Neonatal Screening for Treatable and Untreatable Disorders: Prospective Parents' Opinions

In the Netherlands, in 2007, the national newborn screening program was expanded from 3 to 17 disorders that met the World Health Organization's Wilson and Jungner screening criteria, especially regarding treatability. The decision of whether to add diseases to the program is generally based on...

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Veröffentlicht in:	Pediatrics (Evanston) 2010-01, Vol.125 (1), p.e99-e106
Hauptverfasser:	Plass, Anne Marie Catharina, van El, Carla Geertruida, Pieters, Toine, Cornel, Martina Cornelia
Format:	Artikel
Sprache:	eng
Schlagworte:	Age of Onset Attitude to Health Babies Child Child, Preschool Cross-Sectional Studies Cystic Fibrosis - diagnosis Cystic Fibrosis - genetics Cystic Fibrosis - therapy Female Genetic Testing - standards Genetic Testing - trends Humans Infant, Newborn Male Medical disorders Medical screening Muscular Dystrophy, Duchenne - diagnosis Muscular Dystrophy, Duchenne - genetics Muscular Dystrophy, Duchenne - therapy Neonatal Screening - organization & administration Netherlands Parent attitudes Parents - psychology Pediatrics Phenylketonurias - diagnosis Phenylketonurias - genetics Phenylketonurias - therapy Professional-Family Relations Program Evaluation Qualitative research Risk Assessment Surveys and Questionnaires Treatment Failure Treatment Outcome
Online-Zugang:	Volltext
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