Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan
The study aim was to evaluate by ALS patients' satisfaction regarding information about invasive ventilators provided by medical doctors. Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan. 1) Most patients were...
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| Veröffentlicht in: | Nihon kōshū eisei zasshi 2002-09, Vol.49 (9), p.959-966 |
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| container_issue | 9 |
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| container_title | Nihon kōshū eisei zasshi |
| container_volume | 49 |
| creator | Kitamura, Yayoi Tsuchiya, You Tanaka, Emiko Tamai, Mariko Shimizu, Tetsurou |
| description | The study aim was to evaluate by ALS patients' satisfaction regarding information about invasive ventilators provided by medical doctors.
Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan.
1) Most patients were unsatisfied with the information by doctors; 2) some cases felt strong distrust of doctors' attitudes; 3) more than half of the cases complained of insufficient information.
This study suggests that in the informed consent for ALS patients, doctors' negative attitudes to life prolongation adversely impact on ALS patients. Roles of service providers, patients and family members should be reconsidered for cases of ALS and other incurable diseases. |
| format | Article |
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Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan.
1) Most patients were unsatisfied with the information by doctors; 2) some cases felt strong distrust of doctors' attitudes; 3) more than half of the cases complained of insufficient information.
This study suggests that in the informed consent for ALS patients, doctors' negative attitudes to life prolongation adversely impact on ALS patients. Roles of service providers, patients and family members should be reconsidered for cases of ALS and other incurable diseases.</description><identifier>ISSN: 0546-1766</identifier><identifier>PMID: 12402474</identifier><language>jpn</language><publisher>Japan</publisher><subject>Aged ; Amyotrophic Lateral Sclerosis - therapy ; Female ; Humans ; Interviews as Topic ; Male ; Middle Aged ; Patient Satisfaction ; Physician-Patient Relations ; Ventilators, Mechanical</subject><ispartof>Nihon kōshū eisei zasshi, 2002-09, Vol.49 (9), p.959-966</ispartof><woscitedreferencessubscribed>false</woscitedreferencessubscribed></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/12402474$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kitamura, Yayoi</creatorcontrib><creatorcontrib>Tsuchiya, You</creatorcontrib><creatorcontrib>Tanaka, Emiko</creatorcontrib><creatorcontrib>Tamai, Mariko</creatorcontrib><creatorcontrib>Shimizu, Tetsurou</creatorcontrib><title>Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan</title><title>Nihon kōshū eisei zasshi</title><addtitle>Nihon Koshu Eisei Zasshi</addtitle><description>The study aim was to evaluate by ALS patients' satisfaction regarding information about invasive ventilators provided by medical doctors.
Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan.
1) Most patients were unsatisfied with the information by doctors; 2) some cases felt strong distrust of doctors' attitudes; 3) more than half of the cases complained of insufficient information.
This study suggests that in the informed consent for ALS patients, doctors' negative attitudes to life prolongation adversely impact on ALS patients. Roles of service providers, patients and family members should be reconsidered for cases of ALS and other incurable diseases.</description><subject>Aged</subject><subject>Amyotrophic Lateral Sclerosis - therapy</subject><subject>Female</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Patient Satisfaction</subject><subject>Physician-Patient Relations</subject><subject>Ventilators, Mechanical</subject><issn>0546-1766</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2002</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNo1UMtqwzAQ9KGlCW1-oejUnlJkWZbjYwh9EmgP7dms5RVRkS1Xsg3-uP5bNyQVAml2Z2eWuUiWPJdqnRZKLZJVjN-cjuKpktlVskiF5EIWcpn8fsBgsRviPcMJ3EjId8wbZjvjQ3uCffCTbbBh9cxabKwGxxqvBx8io_ZwQKJPEO2EbCIx64B6jAQYtLMfgu8PVjOqYqDRqB0GH218YNuOQQduJnA0BRbHMOF8_PfnxYjQHC0sCUJrncVIbuwNeuhukksDLuLq_F4nX0-Pn7uX9f79-XW33a_7VIhhjZlQZWpSNLxpcomlzssMlOJFqvRmk5dcYV0axQ2UaIQUGgDqUnKdmUaqNLtO7k66lMTPiHGoWhs1Ogcd-jFWhVCipEvE2zNxrCmpqg-2hTBX_4Fnf14VgXo</recordid><startdate>200209</startdate><enddate>200209</enddate><creator>Kitamura, Yayoi</creator><creator>Tsuchiya, You</creator><creator>Tanaka, Emiko</creator><creator>Tamai, Mariko</creator><creator>Shimizu, Tetsurou</creator><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>7X8</scope></search><sort><creationdate>200209</creationdate><title>Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan</title><author>Kitamura, Yayoi ; Tsuchiya, You ; Tanaka, Emiko ; Tamai, Mariko ; Shimizu, Tetsurou</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-p122t-e32691f1ef0dd54e9c593a660716c885906eb9f60fa9ef242caaab940c3fd4613</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>jpn</language><creationdate>2002</creationdate><topic>Aged</topic><topic>Amyotrophic Lateral Sclerosis - therapy</topic><topic>Female</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Patient Satisfaction</topic><topic>Physician-Patient Relations</topic><topic>Ventilators, Mechanical</topic><toplevel>online_resources</toplevel><creatorcontrib>Kitamura, Yayoi</creatorcontrib><creatorcontrib>Tsuchiya, You</creatorcontrib><creatorcontrib>Tanaka, Emiko</creatorcontrib><creatorcontrib>Tamai, Mariko</creatorcontrib><creatorcontrib>Shimizu, Tetsurou</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>MEDLINE - Academic</collection><jtitle>Nihon kōshū eisei zasshi</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Kitamura, Yayoi</au><au>Tsuchiya, You</au><au>Tanaka, Emiko</au><au>Tamai, Mariko</au><au>Shimizu, Tetsurou</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan</atitle><jtitle>Nihon kōshū eisei zasshi</jtitle><addtitle>Nihon Koshu Eisei Zasshi</addtitle><date>2002-09</date><risdate>2002</risdate><volume>49</volume><issue>9</issue><spage>959</spage><epage>966</epage><pages>959-966</pages><issn>0546-1766</issn><abstract>The study aim was to evaluate by ALS patients' satisfaction regarding information about invasive ventilators provided by medical doctors.
Semi-structural interviews were conduced for 12 cases (11 patients and 9 family members provided information) at three areas in Japan.
1) Most patients were unsatisfied with the information by doctors; 2) some cases felt strong distrust of doctors' attitudes; 3) more than half of the cases complained of insufficient information.
This study suggests that in the informed consent for ALS patients, doctors' negative attitudes to life prolongation adversely impact on ALS patients. Roles of service providers, patients and family members should be reconsidered for cases of ALS and other incurable diseases.</abstract><cop>Japan</cop><pmid>12402474</pmid><tpages>8</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0546-1766 |
| ispartof | Nihon kōshū eisei zasshi, 2002-09, Vol.49 (9), p.959-966 |
| issn | 0546-1766 |
| language | jpn |
| recordid | cdi_proquest_miscellaneous_72629629 |
| source | MEDLINE; J-STAGE (Japan Science & Technology Information Aggregator, Electronic) Freely Available Titles - Japanese; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals; Alma/SFX Local Collection |
| subjects | Aged Amyotrophic Lateral Sclerosis - therapy Female Humans Interviews as Topic Male Middle Aged Patient Satisfaction Physician-Patient Relations Ventilators, Mechanical |
| title | Patients' evaluation of information provided by medical doctors on the invasive ventilator for amyotrophic lateral sclerosis. An analysis of a survey of patients and their families in Japan |
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