Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients
Objective: This study investigates the feasibility and efficacy of a telehealth delivered psychoeducational support group for allogeneic hematopoietic stem cell transplant (AHSCT) survivors. Methods: All AHSCT survivors 0–3 years post‐transplant from the Tom Baker Cancer Centre, Calgary, Alta., Cana...
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Veröffentlicht in: | Psycho-oncology (Chichester, England) England), 2010-07, Vol.19 (7), p.777-781 |
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description | Objective: This study investigates the feasibility and efficacy of a telehealth delivered psychoeducational support group for allogeneic hematopoietic stem cell transplant (AHSCT) survivors.
Methods: All AHSCT survivors 0–3 years post‐transplant from the Tom Baker Cancer Centre, Calgary, Alta., Canada were contacted over a 4‐year period and invited to participate. Groups were led by trained facilitators and the didactic content included many of the concerns commonly reported by AHSCT survivors. Participants met with facilitators and other group members via videoconferencing equipment located at various community health centres across Alberta, British Columbia, and Saskatchewan.
Results: Of the 19 AHSCT survivors who chose to participate, 74% attended five or more of the six sessions and 100% stated that they were satisfied with the program. The groups were found to be feasible and well liked by all participants. While participants appeared to have gained a greater appreciation of life, they did not demonstrate any significant improvements in quality of life, spirituality and meaning making, distress, or positive growth as measured by the questionnaires in the pre/post‐package.
Conclusions: Attendance and satisfaction ratings suggest that participants gleaned some benefit from participation. Psychoeducational support groups via videoconferencing may provide a viable alternative for those with limited access to psychosocial support. Clearly, more rigorous research is required to determine the utility of these psychoeducational support groups. Copyright © 2009 John Wiley & Sons, Ltd. |
doi_str_mv | 10.1002/pon.1617 |
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Methods: All AHSCT survivors 0–3 years post‐transplant from the Tom Baker Cancer Centre, Calgary, Alta., Canada were contacted over a 4‐year period and invited to participate. Groups were led by trained facilitators and the didactic content included many of the concerns commonly reported by AHSCT survivors. Participants met with facilitators and other group members via videoconferencing equipment located at various community health centres across Alberta, British Columbia, and Saskatchewan.
Results: Of the 19 AHSCT survivors who chose to participate, 74% attended five or more of the six sessions and 100% stated that they were satisfied with the program. The groups were found to be feasible and well liked by all participants. While participants appeared to have gained a greater appreciation of life, they did not demonstrate any significant improvements in quality of life, spirituality and meaning making, distress, or positive growth as measured by the questionnaires in the pre/post‐package.
Conclusions: Attendance and satisfaction ratings suggest that participants gleaned some benefit from participation. Psychoeducational support groups via videoconferencing may provide a viable alternative for those with limited access to psychosocial support. Clearly, more rigorous research is required to determine the utility of these psychoeducational support groups. Copyright © 2009 John Wiley & Sons, Ltd.</description><identifier>ISSN: 1057-9249</identifier><identifier>EISSN: 1099-1611</identifier><identifier>DOI: 10.1002/pon.1617</identifier><identifier>PMID: 19653332</identifier><identifier>CODEN: POJCEE</identifier><language>eng</language><publisher>Chichester, UK: John Wiley & Sons, Ltd</publisher><subject>Adaptation, Psychological ; Adult ; Aged ; bone marrow transplant ; Canada ; Erythrocytes ; Facilitators ; Feasibility ; Feasibility Studies ; Female ; Graft vs Host Disease - prevention & control ; Graft vs Host Disease - psychology ; hematopoietic stem cell transplant ; Hematopoietic Stem Cell Transplantation - psychology ; Humans ; Male ; Middle Aged ; Neoplasms - psychology ; Neoplasms - therapy ; Oncology ; Patient Education as Topic ; Patient Satisfaction ; psychoeducational support group ; Psychoeducational support groups ; Psychometrics ; Quality of Life - psychology ; Self Care - psychology ; Self-Help Groups ; Social psychology ; stem cell transplant ; Stem cells ; Studies ; Support groups ; Surveys and Questionnaires ; Survivor ; Survivors ; Survivors - psychology ; telemedicine ; Transplants ; Transplants & implants ; Videoconferencing ; Young Adult</subject><ispartof>Psycho-oncology (Chichester, England), 2010-07, Vol.19 (7), p.777-781</ispartof><rights>Copyright © 2009 John Wiley & Sons, Ltd.</rights><rights>Copyright (c) 2009 John Wiley & Sons, Ltd.</rights><rights>Copyright John Wiley and Sons, Limited Jul 2010</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4177-aee4e1a73d5f4316a1a9da9be92c4a1ec49c25351e708e32f94916fb844e6ac03</citedby><cites>FETCH-LOGICAL-c4177-aee4e1a73d5f4316a1a9da9be92c4a1ec49c25351e708e32f94916fb844e6ac03</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fpon.1617$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fpon.1617$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,780,784,1417,27924,27925,30999,31000,45574,45575</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/19653332$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Lounsberry, Joshua J.</creatorcontrib><creatorcontrib>MacRae, Helen</creatorcontrib><creatorcontrib>Angen, Maureen</creatorcontrib><creatorcontrib>Hoeber, Michelle</creatorcontrib><creatorcontrib>Carlson, Linda E.</creatorcontrib><title>Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients</title><title>Psycho-oncology (Chichester, England)</title><addtitle>Psycho-Oncology</addtitle><description>Objective: This study investigates the feasibility and efficacy of a telehealth delivered psychoeducational support group for allogeneic hematopoietic stem cell transplant (AHSCT) survivors.
Methods: All AHSCT survivors 0–3 years post‐transplant from the Tom Baker Cancer Centre, Calgary, Alta., Canada were contacted over a 4‐year period and invited to participate. Groups were led by trained facilitators and the didactic content included many of the concerns commonly reported by AHSCT survivors. Participants met with facilitators and other group members via videoconferencing equipment located at various community health centres across Alberta, British Columbia, and Saskatchewan.
Results: Of the 19 AHSCT survivors who chose to participate, 74% attended five or more of the six sessions and 100% stated that they were satisfied with the program. The groups were found to be feasible and well liked by all participants. While participants appeared to have gained a greater appreciation of life, they did not demonstrate any significant improvements in quality of life, spirituality and meaning making, distress, or positive growth as measured by the questionnaires in the pre/post‐package.
Conclusions: Attendance and satisfaction ratings suggest that participants gleaned some benefit from participation. Psychoeducational support groups via videoconferencing may provide a viable alternative for those with limited access to psychosocial support. Clearly, more rigorous research is required to determine the utility of these psychoeducational support groups. Copyright © 2009 John Wiley & Sons, Ltd.</description><subject>Adaptation, Psychological</subject><subject>Adult</subject><subject>Aged</subject><subject>bone marrow transplant</subject><subject>Canada</subject><subject>Erythrocytes</subject><subject>Facilitators</subject><subject>Feasibility</subject><subject>Feasibility Studies</subject><subject>Female</subject><subject>Graft vs Host Disease - prevention & control</subject><subject>Graft vs Host Disease - psychology</subject><subject>hematopoietic stem cell transplant</subject><subject>Hematopoietic Stem Cell Transplantation - psychology</subject><subject>Humans</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Neoplasms - psychology</subject><subject>Neoplasms - therapy</subject><subject>Oncology</subject><subject>Patient Education as Topic</subject><subject>Patient Satisfaction</subject><subject>psychoeducational support group</subject><subject>Psychoeducational support groups</subject><subject>Psychometrics</subject><subject>Quality of Life - psychology</subject><subject>Self Care - psychology</subject><subject>Self-Help Groups</subject><subject>Social psychology</subject><subject>stem cell transplant</subject><subject>Stem cells</subject><subject>Studies</subject><subject>Support groups</subject><subject>Surveys and Questionnaires</subject><subject>Survivor</subject><subject>Survivors</subject><subject>Survivors - psychology</subject><subject>telemedicine</subject><subject>Transplants</subject><subject>Transplants & implants</subject><subject>Videoconferencing</subject><subject>Young Adult</subject><issn>1057-9249</issn><issn>1099-1611</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2010</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNqF0d9qFDEUBvBBFPtHwSeQ4I29cGoySSaTS1vcqpStF0ovQzZzppuancQko84T-Npm2UFBEK9yAj8-DuerqmcEnxOMm9fBj-ekJeJBdUywlHWZycP9zEUtGyaPqpOU7jEuWLaPqyMiW04pbY6rnyvQyW6ss3lGKU_9jPyANMrgYAva5S3qwdlvEKF_hUKazdZDPxmdrR-1Q2kKwceM7qKfAhp8RNo5fwcjWIO2sNPZB28hl1_KsEMGnEM56jEFp8eMQgmCMacn1aNBuwRPl_e0-rx6--nyXX19c_X-8s11bRgRotYADIgWtOcDo6TVRMteyw3IxjBNwDBpGk45AYE7oM0gmSTtsOkYg1YbTE-rl4fcEP3XCVJWO5v2S-kR_JSU4IzQjnXy_5LSlmLJmyJf_CXv_RTLdZLijZBc8o4VdHZAJvqUIgwqRLvTcVYEq32JqpSo9iUW-nzJmzY76P_ApbUC6gP4bh3M_wxSH2_WS-Dibengx2-v4xfVCiq4ul1fqa67Xa_Yhwt1QX8Bs_23ug</recordid><startdate>201007</startdate><enddate>201007</enddate><creator>Lounsberry, Joshua J.</creator><creator>MacRae, Helen</creator><creator>Angen, Maureen</creator><creator>Hoeber, Michelle</creator><creator>Carlson, Linda E.</creator><general>John Wiley & Sons, Ltd</general><general>Wiley Subscription Services, Inc</general><scope>BSCLL</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>201007</creationdate><title>Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients</title><author>Lounsberry, Joshua J. ; MacRae, Helen ; Angen, Maureen ; Hoeber, Michelle ; Carlson, Linda E.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4177-aee4e1a73d5f4316a1a9da9be92c4a1ec49c25351e708e32f94916fb844e6ac03</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2010</creationdate><topic>Adaptation, Psychological</topic><topic>Adult</topic><topic>Aged</topic><topic>bone marrow transplant</topic><topic>Canada</topic><topic>Erythrocytes</topic><topic>Facilitators</topic><topic>Feasibility</topic><topic>Feasibility Studies</topic><topic>Female</topic><topic>Graft vs Host Disease - prevention & control</topic><topic>Graft vs Host Disease - psychology</topic><topic>hematopoietic stem cell transplant</topic><topic>Hematopoietic Stem Cell Transplantation - psychology</topic><topic>Humans</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Neoplasms - psychology</topic><topic>Neoplasms - therapy</topic><topic>Oncology</topic><topic>Patient Education as Topic</topic><topic>Patient Satisfaction</topic><topic>psychoeducational support group</topic><topic>Psychoeducational support groups</topic><topic>Psychometrics</topic><topic>Quality of Life - psychology</topic><topic>Self Care - psychology</topic><topic>Self-Help Groups</topic><topic>Social psychology</topic><topic>stem cell transplant</topic><topic>Stem cells</topic><topic>Studies</topic><topic>Support groups</topic><topic>Surveys and Questionnaires</topic><topic>Survivor</topic><topic>Survivors</topic><topic>Survivors - psychology</topic><topic>telemedicine</topic><topic>Transplants</topic><topic>Transplants & implants</topic><topic>Videoconferencing</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Lounsberry, Joshua J.</creatorcontrib><creatorcontrib>MacRae, Helen</creatorcontrib><creatorcontrib>Angen, Maureen</creatorcontrib><creatorcontrib>Hoeber, Michelle</creatorcontrib><creatorcontrib>Carlson, Linda E.</creatorcontrib><collection>Istex</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Psycho-oncology (Chichester, England)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Lounsberry, Joshua J.</au><au>MacRae, Helen</au><au>Angen, Maureen</au><au>Hoeber, Michelle</au><au>Carlson, Linda E.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients</atitle><jtitle>Psycho-oncology (Chichester, England)</jtitle><addtitle>Psycho-Oncology</addtitle><date>2010-07</date><risdate>2010</risdate><volume>19</volume><issue>7</issue><spage>777</spage><epage>781</epage><pages>777-781</pages><issn>1057-9249</issn><eissn>1099-1611</eissn><coden>POJCEE</coden><abstract>Objective: This study investigates the feasibility and efficacy of a telehealth delivered psychoeducational support group for allogeneic hematopoietic stem cell transplant (AHSCT) survivors.
Methods: All AHSCT survivors 0–3 years post‐transplant from the Tom Baker Cancer Centre, Calgary, Alta., Canada were contacted over a 4‐year period and invited to participate. Groups were led by trained facilitators and the didactic content included many of the concerns commonly reported by AHSCT survivors. Participants met with facilitators and other group members via videoconferencing equipment located at various community health centres across Alberta, British Columbia, and Saskatchewan.
Results: Of the 19 AHSCT survivors who chose to participate, 74% attended five or more of the six sessions and 100% stated that they were satisfied with the program. The groups were found to be feasible and well liked by all participants. While participants appeared to have gained a greater appreciation of life, they did not demonstrate any significant improvements in quality of life, spirituality and meaning making, distress, or positive growth as measured by the questionnaires in the pre/post‐package.
Conclusions: Attendance and satisfaction ratings suggest that participants gleaned some benefit from participation. Psychoeducational support groups via videoconferencing may provide a viable alternative for those with limited access to psychosocial support. Clearly, more rigorous research is required to determine the utility of these psychoeducational support groups. Copyright © 2009 John Wiley & Sons, Ltd.</abstract><cop>Chichester, UK</cop><pub>John Wiley & Sons, Ltd</pub><pmid>19653332</pmid><doi>10.1002/pon.1617</doi><tpages>5</tpages></addata></record> |
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subjects | Adaptation, Psychological Adult Aged bone marrow transplant Canada Erythrocytes Facilitators Feasibility Feasibility Studies Female Graft vs Host Disease - prevention & control Graft vs Host Disease - psychology hematopoietic stem cell transplant Hematopoietic Stem Cell Transplantation - psychology Humans Male Middle Aged Neoplasms - psychology Neoplasms - therapy Oncology Patient Education as Topic Patient Satisfaction psychoeducational support group Psychoeducational support groups Psychometrics Quality of Life - psychology Self Care - psychology Self-Help Groups Social psychology stem cell transplant Stem cells Studies Support groups Surveys and Questionnaires Survivor Survivors Survivors - psychology telemedicine Transplants Transplants & implants Videoconferencing Young Adult |
title | Feasibility study of a telehealth delivered, psychoeducational support group for allogeneic hematopoietic stem cell transplant patients |
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