Sexuality in palliative care: patient perspectives
This qualitative study investigated the meaning of sexuality to palliative patients. Face-to-face interviews were conducted with ten patients receiving care in a tertiary palliative care unit, a hospice or by palliative home care services in their homes. Several themes emerged. Emotional connection...
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Veröffentlicht in: | Palliative medicine 2004-10, Vol.18 (7), p.630-637 |
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description | This qualitative study investigated the meaning of sexuality to palliative patients. Face-to-face interviews were conducted with ten patients receiving care in a tertiary palliative care unit, a hospice or by palliative home care services in their homes. Several themes emerged. Emotional connection to others was an integral component of sexuality, taking precedence over physical expressions. Sexuality continues to be important at the end of life. Lack of privacy, shared rooms, staff intrusion and single beds were considered barriers to expressing sexuality in the hospital and hospice settings. Only one subject had previously been asked about sexuality as part of their clinical care, yet all felt that it should have been brought up, especially after the initial cancer treatments were completed. Home care nurses and physicians were seen as the appropriate caregivers to address this issue. Subjects unanimously mentioned that a holistic approach to palliative care would include opportunities to discuss the impact of their illness on their sexuality. |
doi_str_mv | 10.1191/0269216304pm941oa |
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Face-to-face interviews were conducted with ten patients receiving care in a tertiary palliative care unit, a hospice or by palliative home care services in their homes. Several themes emerged. Emotional connection to others was an integral component of sexuality, taking precedence over physical expressions. Sexuality continues to be important at the end of life. Lack of privacy, shared rooms, staff intrusion and single beds were considered barriers to expressing sexuality in the hospital and hospice settings. Only one subject had previously been asked about sexuality as part of their clinical care, yet all felt that it should have been brought up, especially after the initial cancer treatments were completed. Home care nurses and physicians were seen as the appropriate caregivers to address this issue. Subjects unanimously mentioned that a holistic approach to palliative care would include opportunities to discuss the impact of their illness on their sexuality.</description><identifier>ISSN: 0269-2163</identifier><identifier>EISSN: 1477-030X</identifier><identifier>DOI: 10.1191/0269216304pm941oa</identifier><identifier>PMID: 15540672</identifier><language>eng</language><publisher>Thousand Oaks, CA: Sage Publications</publisher><subject>Adult ; Aged ; Aged, 80 and over ; Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy ; Biological and medical sciences ; Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis ; Canada ; Cancer ; Clinical death. Palliative care. Organ gift and preservation ; Female ; Home Care Services ; Hospice Care - psychology ; Humans ; Intensive care medicine ; Male ; Medical sciences ; Middle Aged ; Neoplasms - psychology ; Palliative care ; Palliative Care - standards ; Patient Satisfaction ; Patients ; Qualitative research ; Quality of Health Care ; Quality of Life ; Sexual Behavior - psychology ; Sexuality ; Surveys and Questionnaires ; Transfusions. Complications. Transfusion reactions. 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Face-to-face interviews were conducted with ten patients receiving care in a tertiary palliative care unit, a hospice or by palliative home care services in their homes. Several themes emerged. Emotional connection to others was an integral component of sexuality, taking precedence over physical expressions. Sexuality continues to be important at the end of life. Lack of privacy, shared rooms, staff intrusion and single beds were considered barriers to expressing sexuality in the hospital and hospice settings. Only one subject had previously been asked about sexuality as part of their clinical care, yet all felt that it should have been brought up, especially after the initial cancer treatments were completed. Home care nurses and physicians were seen as the appropriate caregivers to address this issue. Subjects unanimously mentioned that a holistic approach to palliative care would include opportunities to discuss the impact of their illness on their sexuality.</description><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</subject><subject>Biological and medical sciences</subject><subject>Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis</subject><subject>Canada</subject><subject>Cancer</subject><subject>Clinical death. Palliative care. Organ gift and preservation</subject><subject>Female</subject><subject>Home Care Services</subject><subject>Hospice Care - psychology</subject><subject>Humans</subject><subject>Intensive care medicine</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Neoplasms - psychology</subject><subject>Palliative care</subject><subject>Palliative Care - standards</subject><subject>Patient Satisfaction</subject><subject>Patients</subject><subject>Qualitative research</subject><subject>Quality of Health Care</subject><subject>Quality of Life</subject><subject>Sexual Behavior - psychology</subject><subject>Sexuality</subject><subject>Surveys and Questionnaires</subject><subject>Transfusions. Complications. Transfusion reactions. 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Intensive care medicine. Transfusions. Cell therapy and gene therapy</topic><topic>Biological and medical sciences</topic><topic>Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis</topic><topic>Canada</topic><topic>Cancer</topic><topic>Clinical death. Palliative care. Organ gift and preservation</topic><topic>Female</topic><topic>Home Care Services</topic><topic>Hospice Care - psychology</topic><topic>Humans</topic><topic>Intensive care medicine</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Neoplasms - psychology</topic><topic>Palliative care</topic><topic>Palliative Care - standards</topic><topic>Patient Satisfaction</topic><topic>Patients</topic><topic>Qualitative research</topic><topic>Quality of Health Care</topic><topic>Quality of Life</topic><topic>Sexual Behavior - psychology</topic><topic>Sexuality</topic><topic>Surveys and Questionnaires</topic><topic>Transfusions. Complications. Transfusion reactions. 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Face-to-face interviews were conducted with ten patients receiving care in a tertiary palliative care unit, a hospice or by palliative home care services in their homes. Several themes emerged. Emotional connection to others was an integral component of sexuality, taking precedence over physical expressions. Sexuality continues to be important at the end of life. Lack of privacy, shared rooms, staff intrusion and single beds were considered barriers to expressing sexuality in the hospital and hospice settings. Only one subject had previously been asked about sexuality as part of their clinical care, yet all felt that it should have been brought up, especially after the initial cancer treatments were completed. Home care nurses and physicians were seen as the appropriate caregivers to address this issue. Subjects unanimously mentioned that a holistic approach to palliative care would include opportunities to discuss the impact of their illness on their sexuality.</abstract><cop>Thousand Oaks, CA</cop><pub>Sage Publications</pub><pmid>15540672</pmid><doi>10.1191/0269216304pm941oa</doi><tpages>8</tpages></addata></record> |
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subjects | Adult Aged Aged, 80 and over Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy Biological and medical sciences Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis Canada Cancer Clinical death. Palliative care. Organ gift and preservation Female Home Care Services Hospice Care - psychology Humans Intensive care medicine Male Medical sciences Middle Aged Neoplasms - psychology Palliative care Palliative Care - standards Patient Satisfaction Patients Qualitative research Quality of Health Care Quality of Life Sexual Behavior - psychology Sexuality Surveys and Questionnaires Transfusions. Complications. Transfusion reactions. Cell and gene therapy |
title | Sexuality in palliative care: patient perspectives |
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