Perceptions of User Involvement: a User-Led Study
Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients. Aims: (i) To investigate service users’ perceptions of the outcomes of us...
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| Veröffentlicht in: | International journal of social psychiatry 2010-07, Vol.56 (4), p.389-401 |
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| container_title | International journal of social psychiatry |
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| creator | Rose, Diana Fleischmann, Pete Schofield, Peter |
| description | Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients.
Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists.
Method: The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough.
Results: Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists.
Discussion: There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists.
Conclusion: This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners. |
| doi_str_mv | 10.1177/0020764009106618 |
| format | Article |
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Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists.
Method: The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough.
Results: Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists.
Discussion: There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists.
Conclusion: This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners.</description><identifier>ISSN: 0020-7640</identifier><identifier>EISSN: 1741-2854</identifier><identifier>DOI: 10.1177/0020764009106618</identifier><identifier>PMID: 19628557</identifier><identifier>CODEN: IJSPAG</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Activism ; Activists ; Adolescent ; Adult ; Aged ; Biological and medical sciences ; Bipolar Disorder - diagnosis ; Bipolar Disorder - psychology ; Bipolar Disorder - rehabilitation ; Clinical outcomes ; Comparative studies ; Delivery of Health Care ; Depressive Disorder - diagnosis ; Depressive Disorder - psychology ; Depressive Disorder - rehabilitation ; Engagement ; England ; Female ; Health care ; Health Policy ; Health services ; Health Services Accessibility ; Health Services Research ; Humans ; Interview, Psychological ; Male ; Medical sciences ; Mental Disorders - psychology ; Mental Disorders - rehabilitation ; Mental health ; Mental health care ; Mental Health Services ; Middle Aged ; Miscellaneous ; Patient Advocacy ; Patient Participation ; Perceptions ; Physician-Patient Relations ; Psychology. Psychoanalysis. Psychiatry ; Psychopathology. Psychiatry ; Quality of Health Care ; Schizophrenia - diagnosis ; Schizophrenia - rehabilitation ; Schizophrenic Psychology ; Social psychiatry. Ethnopsychiatry ; Stakeholders ; State Medicine ; User involvement ; Young Adult</subject><ispartof>International journal of social psychiatry, 2010-07, Vol.56 (4), p.389-401</ispartof><rights>The Author(s), 2010.</rights><rights>2015 INIST-CNRS</rights><rights>Copyright Sage Publications Ltd. Jul 2010</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c457t-98bf3816bd939b36c4e02b7bda83adb6f6ab26f58229ebb91cb1f3a5bd8b9543</citedby><cites>FETCH-LOGICAL-c457t-98bf3816bd939b36c4e02b7bda83adb6f6ab26f58229ebb91cb1f3a5bd8b9543</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/0020764009106618$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/0020764009106618$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21798,27901,27902,30976,30977,43597,43598</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=23067321$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/19628557$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Rose, Diana</creatorcontrib><creatorcontrib>Fleischmann, Pete</creatorcontrib><creatorcontrib>Schofield, Peter</creatorcontrib><title>Perceptions of User Involvement: a User-Led Study</title><title>International journal of social psychiatry</title><addtitle>Int J Soc Psychiatry</addtitle><description>Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients.
Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists.
Method: The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough.
Results: Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists.
Discussion: There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists.
Conclusion: This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners.</description><subject>Activism</subject><subject>Activists</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Aged</subject><subject>Biological and medical sciences</subject><subject>Bipolar Disorder - diagnosis</subject><subject>Bipolar Disorder - psychology</subject><subject>Bipolar Disorder - rehabilitation</subject><subject>Clinical outcomes</subject><subject>Comparative studies</subject><subject>Delivery of Health Care</subject><subject>Depressive Disorder - diagnosis</subject><subject>Depressive Disorder - psychology</subject><subject>Depressive Disorder - rehabilitation</subject><subject>Engagement</subject><subject>England</subject><subject>Female</subject><subject>Health care</subject><subject>Health Policy</subject><subject>Health services</subject><subject>Health Services Accessibility</subject><subject>Health Services Research</subject><subject>Humans</subject><subject>Interview, Psychological</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Mental Disorders - psychology</subject><subject>Mental Disorders - rehabilitation</subject><subject>Mental health</subject><subject>Mental health care</subject><subject>Mental Health Services</subject><subject>Middle Aged</subject><subject>Miscellaneous</subject><subject>Patient Advocacy</subject><subject>Patient Participation</subject><subject>Perceptions</subject><subject>Physician-Patient Relations</subject><subject>Psychology. Psychoanalysis. Psychiatry</subject><subject>Psychopathology. Psychiatry</subject><subject>Quality of Health Care</subject><subject>Schizophrenia - diagnosis</subject><subject>Schizophrenia - rehabilitation</subject><subject>Schizophrenic Psychology</subject><subject>Social psychiatry. Ethnopsychiatry</subject><subject>Stakeholders</subject><subject>State Medicine</subject><subject>User involvement</subject><subject>Young Adult</subject><issn>0020-7640</issn><issn>1741-2854</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2010</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqN0c1LwzAUAPAgipvTuycpgniq5jXNlzcZfgwGCs5zSdpEOvoxk3aw_97WFQcD0VNI3u-9l-QhdA74BoDzW4wjzFmMsQTMGIgDNAYeQxgJGh-icR8O-_gInXi_xN0eMDlGI5CsI5SPEbwal5pVk9eVD2obvHvjglm1rou1KU3V3AXq-yycmyx4a9psc4qOrCq8ORvWCVo8Piymz-H85Wk2vZ-HaUx5E0qhLRHAdCaJ1ISlscGR5jpTgqhMM8uUjpilIoqk0VpCqsESRXUmtKQxmaDrbdmVqz9b45ukzH1qikJVpm59wmkMRNJ_SSIIo1j-LQmRkgEVnbzck8u6dVX33oTHjOHuy_vGeItSV3vvjE1WLi-V2ySAk34-yf58upSLoW6rS5PtEoaBdOBqAMqnqrBOVWnuf1xEMOMkgs6FW-fVh9ld7tfGXwVdoUk</recordid><startdate>20100701</startdate><enddate>20100701</enddate><creator>Rose, Diana</creator><creator>Fleischmann, Pete</creator><creator>Schofield, Peter</creator><general>SAGE Publications</general><general>Sage</general><general>Sage Publications Ltd</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>8BJ</scope><scope>FQK</scope><scope>JBE</scope><scope>K9.</scope><scope>7X8</scope></search><sort><creationdate>20100701</creationdate><title>Perceptions of User Involvement: a User-Led Study</title><author>Rose, Diana ; Fleischmann, Pete ; Schofield, Peter</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c457t-98bf3816bd939b36c4e02b7bda83adb6f6ab26f58229ebb91cb1f3a5bd8b9543</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2010</creationdate><topic>Activism</topic><topic>Activists</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Aged</topic><topic>Biological and medical sciences</topic><topic>Bipolar Disorder - diagnosis</topic><topic>Bipolar Disorder - psychology</topic><topic>Bipolar Disorder - rehabilitation</topic><topic>Clinical outcomes</topic><topic>Comparative studies</topic><topic>Delivery of Health Care</topic><topic>Depressive Disorder - diagnosis</topic><topic>Depressive Disorder - psychology</topic><topic>Depressive Disorder - rehabilitation</topic><topic>Engagement</topic><topic>England</topic><topic>Female</topic><topic>Health care</topic><topic>Health Policy</topic><topic>Health services</topic><topic>Health Services Accessibility</topic><topic>Health Services Research</topic><topic>Humans</topic><topic>Interview, Psychological</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Mental Disorders - psychology</topic><topic>Mental Disorders - rehabilitation</topic><topic>Mental health</topic><topic>Mental health care</topic><topic>Mental Health Services</topic><topic>Middle Aged</topic><topic>Miscellaneous</topic><topic>Patient Advocacy</topic><topic>Patient Participation</topic><topic>Perceptions</topic><topic>Physician-Patient Relations</topic><topic>Psychology. Psychoanalysis. Psychiatry</topic><topic>Psychopathology. Psychiatry</topic><topic>Quality of Health Care</topic><topic>Schizophrenia - diagnosis</topic><topic>Schizophrenia - rehabilitation</topic><topic>Schizophrenic Psychology</topic><topic>Social psychiatry. Ethnopsychiatry</topic><topic>Stakeholders</topic><topic>State Medicine</topic><topic>User involvement</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rose, Diana</creatorcontrib><creatorcontrib>Fleischmann, Pete</creatorcontrib><creatorcontrib>Schofield, Peter</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>International Bibliography of the Social Sciences</collection><collection>International Bibliography of the Social Sciences</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>MEDLINE - Academic</collection><jtitle>International journal of social psychiatry</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Rose, Diana</au><au>Fleischmann, Pete</au><au>Schofield, Peter</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Perceptions of User Involvement: a User-Led Study</atitle><jtitle>International journal of social psychiatry</jtitle><addtitle>Int J Soc Psychiatry</addtitle><date>2010-07-01</date><risdate>2010</risdate><volume>56</volume><issue>4</issue><spage>389</spage><epage>401</epage><pages>389-401</pages><issn>0020-7640</issn><eissn>1741-2854</eissn><coden>IJSPAG</coden><abstract>Background: User involvement in health services has been a priority for government since 1990. In mental health, concern has been expressed that involved service users (activists) are not representative of ‘ordinary’ patients.
Aims: (i) To investigate service users’ perceptions of the outcomes of user involvement in two London boroughs. (ii) To determine whether the perceptions of outcomes differ between activists and non-activists.
Method: The study was user-led. The user-researchers compiled a semi-structured interview schedule which they then administered to a sample of 40 people; 20 were defined as activists and 20 as non-activists. There were also 20 participants in each borough.
Results: Activists were aware of more user groups and forms of user involvement than non-activists. However, in terms of perceptions of the outcomes of user involvement, there was little difference between the activists and non-activists.
Discussion: There is very little extant work on the outcomes of user involvement in mental health services. This study examined this and, contrary to reservations often expressed, there was little difference between activists and non-activists.
Conclusion: This is a pilot study. Further work should examine perceptions of the outcomes of user involvement by other stakeholders, for example, front-line workers, managers, carers and commissioners.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>19628557</pmid><doi>10.1177/0020764009106618</doi><tpages>13</tpages></addata></record> |
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| ispartof | International journal of social psychiatry, 2010-07, Vol.56 (4), p.389-401 |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); SAGE Complete A-Z List; MEDLINE |
| subjects | Activism Activists Adolescent Adult Aged Biological and medical sciences Bipolar Disorder - diagnosis Bipolar Disorder - psychology Bipolar Disorder - rehabilitation Clinical outcomes Comparative studies Delivery of Health Care Depressive Disorder - diagnosis Depressive Disorder - psychology Depressive Disorder - rehabilitation Engagement England Female Health care Health Policy Health services Health Services Accessibility Health Services Research Humans Interview, Psychological Male Medical sciences Mental Disorders - psychology Mental Disorders - rehabilitation Mental health Mental health care Mental Health Services Middle Aged Miscellaneous Patient Advocacy Patient Participation Perceptions Physician-Patient Relations Psychology. Psychoanalysis. Psychiatry Psychopathology. Psychiatry Quality of Health Care Schizophrenia - diagnosis Schizophrenia - rehabilitation Schizophrenic Psychology Social psychiatry. Ethnopsychiatry Stakeholders State Medicine User involvement Young Adult |
| title | Perceptions of User Involvement: a User-Led Study |
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