Optimization of informed consent for umbilical cord blood banking
Objective: The purpose of this project was to evaluate the informed consent process for donation to a public umbilical cord blood bank. Study Design: Telephone interviews were conducted with 170 women who had given consent to donate their newborn infants' umbilical cord blood. Results: Of the 1...
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| Veröffentlicht in: | American journal of obstetrics and gynecology 2002-12, Vol.187 (6), p.1642-1646 |
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| container_title | American journal of obstetrics and gynecology |
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| creator | Sugarman, Jeremy Kurtzberg, Joanne Box, Tamara L. Horner, Ronnie D. |
| description | Objective: The purpose of this project was to evaluate the informed consent process for donation to a public umbilical cord blood bank. Study Design: Telephone interviews were conducted with 170 women who had given consent to donate their newborn infants' umbilical cord blood. Results: Of the 170 women who were contacted, 96.8% of the women reported that all their questions had been answered. Nevertheless, approximately one third of the respondents did not consider themselves to be in research, and almost one quarter of the respondents did not know how to contact the umbilical cord blood bank if they or their infant became seriously ill. Further, a substantial proportion of the respondents did not understand the full range of alternatives to donation and incorrectly endorsed potential benefits. Conclusion: Informed consent could be optimized by (1) having those personnel who obtain consent emphasize that banking involves research and to explain the true benefits of donation, (2) ensuring that parents know how and when to contact the umbilical cord blood bank after donation, and (3) using phone surveys to continue assessments and to monitor changes in the process. (Am J Obstet Gynecol 2002;187:1642-6.) |
| doi_str_mv | 10.1067/mob.2002.127307 |
| format | Article |
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Study Design: Telephone interviews were conducted with 170 women who had given consent to donate their newborn infants' umbilical cord blood. Results: Of the 170 women who were contacted, 96.8% of the women reported that all their questions had been answered. Nevertheless, approximately one third of the respondents did not consider themselves to be in research, and almost one quarter of the respondents did not know how to contact the umbilical cord blood bank if they or their infant became seriously ill. Further, a substantial proportion of the respondents did not understand the full range of alternatives to donation and incorrectly endorsed potential benefits. Conclusion: Informed consent could be optimized by (1) having those personnel who obtain consent emphasize that banking involves research and to explain the true benefits of donation, (2) ensuring that parents know how and when to contact the umbilical cord blood bank after donation, and (3) using phone surveys to continue assessments and to monitor changes in the process. (Am J Obstet Gynecol 2002;187:1642-6.)</description><identifier>ISSN: 0002-9378</identifier><identifier>EISSN: 1097-6868</identifier><identifier>DOI: 10.1067/mob.2002.127307</identifier><identifier>PMID: 12501077</identifier><identifier>CODEN: AJOGAH</identifier><language>eng</language><publisher>Philadelphia, PA: Mosby, Inc</publisher><subject>Adult ; Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy ; Bioethics ; Biological and medical sciences ; Blood Banks ; Blood Donors ; Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis ; Continental Population Groups ; Educational Status ; ethics ; Ethics, Medical ; Female ; Fetal Blood ; Health Knowledge, Attitudes, Practice ; Humans ; Income ; Informed Consent ; Medical sciences ; survey ; Surveys and Questionnaires ; Telephone ; Time Factors ; Transfusions. Complications. Transfusion reactions. Cell and gene therapy ; umbilical cord blood banking</subject><ispartof>American journal of obstetrics and gynecology, 2002-12, Vol.187 (6), p.1642-1646</ispartof><rights>2002</rights><rights>2003 INIST-CNRS</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c439t-6223fff7f2793455f10dca1f17910701a9907c9dd67ea66fc09e023a6c85293a3</citedby><cites>FETCH-LOGICAL-c439t-6223fff7f2793455f10dca1f17910701a9907c9dd67ea66fc09e023a6c85293a3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1067/mob.2002.127307$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,45995</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=14430111$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/12501077$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sugarman, Jeremy</creatorcontrib><creatorcontrib>Kurtzberg, Joanne</creatorcontrib><creatorcontrib>Box, Tamara L.</creatorcontrib><creatorcontrib>Horner, Ronnie D.</creatorcontrib><title>Optimization of informed consent for umbilical cord blood banking</title><title>American journal of obstetrics and gynecology</title><addtitle>Am J Obstet Gynecol</addtitle><description>Objective: The purpose of this project was to evaluate the informed consent process for donation to a public umbilical cord blood bank. Study Design: Telephone interviews were conducted with 170 women who had given consent to donate their newborn infants' umbilical cord blood. Results: Of the 170 women who were contacted, 96.8% of the women reported that all their questions had been answered. Nevertheless, approximately one third of the respondents did not consider themselves to be in research, and almost one quarter of the respondents did not know how to contact the umbilical cord blood bank if they or their infant became seriously ill. Further, a substantial proportion of the respondents did not understand the full range of alternatives to donation and incorrectly endorsed potential benefits. Conclusion: Informed consent could be optimized by (1) having those personnel who obtain consent emphasize that banking involves research and to explain the true benefits of donation, (2) ensuring that parents know how and when to contact the umbilical cord blood bank after donation, and (3) using phone surveys to continue assessments and to monitor changes in the process. (Am J Obstet Gynecol 2002;187:1642-6.)</description><subject>Adult</subject><subject>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</subject><subject>Bioethics</subject><subject>Biological and medical sciences</subject><subject>Blood Banks</subject><subject>Blood Donors</subject><subject>Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis</subject><subject>Continental Population Groups</subject><subject>Educational Status</subject><subject>ethics</subject><subject>Ethics, Medical</subject><subject>Female</subject><subject>Fetal Blood</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Humans</subject><subject>Income</subject><subject>Informed Consent</subject><subject>Medical sciences</subject><subject>survey</subject><subject>Surveys and Questionnaires</subject><subject>Telephone</subject><subject>Time Factors</subject><subject>Transfusions. Complications. Transfusion reactions. Cell and gene therapy</subject><subject>umbilical cord blood banking</subject><issn>0002-9378</issn><issn>1097-6868</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2002</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kE1PAyEQhonR2Fo9ezN70du2A2yhHJvGr6RJL3omLAsG3YUKuyb666XpJp68MBnm4c3wIHSNYY6B8UUX6jkBIHNMOAV-gqYYBC_Ziq1O0RTypBSUryboIqX3Q0sEOUcTTJaAgfMpWu_2vevcj-pd8EWwhfM2xM40hQ4-Gd8XuS2Grnat06rNt7Ep6jaEfCr_4fzbJTqzqk3maqwz9Ppw_7J5Kre7x-fNelvqioq-ZIRQay23hAtaLZcWQ6MVtpiLvAlgJQRwLZqGcaMYsxqEAUIV06slEVTRGbo75u5j-BxM6mXnkjZtq7wJQ5I8BwMlLIOLI6hjSCkaK_fRdSp-SwzyYE1ma_JgTR6t5Rc3Y_RQ56__8aOmDNyOgErZgo3Ka5f-uKqigDHOnDhyJov4cibKpJ3x2jQuGt3LJrh_l_gFAiGHUQ</recordid><startdate>20021201</startdate><enddate>20021201</enddate><creator>Sugarman, Jeremy</creator><creator>Kurtzberg, Joanne</creator><creator>Box, Tamara L.</creator><creator>Horner, Ronnie D.</creator><general>Mosby, Inc</general><general>Elsevier</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20021201</creationdate><title>Optimization of informed consent for umbilical cord blood banking</title><author>Sugarman, Jeremy ; Kurtzberg, Joanne ; Box, Tamara L. ; Horner, Ronnie D.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c439t-6223fff7f2793455f10dca1f17910701a9907c9dd67ea66fc09e023a6c85293a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2002</creationdate><topic>Adult</topic><topic>Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy</topic><topic>Bioethics</topic><topic>Biological and medical sciences</topic><topic>Blood Banks</topic><topic>Blood Donors</topic><topic>Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis</topic><topic>Continental Population Groups</topic><topic>Educational Status</topic><topic>ethics</topic><topic>Ethics, Medical</topic><topic>Female</topic><topic>Fetal Blood</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Humans</topic><topic>Income</topic><topic>Informed Consent</topic><topic>Medical sciences</topic><topic>survey</topic><topic>Surveys and Questionnaires</topic><topic>Telephone</topic><topic>Time Factors</topic><topic>Transfusions. Complications. Transfusion reactions. Cell and gene therapy</topic><topic>umbilical cord blood banking</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Sugarman, Jeremy</creatorcontrib><creatorcontrib>Kurtzberg, Joanne</creatorcontrib><creatorcontrib>Box, Tamara L.</creatorcontrib><creatorcontrib>Horner, Ronnie D.</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>American journal of obstetrics and gynecology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Sugarman, Jeremy</au><au>Kurtzberg, Joanne</au><au>Box, Tamara L.</au><au>Horner, Ronnie D.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Optimization of informed consent for umbilical cord blood banking</atitle><jtitle>American journal of obstetrics and gynecology</jtitle><addtitle>Am J Obstet Gynecol</addtitle><date>2002-12-01</date><risdate>2002</risdate><volume>187</volume><issue>6</issue><spage>1642</spage><epage>1646</epage><pages>1642-1646</pages><issn>0002-9378</issn><eissn>1097-6868</eissn><coden>AJOGAH</coden><abstract>Objective: The purpose of this project was to evaluate the informed consent process for donation to a public umbilical cord blood bank. Study Design: Telephone interviews were conducted with 170 women who had given consent to donate their newborn infants' umbilical cord blood. Results: Of the 170 women who were contacted, 96.8% of the women reported that all their questions had been answered. Nevertheless, approximately one third of the respondents did not consider themselves to be in research, and almost one quarter of the respondents did not know how to contact the umbilical cord blood bank if they or their infant became seriously ill. Further, a substantial proportion of the respondents did not understand the full range of alternatives to donation and incorrectly endorsed potential benefits. Conclusion: Informed consent could be optimized by (1) having those personnel who obtain consent emphasize that banking involves research and to explain the true benefits of donation, (2) ensuring that parents know how and when to contact the umbilical cord blood bank after donation, and (3) using phone surveys to continue assessments and to monitor changes in the process. (Am J Obstet Gynecol 2002;187:1642-6.)</abstract><cop>Philadelphia, PA</cop><pub>Mosby, Inc</pub><pmid>12501077</pmid><doi>10.1067/mob.2002.127307</doi><tpages>5</tpages></addata></record> |
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| ispartof | American journal of obstetrics and gynecology, 2002-12, Vol.187 (6), p.1642-1646 |
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| subjects | Adult Anesthesia. Intensive care medicine. Transfusions. Cell therapy and gene therapy Bioethics Biological and medical sciences Blood Banks Blood Donors Blood. Blood and plasma substitutes. Blood products. Blood cells. Blood typing. Plasmapheresis. Apheresis Continental Population Groups Educational Status ethics Ethics, Medical Female Fetal Blood Health Knowledge, Attitudes, Practice Humans Income Informed Consent Medical sciences survey Surveys and Questionnaires Telephone Time Factors Transfusions. Complications. Transfusion reactions. Cell and gene therapy umbilical cord blood banking |
| title | Optimization of informed consent for umbilical cord blood banking |
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