Stroke care in the home: the impact of social support on the general health of family caregivers
Background. Throughout the stroke rehabilitation process, community care is one of the most important elements. Learning to live with and take care of a family member with a stroke is immensely complex and demanding. Without appropriate support, family caregivers are at risk of their own general he...
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| Veröffentlicht in: | Journal of clinical nursing 2004-10, Vol.13 (7), p.816-824 |
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| creator | Sit, Janet WH Wong, Thomas KS Clinton, Michael Li, Leonard SW Fong, Yee-man |
| description | Background. Throughout the stroke rehabilitation process, community care is one of the most important elements. Learning to live with and take care of a family member with a stroke is immensely complex and demanding. Without appropriate support, family caregivers are at risk of their own general health decreasing, thus becoming a patient themselves – the second patient in the family.
Aim. The aim of this study was to examine aspects of social support available to family caregivers during the first 12‐week transitional period following hospital discharge.
Design and method. This study adopted a cross‐sectional descriptive design. Regression analysis was performed for examining the types of social support received and the general health of family caregivers. Open‐ended questions were used to gain a better understanding of situation‐specific supports including their availability, utilization and eventual satisfaction.
Results. Findings confirm that home care for the stroke survivor is heavy and demanding. Health‐related care tasks were the most stressful. Around 40% of the family caregivers reported somatic symptoms. Fewer persons in the social network of the family caregivers had provided support compared with the number of support people that caregivers thought available. Two inadequate types of support were tangible support and information support. Professional advice and feedback in relation to home care skills were particularly lacking.
Conclusion. Findings of this study affirmed that stroke care needs exceed the hospital boundary. Professional support to family caregivers is essential so as to sustain home care and protect the caregiver's health. This is particular important during the first 12 weeks transitional period after hospital discharge.
Relevance to clinical practice. This study highlighted the implications of social support to nursing practice, especially in predischarge planning and community care. Findings of this study may provide information and data for service planning and community resources co‐ordination to support community stroke care. |
| doi_str_mv | 10.1111/j.1365-2702.2004.00943.x |
| format | Article |
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Aim. The aim of this study was to examine aspects of social support available to family caregivers during the first 12‐week transitional period following hospital discharge.
Design and method. This study adopted a cross‐sectional descriptive design. Regression analysis was performed for examining the types of social support received and the general health of family caregivers. Open‐ended questions were used to gain a better understanding of situation‐specific supports including their availability, utilization and eventual satisfaction.
Results. Findings confirm that home care for the stroke survivor is heavy and demanding. Health‐related care tasks were the most stressful. Around 40% of the family caregivers reported somatic symptoms. Fewer persons in the social network of the family caregivers had provided support compared with the number of support people that caregivers thought available. Two inadequate types of support were tangible support and information support. Professional advice and feedback in relation to home care skills were particularly lacking.
Conclusion. Findings of this study affirmed that stroke care needs exceed the hospital boundary. Professional support to family caregivers is essential so as to sustain home care and protect the caregiver's health. This is particular important during the first 12 weeks transitional period after hospital discharge.
Relevance to clinical practice. This study highlighted the implications of social support to nursing practice, especially in predischarge planning and community care. Findings of this study may provide information and data for service planning and community resources co‐ordination to support community stroke care.</description><identifier>ISSN: 0962-1067</identifier><identifier>EISSN: 1365-2702</identifier><identifier>DOI: 10.1111/j.1365-2702.2004.00943.x</identifier><identifier>PMID: 15361155</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Science Ltd</publisher><subject>Adult ; Caregivers - psychology ; Carers ; Chi-Square Distribution ; China ; community stroke care ; Cross-Sectional Studies ; Families ; family caregiver ; Female ; Health ; History, 18th Century ; Home care ; Home Nursing - psychology ; Hong Kong ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Nursing ; Patients ; social network ; Social Support ; Statistics, Nonparametric ; Stress, Psychological - psychology ; stroke ; Stroke - nursing ; Strokes</subject><ispartof>Journal of clinical nursing, 2004-10, Vol.13 (7), p.816-824</ispartof><rights>Copyright 2004 Blackwell Publishing Ltd</rights><rights>Copyright Blackwell Science Ltd. Oct 2004</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c5593-abe2830b626d8b69cc897d98127c1c46b5b23169df95e4816459bb0f96dc69ae3</citedby><cites>FETCH-LOGICAL-c5593-abe2830b626d8b69cc897d98127c1c46b5b23169df95e4816459bb0f96dc69ae3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fj.1365-2702.2004.00943.x$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fj.1365-2702.2004.00943.x$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27903,27904,30979,45553,45554</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/15361155$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sit, Janet WH</creatorcontrib><creatorcontrib>Wong, Thomas KS</creatorcontrib><creatorcontrib>Clinton, Michael</creatorcontrib><creatorcontrib>Li, Leonard SW</creatorcontrib><creatorcontrib>Fong, Yee-man</creatorcontrib><title>Stroke care in the home: the impact of social support on the general health of family caregivers</title><title>Journal of clinical nursing</title><addtitle>J Clin Nurs</addtitle><description>Background. Throughout the stroke rehabilitation process, community care is one of the most important elements. Learning to live with and take care of a family member with a stroke is immensely complex and demanding. Without appropriate support, family caregivers are at risk of their own general health decreasing, thus becoming a patient themselves – the second patient in the family.
Aim. The aim of this study was to examine aspects of social support available to family caregivers during the first 12‐week transitional period following hospital discharge.
Design and method. This study adopted a cross‐sectional descriptive design. Regression analysis was performed for examining the types of social support received and the general health of family caregivers. Open‐ended questions were used to gain a better understanding of situation‐specific supports including their availability, utilization and eventual satisfaction.
Results. Findings confirm that home care for the stroke survivor is heavy and demanding. Health‐related care tasks were the most stressful. Around 40% of the family caregivers reported somatic symptoms. Fewer persons in the social network of the family caregivers had provided support compared with the number of support people that caregivers thought available. Two inadequate types of support were tangible support and information support. Professional advice and feedback in relation to home care skills were particularly lacking.
Conclusion. Findings of this study affirmed that stroke care needs exceed the hospital boundary. Professional support to family caregivers is essential so as to sustain home care and protect the caregiver's health. This is particular important during the first 12 weeks transitional period after hospital discharge.
Relevance to clinical practice. This study highlighted the implications of social support to nursing practice, especially in predischarge planning and community care. Findings of this study may provide information and data for service planning and community resources co‐ordination to support community stroke care.</description><subject>Adult</subject><subject>Caregivers - psychology</subject><subject>Carers</subject><subject>Chi-Square Distribution</subject><subject>China</subject><subject>community stroke care</subject><subject>Cross-Sectional Studies</subject><subject>Families</subject><subject>family caregiver</subject><subject>Female</subject><subject>Health</subject><subject>History, 18th Century</subject><subject>Home care</subject><subject>Home Nursing - psychology</subject><subject>Hong Kong</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Nursing</subject><subject>Patients</subject><subject>social network</subject><subject>Social Support</subject><subject>Statistics, Nonparametric</subject><subject>Stress, Psychological - psychology</subject><subject>stroke</subject><subject>Stroke - nursing</subject><subject>Strokes</subject><issn>0962-1067</issn><issn>1365-2702</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2004</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqNkc1u1DAUhS0EotPCK6CIBawS_HsTI7FAQylUVSvEn9SNcRynk2kyDnYCM2-PMxkViQXgja-uv3Mk60MoITgj8bxYZ4SBSGmOaUYx5hnGkrNsew8t7h7uowWWQFOCIT9CxyGsMSaMUvYQHRHBgBAhFujbx8G7W5sY7W3SbJJhZZOV6-zL_dR0vTZD4uokONPoNglj3zsfNzN5YzfWx_XK6nZYTVytu6bd7etumh_Wh0foQa3bYB8f7hP0-e3pp-W79OLq7P3y9UVqhJAs1aWlBcMlUKiKEqQxhcwrWRCaG2I4lKKkjICsaiksLwhwIcsS1xIqA1JbdoKez729d99HGwbVNcHYttUb68agcuCUUU5kJJ_9lQQoAAgU_wRFjmVeUIjg0z_AtRv9Jn5XUcallJxMUDFDxrsQvK1V75tO-50iWE1W1VpN8tQkT01W1d6q2sbok0P_WHa2-h08aIzAqxn42bR299_F6vxqeRmnmE_nfBMGu73La3-rIGe5UF8vz9T1my8fgF9jdc5-Aa5KvfA</recordid><startdate>200410</startdate><enddate>200410</enddate><creator>Sit, Janet WH</creator><creator>Wong, Thomas KS</creator><creator>Clinton, Michael</creator><creator>Li, Leonard SW</creator><creator>Fong, Yee-man</creator><general>Blackwell Science Ltd</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7QJ</scope><scope>7X8</scope></search><sort><creationdate>200410</creationdate><title>Stroke care in the home: the impact of social support on the general health of family caregivers</title><author>Sit, Janet WH ; Wong, Thomas KS ; Clinton, Michael ; Li, Leonard SW ; Fong, Yee-man</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c5593-abe2830b626d8b69cc897d98127c1c46b5b23169df95e4816459bb0f96dc69ae3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2004</creationdate><topic>Adult</topic><topic>Caregivers - psychology</topic><topic>Carers</topic><topic>Chi-Square Distribution</topic><topic>China</topic><topic>community stroke care</topic><topic>Cross-Sectional Studies</topic><topic>Families</topic><topic>family caregiver</topic><topic>Female</topic><topic>Health</topic><topic>History, 18th Century</topic><topic>Home care</topic><topic>Home Nursing - psychology</topic><topic>Hong Kong</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Nursing</topic><topic>Patients</topic><topic>social network</topic><topic>Social Support</topic><topic>Statistics, Nonparametric</topic><topic>Stress, Psychological - psychology</topic><topic>stroke</topic><topic>Stroke - nursing</topic><topic>Strokes</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Sit, Janet WH</creatorcontrib><creatorcontrib>Wong, Thomas KS</creatorcontrib><creatorcontrib>Clinton, Michael</creatorcontrib><creatorcontrib>Li, Leonard SW</creatorcontrib><creatorcontrib>Fong, Yee-man</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of clinical nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Sit, Janet WH</au><au>Wong, Thomas KS</au><au>Clinton, Michael</au><au>Li, Leonard SW</au><au>Fong, Yee-man</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Stroke care in the home: the impact of social support on the general health of family caregivers</atitle><jtitle>Journal of clinical nursing</jtitle><addtitle>J Clin Nurs</addtitle><date>2004-10</date><risdate>2004</risdate><volume>13</volume><issue>7</issue><spage>816</spage><epage>824</epage><pages>816-824</pages><issn>0962-1067</issn><eissn>1365-2702</eissn><abstract>Background. Throughout the stroke rehabilitation process, community care is one of the most important elements. Learning to live with and take care of a family member with a stroke is immensely complex and demanding. Without appropriate support, family caregivers are at risk of their own general health decreasing, thus becoming a patient themselves – the second patient in the family.
Aim. The aim of this study was to examine aspects of social support available to family caregivers during the first 12‐week transitional period following hospital discharge.
Design and method. This study adopted a cross‐sectional descriptive design. Regression analysis was performed for examining the types of social support received and the general health of family caregivers. Open‐ended questions were used to gain a better understanding of situation‐specific supports including their availability, utilization and eventual satisfaction.
Results. Findings confirm that home care for the stroke survivor is heavy and demanding. Health‐related care tasks were the most stressful. Around 40% of the family caregivers reported somatic symptoms. Fewer persons in the social network of the family caregivers had provided support compared with the number of support people that caregivers thought available. Two inadequate types of support were tangible support and information support. Professional advice and feedback in relation to home care skills were particularly lacking.
Conclusion. Findings of this study affirmed that stroke care needs exceed the hospital boundary. Professional support to family caregivers is essential so as to sustain home care and protect the caregiver's health. This is particular important during the first 12 weeks transitional period after hospital discharge.
Relevance to clinical practice. This study highlighted the implications of social support to nursing practice, especially in predischarge planning and community care. Findings of this study may provide information and data for service planning and community resources co‐ordination to support community stroke care.</abstract><cop>Oxford, UK</cop><pub>Blackwell Science Ltd</pub><pmid>15361155</pmid><doi>10.1111/j.1365-2702.2004.00943.x</doi><tpages>9</tpages></addata></record> |
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| ispartof | Journal of clinical nursing, 2004-10, Vol.13 (7), p.816-824 |
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| source | Wiley Online Library - AutoHoldings Journals; MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Adult Caregivers - psychology Carers Chi-Square Distribution China community stroke care Cross-Sectional Studies Families family caregiver Female Health History, 18th Century Home care Home Nursing - psychology Hong Kong Humans Interviews as Topic Male Middle Aged Nursing Patients social network Social Support Statistics, Nonparametric Stress, Psychological - psychology stroke Stroke - nursing Strokes |
| title | Stroke care in the home: the impact of social support on the general health of family caregivers |
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