Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6

Purpose To evaluate caregivers’ experience of oncology services for ambulatory patients and to develop a short instrument (FAMCARE-6) suitable for computerised administration in the clinical setting. Methods A sample of 234 caregivers recruited from 388 ambulatory oncology patients completed a compu...

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Veröffentlicht in:Supportive care in cancer 2011-04, Vol.19 (4), p.565-572
Hauptverfasser: Carter, Gregory Leigh, Lewin, Terry J., Gianacas, Louisa, Clover, Kerrie, Adams, Catherine
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container_end_page 572
container_issue 4
container_start_page 565
container_title Supportive care in cancer
container_volume 19
creator Carter, Gregory Leigh
Lewin, Terry J.
Gianacas, Louisa
Clover, Kerrie
Adams, Catherine
description Purpose To evaluate caregivers’ experience of oncology services for ambulatory patients and to develop a short instrument (FAMCARE-6) suitable for computerised administration in the clinical setting. Methods A sample of 234 caregivers recruited from 388 ambulatory oncology patients completed a computerised version of the 20-item family satisfaction with advanced cancer care (FAMCARE) instrument, which was originally developed for use in palliative care settings. Results Caregivers reported generally high satisfaction with all aspects of ambulatory oncology services: overall score; mean, 3.96 (SD, 0.67); information giving, 3.88 (0.78); physical patient care, 4.00 (0.71); availability of care, 3.89 (0.77); and psychosocial care, 4.05 (0.72), from a possible score of 5. Factor analyses identified a single factor structure; the items were reduced to six (FAMCARE-6), which yielded a scale with adequate psychometric properties (completion rates over 90% for every item, correlation of 0.7 or above with the factor identified in the individual item factor analysis, and internal reliability of α  = 0.85). The overall mean score was 3.91 (SD, 0.73) for the FAMCARE-6. Conclusions FAMCARE-6 can be used to assess caregiver satisfaction with ambulatory oncology services and may be suitable to be included as part of a computerised screening system for the psychological care of oncology patients.
doi_str_mv 10.1007/s00520-010-0858-1
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Methods A sample of 234 caregivers recruited from 388 ambulatory oncology patients completed a computerised version of the 20-item family satisfaction with advanced cancer care (FAMCARE) instrument, which was originally developed for use in palliative care settings. Results Caregivers reported generally high satisfaction with all aspects of ambulatory oncology services: overall score; mean, 3.96 (SD, 0.67); information giving, 3.88 (0.78); physical patient care, 4.00 (0.71); availability of care, 3.89 (0.77); and psychosocial care, 4.05 (0.72), from a possible score of 5. Factor analyses identified a single factor structure; the items were reduced to six (FAMCARE-6), which yielded a scale with adequate psychometric properties (completion rates over 90% for every item, correlation of 0.7 or above with the factor identified in the individual item factor analysis, and internal reliability of α  = 0.85). The overall mean score was 3.91 (SD, 0.73) for the FAMCARE-6. Conclusions FAMCARE-6 can be used to assess caregiver satisfaction with ambulatory oncology services and may be suitable to be included as part of a computerised screening system for the psychological care of oncology patients.</description><identifier>ISSN: 0941-4355</identifier><identifier>EISSN: 1433-7339</identifier><identifier>DOI: 10.1007/s00520-010-0858-1</identifier><identifier>PMID: 20349317</identifier><language>eng</language><publisher>Berlin/Heidelberg: Springer-Verlag</publisher><subject>Aged ; Ambulatory Care - methods ; Ambulatory Care - standards ; Caregivers ; Caregivers - psychology ; Factor Analysis, Statistical ; Female ; Health services ; Humans ; Job satisfaction ; Male ; Medicine ; Medicine &amp; Public Health ; Middle Aged ; Neoplasms - psychology ; Neoplasms - therapy ; Nursing ; Nursing Research ; Oncology ; Original Article ; Outpatient care facilities ; Pain Medicine ; Personal Satisfaction ; Psychometrics ; Rehabilitation Medicine ; Reproducibility of Results ; Surveys and Questionnaires</subject><ispartof>Supportive care in cancer, 2011-04, Vol.19 (4), p.565-572</ispartof><rights>Springer-Verlag 2010</rights><rights>COPYRIGHT 2011 Springer</rights><rights>Springer-Verlag 2011</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c409t-1265c265fecda6d475100fb36dda5bda2061ff7748f63cce3aed99977967338d3</citedby><cites>FETCH-LOGICAL-c409t-1265c265fecda6d475100fb36dda5bda2061ff7748f63cce3aed99977967338d3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s00520-010-0858-1$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s00520-010-0858-1$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,778,782,27907,27908,41471,42540,51302</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/20349317$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Carter, Gregory Leigh</creatorcontrib><creatorcontrib>Lewin, Terry J.</creatorcontrib><creatorcontrib>Gianacas, Louisa</creatorcontrib><creatorcontrib>Clover, Kerrie</creatorcontrib><creatorcontrib>Adams, Catherine</creatorcontrib><title>Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6</title><title>Supportive care in cancer</title><addtitle>Support Care Cancer</addtitle><addtitle>Support Care Cancer</addtitle><description>Purpose To evaluate caregivers’ experience of oncology services for ambulatory patients and to develop a short instrument (FAMCARE-6) suitable for computerised administration in the clinical setting. Methods A sample of 234 caregivers recruited from 388 ambulatory oncology patients completed a computerised version of the 20-item family satisfaction with advanced cancer care (FAMCARE) instrument, which was originally developed for use in palliative care settings. Results Caregivers reported generally high satisfaction with all aspects of ambulatory oncology services: overall score; mean, 3.96 (SD, 0.67); information giving, 3.88 (0.78); physical patient care, 4.00 (0.71); availability of care, 3.89 (0.77); and psychosocial care, 4.05 (0.72), from a possible score of 5. Factor analyses identified a single factor structure; the items were reduced to six (FAMCARE-6), which yielded a scale with adequate psychometric properties (completion rates over 90% for every item, correlation of 0.7 or above with the factor identified in the individual item factor analysis, and internal reliability of α  = 0.85). The overall mean score was 3.91 (SD, 0.73) for the FAMCARE-6. 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Medical Complete (Alumni)</collection><collection>Nursing &amp; Allied Health Database (Alumni Edition)</collection><collection>Health &amp; Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Social Science Database</collection><collection>Sociology Database</collection><collection>Nursing &amp; Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>Supportive care in cancer</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Carter, Gregory Leigh</au><au>Lewin, Terry J.</au><au>Gianacas, Louisa</au><au>Clover, Kerrie</au><au>Adams, Catherine</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6</atitle><jtitle>Supportive care in cancer</jtitle><stitle>Support Care Cancer</stitle><addtitle>Support Care Cancer</addtitle><date>2011-04-01</date><risdate>2011</risdate><volume>19</volume><issue>4</issue><spage>565</spage><epage>572</epage><pages>565-572</pages><issn>0941-4355</issn><eissn>1433-7339</eissn><abstract>Purpose To evaluate caregivers’ experience of oncology services for ambulatory patients and to develop a short instrument (FAMCARE-6) suitable for computerised administration in the clinical setting. Methods A sample of 234 caregivers recruited from 388 ambulatory oncology patients completed a computerised version of the 20-item family satisfaction with advanced cancer care (FAMCARE) instrument, which was originally developed for use in palliative care settings. Results Caregivers reported generally high satisfaction with all aspects of ambulatory oncology services: overall score; mean, 3.96 (SD, 0.67); information giving, 3.88 (0.78); physical patient care, 4.00 (0.71); availability of care, 3.89 (0.77); and psychosocial care, 4.05 (0.72), from a possible score of 5. Factor analyses identified a single factor structure; the items were reduced to six (FAMCARE-6), which yielded a scale with adequate psychometric properties (completion rates over 90% for every item, correlation of 0.7 or above with the factor identified in the individual item factor analysis, and internal reliability of α  = 0.85). The overall mean score was 3.91 (SD, 0.73) for the FAMCARE-6. Conclusions FAMCARE-6 can be used to assess caregiver satisfaction with ambulatory oncology services and may be suitable to be included as part of a computerised screening system for the psychological care of oncology patients.</abstract><cop>Berlin/Heidelberg</cop><pub>Springer-Verlag</pub><pmid>20349317</pmid><doi>10.1007/s00520-010-0858-1</doi><tpages>8</tpages></addata></record>
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subjects Aged
Ambulatory Care - methods
Ambulatory Care - standards
Caregivers
Caregivers - psychology
Factor Analysis, Statistical
Female
Health services
Humans
Job satisfaction
Male
Medicine
Medicine & Public Health
Middle Aged
Neoplasms - psychology
Neoplasms - therapy
Nursing
Nursing Research
Oncology
Original Article
Outpatient care facilities
Pain Medicine
Personal Satisfaction
Psychometrics
Rehabilitation Medicine
Reproducibility of Results
Surveys and Questionnaires
title Caregiver satisfaction with out-patient oncology services: utility of the FAMCARE instrument and development of the FAMCARE-6
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