Values in the care for young persons with Prader-Willi syndrome: creating a meaningful life together

Background Caregivers sometimes feel frustrated by present emphasis on self‐determination in the care for individuals with an intellectual disability. They are confronted with situations in which there is a conflict between providing high quality care and respecting the client's autonomy. Such...

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Veröffentlicht in:	Child : care, health & development health & development, 2005-05, Vol.31 (3), p.309-319
Hauptverfasser:	van Hooren, R. H., Widdershoven, G. A. M., van der Bruggen, H., van den Borne, H. W., Curfs, L. M. G.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adult Algorithms Autonomy Caregivers Carers Child Coding Eating - psychology Eating Habits Ethical dilemmas Ethics Family Freedom Genetic Disorders Grounded Theory Group Homes Health care Health education Health Personnel Health Promotion Health Status Humans Intellectual Disability Mild Intellectual Disability Moderate Intellectual Disability Obesity Obesity - complications Obesity - prevention & control Oral Language Parent Associations Personal Autonomy Physical Health Prader-Willi syndrome Prader-Willi Syndrome - complications Prader-Willi Syndrome - psychology Qualitative research Quality of life Trust Value systems values Young people
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