A study of concordance between adolescent self-report and parent-proxy report of health-related quality of life in school-going adolescents

Abstract Objectives The purpose of the study was to determine the degree of concordance between the self-report and the parent's proxy report of health-related quality of life (HRQoL) in school-going adolescents using the World Health Organization Quality of Life (WHOQOL)-BREF instrument in Ind...

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Veröffentlicht in:Journal of psychosomatic research 2010-12, Vol.69 (6), p.525-532
Hauptverfasser: Agnihotri, Kasturi, Awasthi, Shally, Singh, Uttam, Chandra, Hem, Thakur, Savitri
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container_end_page 532
container_issue 6
container_start_page 525
container_title Journal of psychosomatic research
container_volume 69
creator Agnihotri, Kasturi
Awasthi, Shally
Singh, Uttam
Chandra, Hem
Thakur, Savitri
description Abstract Objectives The purpose of the study was to determine the degree of concordance between the self-report and the parent's proxy report of health-related quality of life (HRQoL) in school-going adolescents using the World Health Organization Quality of Life (WHOQOL)-BREF instrument in India. Methods Twenty schools were purposively selected out of the 1900 schools in Lucknow, India. About 5% adolescents (between 10–19 years) per school were randomly selected by lottery system. Subjects, whose parents consented for child's participation, completed the WHOQOL-BREF self-report and their parents filled the WHOQOL-BREF proxy-report for adolescent's HRQoL. Degree of concordance and association were assessed using Cohen's κ and Spearman's correlation, respectively. Results Five hundred fifteen adolescents (mean age=14 years with a standard deviation of ±2 years; 48.2% females) were included. κ Statistic values ranged from fair to moderate for all facets and dimensions of HRQoL between adolescent and parent report (κ=0.31–0.58, P
doi_str_mv 10.1016/j.jpsychores.2010.03.011
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Methods Twenty schools were purposively selected out of the 1900 schools in Lucknow, India. About 5% adolescents (between 10–19 years) per school were randomly selected by lottery system. Subjects, whose parents consented for child's participation, completed the WHOQOL-BREF self-report and their parents filled the WHOQOL-BREF proxy-report for adolescent's HRQoL. Degree of concordance and association were assessed using Cohen's κ and Spearman's correlation, respectively. Results Five hundred fifteen adolescents (mean age=14 years with a standard deviation of ±2 years; 48.2% females) were included. κ Statistic values ranged from fair to moderate for all facets and dimensions of HRQoL between adolescent and parent report (κ=0.31–0.58, P &lt;.01). There were moderate to very strong correlations between adolescent self and parent proxy report ( r =0.62–0.81, P &lt;.01) which declined with age of adolescent. The mother's scores correlated best in psychological dimension ( r =0.81–0.88, P &lt;.01) while that of father correlated best in environment dimension ( r =0.81–0.79, P &lt;.01), irrespective of child's gender. Conclusion Our study illustrated that fair to moderate agreement existed between parent proxy and subject's self-report for adolescent's HRQoL. That may be an indicator for suitability of parent's proxy report in certain dimensions, if a child is unavailable or unable to respond. However, further research may provide new insights into the determinants of concordance between subject self and parent proxy report of adolescent HRQoL.</description><identifier>ISSN: 0022-3999</identifier><identifier>EISSN: 1879-1360</identifier><identifier>DOI: 10.1016/j.jpsychores.2010.03.011</identifier><identifier>PMID: 21109039</identifier><identifier>CODEN: JPCRAT</identifier><language>eng</language><publisher>New York, NY: Elsevier Inc</publisher><subject>Adolescent ; Adolescents ; Agreement ; Biological and medical sciences ; Concordance ; Cross-Sectional Studies ; Fathers ; Female ; Health Status ; Health-related quality of life ; Humans ; India ; Male ; Medical sciences ; Parent-Child Relations ; Parents ; Psychiatry ; Psychology. Psychoanalysis. Psychiatry ; Psychometrics ; Psychometrics. Diagnostic aid systems ; Psychopathology. 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Methods Twenty schools were purposively selected out of the 1900 schools in Lucknow, India. About 5% adolescents (between 10–19 years) per school were randomly selected by lottery system. Subjects, whose parents consented for child's participation, completed the WHOQOL-BREF self-report and their parents filled the WHOQOL-BREF proxy-report for adolescent's HRQoL. Degree of concordance and association were assessed using Cohen's κ and Spearman's correlation, respectively. Results Five hundred fifteen adolescents (mean age=14 years with a standard deviation of ±2 years; 48.2% females) were included. κ Statistic values ranged from fair to moderate for all facets and dimensions of HRQoL between adolescent and parent report (κ=0.31–0.58, P &lt;.01). There were moderate to very strong correlations between adolescent self and parent proxy report ( r =0.62–0.81, P &lt;.01) which declined with age of adolescent. The mother's scores correlated best in psychological dimension ( r =0.81–0.88, P &lt;.01) while that of father correlated best in environment dimension ( r =0.81–0.79, P &lt;.01), irrespective of child's gender. Conclusion Our study illustrated that fair to moderate agreement existed between parent proxy and subject's self-report for adolescent's HRQoL. That may be an indicator for suitability of parent's proxy report in certain dimensions, if a child is unavailable or unable to respond. However, further research may provide new insights into the determinants of concordance between subject self and parent proxy report of adolescent HRQoL.</description><subject>Adolescent</subject><subject>Adolescents</subject><subject>Agreement</subject><subject>Biological and medical sciences</subject><subject>Concordance</subject><subject>Cross-Sectional Studies</subject><subject>Fathers</subject><subject>Female</subject><subject>Health Status</subject><subject>Health-related quality of life</subject><subject>Humans</subject><subject>India</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Parent-Child Relations</subject><subject>Parents</subject><subject>Psychiatry</subject><subject>Psychology. Psychoanalysis. Psychiatry</subject><subject>Psychometrics</subject><subject>Psychometrics. Diagnostic aid systems</subject><subject>Psychopathology. 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Psychoanalysis. Psychiatry</topic><topic>Psychometrics</topic><topic>Psychometrics. Diagnostic aid systems</topic><topic>Psychopathology. Psychiatry</topic><topic>Quality of Life</topic><topic>Self Report</topic><topic>Selfreport</topic><topic>Surveys and Questionnaires</topic><topic>Techniques and methods</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Agnihotri, Kasturi</creatorcontrib><creatorcontrib>Awasthi, Shally</creatorcontrib><creatorcontrib>Singh, Uttam</creatorcontrib><creatorcontrib>Chandra, Hem</creatorcontrib><creatorcontrib>Thakur, Savitri</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>Applied Social Sciences Index &amp; Abstracts (ASSIA)</collection><jtitle>Journal of psychosomatic research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Agnihotri, Kasturi</au><au>Awasthi, Shally</au><au>Singh, Uttam</au><au>Chandra, Hem</au><au>Thakur, Savitri</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A study of concordance between adolescent self-report and parent-proxy report of health-related quality of life in school-going adolescents</atitle><jtitle>Journal of psychosomatic research</jtitle><addtitle>J Psychosom Res</addtitle><date>2010-12-01</date><risdate>2010</risdate><volume>69</volume><issue>6</issue><spage>525</spage><epage>532</epage><pages>525-532</pages><issn>0022-3999</issn><eissn>1879-1360</eissn><coden>JPCRAT</coden><abstract>Abstract Objectives The purpose of the study was to determine the degree of concordance between the self-report and the parent's proxy report of health-related quality of life (HRQoL) in school-going adolescents using the World Health Organization Quality of Life (WHOQOL)-BREF instrument in India. Methods Twenty schools were purposively selected out of the 1900 schools in Lucknow, India. About 5% adolescents (between 10–19 years) per school were randomly selected by lottery system. Subjects, whose parents consented for child's participation, completed the WHOQOL-BREF self-report and their parents filled the WHOQOL-BREF proxy-report for adolescent's HRQoL. Degree of concordance and association were assessed using Cohen's κ and Spearman's correlation, respectively. Results Five hundred fifteen adolescents (mean age=14 years with a standard deviation of ±2 years; 48.2% females) were included. κ Statistic values ranged from fair to moderate for all facets and dimensions of HRQoL between adolescent and parent report (κ=0.31–0.58, P &lt;.01). There were moderate to very strong correlations between adolescent self and parent proxy report ( r =0.62–0.81, P &lt;.01) which declined with age of adolescent. The mother's scores correlated best in psychological dimension ( r =0.81–0.88, P &lt;.01) while that of father correlated best in environment dimension ( r =0.81–0.79, P &lt;.01), irrespective of child's gender. Conclusion Our study illustrated that fair to moderate agreement existed between parent proxy and subject's self-report for adolescent's HRQoL. That may be an indicator for suitability of parent's proxy report in certain dimensions, if a child is unavailable or unable to respond. However, further research may provide new insights into the determinants of concordance between subject self and parent proxy report of adolescent HRQoL.</abstract><cop>New York, NY</cop><pub>Elsevier Inc</pub><pmid>21109039</pmid><doi>10.1016/j.jpsychores.2010.03.011</doi><tpages>8</tpages></addata></record>
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subjects Adolescent
Adolescents
Agreement
Biological and medical sciences
Concordance
Cross-Sectional Studies
Fathers
Female
Health Status
Health-related quality of life
Humans
India
Male
Medical sciences
Parent-Child Relations
Parents
Psychiatry
Psychology. Psychoanalysis. Psychiatry
Psychometrics
Psychometrics. Diagnostic aid systems
Psychopathology. Psychiatry
Quality of Life
Self Report
Selfreport
Surveys and Questionnaires
Techniques and methods
title A study of concordance between adolescent self-report and parent-proxy report of health-related quality of life in school-going adolescents
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