Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease
To discover and describe how prospective parents make decisions when they learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide professionals with direction for their interactions with these families. Qualitative analysis informed by symbolic interactionism. A te...
Gespeichert in:
| Veröffentlicht in: | Journal of obstetric, gynecologic, and neonatal nursing gynecologic, and neonatal nursing, 2004-01, Vol.33 (1), p.64-70 |
|---|---|
| Hauptverfasser: | , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 70 |
|---|---|
| container_issue | 1 |
| container_start_page | 64 |
| container_title | Journal of obstetric, gynecologic, and neonatal nursing |
| container_volume | 33 |
| creator | Rempel, Gwen R. Cender, Loryle M. Lynam, M. Judith Sandor, George G. Farquharson, Duncan |
| description | To discover and describe how prospective parents make decisions when they learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide professionals with direction for their interactions with these families.
Qualitative analysis informed by symbolic interactionism.
A tertiary care women's health center that provided referral services for a province with a population of 4 million.
Mothers and fathers of 19 babies with antenatally diagnosed CHD participated in interviews during pregnancy and after the birth of their baby. Thirty‐four interviews were analyzed for common themes and distinguishing characteristics of antenatal decision making.
Parents approached their antenatal decisions regarding further testing and continuation of the pregnancy as their first parenting decisions. They made their decisions with differing degrees of apparent ease or deliberation, and some parents more readily sought the opinion of professionals. The offered opinions offended some parents, even though the professionals may have intended the information as descriptive of options, not suggestive of a particular decision.
Although advances in technology have enabled diagnosis of CHD antenatally, health care professionals, including nurses, must elicit each parent's particular perspective, be cognizant of their professional influence, and actively support parents from the time of the antenatal diagnosis. |
| doi_str_mv | 10.1177/0884217503261092 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_80170523</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><els_id>S0884217515341320</els_id><sourcerecordid>616280201</sourcerecordid><originalsourceid>FETCH-LOGICAL-c5564-fa6564613e885d5f0602b962984ec7d1e84e4267d4b3ba2154eab37827ad8d6d3</originalsourceid><addsrcrecordid>eNqFks1v1DAQxS0EokvhzglFHOgp4G873FZbuqUqbUFFvWE58WTlNussdrYf_z2OsgKpEuDLWDO_96TxM0KvCX5PiFIfsNacEiUwo5Lgij5BMyIELWWFq6doNo7Lcb6HXqR0jcfDqudoj_BKZZDP0I8LGyEM6aC4gJg20Az-FlLRh-IQGp98vnyxNz6sink7QCzmYYBgB9sVh96uQp98htti0YcVBD_2j8HGIU8T2AQv0bPWdgle7eo--n706XJxXJ6eLz8v5qdlI4TkZWtlLpIw0Fo40WKJaV1JWmkOjXIEcuVUKsdrVltKBAdbM6Wpsk476dg-ejf5bmL_cwtpMGufGug6G6DfJqMxUVhQlsGDf4JK5gflgqhMvn1EXvfbGPIWhjLMuFZstMMT1MQ-pQit2US_tvHBEGzGiMzjiLLkzc53W6_B_RHsMskAn4A738HDfw3NyfnyTI6ycpL5NMD9b5mNN0YqpoS5Oluao29iIS5PvpqrzH-ceMi53HqIJjUeQgPOx_wNjOv935f4BZZTug0</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>230348733</pqid></control><display><type>article</type><title>Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease</title><source>MEDLINE</source><source>Access via Wiley Online Library</source><source>Alma/SFX Local Collection</source><creator>Rempel, Gwen R. ; Cender, Loryle M. ; Lynam, M. Judith ; Sandor, George G. ; Farquharson, Duncan</creator><creatorcontrib>Rempel, Gwen R. ; Cender, Loryle M. ; Lynam, M. Judith ; Sandor, George G. ; Farquharson, Duncan</creatorcontrib><description>To discover and describe how prospective parents make decisions when they learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide professionals with direction for their interactions with these families.
Qualitative analysis informed by symbolic interactionism.
A tertiary care women's health center that provided referral services for a province with a population of 4 million.
Mothers and fathers of 19 babies with antenatally diagnosed CHD participated in interviews during pregnancy and after the birth of their baby. Thirty‐four interviews were analyzed for common themes and distinguishing characteristics of antenatal decision making.
Parents approached their antenatal decisions regarding further testing and continuation of the pregnancy as their first parenting decisions. They made their decisions with differing degrees of apparent ease or deliberation, and some parents more readily sought the opinion of professionals. The offered opinions offended some parents, even though the professionals may have intended the information as descriptive of options, not suggestive of a particular decision.
Although advances in technology have enabled diagnosis of CHD antenatally, health care professionals, including nurses, must elicit each parent's particular perspective, be cognizant of their professional influence, and actively support parents from the time of the antenatal diagnosis.</description><identifier>ISSN: 0884-2175</identifier><identifier>EISSN: 1552-6909</identifier><identifier>DOI: 10.1177/0884217503261092</identifier><identifier>PMID: 14971554</identifier><language>eng</language><publisher>Oxford, UK: Elsevier Inc</publisher><subject>Abortion, Therapeutic - psychology ; Adaptation, Psychological ; Amniocentesis ; Antenatal diagnosis ; Attitude to Health ; Cardiovascular disease ; Congenital heart disease ; Decision Making ; Female ; Fetal cardiology ; Heart Defects, Congenital - diagnosis ; Humans ; Infant, Newborn ; Male ; Medical diagnosis ; Nurse's Role ; Nursing ; Nursing Methodology Research ; Parents & parenting ; Parents - education ; Parents - psychology ; Perceptions ; Pregnancy ; Prenatal Diagnosis - nursing ; Prenatal Diagnosis - psychology ; Professional-Family Relations ; Qualitative Research ; Social Support ; Surveys and Questionnaires ; Ultrasonography, Prenatal</subject><ispartof>Journal of obstetric, gynecologic, and neonatal nursing, 2004-01, Vol.33 (1), p.64-70</ispartof><rights>2004 AWHONN, the Association of Women's Health, Obstetric and Neonatal Nurses</rights><rights>Copyright SAGE PUBLICATIONS, INC. Jan/Feb 2004</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5564-fa6564613e885d5f0602b962984ec7d1e84e4267d4b3ba2154eab37827ad8d6d3</citedby><cites>FETCH-LOGICAL-c5564-fa6564613e885d5f0602b962984ec7d1e84e4267d4b3ba2154eab37827ad8d6d3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1177%2F0884217503261092$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1177%2F0884217503261092$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,780,784,1417,27924,27925,45574,45575</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/14971554$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Rempel, Gwen R.</creatorcontrib><creatorcontrib>Cender, Loryle M.</creatorcontrib><creatorcontrib>Lynam, M. Judith</creatorcontrib><creatorcontrib>Sandor, George G.</creatorcontrib><creatorcontrib>Farquharson, Duncan</creatorcontrib><title>Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease</title><title>Journal of obstetric, gynecologic, and neonatal nursing</title><addtitle>J Obstet Gynecol Neonatal Nurs</addtitle><description>To discover and describe how prospective parents make decisions when they learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide professionals with direction for their interactions with these families.
Qualitative analysis informed by symbolic interactionism.
A tertiary care women's health center that provided referral services for a province with a population of 4 million.
Mothers and fathers of 19 babies with antenatally diagnosed CHD participated in interviews during pregnancy and after the birth of their baby. Thirty‐four interviews were analyzed for common themes and distinguishing characteristics of antenatal decision making.
Parents approached their antenatal decisions regarding further testing and continuation of the pregnancy as their first parenting decisions. They made their decisions with differing degrees of apparent ease or deliberation, and some parents more readily sought the opinion of professionals. The offered opinions offended some parents, even though the professionals may have intended the information as descriptive of options, not suggestive of a particular decision.
Although advances in technology have enabled diagnosis of CHD antenatally, health care professionals, including nurses, must elicit each parent's particular perspective, be cognizant of their professional influence, and actively support parents from the time of the antenatal diagnosis.</description><subject>Abortion, Therapeutic - psychology</subject><subject>Adaptation, Psychological</subject><subject>Amniocentesis</subject><subject>Antenatal diagnosis</subject><subject>Attitude to Health</subject><subject>Cardiovascular disease</subject><subject>Congenital heart disease</subject><subject>Decision Making</subject><subject>Female</subject><subject>Fetal cardiology</subject><subject>Heart Defects, Congenital - diagnosis</subject><subject>Humans</subject><subject>Infant, Newborn</subject><subject>Male</subject><subject>Medical diagnosis</subject><subject>Nurse's Role</subject><subject>Nursing</subject><subject>Nursing Methodology Research</subject><subject>Parents & parenting</subject><subject>Parents - education</subject><subject>Parents - psychology</subject><subject>Perceptions</subject><subject>Pregnancy</subject><subject>Prenatal Diagnosis - nursing</subject><subject>Prenatal Diagnosis - psychology</subject><subject>Professional-Family Relations</subject><subject>Qualitative Research</subject><subject>Social Support</subject><subject>Surveys and Questionnaires</subject><subject>Ultrasonography, Prenatal</subject><issn>0884-2175</issn><issn>1552-6909</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2004</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqFks1v1DAQxS0EokvhzglFHOgp4G873FZbuqUqbUFFvWE58WTlNussdrYf_z2OsgKpEuDLWDO_96TxM0KvCX5PiFIfsNacEiUwo5Lgij5BMyIELWWFq6doNo7Lcb6HXqR0jcfDqudoj_BKZZDP0I8LGyEM6aC4gJg20Az-FlLRh-IQGp98vnyxNz6sink7QCzmYYBgB9sVh96uQp98htti0YcVBD_2j8HGIU8T2AQv0bPWdgle7eo--n706XJxXJ6eLz8v5qdlI4TkZWtlLpIw0Fo40WKJaV1JWmkOjXIEcuVUKsdrVltKBAdbM6Wpsk476dg-ejf5bmL_cwtpMGufGug6G6DfJqMxUVhQlsGDf4JK5gflgqhMvn1EXvfbGPIWhjLMuFZstMMT1MQ-pQit2US_tvHBEGzGiMzjiLLkzc53W6_B_RHsMskAn4A738HDfw3NyfnyTI6ycpL5NMD9b5mNN0YqpoS5Oluao29iIS5PvpqrzH-ceMi53HqIJjUeQgPOx_wNjOv935f4BZZTug0</recordid><startdate>200401</startdate><enddate>200401</enddate><creator>Rempel, Gwen R.</creator><creator>Cender, Loryle M.</creator><creator>Lynam, M. Judith</creator><creator>Sandor, George G.</creator><creator>Farquharson, Duncan</creator><general>Elsevier Inc</general><general>Blackwell Publishing Ltd</general><general>Elsevier Limited</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>200401</creationdate><title>Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease</title><author>Rempel, Gwen R. ; Cender, Loryle M. ; Lynam, M. Judith ; Sandor, George G. ; Farquharson, Duncan</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5564-fa6564613e885d5f0602b962984ec7d1e84e4267d4b3ba2154eab37827ad8d6d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2004</creationdate><topic>Abortion, Therapeutic - psychology</topic><topic>Adaptation, Psychological</topic><topic>Amniocentesis</topic><topic>Antenatal diagnosis</topic><topic>Attitude to Health</topic><topic>Cardiovascular disease</topic><topic>Congenital heart disease</topic><topic>Decision Making</topic><topic>Female</topic><topic>Fetal cardiology</topic><topic>Heart Defects, Congenital - diagnosis</topic><topic>Humans</topic><topic>Infant, Newborn</topic><topic>Male</topic><topic>Medical diagnosis</topic><topic>Nurse's Role</topic><topic>Nursing</topic><topic>Nursing Methodology Research</topic><topic>Parents & parenting</topic><topic>Parents - education</topic><topic>Parents - psychology</topic><topic>Perceptions</topic><topic>Pregnancy</topic><topic>Prenatal Diagnosis - nursing</topic><topic>Prenatal Diagnosis - psychology</topic><topic>Professional-Family Relations</topic><topic>Qualitative Research</topic><topic>Social Support</topic><topic>Surveys and Questionnaires</topic><topic>Ultrasonography, Prenatal</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rempel, Gwen R.</creatorcontrib><creatorcontrib>Cender, Loryle M.</creatorcontrib><creatorcontrib>Lynam, M. Judith</creatorcontrib><creatorcontrib>Sandor, George G.</creatorcontrib><creatorcontrib>Farquharson, Duncan</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of obstetric, gynecologic, and neonatal nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Rempel, Gwen R.</au><au>Cender, Loryle M.</au><au>Lynam, M. Judith</au><au>Sandor, George G.</au><au>Farquharson, Duncan</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease</atitle><jtitle>Journal of obstetric, gynecologic, and neonatal nursing</jtitle><addtitle>J Obstet Gynecol Neonatal Nurs</addtitle><date>2004-01</date><risdate>2004</risdate><volume>33</volume><issue>1</issue><spage>64</spage><epage>70</epage><pages>64-70</pages><issn>0884-2175</issn><eissn>1552-6909</eissn><abstract>To discover and describe how prospective parents make decisions when they learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide professionals with direction for their interactions with these families.
Qualitative analysis informed by symbolic interactionism.
A tertiary care women's health center that provided referral services for a province with a population of 4 million.
Mothers and fathers of 19 babies with antenatally diagnosed CHD participated in interviews during pregnancy and after the birth of their baby. Thirty‐four interviews were analyzed for common themes and distinguishing characteristics of antenatal decision making.
Parents approached their antenatal decisions regarding further testing and continuation of the pregnancy as their first parenting decisions. They made their decisions with differing degrees of apparent ease or deliberation, and some parents more readily sought the opinion of professionals. The offered opinions offended some parents, even though the professionals may have intended the information as descriptive of options, not suggestive of a particular decision.
Although advances in technology have enabled diagnosis of CHD antenatally, health care professionals, including nurses, must elicit each parent's particular perspective, be cognizant of their professional influence, and actively support parents from the time of the antenatal diagnosis.</abstract><cop>Oxford, UK</cop><pub>Elsevier Inc</pub><pmid>14971554</pmid><doi>10.1177/0884217503261092</doi><tpages>7</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0884-2175 |
| ispartof | Journal of obstetric, gynecologic, and neonatal nursing, 2004-01, Vol.33 (1), p.64-70 |
| issn | 0884-2175 1552-6909 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_80170523 |
| source | MEDLINE; Access via Wiley Online Library; Alma/SFX Local Collection |
| subjects | Abortion, Therapeutic - psychology Adaptation, Psychological Amniocentesis Antenatal diagnosis Attitude to Health Cardiovascular disease Congenital heart disease Decision Making Female Fetal cardiology Heart Defects, Congenital - diagnosis Humans Infant, Newborn Male Medical diagnosis Nurse's Role Nursing Nursing Methodology Research Parents & parenting Parents - education Parents - psychology Perceptions Pregnancy Prenatal Diagnosis - nursing Prenatal Diagnosis - psychology Professional-Family Relations Qualitative Research Social Support Surveys and Questionnaires Ultrasonography, Prenatal |
| title | Parents' Perspectives on Decision Making After Antenatal Diagnosis of Congenital Heart Disease |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-26T18%3A32%3A31IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Parents'%20Perspectives%20on%20Decision%20Making%20After%20Antenatal%20Diagnosis%20of%20Congenital%20Heart%20Disease&rft.jtitle=Journal%20of%20obstetric,%20gynecologic,%20and%20neonatal%20nursing&rft.au=Rempel,%20Gwen%20R.&rft.date=2004-01&rft.volume=33&rft.issue=1&rft.spage=64&rft.epage=70&rft.pages=64-70&rft.issn=0884-2175&rft.eissn=1552-6909&rft_id=info:doi/10.1177/0884217503261092&rft_dat=%3Cproquest_cross%3E616280201%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=230348733&rft_id=info:pmid/14971554&rft_els_id=S0884217515341320&rfr_iscdi=true |