Caregivers' Experiences at Home With a Ventilator-Dependent Child
With advancing technology and transformation in health care delivery, more chronically ventilator-dependent children are being discharged to home. Pediatric home health care aims to increase the quality of life of patients and families, decrease cost and duration of hospital stay, and promote commun...
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| Veröffentlicht in: | Qualitative health research 2008-04, Vol.18 (4), p.501-508 |
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| container_title | Qualitative health research |
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| creator | Wang, Kai-Wei Katherine Barnard, Alan |
| description | With advancing technology and transformation in health care delivery, more chronically ventilator-dependent children are being discharged to home. Pediatric home health care aims to increase the quality of life of patients and families, decrease cost and duration of hospital stay, and promote community participation in health care delivery. The authors aimed to describe and identify the qualitatively different experiences of primary caregivers who support ventilator-dependent children at home. Through phenomenographic inquiry 17 primary caregivers described their experiences through interviews that were later analyzed using accepted qualitative methods. Seven categories of description and an outcome space were identified, with findings highlighting the unique experience of this group and providing insight into their personal, social, and collective experiences. Outcomes reveal the significant and distinctive nature of understanding and have implications for clinical practice development, health education, policy formulation, social support, and future research in pediatric home health care. |
| doi_str_mv | 10.1177/1049732307306185 |
| format | Article |
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Barnard, Alan</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c426t-96dd9faead13ba0d24c678a6ed307d68e3c9812131a233e751f083c87047e0343</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2008</creationdate><topic>Adolescent</topic><topic>Caregivers</topic><topic>Carers</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Children</topic><topic>Chronic Disease</topic><topic>Clinical medicine</topic><topic>Clinical outcomes</topic><topic>Community involvement</topic><topic>Disabled Children</topic><topic>Family Health</topic><topic>Female</topic><topic>Health care delivery</topic><topic>Health education</topic><topic>Health technology assessment</topic><topic>Home health care</topic><topic>Home Nursing</topic><topic>Humans</topic><topic>Infant</topic><topic>Male</topic><topic>Medical technology</topic><topic>Paediatrics</topic><topic>Pediatrics</topic><topic>Qualitative research</topic><topic>Quality of life</topic><topic>Social Support</topic><topic>Transformation</topic><topic>Ventilation</topic><topic>Ventilators</topic><topic>Ventilators, Mechanical</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Wang, Kai-Wei Katherine</creatorcontrib><creatorcontrib>Barnard, Alan</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Qualitative health research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Wang, Kai-Wei Katherine</au><au>Barnard, Alan</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Caregivers' Experiences at Home With a Ventilator-Dependent Child</atitle><jtitle>Qualitative health research</jtitle><addtitle>Qual Health Res</addtitle><date>2008-04</date><risdate>2008</risdate><volume>18</volume><issue>4</issue><spage>501</spage><epage>508</epage><pages>501-508</pages><issn>1049-7323</issn><eissn>1552-7557</eissn><coden>QHREEM</coden><abstract>With advancing technology and transformation in health care delivery, more chronically ventilator-dependent children are being discharged to home. 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| ispartof | Qualitative health research, 2008-04, Vol.18 (4), p.501-508 |
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| source | MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA); SAGE Complete A-Z List |
| subjects | Adolescent Caregivers Carers Child Child, Preschool Children Chronic Disease Clinical medicine Clinical outcomes Community involvement Disabled Children Family Health Female Health care delivery Health education Health technology assessment Home health care Home Nursing Humans Infant Male Medical technology Paediatrics Pediatrics Qualitative research Quality of life Social Support Transformation Ventilation Ventilators Ventilators, Mechanical |
| title | Caregivers' Experiences at Home With a Ventilator-Dependent Child |
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