Heart transplantation experiences: a phenomenological approach
Aim. The aim of this study was to understand the heart transplantation experience based on patients’ descriptions. Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life i...
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| Veröffentlicht in: | Journal of clinical nursing 2008-07, Vol.17 (7b), p.217-225 |
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| creator | Sadala, Maria Lúcia Araújo Stolf, Noedir Antônio Groppo |
| description | Aim. The aim of this study was to understand the heart transplantation experience based on patients’ descriptions.
Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life is related to patients’ increasing awareness and participation in the work of the healthcare team in the post‐transplantation period. Deficient relationships between patients and healthcare providers result in lower compliance with the postoperative regimen.
Method. A phenomenological approach was used to interview 26 patients who were heart transplant recipients. Patients were interviewed individually and asked this single question: What does the experience of being heart transplanted mean? Participants’ descriptions were analysed using phenomenological reduction, analysis and interpretation.
Results. Three categories emerged from data analysis: (i) the time lived by the heart recipient; (ii) donors, family and caregivers and (iii) reflections on the experience lived. Living after heart transplant means living in a complex situation: recipients are confronted with lifelong immunosuppressive therapy associated with many side‐effects. Some felt healthy whereas others reported persistence of complications as well as the onset of other pathologies. However, all participants celebrated an improvement in quality of life. Health caregivers, their social and family support had been essential for their struggle. Participants realised that life after heart transplantation was a continuing process demanding support and structured follow‐up for the rest of their lives.
Conclusion. The findings suggest that each individual has unique experiences of the heart transplantation process. To go on living participants had to accept changes and adapt: to the organ change, to complications resulting from rejection of the organ, to lots of pills and food restrictions.
Relevance to clinical practice. Stimulating a heart transplant patients spontaneous expression about what they are experiencing and granting them the actual status of the main character in their own story is important to their care. |
| doi_str_mv | 10.1111/j.1365-2702.2007.02206.x |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_764365167</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>69257674</sourcerecordid><originalsourceid>FETCH-LOGICAL-c4656-f9342a26b178734080c9f6ba55a4f27f7853568e09c147549de747165e4a6163</originalsourceid><addsrcrecordid>eNqNkU9P3DAQxa2qqCzQr1BFHMopqf-OEw5IaFVY0AIXJI4jb5iUbLNJamfF8u3rsCuQeqiwZNmSf_PG8x5jieCZiOvHMhMKTCotl5nk3GZcSg7Z5hObvD18ZhNegEwFB7vPDkJYci6UlOoL2xe5sbkt7ISdzcj5IRm8a0PfuHZwQ921CW168jW1JYXTxCX9E7XdKu6m-1WXrklc3_vOlU9HbK9yTaCvu_OQ3V_8vJ_O0vnd5dX0fJ6WGgykVaG0dBIWIrZVmue8LCpYOGOcrqStbG6UgZx4UQptjS4eyWorwJB2IEAdspOtbOz6Z01hwFUdSmrih6lbB7Sg49gCbCS__5eEQhoLVkfw-B9w2a19G4dAqUz0FMQI5Vuo9F0Inirsfb1y_gUFxzEJXOJoOI6G45gEviaBm1j6bae_Xqzo8b1wZ30EzrbAc93Qy4eF8fpuejteo0C6FajDQJs3Aed_YzTCGny4vcS5mPGH6cU13qi_S5SkCg</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>235007614</pqid></control><display><type>article</type><title>Heart transplantation experiences: a phenomenological approach</title><source>MEDLINE</source><source>Wiley Online Library Journals Frontfile Complete</source><creator>Sadala, Maria Lúcia Araújo ; Stolf, Noedir Antônio Groppo</creator><creatorcontrib>Sadala, Maria Lúcia Araújo ; Stolf, Noedir Antônio Groppo</creatorcontrib><description>Aim. The aim of this study was to understand the heart transplantation experience based on patients’ descriptions.
Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life is related to patients’ increasing awareness and participation in the work of the healthcare team in the post‐transplantation period. Deficient relationships between patients and healthcare providers result in lower compliance with the postoperative regimen.
Method. A phenomenological approach was used to interview 26 patients who were heart transplant recipients. Patients were interviewed individually and asked this single question: What does the experience of being heart transplanted mean? Participants’ descriptions were analysed using phenomenological reduction, analysis and interpretation.
Results. Three categories emerged from data analysis: (i) the time lived by the heart recipient; (ii) donors, family and caregivers and (iii) reflections on the experience lived. Living after heart transplant means living in a complex situation: recipients are confronted with lifelong immunosuppressive therapy associated with many side‐effects. Some felt healthy whereas others reported persistence of complications as well as the onset of other pathologies. However, all participants celebrated an improvement in quality of life. Health caregivers, their social and family support had been essential for their struggle. Participants realised that life after heart transplantation was a continuing process demanding support and structured follow‐up for the rest of their lives.
Conclusion. The findings suggest that each individual has unique experiences of the heart transplantation process. To go on living participants had to accept changes and adapt: to the organ change, to complications resulting from rejection of the organ, to lots of pills and food restrictions.
Relevance to clinical practice. Stimulating a heart transplant patients spontaneous expression about what they are experiencing and granting them the actual status of the main character in their own story is important to their care.</description><identifier>ISSN: 0962-1067</identifier><identifier>EISSN: 1365-2702</identifier><identifier>DOI: 10.1111/j.1365-2702.2007.02206.x</identifier><identifier>PMID: 18578797</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Publishing Ltd</publisher><subject>Activities of Daily Living - psychology ; Adaptation, Psychological ; Adolescent ; Adult ; Attitude to Health ; Brazil ; Caregivers ; chronic illness ; Existentialism - psychology ; Family - psychology ; Fear ; Female ; Guilt ; Health Services Needs and Demand ; Heart failure ; Heart Failure - etiology ; Heart Failure - psychology ; Heart Failure - surgery ; heart transplantation ; Heart Transplantation - adverse effects ; Heart Transplantation - psychology ; Humans ; Life Style ; Male ; Middle Aged ; nurses ; Nursing ; nursing care ; Nursing Methodology Research ; patients' lived experience ; phenomenology ; Qualitative Research ; Quality of life ; Quality of Life - psychology ; Social Support ; Stress, Psychological - etiology ; Stress, Psychological - psychology ; Studies ; Surveys and Questionnaires ; Transplants & implants ; Waiting Lists</subject><ispartof>Journal of clinical nursing, 2008-07, Vol.17 (7b), p.217-225</ispartof><rights>2008 The Authors. Journal compilation © 2008 Blackwell Publishing Ltd</rights><rights>Copyright Blackwell Publishing Ltd. Jul 2008</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4656-f9342a26b178734080c9f6ba55a4f27f7853568e09c147549de747165e4a6163</citedby><cites>FETCH-LOGICAL-c4656-f9342a26b178734080c9f6ba55a4f27f7853568e09c147549de747165e4a6163</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fj.1365-2702.2007.02206.x$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fj.1365-2702.2007.02206.x$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,777,781,1412,27905,27906,45555,45556</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/18578797$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sadala, Maria Lúcia Araújo</creatorcontrib><creatorcontrib>Stolf, Noedir Antônio Groppo</creatorcontrib><title>Heart transplantation experiences: a phenomenological approach</title><title>Journal of clinical nursing</title><addtitle>J Clin Nurs</addtitle><description>Aim. The aim of this study was to understand the heart transplantation experience based on patients’ descriptions.
Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life is related to patients’ increasing awareness and participation in the work of the healthcare team in the post‐transplantation period. Deficient relationships between patients and healthcare providers result in lower compliance with the postoperative regimen.
Method. A phenomenological approach was used to interview 26 patients who were heart transplant recipients. Patients were interviewed individually and asked this single question: What does the experience of being heart transplanted mean? Participants’ descriptions were analysed using phenomenological reduction, analysis and interpretation.
Results. Three categories emerged from data analysis: (i) the time lived by the heart recipient; (ii) donors, family and caregivers and (iii) reflections on the experience lived. Living after heart transplant means living in a complex situation: recipients are confronted with lifelong immunosuppressive therapy associated with many side‐effects. Some felt healthy whereas others reported persistence of complications as well as the onset of other pathologies. However, all participants celebrated an improvement in quality of life. Health caregivers, their social and family support had been essential for their struggle. Participants realised that life after heart transplantation was a continuing process demanding support and structured follow‐up for the rest of their lives.
Conclusion. The findings suggest that each individual has unique experiences of the heart transplantation process. To go on living participants had to accept changes and adapt: to the organ change, to complications resulting from rejection of the organ, to lots of pills and food restrictions.
Relevance to clinical practice. Stimulating a heart transplant patients spontaneous expression about what they are experiencing and granting them the actual status of the main character in their own story is important to their care.</description><subject>Activities of Daily Living - psychology</subject><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Attitude to Health</subject><subject>Brazil</subject><subject>Caregivers</subject><subject>chronic illness</subject><subject>Existentialism - psychology</subject><subject>Family - psychology</subject><subject>Fear</subject><subject>Female</subject><subject>Guilt</subject><subject>Health Services Needs and Demand</subject><subject>Heart failure</subject><subject>Heart Failure - etiology</subject><subject>Heart Failure - psychology</subject><subject>Heart Failure - surgery</subject><subject>heart transplantation</subject><subject>Heart Transplantation - adverse effects</subject><subject>Heart Transplantation - psychology</subject><subject>Humans</subject><subject>Life Style</subject><subject>Male</subject><subject>Middle Aged</subject><subject>nurses</subject><subject>Nursing</subject><subject>nursing care</subject><subject>Nursing Methodology Research</subject><subject>patients' lived experience</subject><subject>phenomenology</subject><subject>Qualitative Research</subject><subject>Quality of life</subject><subject>Quality of Life - psychology</subject><subject>Social Support</subject><subject>Stress, Psychological - etiology</subject><subject>Stress, Psychological - psychology</subject><subject>Studies</subject><subject>Surveys and Questionnaires</subject><subject>Transplants & implants</subject><subject>Waiting Lists</subject><issn>0962-1067</issn><issn>1365-2702</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2008</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkU9P3DAQxa2qqCzQr1BFHMopqf-OEw5IaFVY0AIXJI4jb5iUbLNJamfF8u3rsCuQeqiwZNmSf_PG8x5jieCZiOvHMhMKTCotl5nk3GZcSg7Z5hObvD18ZhNegEwFB7vPDkJYci6UlOoL2xe5sbkt7ISdzcj5IRm8a0PfuHZwQ921CW168jW1JYXTxCX9E7XdKu6m-1WXrklc3_vOlU9HbK9yTaCvu_OQ3V_8vJ_O0vnd5dX0fJ6WGgykVaG0dBIWIrZVmue8LCpYOGOcrqStbG6UgZx4UQptjS4eyWorwJB2IEAdspOtbOz6Z01hwFUdSmrih6lbB7Sg49gCbCS__5eEQhoLVkfw-B9w2a19G4dAqUz0FMQI5Vuo9F0Inirsfb1y_gUFxzEJXOJoOI6G45gEviaBm1j6bae_Xqzo8b1wZ30EzrbAc93Qy4eF8fpuejteo0C6FajDQJs3Aed_YzTCGny4vcS5mPGH6cU13qi_S5SkCg</recordid><startdate>200807</startdate><enddate>200807</enddate><creator>Sadala, Maria Lúcia Araújo</creator><creator>Stolf, Noedir Antônio Groppo</creator><general>Blackwell Publishing Ltd</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>200807</creationdate><title>Heart transplantation experiences: a phenomenological approach</title><author>Sadala, Maria Lúcia Araújo ; Stolf, Noedir Antônio Groppo</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4656-f9342a26b178734080c9f6ba55a4f27f7853568e09c147549de747165e4a6163</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2008</creationdate><topic>Activities of Daily Living - psychology</topic><topic>Adaptation, Psychological</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Attitude to Health</topic><topic>Brazil</topic><topic>Caregivers</topic><topic>chronic illness</topic><topic>Existentialism - psychology</topic><topic>Family - psychology</topic><topic>Fear</topic><topic>Female</topic><topic>Guilt</topic><topic>Health Services Needs and Demand</topic><topic>Heart failure</topic><topic>Heart Failure - etiology</topic><topic>Heart Failure - psychology</topic><topic>Heart Failure - surgery</topic><topic>heart transplantation</topic><topic>Heart Transplantation - adverse effects</topic><topic>Heart Transplantation - psychology</topic><topic>Humans</topic><topic>Life Style</topic><topic>Male</topic><topic>Middle Aged</topic><topic>nurses</topic><topic>Nursing</topic><topic>nursing care</topic><topic>Nursing Methodology Research</topic><topic>patients' lived experience</topic><topic>phenomenology</topic><topic>Qualitative Research</topic><topic>Quality of life</topic><topic>Quality of Life - psychology</topic><topic>Social Support</topic><topic>Stress, Psychological - etiology</topic><topic>Stress, Psychological - psychology</topic><topic>Studies</topic><topic>Surveys and Questionnaires</topic><topic>Transplants & implants</topic><topic>Waiting Lists</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Sadala, Maria Lúcia Araújo</creatorcontrib><creatorcontrib>Stolf, Noedir Antônio Groppo</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of clinical nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Sadala, Maria Lúcia Araújo</au><au>Stolf, Noedir Antônio Groppo</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Heart transplantation experiences: a phenomenological approach</atitle><jtitle>Journal of clinical nursing</jtitle><addtitle>J Clin Nurs</addtitle><date>2008-07</date><risdate>2008</risdate><volume>17</volume><issue>7b</issue><spage>217</spage><epage>225</epage><pages>217-225</pages><issn>0962-1067</issn><eissn>1365-2702</eissn><abstract>Aim. The aim of this study was to understand the heart transplantation experience based on patients’ descriptions.
Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life is related to patients’ increasing awareness and participation in the work of the healthcare team in the post‐transplantation period. Deficient relationships between patients and healthcare providers result in lower compliance with the postoperative regimen.
Method. A phenomenological approach was used to interview 26 patients who were heart transplant recipients. Patients were interviewed individually and asked this single question: What does the experience of being heart transplanted mean? Participants’ descriptions were analysed using phenomenological reduction, analysis and interpretation.
Results. Three categories emerged from data analysis: (i) the time lived by the heart recipient; (ii) donors, family and caregivers and (iii) reflections on the experience lived. Living after heart transplant means living in a complex situation: recipients are confronted with lifelong immunosuppressive therapy associated with many side‐effects. Some felt healthy whereas others reported persistence of complications as well as the onset of other pathologies. However, all participants celebrated an improvement in quality of life. Health caregivers, their social and family support had been essential for their struggle. Participants realised that life after heart transplantation was a continuing process demanding support and structured follow‐up for the rest of their lives.
Conclusion. The findings suggest that each individual has unique experiences of the heart transplantation process. To go on living participants had to accept changes and adapt: to the organ change, to complications resulting from rejection of the organ, to lots of pills and food restrictions.
Relevance to clinical practice. Stimulating a heart transplant patients spontaneous expression about what they are experiencing and granting them the actual status of the main character in their own story is important to their care.</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>18578797</pmid><doi>10.1111/j.1365-2702.2007.02206.x</doi><tpages>9</tpages></addata></record> |
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| subjects | Activities of Daily Living - psychology Adaptation, Psychological Adolescent Adult Attitude to Health Brazil Caregivers chronic illness Existentialism - psychology Family - psychology Fear Female Guilt Health Services Needs and Demand Heart failure Heart Failure - etiology Heart Failure - psychology Heart Failure - surgery heart transplantation Heart Transplantation - adverse effects Heart Transplantation - psychology Humans Life Style Male Middle Aged nurses Nursing nursing care Nursing Methodology Research patients' lived experience phenomenology Qualitative Research Quality of life Quality of Life - psychology Social Support Stress, Psychological - etiology Stress, Psychological - psychology Studies Surveys and Questionnaires Transplants & implants Waiting Lists |
| title | Heart transplantation experiences: a phenomenological approach |
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