In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness
Objective:This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness. Methods:A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban menta...
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Veröffentlicht in: | Psychiatric services (Washington, D.C.) D.C.), 2011-12, Vol.62 (12), p.1456-1462 |
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container_title | Psychiatric services (Washington, D.C.) |
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creator | Perlick, Deborah A Nelson, Ann H Mattias, Kate Selzer, James Kalvin, Carla Wilber, Charles H Huntington, Brittney Holman, Caroline S Corrigan, Patrick W |
description | Objective:This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness.
Methods:A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing.
Results:Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031).
Conclusions:Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire (Psychiatric Services 62:1456–1462, 2011) |
doi_str_mv | 10.1176/appi.ps.001222011 |
format | Article |
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Methods:A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing.
Results:Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031).
Conclusions:Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire (Psychiatric Services 62:1456–1462, 2011)</description><identifier>ISSN: 1075-2730</identifier><identifier>EISSN: 1557-9700</identifier><identifier>DOI: 10.1176/appi.ps.001222011</identifier><identifier>PMID: 22193793</identifier><language>eng</language><publisher>Arlington, VA: American Psychiatric Association</publisher><subject>Adaptation, Psychological ; Adult ; Anxiety ; Biological and medical sciences ; Caregivers - psychology ; Confidentiality - psychology ; Families & family life ; Family - psychology ; Family Health ; Female ; Health Education - methods ; Health Knowledge, Attitudes, Practice ; Humans ; Intention to Treat Analysis ; Linear Models ; Male ; Medical sciences ; Mental disorders ; Mental Disorders - psychology ; Middle Aged ; Peer Group ; Peers ; Program Evaluation ; Psychology. Psychoanalysis. Psychiatry ; Psychopathology. Psychiatry ; Questionnaires ; Self Concept ; Shame ; Social Isolation - psychology ; Social psychiatry. Ethnopsychiatry ; Social Stigma ; Treatment Outcome ; Urban Health Services ; Videotape Recording</subject><ispartof>Psychiatric services (Washington, D.C.), 2011-12, Vol.62 (12), p.1456-1462</ispartof><rights>Copyright © 2011 by the American Psychiatric Association. 2011</rights><rights>2015 INIST-CNRS</rights><rights>Copyright © 2011 by the American Psychiatric Association.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-a397t-73a5437932346177a79979d48b058e56d51ed6570c183804fa8cfea76b8df1753</citedby><cites>FETCH-LOGICAL-a397t-73a5437932346177a79979d48b058e56d51ed6570c183804fa8cfea76b8df1753</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://psychiatryonline.org/doi/epdf/10.1176/appi.ps.001222011$$EPDF$$P50$$Gappi$$H</linktopdf><linktohtml>$$Uhttps://psychiatryonline.org/doi/full/10.1176/appi.ps.001222011$$EHTML$$P50$$Gappi$$H</linktohtml><link.rule.ids>314,777,781,2842,21607,21608,21609,27905,27906,77543,77548</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=25254443$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/22193793$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Perlick, Deborah A</creatorcontrib><creatorcontrib>Nelson, Ann H</creatorcontrib><creatorcontrib>Mattias, Kate</creatorcontrib><creatorcontrib>Selzer, James</creatorcontrib><creatorcontrib>Kalvin, Carla</creatorcontrib><creatorcontrib>Wilber, Charles H</creatorcontrib><creatorcontrib>Huntington, Brittney</creatorcontrib><creatorcontrib>Holman, Caroline S</creatorcontrib><creatorcontrib>Corrigan, Patrick W</creatorcontrib><title>In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness</title><title>Psychiatric services (Washington, D.C.)</title><addtitle>Psychiatr Serv</addtitle><description>Objective:This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness.
Methods:A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing.
Results:Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031).
Conclusions:Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire (Psychiatric Services 62:1456–1462, 2011)</description><subject>Adaptation, Psychological</subject><subject>Adult</subject><subject>Anxiety</subject><subject>Biological and medical sciences</subject><subject>Caregivers - psychology</subject><subject>Confidentiality - psychology</subject><subject>Families & family life</subject><subject>Family - psychology</subject><subject>Family Health</subject><subject>Female</subject><subject>Health Education - methods</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Humans</subject><subject>Intention to Treat Analysis</subject><subject>Linear Models</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Mental disorders</subject><subject>Mental Disorders - psychology</subject><subject>Middle Aged</subject><subject>Peer Group</subject><subject>Peers</subject><subject>Program Evaluation</subject><subject>Psychology. Psychoanalysis. Psychiatry</subject><subject>Psychopathology. Psychiatry</subject><subject>Questionnaires</subject><subject>Self Concept</subject><subject>Shame</subject><subject>Social Isolation - psychology</subject><subject>Social psychiatry. Ethnopsychiatry</subject><subject>Social Stigma</subject><subject>Treatment Outcome</subject><subject>Urban Health Services</subject><subject>Videotape Recording</subject><issn>1075-2730</issn><issn>1557-9700</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp10VtrFDEUAOAgFlurP8AXCYj4NGtOMpkkvslidaFlxXp5DNmZTE3JJNNkBum_N-NuWxD6dELynQs5CL0CsgIQzXszjm415hUhQCklAE_QCXAuKiUIeVrORPCKCkaO0fOcr0lxAppn6JhSUEwodoLGTcDbOeHtn4B_Rtfa6swMzt_idRxGE1wMH_A3282tC1f40vq-upzc1WBw7PFBXthhZ1Nebr6WGEPGv9z0u-jk4pzLe5iMxxvvg835BTrqjc_25SGeoh9nn76vv1Tn28-b9cfzyjAlpkoww-tlRMrqBoQwQimhulruCJeWNx0H2zVckBYkk6TujWx7a0Szk10PgrNT9G5fd0zxZrZ50oPLrfXeBFum0gpoU4Pki3zzn7yOcwplOA0MpOCSKVkU7FWbYs7J9npMbjDpVgPRyzb0sg09Zn2_jZLz-lB53g22u8-4-_4C3h6Aya3xfTKhdfnBccrrul7cau_-9XgY79HOfwEt9qCO</recordid><startdate>20111201</startdate><enddate>20111201</enddate><creator>Perlick, Deborah A</creator><creator>Nelson, Ann H</creator><creator>Mattias, Kate</creator><creator>Selzer, James</creator><creator>Kalvin, Carla</creator><creator>Wilber, Charles H</creator><creator>Huntington, Brittney</creator><creator>Holman, Caroline S</creator><creator>Corrigan, Patrick W</creator><general>American Psychiatric Association</general><general>American Psychiatric Publishing, Inc</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>20111201</creationdate><title>In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness</title><author>Perlick, Deborah A ; Nelson, Ann H ; Mattias, Kate ; Selzer, James ; Kalvin, Carla ; Wilber, Charles H ; Huntington, Brittney ; Holman, Caroline S ; Corrigan, Patrick W</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-a397t-73a5437932346177a79979d48b058e56d51ed6570c183804fa8cfea76b8df1753</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Adaptation, Psychological</topic><topic>Adult</topic><topic>Anxiety</topic><topic>Biological and medical sciences</topic><topic>Caregivers - psychology</topic><topic>Confidentiality - psychology</topic><topic>Families & family life</topic><topic>Family - psychology</topic><topic>Family Health</topic><topic>Female</topic><topic>Health Education - methods</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Humans</topic><topic>Intention to Treat Analysis</topic><topic>Linear Models</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Mental disorders</topic><topic>Mental Disorders - psychology</topic><topic>Middle Aged</topic><topic>Peer Group</topic><topic>Peers</topic><topic>Program Evaluation</topic><topic>Psychology. Psychoanalysis. Psychiatry</topic><topic>Psychopathology. Psychiatry</topic><topic>Questionnaires</topic><topic>Self Concept</topic><topic>Shame</topic><topic>Social Isolation - psychology</topic><topic>Social psychiatry. Ethnopsychiatry</topic><topic>Social Stigma</topic><topic>Treatment Outcome</topic><topic>Urban Health Services</topic><topic>Videotape Recording</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Perlick, Deborah A</creatorcontrib><creatorcontrib>Nelson, Ann H</creatorcontrib><creatorcontrib>Mattias, Kate</creatorcontrib><creatorcontrib>Selzer, James</creatorcontrib><creatorcontrib>Kalvin, Carla</creatorcontrib><creatorcontrib>Wilber, Charles H</creatorcontrib><creatorcontrib>Huntington, Brittney</creatorcontrib><creatorcontrib>Holman, Caroline S</creatorcontrib><creatorcontrib>Corrigan, Patrick W</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Psychiatric services (Washington, D.C.)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Perlick, Deborah A</au><au>Nelson, Ann H</au><au>Mattias, Kate</au><au>Selzer, James</au><au>Kalvin, Carla</au><au>Wilber, Charles H</au><au>Huntington, Brittney</au><au>Holman, Caroline S</au><au>Corrigan, Patrick W</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness</atitle><jtitle>Psychiatric services (Washington, D.C.)</jtitle><addtitle>Psychiatr Serv</addtitle><date>2011-12-01</date><risdate>2011</risdate><volume>62</volume><issue>12</issue><spage>1456</spage><epage>1462</epage><pages>1456-1462</pages><issn>1075-2730</issn><eissn>1557-9700</eissn><abstract>Objective:This article reports preliminary findings from a novel, family peer-based intervention designed to reduce self-stigma among family members of people with serious mental illness.
Methods:A total of 158 primary caregivers of patients with schizophrenia were recruited from a large urban mental health facility (93 caregivers) or from a family and consumer advocacy organization (65 caregivers). Caregivers (N=122) who reported they perceived at least a moderate level of mental illness-related stigma were evaluated on measures of self-stigma, withdrawal, secrecy, anxiety, and social comparison and randomly assigned to receive one of two, one-session group interventions: a peer-led intervention (In Our Own Voice-Family Companion [IOOV-FC]) designed to stimulate group discussion or a clinician-led family education session, which delivered information about mental illness in a structured, didactic format. IOOV-FC consisted of playing a videotape of family members who describe their experiences coping with stigma, which was followed by a discussion led by two family peers who modeled sharing their own experiences and facilitated group sharing.
Results:Of 24 family members and ten consumers, 96% rated the videotape above a predetermined acceptability threshold on a 19-item scale assessing cultural sensitivity, respect for different stakeholders, relevance of content, and technical quality (α=.92). Caregivers receiving IOOV-FC with low to moderate pretreatment anxiety reported a substantial reduction in self-stigma (effect size=.50) relative to those receiving clinician-led family education (p=.017) as well as significant reductions in secrecy (p=.031).
Conclusions:Peer-led group interventions may be more effective in reducing family self-stigma than clinician-led education, at least for persons reporting experiencing low to moderate anxiety levels on a standard questionnaire (Psychiatric Services 62:1456–1462, 2011)</abstract><cop>Arlington, VA</cop><pub>American Psychiatric Association</pub><pmid>22193793</pmid><doi>10.1176/appi.ps.001222011</doi><tpages>7</tpages></addata></record> |
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source | MEDLINE; American Psychiatric Publishing Journals (1997-Present); Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals |
subjects | Adaptation, Psychological Adult Anxiety Biological and medical sciences Caregivers - psychology Confidentiality - psychology Families & family life Family - psychology Family Health Female Health Education - methods Health Knowledge, Attitudes, Practice Humans Intention to Treat Analysis Linear Models Male Medical sciences Mental disorders Mental Disorders - psychology Middle Aged Peer Group Peers Program Evaluation Psychology. Psychoanalysis. Psychiatry Psychopathology. Psychiatry Questionnaires Self Concept Shame Social Isolation - psychology Social psychiatry. Ethnopsychiatry Social Stigma Treatment Outcome Urban Health Services Videotape Recording |
title | In Our Own Voice-Family Companion: Reducing Self-Stigma of Family Members of Persons With Serious Mental Illness |
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