn | 0016-9013 1758-5341 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_918034558 |
| source | Oxford University Press Journals All Titles (1996-Current); MEDLINE; Alma/SFX Local Collection; Sociological Abstracts |
| subjects | Activities of Daily Living - psychology Adult Aged Aged, 80 and over Allied Health Personnel - psychology Alzheimers Disease Attitude Measures Biological and medical sciences Cognition Comparative Analysis Dementia Dementia - diagnosis Dementia - psychology Family Family - psychology Female Gerontology Health Professions Health Status Humans Male Medical sciences Middle Aged Miscellaneous Nursing Homes Older Adults Patients Physicians Public health. Hygiene Public health. Hygiene-occupational medicine Quality of Health Care Quality of Life Rating Scales Senility Sickness Impact Profile Spain |
| title | Quality of Life of Nursing Home Residents With Dementia: A Comparison of Perspectives of Residents, Family, and Staff |
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