Quality of life in patients with established inflammatory bowel disease: a UK general practice survey
Summary Background : The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care. Aim : To descri...
Gespeichert in:
| Veröffentlicht in: | Alimentary pharmacology & therapeutics 2004-03, Vol.19 (5), p.529-535 |
|---|---|
| Hauptverfasser: | , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 535 |
|---|---|
| container_issue | 5 |
| container_start_page | 529 |
| container_title | Alimentary pharmacology & therapeutics |
| container_volume | 19 |
| creator | Rubin, G. P. Hungin, A. P. S. Chinn, D. J. Dwarakanath, D. |
| description | Summary
Background : The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care.
Aim : To describe the health‐related quality of life in a community‐based sample of patients with established inflammatory bowel disease and explore its association with the type and extent of disease, gender, age, material deprivation and other factors.
Methods : Adults with established inflammatory bowel disease were identified systematically from the records of 23 family practices in north‐east England. The health‐related quality of life was assessed by self‐completion of the UK Inflammatory Bowel Disease Questionnaire.
Results : Five hundred and fifty‐six patients were sent the questionnaire and 409 (74%) gave usable replies. Lower scores (worse quality of life) were significantly associated with female gender, Crohn's disease, more extensive disease (ulcerative colitis) and being under specialist care. The mean health‐related quality of life score was significantly lower in patients resident in more deprived districts, independent of the type and extent of disease.
Conclusions : Most patients with established inflammatory bowel disease showed only minor impairment of their health‐related quality of life. On average, women and those with Crohn's disease were relatively more affected. Clinicians responsible for the care of patients with inflammatory bowel disease should be aware of these more vulnerable groups. |
| doi_str_mv | 10.1111/j.1365-2036.2004.1873.x |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_71703037</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>71703037</sourcerecordid><originalsourceid>FETCH-LOGICAL-c4413-d59579af6fd1eb03e1c3e486ec74099f652c2df929a9372b3851614c34c6d5ae3</originalsourceid><addsrcrecordid>eNqNkE1v1DAQhi0EotvCXwBf4Jbgj8ReIy5VBQVRCZDaszVxxtQrJ1nspNv8exLtil7xZSzPM_NaDyFvOSv5cj7sSi5VXQgmVSkYq0q-1bJ8fEY2_96fkw0TyhRiy-UZOc95xxhTmomX5IxXZuEF3xD8NUEM40wHT2PwSENP9zAG7MdMD2G8p5hHaGLI99guTR-h62Ac0kyb4YCRtiEjZPxIgd59p7-xxwSR7hO4MTikeUoPOL8iLzzEjK9P9YLcffl8e_W1uPlx_e3q8qZwVcVl0dam1ga88i3HhknkTmK1Veh0xYzxqhZOtN4IA0Zq0chtzRWvnKycamtAeUHeH_fu0_BnWn5uu5Adxgg9DlO2mmsmmdQLqI-gS0POCb3dp9BBmi1ndjVsd3Y1aVeTdjVsV8P2cZl8c4qYmg7bp7mT0gV4dwIgO4g-Qe9CfuLqesH0yn06cocQcf7ffHv583a9yb8I8pb-</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>71703037</pqid></control><display><type>article</type><title>Quality of life in patients with established inflammatory bowel disease: a UK general practice survey</title><source>MEDLINE</source><source>IngentaConnect Free/Open Access Journals</source><source>Wiley Online Library Journals Frontfile Complete</source><source>Wiley Online Library Free Content</source><source>Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals</source><creator>Rubin, G. P. ; Hungin, A. P. S. ; Chinn, D. J. ; Dwarakanath, D.</creator><creatorcontrib>Rubin, G. P. ; Hungin, A. P. S. ; Chinn, D. J. ; Dwarakanath, D.</creatorcontrib><description>Summary
Background : The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care.
Aim : To describe the health‐related quality of life in a community‐based sample of patients with established inflammatory bowel disease and explore its association with the type and extent of disease, gender, age, material deprivation and other factors.
Methods : Adults with established inflammatory bowel disease were identified systematically from the records of 23 family practices in north‐east England. The health‐related quality of life was assessed by self‐completion of the UK Inflammatory Bowel Disease Questionnaire.
Results : Five hundred and fifty‐six patients were sent the questionnaire and 409 (74%) gave usable replies. Lower scores (worse quality of life) were significantly associated with female gender, Crohn's disease, more extensive disease (ulcerative colitis) and being under specialist care. The mean health‐related quality of life score was significantly lower in patients resident in more deprived districts, independent of the type and extent of disease.
Conclusions : Most patients with established inflammatory bowel disease showed only minor impairment of their health‐related quality of life. On average, women and those with Crohn's disease were relatively more affected. Clinicians responsible for the care of patients with inflammatory bowel disease should be aware of these more vulnerable groups.</description><identifier>ISSN: 0269-2813</identifier><identifier>EISSN: 1365-2036</identifier><identifier>DOI: 10.1111/j.1365-2036.2004.1873.x</identifier><identifier>PMID: 14987321</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Science Ltd</publisher><subject>Adolescent ; Adult ; Age of Onset ; Aged ; Biological and medical sciences ; Digestive system ; England - epidemiology ; Female ; Gastroenterology. Liver. Pancreas. Abdomen ; Health Status ; Health Status Indicators ; Health Surveys ; Humans ; Inflammatory Bowel Diseases - epidemiology ; Inflammatory Bowel Diseases - psychology ; Male ; Medical sciences ; Middle Aged ; Pharmacology. Drug treatments ; Poverty ; Quality of Life ; Regression Analysis ; Socioeconomic Factors ; Surveys and Questionnaires ; Urban Health</subject><ispartof>Alimentary pharmacology & therapeutics, 2004-03, Vol.19 (5), p.529-535</ispartof><rights>2004 INIST-CNRS</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4413-d59579af6fd1eb03e1c3e486ec74099f652c2df929a9372b3851614c34c6d5ae3</citedby><cites>FETCH-LOGICAL-c4413-d59579af6fd1eb03e1c3e486ec74099f652c2df929a9372b3851614c34c6d5ae3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fj.1365-2036.2004.1873.x$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fj.1365-2036.2004.1873.x$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,1427,27901,27902,45550,45551,46384,46808</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=15573271$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/14987321$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Rubin, G. P.</creatorcontrib><creatorcontrib>Hungin, A. P. S.</creatorcontrib><creatorcontrib>Chinn, D. J.</creatorcontrib><creatorcontrib>Dwarakanath, D.</creatorcontrib><title>Quality of life in patients with established inflammatory bowel disease: a UK general practice survey</title><title>Alimentary pharmacology & therapeutics</title><addtitle>Aliment Pharmacol Ther</addtitle><description>Summary
Background : The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care.
Aim : To describe the health‐related quality of life in a community‐based sample of patients with established inflammatory bowel disease and explore its association with the type and extent of disease, gender, age, material deprivation and other factors.
Methods : Adults with established inflammatory bowel disease were identified systematically from the records of 23 family practices in north‐east England. The health‐related quality of life was assessed by self‐completion of the UK Inflammatory Bowel Disease Questionnaire.
Results : Five hundred and fifty‐six patients were sent the questionnaire and 409 (74%) gave usable replies. Lower scores (worse quality of life) were significantly associated with female gender, Crohn's disease, more extensive disease (ulcerative colitis) and being under specialist care. The mean health‐related quality of life score was significantly lower in patients resident in more deprived districts, independent of the type and extent of disease.
Conclusions : Most patients with established inflammatory bowel disease showed only minor impairment of their health‐related quality of life. On average, women and those with Crohn's disease were relatively more affected. Clinicians responsible for the care of patients with inflammatory bowel disease should be aware of these more vulnerable groups.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Age of Onset</subject><subject>Aged</subject><subject>Biological and medical sciences</subject><subject>Digestive system</subject><subject>England - epidemiology</subject><subject>Female</subject><subject>Gastroenterology. Liver. Pancreas. Abdomen</subject><subject>Health Status</subject><subject>Health Status Indicators</subject><subject>Health Surveys</subject><subject>Humans</subject><subject>Inflammatory Bowel Diseases - epidemiology</subject><subject>Inflammatory Bowel Diseases - psychology</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Middle Aged</subject><subject>Pharmacology. Drug treatments</subject><subject>Poverty</subject><subject>Quality of Life</subject><subject>Regression Analysis</subject><subject>Socioeconomic Factors</subject><subject>Surveys and Questionnaires</subject><subject>Urban Health</subject><issn>0269-2813</issn><issn>1365-2036</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2004</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkE1v1DAQhi0EotvCXwBf4Jbgj8ReIy5VBQVRCZDaszVxxtQrJ1nspNv8exLtil7xZSzPM_NaDyFvOSv5cj7sSi5VXQgmVSkYq0q-1bJ8fEY2_96fkw0TyhRiy-UZOc95xxhTmomX5IxXZuEF3xD8NUEM40wHT2PwSENP9zAG7MdMD2G8p5hHaGLI99guTR-h62Ac0kyb4YCRtiEjZPxIgd59p7-xxwSR7hO4MTikeUoPOL8iLzzEjK9P9YLcffl8e_W1uPlx_e3q8qZwVcVl0dam1ga88i3HhknkTmK1Veh0xYzxqhZOtN4IA0Zq0chtzRWvnKycamtAeUHeH_fu0_BnWn5uu5Adxgg9DlO2mmsmmdQLqI-gS0POCb3dp9BBmi1ndjVsd3Y1aVeTdjVsV8P2cZl8c4qYmg7bp7mT0gV4dwIgO4g-Qe9CfuLqesH0yn06cocQcf7ffHv583a9yb8I8pb-</recordid><startdate>200403</startdate><enddate>200403</enddate><creator>Rubin, G. P.</creator><creator>Hungin, A. P. S.</creator><creator>Chinn, D. J.</creator><creator>Dwarakanath, D.</creator><general>Blackwell Science Ltd</general><general>Blackwell</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>200403</creationdate><title>Quality of life in patients with established inflammatory bowel disease: a UK general practice survey</title><author>Rubin, G. P. ; Hungin, A. P. S. ; Chinn, D. J. ; Dwarakanath, D.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4413-d59579af6fd1eb03e1c3e486ec74099f652c2df929a9372b3851614c34c6d5ae3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2004</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Age of Onset</topic><topic>Aged</topic><topic>Biological and medical sciences</topic><topic>Digestive system</topic><topic>England - epidemiology</topic><topic>Female</topic><topic>Gastroenterology. Liver. Pancreas. Abdomen</topic><topic>Health Status</topic><topic>Health Status Indicators</topic><topic>Health Surveys</topic><topic>Humans</topic><topic>Inflammatory Bowel Diseases - epidemiology</topic><topic>Inflammatory Bowel Diseases - psychology</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Middle Aged</topic><topic>Pharmacology. Drug treatments</topic><topic>Poverty</topic><topic>Quality of Life</topic><topic>Regression Analysis</topic><topic>Socioeconomic Factors</topic><topic>Surveys and Questionnaires</topic><topic>Urban Health</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Rubin, G. P.</creatorcontrib><creatorcontrib>Hungin, A. P. S.</creatorcontrib><creatorcontrib>Chinn, D. J.</creatorcontrib><creatorcontrib>Dwarakanath, D.</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Alimentary pharmacology & therapeutics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Rubin, G. P.</au><au>Hungin, A. P. S.</au><au>Chinn, D. J.</au><au>Dwarakanath, D.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Quality of life in patients with established inflammatory bowel disease: a UK general practice survey</atitle><jtitle>Alimentary pharmacology & therapeutics</jtitle><addtitle>Aliment Pharmacol Ther</addtitle><date>2004-03</date><risdate>2004</risdate><volume>19</volume><issue>5</issue><spage>529</spage><epage>535</epage><pages>529-535</pages><issn>0269-2813</issn><eissn>1365-2036</eissn><abstract>Summary
Background : The current understanding of quality of life impairment in inflammatory bowel disease has largely been derived from selected populations and may not reflect the experience of patients in the community, where fewer than half are likely to be under specialist care.
Aim : To describe the health‐related quality of life in a community‐based sample of patients with established inflammatory bowel disease and explore its association with the type and extent of disease, gender, age, material deprivation and other factors.
Methods : Adults with established inflammatory bowel disease were identified systematically from the records of 23 family practices in north‐east England. The health‐related quality of life was assessed by self‐completion of the UK Inflammatory Bowel Disease Questionnaire.
Results : Five hundred and fifty‐six patients were sent the questionnaire and 409 (74%) gave usable replies. Lower scores (worse quality of life) were significantly associated with female gender, Crohn's disease, more extensive disease (ulcerative colitis) and being under specialist care. The mean health‐related quality of life score was significantly lower in patients resident in more deprived districts, independent of the type and extent of disease.
Conclusions : Most patients with established inflammatory bowel disease showed only minor impairment of their health‐related quality of life. On average, women and those with Crohn's disease were relatively more affected. Clinicians responsible for the care of patients with inflammatory bowel disease should be aware of these more vulnerable groups.</abstract><cop>Oxford, UK</cop><pub>Blackwell Science Ltd</pub><pmid>14987321</pmid><doi>10.1111/j.1365-2036.2004.1873.x</doi><tpages>7</tpages><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0269-2813 |
| ispartof | Alimentary pharmacology & therapeutics, 2004-03, Vol.19 (5), p.529-535 |
| issn | 0269-2813 1365-2036 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_71703037 |
| source | MEDLINE; IngentaConnect Free/Open Access Journals; Wiley Online Library Journals Frontfile Complete; Wiley Online Library Free Content; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals |
| subjects | Adolescent Adult Age of Onset Aged Biological and medical sciences Digestive system England - epidemiology Female Gastroenterology. Liver. Pancreas. Abdomen Health Status Health Status Indicators Health Surveys Humans Inflammatory Bowel Diseases - epidemiology Inflammatory Bowel Diseases - psychology Male Medical sciences Middle Aged Pharmacology. Drug treatments Poverty Quality of Life Regression Analysis Socioeconomic Factors Surveys and Questionnaires Urban Health |
| title | Quality of life in patients with established inflammatory bowel disease: a UK general practice survey |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-30T12%3A52%3A33IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Quality%20of%20life%20in%20patients%20with%20established%20inflammatory%20bowel%20disease:%20a%20UK%20general%20practice%20survey&rft.jtitle=Alimentary%20pharmacology%20&%20therapeutics&rft.au=Rubin,%20G.%20P.&rft.date=2004-03&rft.volume=19&rft.issue=5&rft.spage=529&rft.epage=535&rft.pages=529-535&rft.issn=0269-2813&rft.eissn=1365-2036&rft_id=info:doi/10.1111/j.1365-2036.2004.1873.x&rft_dat=%3Cproquest_cross%3E71703037%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=71703037&rft_id=info:pmid/14987321&rfr_iscdi=true |