Genetic Counselors’ Experiences with Adolescent Patients in Prenatal Genetic Counseling
Adolescents comprise a portion of women who present to genetic counselors prenatally. In this study, prenatal genetic counselors ( N = 128) were surveyed regarding their perceptions of genetic counseling sessions for adolescent (ages 13–19) and adult (ages 20–34) patients. Counselors perceived diff...
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| Veröffentlicht in: | Journal of genetic counseling 2011-04, Vol.20 (2), p.178-191 |
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| container_title | Journal of genetic counseling |
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| creator | Griswold, Catherine M. Ashley, Stephanie S. Dixon, Shannan DeLany Scott, Jessica L. |
| description | Adolescents comprise a portion of women who present to genetic counselors prenatally. In this study, prenatal genetic counselors (
N
= 128) were surveyed regarding their perceptions of genetic counseling sessions for adolescent (ages 13–19) and adult (ages 20–34) patients. Counselors perceived differences in methods used to communicate risk information for adolescent versus adult populations. Respondents reported that it is more difficult for adolescents to understand prognostic information than adults. They also noted differences between adult and adolescent populations with respect to the people who typically accompany the patient to the session. Respondents stated that adolescents were accompanied by a parent, friend, or sibling, which differed from adults who reportedly were accompanied by a significant other, father of the pregnancy, or by no one. These findings suggest it is important to recognize that adolescent patients are in a unique stage of their development which may influence a prenatal genetic counseling session. |
| doi_str_mv | 10.1007/s10897-010-9338-5 |
| format | Article |
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N
= 128) were surveyed regarding their perceptions of genetic counseling sessions for adolescent (ages 13–19) and adult (ages 20–34) patients. Counselors perceived differences in methods used to communicate risk information for adolescent versus adult populations. Respondents reported that it is more difficult for adolescents to understand prognostic information than adults. They also noted differences between adult and adolescent populations with respect to the people who typically accompany the patient to the session. Respondents stated that adolescents were accompanied by a parent, friend, or sibling, which differed from adults who reportedly were accompanied by a significant other, father of the pregnancy, or by no one. These findings suggest it is important to recognize that adolescent patients are in a unique stage of their development which may influence a prenatal genetic counseling session.</description><identifier>ISSN: 1059-7700</identifier><identifier>EISSN: 1573-3599</identifier><identifier>DOI: 10.1007/s10897-010-9338-5</identifier><identifier>PMID: 21136144</identifier><identifier>CODEN: JGCOET</identifier><language>eng</language><publisher>Boston: Springer US</publisher><subject>Adolescent ; Adolescents ; Adult ; Antenatal ; Baltimore ; Biomedical and Life Sciences ; Biomedicine ; Clinical Psychology ; Counseling adolescents ; Ethics ; Fathers ; Female ; Genetic counseling ; Genetic Counseling - manpower ; Genetic counselling ; Gynecology ; Health Personnel - psychology ; Human Genetics ; Humans ; Original Research ; Patient developmental levels ; Patient education ; Pregnancy ; Pregnancy in Adolescence ; Prenatal Care ; Prenatal genetic counseling ; Public Health ; Risk factors ; Significant others ; Teenage pregnancy ; Women</subject><ispartof>Journal of genetic counseling, 2011-04, Vol.20 (2), p.178-191</ispartof><rights>National Society of Genetic Counselors, Inc. 2010</rights><rights>2011 National Society of Genetic Counselors, Inc.</rights><rights>National Society of Genetic Counselors, Inc. 2011</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4828-532f7e21dededd01e9dc0f4d0c8420eeb6991db94ef986cd91d739a013cb56183</citedby><cites>FETCH-LOGICAL-c4828-532f7e21dededd01e9dc0f4d0c8420eeb6991db94ef986cd91d739a013cb56183</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10897-010-9338-5$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10897-010-9338-5$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,777,781,1413,12828,27906,27907,30981,30982,41470,42539,45556,45557,51301</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21136144$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Griswold, Catherine M.</creatorcontrib><creatorcontrib>Ashley, Stephanie S.</creatorcontrib><creatorcontrib>Dixon, Shannan DeLany</creatorcontrib><creatorcontrib>Scott, Jessica L.</creatorcontrib><title>Genetic Counselors’ Experiences with Adolescent Patients in Prenatal Genetic Counseling</title><title>Journal of genetic counseling</title><addtitle>J Genet Counsel</addtitle><addtitle>J Genet Couns</addtitle><description>Adolescents comprise a portion of women who present to genetic counselors prenatally. In this study, prenatal genetic counselors (
N
= 128) were surveyed regarding their perceptions of genetic counseling sessions for adolescent (ages 13–19) and adult (ages 20–34) patients. Counselors perceived differences in methods used to communicate risk information for adolescent versus adult populations. Respondents reported that it is more difficult for adolescents to understand prognostic information than adults. They also noted differences between adult and adolescent populations with respect to the people who typically accompany the patient to the session. Respondents stated that adolescents were accompanied by a parent, friend, or sibling, which differed from adults who reportedly were accompanied by a significant other, father of the pregnancy, or by no one. These findings suggest it is important to recognize that adolescent patients are in a unique stage of their development which may influence a prenatal genetic counseling session.</description><subject>Adolescent</subject><subject>Adolescents</subject><subject>Adult</subject><subject>Antenatal</subject><subject>Baltimore</subject><subject>Biomedical and Life Sciences</subject><subject>Biomedicine</subject><subject>Clinical Psychology</subject><subject>Counseling adolescents</subject><subject>Ethics</subject><subject>Fathers</subject><subject>Female</subject><subject>Genetic counseling</subject><subject>Genetic Counseling - manpower</subject><subject>Genetic counselling</subject><subject>Gynecology</subject><subject>Health Personnel - psychology</subject><subject>Human Genetics</subject><subject>Humans</subject><subject>Original Research</subject><subject>Patient developmental levels</subject><subject>Patient education</subject><subject>Pregnancy</subject><subject>Pregnancy in Adolescence</subject><subject>Prenatal Care</subject><subject>Prenatal genetic counseling</subject><subject>Public Health</subject><subject>Risk factors</subject><subject>Significant others</subject><subject>Teenage pregnancy</subject><subject>Women</subject><issn>1059-7700</issn><issn>1573-3599</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNqNkc1u1TAQhS0EoqXwAGxQxIZVYMY_sb2srsoFVKldwIKVletMSqpc52InarvjNXi9PkkdpVCpUtXKC3vk7xyd0WHsLcJHBNCfEoKxugSE0gphSvWM7aPSohTK2uf5DcqWWgPssVcpnQOANQpfsj2OKCqUcp_9XFOgsfPFaphCon6I6frP3-Lockexo-ApFRfd-Ks4bIaekqcwFqf1mH_GVHShOI0U6rHui3s2XTh7zV60dZ_oze19wH58Pvq--lIen6y_rg6PSy8Nz5kFbzVxbCifBpBs46GVDXgjORBtKmux2VhJrTWVb_Kgha0Bhd-oCo04YB8W310cfk-URrftctC-rwMNU3LGVhyVNNXjZAXCcJBP8FTCWi717Pn-Hnk-TDHkhWdIVgKkyhAukI9DSpFat4vdto5XDsHNTbqlSZebdHOTbta8uzWeNltq_iv-VZcBvQAXXU9Xjzu6b-uVBNTzdnxRpiwKZxTvMj-c5wZRW7mK</recordid><startdate>201104</startdate><enddate>201104</enddate><creator>Griswold, Catherine M.</creator><creator>Ashley, Stephanie S.</creator><creator>Dixon, Shannan DeLany</creator><creator>Scott, Jessica L.</creator><general>Springer US</general><general>Blackwell Publishing Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8FD</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>HEHIP</scope><scope>K9.</scope><scope>KB0</scope><scope>LK8</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>M2S</scope><scope>M7P</scope><scope>NAPCQ</scope><scope>P64</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>RC3</scope><scope>7X8</scope><scope>7U1</scope><scope>7U2</scope><scope>C1K</scope></search><sort><creationdate>201104</creationdate><title>Genetic Counselors’ Experiences with Adolescent Patients in Prenatal Genetic Counseling</title><author>Griswold, Catherine M. ; Ashley, Stephanie S. ; Dixon, Shannan DeLany ; Scott, Jessica L.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4828-532f7e21dededd01e9dc0f4d0c8420eeb6991db94ef986cd91d739a013cb56183</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2011</creationdate><topic>Adolescent</topic><topic>Adolescents</topic><topic>Adult</topic><topic>Antenatal</topic><topic>Baltimore</topic><topic>Biomedical and Life Sciences</topic><topic>Biomedicine</topic><topic>Clinical Psychology</topic><topic>Counseling adolescents</topic><topic>Ethics</topic><topic>Fathers</topic><topic>Female</topic><topic>Genetic counseling</topic><topic>Genetic Counseling - manpower</topic><topic>Genetic counselling</topic><topic>Gynecology</topic><topic>Health Personnel - psychology</topic><topic>Human Genetics</topic><topic>Humans</topic><topic>Original Research</topic><topic>Patient developmental levels</topic><topic>Patient education</topic><topic>Pregnancy</topic><topic>Pregnancy in Adolescence</topic><topic>Prenatal Care</topic><topic>Prenatal genetic counseling</topic><topic>Public Health</topic><topic>Risk factors</topic><topic>Significant others</topic><topic>Teenage pregnancy</topic><topic>Women</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Griswold, Catherine M.</creatorcontrib><creatorcontrib>Ashley, Stephanie S.</creatorcontrib><creatorcontrib>Dixon, Shannan DeLany</creatorcontrib><creatorcontrib>Scott, Jessica L.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Technology Research Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>British Nursing Database</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>SciTech Premium Collection</collection><collection>Sociology Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ProQuest Biological Science Collection</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>Sociology Database (ProQuest)</collection><collection>Biological Science Database</collection><collection>Nursing & Allied Health Premium</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>Genetics Abstracts</collection><collection>MEDLINE - Academic</collection><collection>Risk Abstracts</collection><collection>Safety Science and Risk</collection><collection>Environmental Sciences and Pollution Management</collection><jtitle>Journal of genetic counseling</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Griswold, Catherine M.</au><au>Ashley, Stephanie S.</au><au>Dixon, Shannan DeLany</au><au>Scott, Jessica L.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Genetic Counselors’ Experiences with Adolescent Patients in Prenatal Genetic Counseling</atitle><jtitle>Journal of genetic counseling</jtitle><stitle>J Genet Counsel</stitle><addtitle>J Genet Couns</addtitle><date>2011-04</date><risdate>2011</risdate><volume>20</volume><issue>2</issue><spage>178</spage><epage>191</epage><pages>178-191</pages><issn>1059-7700</issn><eissn>1573-3599</eissn><coden>JGCOET</coden><abstract>Adolescents comprise a portion of women who present to genetic counselors prenatally. In this study, prenatal genetic counselors (
N
= 128) were surveyed regarding their perceptions of genetic counseling sessions for adolescent (ages 13–19) and adult (ages 20–34) patients. Counselors perceived differences in methods used to communicate risk information for adolescent versus adult populations. Respondents reported that it is more difficult for adolescents to understand prognostic information than adults. They also noted differences between adult and adolescent populations with respect to the people who typically accompany the patient to the session. Respondents stated that adolescents were accompanied by a parent, friend, or sibling, which differed from adults who reportedly were accompanied by a significant other, father of the pregnancy, or by no one. These findings suggest it is important to recognize that adolescent patients are in a unique stage of their development which may influence a prenatal genetic counseling session.</abstract><cop>Boston</cop><pub>Springer US</pub><pmid>21136144</pmid><doi>10.1007/s10897-010-9338-5</doi><tpages>14</tpages></addata></record> |
| fulltext | fulltext |
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| ispartof | Journal of genetic counseling, 2011-04, Vol.20 (2), p.178-191 |
| issn | 1059-7700 1573-3599 |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete; Applied Social Sciences Index & Abstracts (ASSIA); SpringerLink Journals - AutoHoldings |
| subjects | Adolescent Adolescents Adult Antenatal Baltimore Biomedical and Life Sciences Biomedicine Clinical Psychology Counseling adolescents Ethics Fathers Female Genetic counseling Genetic Counseling - manpower Genetic counselling Gynecology Health Personnel - psychology Human Genetics Humans Original Research Patient developmental levels Patient education Pregnancy Pregnancy in Adolescence Prenatal Care Prenatal genetic counseling Public Health Risk factors Significant others Teenage pregnancy Women |
| title | Genetic Counselors’ Experiences with Adolescent Patients in Prenatal Genetic Counseling |
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