Living-related liver transplantation from the view of the donor: A 1-year follow-up survey

In the past, follow-up surveys for living-related liver transplantation (LRLT) mainly focused on the medical outcome of recipients and donors. In this survey the prevalence of personal, familial, or economic problems of the donors and changes of quality of life after donation were studied. Questionn...

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Veröffentlicht in:Transplantation 2002-06, Vol.73 (11), p.1799-1804
Hauptverfasser: KARLIOVA, Marc, MALAGO, Massimo, VALENTIN-GAMAZO, Camino, REIMER, Jens, TREICHEL, Ulrich, FRANKE, Gabriele H, NADALIN, Silvio, FRILLING, Andrea, GERKEN, Guido, BROELSCH, Christoph E
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container_end_page 1804
container_issue 11
container_start_page 1799
container_title Transplantation
container_volume 73
creator KARLIOVA, Marc
MALAGO, Massimo
VALENTIN-GAMAZO, Camino
REIMER, Jens
TREICHEL, Ulrich
FRANKE, Gabriele H
NADALIN, Silvio
FRILLING, Andrea
GERKEN, Guido
BROELSCH, Christoph E
description In the past, follow-up surveys for living-related liver transplantation (LRLT) mainly focused on the medical outcome of recipients and donors. In this survey the prevalence of personal, familial, or economic problems of the donors and changes of quality of life after donation were studied. Questionnaires were sent to 24 donors after right hepatectomy for LRLT (response 92%). The modified EUROTOLD (European Multicenter Study of Transplantation Using Living Donors) questionnaire was used to inquire about the decision-making process, family problems, and economic problems related to the donation. Global quality of life was measured with the SF-36 Health Survey. For most donors the decision to donate was easy or not very difficult (21/22) and was made spontaneously (17/22). The amount of information about the risks of LRLT was limited at the time of decision but increased remarkably immediately before the operation. In 28%, family conflicts occurred (5/22). Retrospectively, all but two donors (91%) would donate again. On average, donors started working after 9 (+/-3.7) weeks and felt fully recovered after 13 (+/-7.3) weeks. Adverse financial affects were experienced by 41% of the donors (9/22) because of the donation, and four of those received a compensation. Importantly, quality of life did not differ between donors and nondonors. Donors viewed LRLT positively. Quality of life after donation did not change. However, donors had a prolonged period of physical rehabilitation, and 41% experienced financial disadvantages.
doi_str_mv 10.1097/00007890-200206150-00017
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In this survey the prevalence of personal, familial, or economic problems of the donors and changes of quality of life after donation were studied. Questionnaires were sent to 24 donors after right hepatectomy for LRLT (response 92%). The modified EUROTOLD (European Multicenter Study of Transplantation Using Living Donors) questionnaire was used to inquire about the decision-making process, family problems, and economic problems related to the donation. Global quality of life was measured with the SF-36 Health Survey. For most donors the decision to donate was easy or not very difficult (21/22) and was made spontaneously (17/22). The amount of information about the risks of LRLT was limited at the time of decision but increased remarkably immediately before the operation. In 28%, family conflicts occurred (5/22). Retrospectively, all but two donors (91%) would donate again. On average, donors started working after 9 (+/-3.7) weeks and felt fully recovered after 13 (+/-7.3) weeks. Adverse financial affects were experienced by 41% of the donors (9/22) because of the donation, and four of those received a compensation. Importantly, quality of life did not differ between donors and nondonors. Donors viewed LRLT positively. Quality of life after donation did not change. 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In this survey the prevalence of personal, familial, or economic problems of the donors and changes of quality of life after donation were studied. Questionnaires were sent to 24 donors after right hepatectomy for LRLT (response 92%). The modified EUROTOLD (European Multicenter Study of Transplantation Using Living Donors) questionnaire was used to inquire about the decision-making process, family problems, and economic problems related to the donation. Global quality of life was measured with the SF-36 Health Survey. For most donors the decision to donate was easy or not very difficult (21/22) and was made spontaneously (17/22). The amount of information about the risks of LRLT was limited at the time of decision but increased remarkably immediately before the operation. In 28%, family conflicts occurred (5/22). Retrospectively, all but two donors (91%) would donate again. On average, donors started working after 9 (+/-3.7) weeks and felt fully recovered after 13 (+/-7.3) weeks. Adverse financial affects were experienced by 41% of the donors (9/22) because of the donation, and four of those received a compensation. Importantly, quality of life did not differ between donors and nondonors. Donors viewed LRLT positively. Quality of life after donation did not change. However, donors had a prolonged period of physical rehabilitation, and 41% experienced financial disadvantages.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Attitude to Health</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Data Collection</subject><subject>Decision Making</subject><subject>Employment</subject><subject>Family Health</subject><subject>Female</subject><subject>Follow-Up Studies</subject><subject>Humans</subject><subject>Length of Stay - statistics &amp; numerical data</subject><subject>Liver Transplantation - psychology</subject><subject>Liver, biliary tract, pancreas, portal circulation, spleen</subject><subject>Living Donors - psychology</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Quality of Life</subject><subject>Social Class</subject><subject>Surgery (general aspects). Transplantations, organ and tissue grafts. 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Transplantations, organ and tissue grafts. Graft diseases</topic><topic>Surgery of the digestive system</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>KARLIOVA, Marc</creatorcontrib><creatorcontrib>MALAGO, Massimo</creatorcontrib><creatorcontrib>VALENTIN-GAMAZO, Camino</creatorcontrib><creatorcontrib>REIMER, Jens</creatorcontrib><creatorcontrib>TREICHEL, Ulrich</creatorcontrib><creatorcontrib>FRANKE, Gabriele H</creatorcontrib><creatorcontrib>NADALIN, Silvio</creatorcontrib><creatorcontrib>FRILLING, Andrea</creatorcontrib><creatorcontrib>GERKEN, Guido</creatorcontrib><creatorcontrib>BROELSCH, Christoph E</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Immunology Abstracts</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Transplantation</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>KARLIOVA, Marc</au><au>MALAGO, Massimo</au><au>VALENTIN-GAMAZO, Camino</au><au>REIMER, Jens</au><au>TREICHEL, Ulrich</au><au>FRANKE, Gabriele H</au><au>NADALIN, Silvio</au><au>FRILLING, Andrea</au><au>GERKEN, Guido</au><au>BROELSCH, Christoph E</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Living-related liver transplantation from the view of the donor: A 1-year follow-up survey</atitle><jtitle>Transplantation</jtitle><addtitle>Transplantation</addtitle><date>2002-06-15</date><risdate>2002</risdate><volume>73</volume><issue>11</issue><spage>1799</spage><epage>1804</epage><pages>1799-1804</pages><issn>0041-1337</issn><eissn>1534-6080</eissn><coden>TRPLAU</coden><abstract>In the past, follow-up surveys for living-related liver transplantation (LRLT) mainly focused on the medical outcome of recipients and donors. 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Adverse financial affects were experienced by 41% of the donors (9/22) because of the donation, and four of those received a compensation. Importantly, quality of life did not differ between donors and nondonors. Donors viewed LRLT positively. Quality of life after donation did not change. However, donors had a prolonged period of physical rehabilitation, and 41% experienced financial disadvantages.</abstract><cop>Hagerstown, MD</cop><pub>Lippincott</pub><pmid>12085004</pmid><doi>10.1097/00007890-200206150-00017</doi><tpages>6</tpages><oa>free_for_read</oa></addata></record>
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subjects Adolescent
Adult
Attitude to Health
Biological and medical sciences
Child
Data Collection
Decision Making
Employment
Family Health
Female
Follow-Up Studies
Humans
Length of Stay - statistics & numerical data
Liver Transplantation - psychology
Liver, biliary tract, pancreas, portal circulation, spleen
Living Donors - psychology
Male
Medical sciences
Middle Aged
Quality of Life
Social Class
Surgery (general aspects). Transplantations, organ and tissue grafts. Graft diseases
Surgery of the digestive system
title Living-related liver transplantation from the view of the donor: A 1-year follow-up survey
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