What does ‘respect for persons’ require? Attitudes and reported practices of genetics researchers in informing research participants about research

Background It has been suggested that researchers are obliged to offer summary findings to research participants to demonstrate respect for persons, and that this may increase public trust in, and awareness of, the research enterprise. Yet little research explores researchers' attitudes and pra...

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Veröffentlicht in:	Journal of medical ethics 2012-01, Vol.38 (1), p.48-52
Hauptverfasser:	Miller, Fiona Alice, Hayeems, Robin Zoe, Li, Li, Bytautas, Jessica Peace
Format:	Artikel
Sprache:	eng
Schlagworte:	Attitude Attitudes Autism autism spectrum disorders Bioethics communicating research results Communication Cystic fibrosis Data Collection Ethical aspects Ethics Ethics, Research Genetic research Genetics Humans Information relevance Medical genetics Medical practice Medical research Medical research personnel Medical researchers Pervasive child development disorders Policy Guidelines/Inst. Review Boards/Review Cttes Practice Questionnaires Research ethics Research Personnel - ethics Research Personnel - psychology Research Report Research studies Research Subjects - psychology Researchers Respect Scientific Research Social aspects Studies Surveys
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