The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease
Objective To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it. Materials and methods Data on patient—spouse couples came from three studies of patients...
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| Veröffentlicht in: | International journal of geriatric psychiatry 2002-01, Vol.17 (1), p.78-84 |
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| creator | Thommessen, Bente Aarsland, Dag Braekhus, Anne Oksengaard, Anne Rita Engedal, Knut Laake, Knut |
| description | Objective
To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it.
Materials and methods
Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS).
Results
Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p |
| doi_str_mv | 10.1002/gps.524 |
| format | Article |
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To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it.
Materials and methods
Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS).
Results
Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden.
Conclusion
Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</description><identifier>ISSN: 0885-6230</identifier><identifier>EISSN: 1099-1166</identifier><identifier>DOI: 10.1002/gps.524</identifier><identifier>PMID: 11802235</identifier><language>eng</language><publisher>Chichester, UK: John Wiley & Sons, Ltd</publisher><subject>Activities of Daily Living - psychology ; Adaptation, Psychological ; Aged ; Alzheimer Disease - psychology ; Biological and medical sciences ; Caregivers - psychology ; carer burden ; cognitive impairment ; Cost of Illness ; Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases ; Dementia, Vascular - psychology ; Depression - diagnosis ; Depression - psychology ; elderly ; Female ; Humans ; Male ; Medical sciences ; Mental Status Schedule - statistics & numerical data ; mild dementia ; Neurology ; Norway ; Parkinson Disease - psychology ; Parkinson's disease ; Personality Inventory - statistics & numerical data ; Psychometrics ; Spouses - psychology ; stroke ; Stroke - psychology ; Vascular diseases and vascular malformations of the nervous system</subject><ispartof>International journal of geriatric psychiatry, 2002-01, Vol.17 (1), p.78-84</ispartof><rights>Copyright © 2002 John Wiley & Sons, Ltd.</rights><rights>2002 INIST-CNRS</rights><rights>Copyright 2002 John Wiley & Sons, Ltd.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4444-e381569b5af02d19ecc56680cdcf3f33e38c994246b22360556fd6fa90c696863</citedby><cites>FETCH-LOGICAL-c4444-e381569b5af02d19ecc56680cdcf3f33e38c994246b22360556fd6fa90c696863</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fgps.524$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fgps.524$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,4010,27900,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=13449230$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/11802235$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Thommessen, Bente</creatorcontrib><creatorcontrib>Aarsland, Dag</creatorcontrib><creatorcontrib>Braekhus, Anne</creatorcontrib><creatorcontrib>Oksengaard, Anne Rita</creatorcontrib><creatorcontrib>Engedal, Knut</creatorcontrib><creatorcontrib>Laake, Knut</creatorcontrib><title>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><title>International journal of geriatric psychiatry</title><addtitle>Int. J. Geriat. Psychiatry</addtitle><description>Objective
To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it.
Materials and methods
Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS).
Results
Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden.
Conclusion
Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</description><subject>Activities of Daily Living - psychology</subject><subject>Adaptation, Psychological</subject><subject>Aged</subject><subject>Alzheimer Disease - psychology</subject><subject>Biological and medical sciences</subject><subject>Caregivers - psychology</subject><subject>carer burden</subject><subject>cognitive impairment</subject><subject>Cost of Illness</subject><subject>Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases</subject><subject>Dementia, Vascular - psychology</subject><subject>Depression - diagnosis</subject><subject>Depression - psychology</subject><subject>elderly</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Mental Status Schedule - statistics & numerical data</subject><subject>mild dementia</subject><subject>Neurology</subject><subject>Norway</subject><subject>Parkinson Disease - psychology</subject><subject>Parkinson's disease</subject><subject>Personality Inventory - statistics & numerical data</subject><subject>Psychometrics</subject><subject>Spouses - psychology</subject><subject>stroke</subject><subject>Stroke - psychology</subject><subject>Vascular diseases and vascular malformations of the nervous system</subject><issn>0885-6230</issn><issn>1099-1166</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2002</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqF0U1vEzEQBmALgWgoiH-AfIEeYIu_sz6iQlNQgQqKOFqOPUtMN-vFs1HJv8coETkBvvgwj2Y8fgl5zNkpZ0y8_DbiqRbqDplxZm3DuTF3yYy1rW6MkOyIPED8zlit8fY-OeK8ZUJIPSPuegV0xG1YZcwh-Z4uNyXCQPNAccwbBKS5o1NV0Eco_ZbepmlFcSr5Bl7QCGsYpuSpHyK98uUmDZiHE6QxIXiEh-Re53uER_v7mHw5f3N9dtFcfly8PXt12QRVTwOy5drYpfYdE5FbCEEb07IQQyc7KWs9WKuEMsv6bsO0Nl00nbcsGGtaI4_Jya7vWPKPDeDk1gkD9L0foG7h5kZxw4VhVT77t-SKq1bx_0JRv5opOz_MDiUjFujcWNLal63jzP2Ox9V4XI2nyif7lpvlGuLB7fOo4OkeeAy-74ofQsKDk0rZmmd1z3fuNvWw_ds8t7j6vBvb7HTCCX7-0TUtZ-Zyrt3XDwun37-7sOevP7mF_AXeU7OH</recordid><startdate>200201</startdate><enddate>200201</enddate><creator>Thommessen, Bente</creator><creator>Aarsland, Dag</creator><creator>Braekhus, Anne</creator><creator>Oksengaard, Anne Rita</creator><creator>Engedal, Knut</creator><creator>Laake, Knut</creator><general>John Wiley & Sons, Ltd</general><general>Wiley</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7TK</scope><scope>7X8</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope></search><sort><creationdate>200201</creationdate><title>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</title><author>Thommessen, Bente ; Aarsland, Dag ; Braekhus, Anne ; Oksengaard, Anne Rita ; Engedal, Knut ; Laake, Knut</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4444-e381569b5af02d19ecc56680cdcf3f33e38c994246b22360556fd6fa90c696863</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2002</creationdate><topic>Activities of Daily Living - psychology</topic><topic>Adaptation, Psychological</topic><topic>Aged</topic><topic>Alzheimer Disease - psychology</topic><topic>Biological and medical sciences</topic><topic>Caregivers - psychology</topic><topic>carer burden</topic><topic>cognitive impairment</topic><topic>Cost of Illness</topic><topic>Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases</topic><topic>Dementia, Vascular - psychology</topic><topic>Depression - diagnosis</topic><topic>Depression - psychology</topic><topic>elderly</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Mental Status Schedule - statistics & numerical data</topic><topic>mild dementia</topic><topic>Neurology</topic><topic>Norway</topic><topic>Parkinson Disease - psychology</topic><topic>Parkinson's disease</topic><topic>Personality Inventory - statistics & numerical data</topic><topic>Psychometrics</topic><topic>Spouses - psychology</topic><topic>stroke</topic><topic>Stroke - psychology</topic><topic>Vascular diseases and vascular malformations of the nervous system</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Thommessen, Bente</creatorcontrib><creatorcontrib>Aarsland, Dag</creatorcontrib><creatorcontrib>Braekhus, Anne</creatorcontrib><creatorcontrib>Oksengaard, Anne Rita</creatorcontrib><creatorcontrib>Engedal, Knut</creatorcontrib><creatorcontrib>Laake, Knut</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Neurosciences Abstracts</collection><collection>MEDLINE - Academic</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><jtitle>International journal of geriatric psychiatry</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Thommessen, Bente</au><au>Aarsland, Dag</au><au>Braekhus, Anne</au><au>Oksengaard, Anne Rita</au><au>Engedal, Knut</au><au>Laake, Knut</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease</atitle><jtitle>International journal of geriatric psychiatry</jtitle><addtitle>Int. J. Geriat. Psychiatry</addtitle><date>2002-01</date><risdate>2002</risdate><volume>17</volume><issue>1</issue><spage>78</spage><epage>84</epage><pages>78-84</pages><issn>0885-6230</issn><eissn>1099-1166</eissn><abstract>Objective
To characterize the psychosocial burden on spouses living with the elderly suffering from mild dementia, stroke and Parkinson's disease, and to identify patient characteristics associated with it.
Materials and methods
Data on patient—spouse couples came from three studies of patients with stroke (36 couples), mild dementia (92 couples) and Parkinson's disease (58 couples). The psychosocial burden was recorded by the 15—item Relatives' Stress Scale (RSS). A factor analysis of this instrument produced a one‐factor solution (CFI = 0.98) consisting of eight items with good face validity and acceptable reliability within each diagnostic group (Cronbach's alpha range 0.66–0.69). Covariates of this factor were identified using structural equation modeling (SEM) by regression on patient's age, gender, cognitive function (MMSE), activities of daily living (ADL) and depressive symptoms (MADRS).
Results
Disorganization of household routines, difficulties with going away for holidays, restrictions on social life, and the disturbances of sleep were the most frequently reported problems in all three groups. According to the mean sumscore on the RSS, the perceived psychosocial burden was similar across the diagnostic groups. In the final SEM model, a lower cognitive function of the patient was associated with a higher psychosocial burden on the spouses of patients with stroke (β = −1.3, p = 0.01) and Parkinson's disease (β = −0.89, p < 0.01), while in the dementia group, only an insignificant trend was demonstrated. In the dementia group, a significantly higher burden was identified on female spouses (β = −0.56, p = 0.04). A heavier burden of care was also associated with depressive symptoms in the patients with Parkinson's disease. In neither group did the final model disclose any effect of ADL function on the spouse's psychosocial burden.
Conclusion
Spouses caring for patients with dementia, stroke and Parkinson's disease perceive a similar type and level of psychosocial burden, independent of the disease. The cognitive functioning of the patient is a particularly important factor in this, especially when caring for patients with stroke or Parkinson's disease. Copyright © 2002 John Wiley & Sons, Ltd.</abstract><cop>Chichester, UK</cop><pub>John Wiley & Sons, Ltd</pub><pmid>11802235</pmid><doi>10.1002/gps.524</doi><tpages>7</tpages></addata></record> |
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| ispartof | International journal of geriatric psychiatry, 2002-01, Vol.17 (1), p.78-84 |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Activities of Daily Living - psychology Adaptation, Psychological Aged Alzheimer Disease - psychology Biological and medical sciences Caregivers - psychology carer burden cognitive impairment Cost of Illness Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases Dementia, Vascular - psychology Depression - diagnosis Depression - psychology elderly Female Humans Male Medical sciences Mental Status Schedule - statistics & numerical data mild dementia Neurology Norway Parkinson Disease - psychology Parkinson's disease Personality Inventory - statistics & numerical data Psychometrics Spouses - psychology stroke Stroke - psychology Vascular diseases and vascular malformations of the nervous system |
| title | The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson's disease |
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