Support needs in the last year of life: patient and carer dilemmas
The aim of this study was to identify needs for support and problems in the introduction of support to terminally ill patients and their carers. The design involved semistructured interviews with patients and carers as well as a survey of general practitioners' (GPs) views, and took place in GP...
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| Veröffentlicht in: | Palliative medicine 1997-05, Vol.11 (3), p.202-208 |
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| creator | Grande, GE Todd, CJ Barclay, Sig |
| description | The aim of this study was to identify needs for support and problems in the introduction of support to terminally ill patients and their carers. The design involved semistructured interviews with patients and carers as well as a survey of general practitioners' (GPs) views, and took place in GP practices and homes of patients in Cambridgeshire.
The subjects comprised 43 terminally ill patients, 30 carers, 80 GPs and 13 of their GP partners. The main outcome measures were quantitative data about additional help required and qualitative data on reasons for reluctance to seek help.
Needs for help with transport, personal care and housework were identified. Carers may also need reassurance from health professionals. The need for outside help may at times conflict with the need to preserve independence, dignity and familiar aspects of life. Sometimes carers may feel that there is need for more help, but that this conflicts with patients' wishes. There may also be reluctance to seek help because of a perceived lack of resources and professionals' time.
In conclusion, an increase in services is necessary but not sufficient to meet patients' needs fully. Services should be introduced in ways that help patients to preserve independence, dignity and familiar aspects of life. The perception of accessibility to health professionals may need to be improved. Carers' needs should be assessed separately from patients' needs. |
| doi_str_mv | 10.1177/026921639701100304 |
| format | Article |
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The subjects comprised 43 terminally ill patients, 30 carers, 80 GPs and 13 of their GP partners. The main outcome measures were quantitative data about additional help required and qualitative data on reasons for reluctance to seek help.
Needs for help with transport, personal care and housework were identified. Carers may also need reassurance from health professionals. The need for outside help may at times conflict with the need to preserve independence, dignity and familiar aspects of life. Sometimes carers may feel that there is need for more help, but that this conflicts with patients' wishes. There may also be reluctance to seek help because of a perceived lack of resources and professionals' time.
In conclusion, an increase in services is necessary but not sufficient to meet patients' needs fully. Services should be introduced in ways that help patients to preserve independence, dignity and familiar aspects of life. The perception of accessibility to health professionals may need to be improved. Carers' needs should be assessed separately from patients' needs.</description><identifier>ISSN: 0269-2163</identifier><identifier>EISSN: 1477-030X</identifier><identifier>DOI: 10.1177/026921639701100304</identifier><identifier>PMID: 9205653</identifier><identifier>CODEN: PAMDE2</identifier><language>eng</language><publisher>Thousand Oaks, CA: Sage Publications</publisher><subject>Activities of Daily Living ; Adult ; Aged ; Biological and medical sciences ; Cambridgeshire ; Caregivers ; Carers ; Comparison ; England ; Family Practice - organization & administration ; Female ; Health Services Needs and Demand ; Home Care Services - organization & administration ; Humans ; Male ; Medical sciences ; Middle Aged ; Needs ; Neoplasms - therapy ; Patient Acceptance of Health Care ; Prevention and actions ; Public health. Hygiene ; Public health. Hygiene-occupational medicine ; Social Support ; Specific populations (family, woman, child, elderly...) ; Support services ; Terminal Care - organization & administration ; Terminally ill people</subject><ispartof>Palliative medicine, 1997-05, Vol.11 (3), p.202-208</ispartof><rights>1997 INIST-CNRS</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c569t-f6c550758428483fff910032a8c79eaf1cb57bb604cb70f3ac5f37ca3a9ec9ba3</citedby><cites>FETCH-LOGICAL-c569t-f6c550758428483fff910032a8c79eaf1cb57bb604cb70f3ac5f37ca3a9ec9ba3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/026921639701100304$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/026921639701100304$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,780,784,21819,27924,27925,31000,43621,43622</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=2673772$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/9205653$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Grande, GE</creatorcontrib><creatorcontrib>Todd, CJ</creatorcontrib><creatorcontrib>Barclay, Sig</creatorcontrib><title>Support needs in the last year of life: patient and carer dilemmas</title><title>Palliative medicine</title><addtitle>Palliat Med</addtitle><description>The aim of this study was to identify needs for support and problems in the introduction of support to terminally ill patients and their carers. The design involved semistructured interviews with patients and carers as well as a survey of general practitioners' (GPs) views, and took place in GP practices and homes of patients in Cambridgeshire.
The subjects comprised 43 terminally ill patients, 30 carers, 80 GPs and 13 of their GP partners. The main outcome measures were quantitative data about additional help required and qualitative data on reasons for reluctance to seek help.
Needs for help with transport, personal care and housework were identified. Carers may also need reassurance from health professionals. The need for outside help may at times conflict with the need to preserve independence, dignity and familiar aspects of life. Sometimes carers may feel that there is need for more help, but that this conflicts with patients' wishes. There may also be reluctance to seek help because of a perceived lack of resources and professionals' time.
In conclusion, an increase in services is necessary but not sufficient to meet patients' needs fully. Services should be introduced in ways that help patients to preserve independence, dignity and familiar aspects of life. The perception of accessibility to health professionals may need to be improved. Carers' needs should be assessed separately from patients' needs.</description><subject>Activities of Daily Living</subject><subject>Adult</subject><subject>Aged</subject><subject>Biological and medical sciences</subject><subject>Cambridgeshire</subject><subject>Caregivers</subject><subject>Carers</subject><subject>Comparison</subject><subject>England</subject><subject>Family Practice - organization & administration</subject><subject>Female</subject><subject>Health Services Needs and Demand</subject><subject>Home Care Services - organization & administration</subject><subject>Humans</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Needs</subject><subject>Neoplasms - therapy</subject><subject>Patient Acceptance of Health Care</subject><subject>Prevention and actions</subject><subject>Public health. Hygiene</subject><subject>Public health. Hygiene-occupational medicine</subject><subject>Social Support</subject><subject>Specific populations (family, woman, child, elderly...)</subject><subject>Support services</subject><subject>Terminal Care - organization & administration</subject><subject>Terminally ill people</subject><issn>0269-2163</issn><issn>1477-030X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>1997</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqF0U1LHEEQBuBGImY1_oFAoA_BnMbt79rOTSVGYcGDEbwNNb3Vych8pXvmsP_eWXbxEjCnbqin3m6qGPssxaWUAEuhnFfSaQ9CSiG0MEdsIQ1AMd-fP7DFDhQ78ZGd5vwihNTCmRN24pWwzuoFu36chqFPI--INpnXHR__EG8wj3xLmHgfeVNH-s4HHGvqRo7dhgdMlPimbqhtMX9ixxGbTOeH84w93f74dXNXrB9-3t9crYtgnR-L6IK1AuzKqJVZ6Rij3_1Z4SqAJ4wyVBaqygkTKhBRY7BRQ0CNnoKvUJ-xi33ukPq_E-WxbOscqGmwo37KJXjhpVFyht_eh84IqYyT_420YA1IcDNUexhSn3OiWA6pbjFtSynK3S7Kf3cxN305pE9VS5u3lsPw5_rXQx1zwCYm7EKd35hyoAHUzJZ7lvE3lS_9lLp5zO89_Arsr5xQ</recordid><startdate>19970501</startdate><enddate>19970501</enddate><creator>Grande, GE</creator><creator>Todd, CJ</creator><creator>Barclay, Sig</creator><general>Sage Publications</general><general>Turpin</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>7X8</scope></search><sort><creationdate>19970501</creationdate><title>Support needs in the last year of life: patient and carer dilemmas</title><author>Grande, GE ; Todd, CJ ; Barclay, Sig</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c569t-f6c550758428483fff910032a8c79eaf1cb57bb604cb70f3ac5f37ca3a9ec9ba3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>1997</creationdate><topic>Activities of Daily Living</topic><topic>Adult</topic><topic>Aged</topic><topic>Biological and medical sciences</topic><topic>Cambridgeshire</topic><topic>Caregivers</topic><topic>Carers</topic><topic>Comparison</topic><topic>England</topic><topic>Family Practice - organization & administration</topic><topic>Female</topic><topic>Health Services Needs and Demand</topic><topic>Home Care Services - organization & administration</topic><topic>Humans</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Needs</topic><topic>Neoplasms - therapy</topic><topic>Patient Acceptance of Health Care</topic><topic>Prevention and actions</topic><topic>Public health. Hygiene</topic><topic>Public health. Hygiene-occupational medicine</topic><topic>Social Support</topic><topic>Specific populations (family, woman, child, elderly...)</topic><topic>Support services</topic><topic>Terminal Care - organization & administration</topic><topic>Terminally ill people</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Grande, GE</creatorcontrib><creatorcontrib>Todd, CJ</creatorcontrib><creatorcontrib>Barclay, Sig</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>MEDLINE - Academic</collection><jtitle>Palliative medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Grande, GE</au><au>Todd, CJ</au><au>Barclay, Sig</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Support needs in the last year of life: patient and carer dilemmas</atitle><jtitle>Palliative medicine</jtitle><addtitle>Palliat Med</addtitle><date>1997-05-01</date><risdate>1997</risdate><volume>11</volume><issue>3</issue><spage>202</spage><epage>208</epage><pages>202-208</pages><issn>0269-2163</issn><eissn>1477-030X</eissn><coden>PAMDE2</coden><abstract>The aim of this study was to identify needs for support and problems in the introduction of support to terminally ill patients and their carers. The design involved semistructured interviews with patients and carers as well as a survey of general practitioners' (GPs) views, and took place in GP practices and homes of patients in Cambridgeshire.
The subjects comprised 43 terminally ill patients, 30 carers, 80 GPs and 13 of their GP partners. The main outcome measures were quantitative data about additional help required and qualitative data on reasons for reluctance to seek help.
Needs for help with transport, personal care and housework were identified. Carers may also need reassurance from health professionals. The need for outside help may at times conflict with the need to preserve independence, dignity and familiar aspects of life. Sometimes carers may feel that there is need for more help, but that this conflicts with patients' wishes. There may also be reluctance to seek help because of a perceived lack of resources and professionals' time.
In conclusion, an increase in services is necessary but not sufficient to meet patients' needs fully. Services should be introduced in ways that help patients to preserve independence, dignity and familiar aspects of life. The perception of accessibility to health professionals may need to be improved. Carers' needs should be assessed separately from patients' needs.</abstract><cop>Thousand Oaks, CA</cop><pub>Sage Publications</pub><pmid>9205653</pmid><doi>10.1177/026921639701100304</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0269-2163 |
| ispartof | Palliative medicine, 1997-05, Vol.11 (3), p.202-208 |
| issn | 0269-2163 1477-030X |
| language | eng |
| recordid | cdi_proquest_miscellaneous_79091421 |
| source | MEDLINE; SAGE Complete; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Activities of Daily Living Adult Aged Biological and medical sciences Cambridgeshire Caregivers Carers Comparison England Family Practice - organization & administration Female Health Services Needs and Demand Home Care Services - organization & administration Humans Male Medical sciences Middle Aged Needs Neoplasms - therapy Patient Acceptance of Health Care Prevention and actions Public health. Hygiene Public health. Hygiene-occupational medicine Social Support Specific populations (family, woman, child, elderly...) Support services Terminal Care - organization & administration Terminally ill people |
| title | Support needs in the last year of life: patient and carer dilemmas |
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