Trajectories of Adaptation in Pediatric Chronic Illness: The Importance of the Individual

This study used individual growth modeling to examine individual difference and group difference models of adaptation. The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A co...

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Veröffentlicht in:Journal of consulting and clinical psychology 1998-06, Vol.66 (3), p.521-532
Hauptverfasser: Frank, Robert G, Thayer, Julian F, Hagglund, Kristofer J, Vieth, Angela Z, Schopp, Laura H, Beck, Niels C, Kashani, Javad H, Goldstein, David E, Cassidy, James T, Clay, Daniel L, Chaney, John M, Hewett, John E, Johnson, Jane C
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container_end_page 532
container_issue 3
container_start_page 521
container_title Journal of consulting and clinical psychology
container_volume 66
creator Frank, Robert G
Thayer, Julian F
Hagglund, Kristofer J
Vieth, Angela Z
Schopp, Laura H
Beck, Niels C
Kashani, Javad H
Goldstein, David E
Cassidy, James T
Clay, Daniel L
Chaney, John M
Hewett, John E
Johnson, Jane C
description This study used individual growth modeling to examine individual difference and group difference models of adaptation. The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A control group of 62 healthy children was followed over the same time period. Clustering procedures indicated that child and family adaptation could be described by a number of distinct adaptation trajectories, independent of diagnostic group membership. In contrast, parental adaptation trajectory was associated with diagnostic group membership and control over disease activity for the JRA group and with diagnostic group membership for healthy controls. The observation of common patterns across trajectory sets, as well as the finding that trajectories were differentially related to a number of variables of interest, support the use of trajectories to represent adaptation to chronic disease.
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The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A control group of 62 healthy children was followed over the same time period. Clustering procedures indicated that child and family adaptation could be described by a number of distinct adaptation trajectories, independent of diagnostic group membership. In contrast, parental adaptation trajectory was associated with diagnostic group membership and control over disease activity for the JRA group and with diagnostic group membership for healthy controls. The observation of common patterns across trajectory sets, as well as the finding that trajectories were differentially related to a number of variables of interest, support the use of trajectories to represent adaptation to chronic disease.</description><identifier>ISSN: 0022-006X</identifier><identifier>EISSN: 1939-2117</identifier><identifier>DOI: 10.1037/0022-006X.66.3.521</identifier><identifier>PMID: 9642891</identifier><identifier>CODEN: JCLPBC</identifier><language>eng</language><publisher>Washington, DC: American Psychological Association</publisher><subject>Adaptation ; Adaptation, Psychological ; Adolescent ; Arthritis, Juvenile - psychology ; Behavior Problems ; Biological and medical sciences ; Child ; Child psychology ; Child, Preschool ; Children ; Chronic Disease - psychology ; Chronic diseases ; Chronic illnesses ; Coping Behavior ; Diabetes Mellitus ; Diabetes Mellitus, Type 1 - psychology ; Factors ; Family Relations ; Female ; Follow-Up Studies ; Fundamental and applied biological sciences. Psychology ; Human ; Humans ; Illness and personality ; Illness, stress and coping ; Individuality ; Infant ; Internal-External Control ; Male ; Parents ; Parents - psychology ; Pediatrics ; Personality Assessment ; Psychology and medicine ; Psychology. Psychoanalysis. Psychiatry ; Psychology. Psychophysiology ; Rheumatoid Arthritis ; Sick Role</subject><ispartof>Journal of consulting and clinical psychology, 1998-06, Vol.66 (3), p.521-532</ispartof><rights>1998 American Psychological Association</rights><rights>1998 INIST-CNRS</rights><rights>Copyright American Psychological Association Jun 1998</rights><rights>1998, American Psychological Association</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-a505t-b51257c25936cf2f47dd32ee5c91c7c8d5191242fb906d10e9c1520fd74470c83</citedby></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,27846,27901,27902,30976,30977</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&amp;idt=2294458$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/9642891$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><contributor>Kendall, Philip C</contributor><creatorcontrib>Frank, Robert G</creatorcontrib><creatorcontrib>Thayer, Julian F</creatorcontrib><creatorcontrib>Hagglund, Kristofer J</creatorcontrib><creatorcontrib>Vieth, Angela Z</creatorcontrib><creatorcontrib>Schopp, Laura H</creatorcontrib><creatorcontrib>Beck, Niels C</creatorcontrib><creatorcontrib>Kashani, Javad H</creatorcontrib><creatorcontrib>Goldstein, David E</creatorcontrib><creatorcontrib>Cassidy, James T</creatorcontrib><creatorcontrib>Clay, Daniel L</creatorcontrib><creatorcontrib>Chaney, John M</creatorcontrib><creatorcontrib>Hewett, John E</creatorcontrib><creatorcontrib>Johnson, Jane C</creatorcontrib><title>Trajectories of Adaptation in Pediatric Chronic Illness: The Importance of the Individual</title><title>Journal of consulting and clinical psychology</title><addtitle>J Consult Clin Psychol</addtitle><description>This study used individual growth modeling to examine individual difference and group difference models of adaptation. The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A control group of 62 healthy children was followed over the same time period. Clustering procedures indicated that child and family adaptation could be described by a number of distinct adaptation trajectories, independent of diagnostic group membership. In contrast, parental adaptation trajectory was associated with diagnostic group membership and control over disease activity for the JRA group and with diagnostic group membership for healthy controls. The observation of common patterns across trajectory sets, as well as the finding that trajectories were differentially related to a number of variables of interest, support the use of trajectories to represent adaptation to chronic disease.</description><subject>Adaptation</subject><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Arthritis, Juvenile - psychology</subject><subject>Behavior Problems</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Child psychology</subject><subject>Child, Preschool</subject><subject>Children</subject><subject>Chronic Disease - psychology</subject><subject>Chronic diseases</subject><subject>Chronic illnesses</subject><subject>Coping Behavior</subject><subject>Diabetes Mellitus</subject><subject>Diabetes Mellitus, Type 1 - psychology</subject><subject>Factors</subject><subject>Family Relations</subject><subject>Female</subject><subject>Follow-Up Studies</subject><subject>Fundamental and applied biological sciences. Psychology</subject><subject>Human</subject><subject>Humans</subject><subject>Illness and personality</subject><subject>Illness, stress and coping</subject><subject>Individuality</subject><subject>Infant</subject><subject>Internal-External Control</subject><subject>Male</subject><subject>Parents</subject><subject>Parents - psychology</subject><subject>Pediatrics</subject><subject>Personality Assessment</subject><subject>Psychology and medicine</subject><subject>Psychology. Psychoanalysis. Psychiatry</subject><subject>Psychology. 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The adaptation of 27 children with juvenile rheumatoid arthritis (JRA) and 40 children with insulin-dependent diabetes mellitus (IDDM) was tracked for 18 months from diagnosis. A control group of 62 healthy children was followed over the same time period. Clustering procedures indicated that child and family adaptation could be described by a number of distinct adaptation trajectories, independent of diagnostic group membership. In contrast, parental adaptation trajectory was associated with diagnostic group membership and control over disease activity for the JRA group and with diagnostic group membership for healthy controls. The observation of common patterns across trajectory sets, as well as the finding that trajectories were differentially related to a number of variables of interest, support the use of trajectories to represent adaptation to chronic disease.</abstract><cop>Washington, DC</cop><pub>American Psychological Association</pub><pmid>9642891</pmid><doi>10.1037/0022-006X.66.3.521</doi><tpages>12</tpages></addata></record>
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subjects Adaptation
Adaptation, Psychological
Adolescent
Arthritis, Juvenile - psychology
Behavior Problems
Biological and medical sciences
Child
Child psychology
Child, Preschool
Children
Chronic Disease - psychology
Chronic diseases
Chronic illnesses
Coping Behavior
Diabetes Mellitus
Diabetes Mellitus, Type 1 - psychology
Factors
Family Relations
Female
Follow-Up Studies
Fundamental and applied biological sciences. Psychology
Human
Humans
Illness and personality
Illness, stress and coping
Individuality
Infant
Internal-External Control
Male
Parents
Parents - psychology
Pediatrics
Personality Assessment
Psychology and medicine
Psychology. Psychoanalysis. Psychiatry
Psychology. Psychophysiology
Rheumatoid Arthritis
Sick Role
title Trajectories of Adaptation in Pediatric Chronic Illness: The Importance of the Individual
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