User perspectives of transitional care for adolescents with juvenile idiopathic arthritis
Objectives. To gain insight into the transitional needs of adolescents with juvenile idiopathic arthritis (JIA) and to examine how these needs may be addressed within a structured programme of transitional care. Methods. A qualitative study using focused group discussions was performed. Groups compr...
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| Veröffentlicht in: | Rheumatology (Oxford, England) England), 2004-06, Vol.43 (6), p.770-778 |
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| container_title | Rheumatology (Oxford, England) |
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| creator | Shaw, K. L. Southwood, T. R. McDonagh, J. E. |
| description | Objectives. To gain insight into the transitional needs of adolescents with juvenile idiopathic arthritis (JIA) and to examine how these needs may be addressed within a structured programme of transitional care. Methods. A qualitative study using focused group discussions was performed. Groups comprised (i) adolescents with JIA aged 12–18 yr, (ii) young adults with JIA aged 19–30 yr, (iii) parents of adolescents with JIA, and (iv) parents of young adults with JIA. Results. Transitional needs included aspects of participants’ physical, social, psychological and vocational lives. Participants (n = 55) called for developmentally appropriate care based upon shared decision-making, continuity of health professionals, and wider access to information and community services. Suggestions for improved care included individualized assessment of patient's holistic needs and increased transfer preparation. Conclusions. These results provide a useful guide to transitional care and suggest an approach that is adolescent-focused and evidence-based. |
| doi_str_mv | 10.1093/rheumatology/keh175 |
| format | Article |
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Suggestions for improved care included individualized assessment of patient's holistic needs and increased transfer preparation. Conclusions. 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L.</creatorcontrib><creatorcontrib>Southwood, T. R.</creatorcontrib><creatorcontrib>McDonagh, J. E.</creatorcontrib><creatorcontrib>British Paediatric Rheumatology Group</creatorcontrib><title>User perspectives of transitional care for adolescents with juvenile idiopathic arthritis</title><title>Rheumatology (Oxford, England)</title><addtitle>Rheumatology</addtitle><description>Objectives. To gain insight into the transitional needs of adolescents with juvenile idiopathic arthritis (JIA) and to examine how these needs may be addressed within a structured programme of transitional care. Methods. A qualitative study using focused group discussions was performed. Groups comprised (i) adolescents with JIA aged 12–18 yr, (ii) young adults with JIA aged 19–30 yr, (iii) parents of adolescents with JIA, and (iv) parents of young adults with JIA. Results. Transitional needs included aspects of participants’ physical, social, psychological and vocational lives. Participants (n = 55) called for developmentally appropriate care based upon shared decision-making, continuity of health professionals, and wider access to information and community services. Suggestions for improved care included individualized assessment of patient's holistic needs and increased transfer preparation. Conclusions. These results provide a useful guide to transitional care and suggest an approach that is adolescent-focused and evidence-based.</description><subject>Adolescence</subject><subject>Adolescent</subject><subject>Adolescent Health Services - organization & administration</subject><subject>Adult</subject><subject>Arthritis, Juvenile - therapy</subject><subject>Attitude to Health</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Continuity of Patient Care - organization & administration</subject><subject>Diseases of the osteoarticular system</subject><subject>England</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Health Services Research</subject><subject>Humans</subject><subject>Inflammatory joint diseases</subject><subject>Juvenile idiopathic arthritis</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Needs Assessment</subject><subject>Professional-Patient Relations</subject><subject>Program Development</subject><subject>Transition</subject><issn>1462-0324</issn><issn>1462-0332</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2004</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNpdkF1rFTEQhhdRbK3-AkGCoHdrM5tkk72U-lGhIEgL2pswm2TdnO7ZrEm2H__elHOoxasZmOedSZ6qeg30A9COHcfRrVvMYQq_746v3AhSPKkOgbdNTRlrnj70DT-oXqS0oZQKYOp5dQCCso536rD6dZFcJIuLaXEm-2uXSBhIjjgnn32YcSIGoyNDiARtmFwybs6J3Pg8ks167WY_OeKtDwvm0RuCMY-xRNPL6tmAU3Kv9vWouvjy-fzktD77_vXbycez2jDJco1oDCgwysrWGgDVikEy3hupTN86DobZASgCVyCs6A23EntpBROoLG3YUfV-t3eJ4c_qUtZbXx45TTi7sCYtoRNctV0B3_4HbsIayw-TLkgrQTZtgdgOMjGkFN2gl-i3GO80UH2vXT_WrnfaS-rNfvXab539l9l7LsC7PYDJ4DQUv8anR5wSnHf35-sd51N2tw9zjFe6lUwKffrzUit1DuqT-qEv2V8dUKDb</recordid><startdate>20040601</startdate><enddate>20040601</enddate><creator>Shaw, K. 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L.</creatorcontrib><creatorcontrib>Southwood, T. R.</creatorcontrib><creatorcontrib>McDonagh, J. E.</creatorcontrib><creatorcontrib>British Paediatric Rheumatology Group</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Rheumatology (Oxford, England)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Shaw, K. L.</au><au>Southwood, T. R.</au><au>McDonagh, J. E.</au><aucorp>British Paediatric Rheumatology Group</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>User perspectives of transitional care for adolescents with juvenile idiopathic arthritis</atitle><jtitle>Rheumatology (Oxford, England)</jtitle><addtitle>Rheumatology</addtitle><date>2004-06-01</date><risdate>2004</risdate><volume>43</volume><issue>6</issue><spage>770</spage><epage>778</epage><pages>770-778</pages><issn>1462-0324</issn><eissn>1462-0332</eissn><coden>BJRHDF</coden><abstract>Objectives. To gain insight into the transitional needs of adolescents with juvenile idiopathic arthritis (JIA) and to examine how these needs may be addressed within a structured programme of transitional care. Methods. A qualitative study using focused group discussions was performed. Groups comprised (i) adolescents with JIA aged 12–18 yr, (ii) young adults with JIA aged 19–30 yr, (iii) parents of adolescents with JIA, and (iv) parents of young adults with JIA. Results. Transitional needs included aspects of participants’ physical, social, psychological and vocational lives. Participants (n = 55) called for developmentally appropriate care based upon shared decision-making, continuity of health professionals, and wider access to information and community services. Suggestions for improved care included individualized assessment of patient's holistic needs and increased transfer preparation. Conclusions. These results provide a useful guide to transitional care and suggest an approach that is adolescent-focused and evidence-based.</abstract><cop>Oxford</cop><pub>Oxford University Press</pub><pmid>15039498</pmid><doi>10.1093/rheumatology/keh175</doi><tpages>9</tpages><oa>free_for_read</oa></addata></record> |
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| source | Oxford University Press Journals All Titles (1996-Current); MEDLINE; Alma/SFX Local Collection |
| subjects | Adolescence Adolescent Adolescent Health Services - organization & administration Adult Arthritis, Juvenile - therapy Attitude to Health Biological and medical sciences Child Continuity of Patient Care - organization & administration Diseases of the osteoarticular system England Female Focus Groups Health Services Research Humans Inflammatory joint diseases Juvenile idiopathic arthritis Male Medical sciences Needs Assessment Professional-Patient Relations Program Development Transition |
| title | User perspectives of transitional care for adolescents with juvenile idiopathic arthritis |
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