Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy

As the availability of tests to identify hereditary predisposition to chronic diseases continues to grow, a need has arisen to prepare individuals receiving genetic test results to share this highly sophisticated and value-laden information with other at-risk family members. Responding to this need,...

Ausführliche Beschreibung

Gespeichert in:
Bibliographische Detailangaben
Veröffentlicht in:Family & community health 2001-10, Vol.24 (3), p.13-26
Hauptverfasser: Daly, Mary B., Barsevick, Andrea, Miller, Suzanne M., Buckman, Robert, Costalas, Josephine, Montgomery, Susan, Bingler, Ruth
Format: Artikel
Sprache:eng
Schlagworte:
Online-Zugang:Volltext
Tags: Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
container_end_page 26
container_issue 3
container_start_page 13
container_title Family & community health
container_volume 24
creator Daly, Mary B.
Barsevick, Andrea
Miller, Suzanne M.
Buckman, Robert
Costalas, Josephine
Montgomery, Susan
Bingler, Ruth
description As the availability of tests to identify hereditary predisposition to chronic diseases continues to grow, a need has arisen to prepare individuals receiving genetic test results to share this highly sophisticated and value-laden information with other at-risk family members. Responding to this need, a communication skills-building intervention, based on Buckman's model of "Breaking Bad News," was developed for use in the setting of genetic testing for BRCA1 and BRCA2 mutations. Outcomes will include knowledge, attitudes, and health behavior on the part of both the proband and her first-degree relatives.
doi_str_mv 10.1097/00003727-200110000-00004
format Article
fullrecord <record><control><sourceid>jstor_proqu</sourceid><recordid>TN_cdi_proquest_miscellaneous_71181534</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><jstor_id>44953989</jstor_id><sourcerecordid>44953989</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3504-69b124673c3feb8960d4bf01611792be188b47ad4c3c0632291a62dda14596c83</originalsourceid><addsrcrecordid>eNp1kV9rFDEUxYModlv9CErwwadGc_N34ltdbBUKglt9DZmZbDfbzMw2yVD32zvjrhUE83AvCb9zOJwghIG-A2r0ezodrpkmjFKA-UbmIZ6gBUhJiaRSP0ULCooSxbU5Qac5b2dRBfQ5OgGQihsBC_RjOXTd2IfGldDf4ivf-xIafONzwd98HmPJuAy4bDy-dF2I-w_4Aq_CT7IqfneOV3chxkw-jiG2s35Vkiv-dv8CPVu7mP3L4z5D3y8_3Sw_k-uvV1-WF9ek4ZIKokwNTCjNG772dWUUbUW9nmIDaMNqD1VVC-1a0fCGKs6YAadY2zoQ0qim4mfo7cF3l4b7cQptu5AbH6Pr_TBmqwEqkFxM4Jt_wO0wpn7KZhnjXEkGdIKqA9SkIefk13aXQufS3gK1c_H2T_H2sfjfT7P_66P_WHe-_Ss8Nj0B4gA8DLH4lO_i-OCT3XgXy8b-70Mn2auDbJvLkB5thTCSm8rwX9COlE4</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>223365210</pqid></control><display><type>article</type><title>Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy</title><source>Jstor Complete Legacy</source><source>MEDLINE</source><source>Journals@Ovid Complete</source><creator>Daly, Mary B. ; Barsevick, Andrea ; Miller, Suzanne M. ; Buckman, Robert ; Costalas, Josephine ; Montgomery, Susan ; Bingler, Ruth</creator><creatorcontrib>Daly, Mary B. ; Barsevick, Andrea ; Miller, Suzanne M. ; Buckman, Robert ; Costalas, Josephine ; Montgomery, Susan ; Bingler, Ruth</creatorcontrib><description>As the availability of tests to identify hereditary predisposition to chronic diseases continues to grow, a need has arisen to prepare individuals receiving genetic test results to share this highly sophisticated and value-laden information with other at-risk family members. Responding to this need, a communication skills-building intervention, based on Buckman's model of "Breaking Bad News," was developed for use in the setting of genetic testing for BRCA1 and BRCA2 mutations. Outcomes will include knowledge, attitudes, and health behavior on the part of both the proband and her first-degree relatives.</description><identifier>ISSN: 0160-6379</identifier><identifier>EISSN: 1550-5057</identifier><identifier>DOI: 10.1097/00003727-200110000-00004</identifier><identifier>PMID: 11563941</identifier><identifier>CODEN: FCHEEK</identifier><language>eng</language><publisher>United States: Aspen Publishers, Inc</publisher><subject>Adaptation, Psychological ; BRCA2 Protein ; Breast cancer ; Breast Neoplasms - genetics ; Breast Neoplasms - psychology ; Chronic Disease ; Communication ; Families &amp; family life ; Family Relations ; Female ; Genes ; Genes, BRCA1 ; Genetic Counseling - standards ; Genetic Predisposition to Disease ; Genetic Testing ; Health Knowledge, Attitudes, Practice ; Heredity ; Humans ; Inservice Training ; Interpersonal communication ; Mutation ; Neoplasm Proteins - genetics ; Ovarian Neoplasms - genetics ; Ovarian Neoplasms - psychology ; Physician-Patient Relations ; Transcription Factors - genetics ; Truth Disclosure ; United States</subject><ispartof>Family &amp; community health, 2001-10, Vol.24 (3), p.13-26</ispartof><rights>Copyright © 2001 Aspen Publishers, Inc.</rights><rights>2001 Lippincott Williams &amp; Wilkins, Inc.</rights><rights>Copyright Aspen Publishers, Inc. Oct 2001</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c3504-69b124673c3feb8960d4bf01611792be188b47ad4c3c0632291a62dda14596c83</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/44953989$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/44953989$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>314,780,784,803,27924,27925,58017,58250</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/11563941$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Daly, Mary B.</creatorcontrib><creatorcontrib>Barsevick, Andrea</creatorcontrib><creatorcontrib>Miller, Suzanne M.</creatorcontrib><creatorcontrib>Buckman, Robert</creatorcontrib><creatorcontrib>Costalas, Josephine</creatorcontrib><creatorcontrib>Montgomery, Susan</creatorcontrib><creatorcontrib>Bingler, Ruth</creatorcontrib><title>Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy</title><title>Family &amp; community health</title><addtitle>Fam Community Health</addtitle><description>As the availability of tests to identify hereditary predisposition to chronic diseases continues to grow, a need has arisen to prepare individuals receiving genetic test results to share this highly sophisticated and value-laden information with other at-risk family members. Responding to this need, a communication skills-building intervention, based on Buckman's model of "Breaking Bad News," was developed for use in the setting of genetic testing for BRCA1 and BRCA2 mutations. Outcomes will include knowledge, attitudes, and health behavior on the part of both the proband and her first-degree relatives.</description><subject>Adaptation, Psychological</subject><subject>BRCA2 Protein</subject><subject>Breast cancer</subject><subject>Breast Neoplasms - genetics</subject><subject>Breast Neoplasms - psychology</subject><subject>Chronic Disease</subject><subject>Communication</subject><subject>Families &amp; family life</subject><subject>Family Relations</subject><subject>Female</subject><subject>Genes</subject><subject>Genes, BRCA1</subject><subject>Genetic Counseling - standards</subject><subject>Genetic Predisposition to Disease</subject><subject>Genetic Testing</subject><subject>Health Knowledge, Attitudes, Practice</subject><subject>Heredity</subject><subject>Humans</subject><subject>Inservice Training</subject><subject>Interpersonal communication</subject><subject>Mutation</subject><subject>Neoplasm Proteins - genetics</subject><subject>Ovarian Neoplasms - genetics</subject><subject>Ovarian Neoplasms - psychology</subject><subject>Physician-Patient Relations</subject><subject>Transcription Factors - genetics</subject><subject>Truth Disclosure</subject><subject>United States</subject><issn>0160-6379</issn><issn>1550-5057</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2001</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kV9rFDEUxYModlv9CErwwadGc_N34ltdbBUKglt9DZmZbDfbzMw2yVD32zvjrhUE83AvCb9zOJwghIG-A2r0ezodrpkmjFKA-UbmIZ6gBUhJiaRSP0ULCooSxbU5Qac5b2dRBfQ5OgGQihsBC_RjOXTd2IfGldDf4ivf-xIafONzwd98HmPJuAy4bDy-dF2I-w_4Aq_CT7IqfneOV3chxkw-jiG2s35Vkiv-dv8CPVu7mP3L4z5D3y8_3Sw_k-uvV1-WF9ek4ZIKokwNTCjNG772dWUUbUW9nmIDaMNqD1VVC-1a0fCGKs6YAadY2zoQ0qim4mfo7cF3l4b7cQptu5AbH6Pr_TBmqwEqkFxM4Jt_wO0wpn7KZhnjXEkGdIKqA9SkIefk13aXQufS3gK1c_H2T_H2sfjfT7P_66P_WHe-_Ss8Nj0B4gA8DLH4lO_i-OCT3XgXy8b-70Mn2auDbJvLkB5thTCSm8rwX9COlE4</recordid><startdate>200110</startdate><enddate>200110</enddate><creator>Daly, Mary B.</creator><creator>Barsevick, Andrea</creator><creator>Miller, Suzanne M.</creator><creator>Buckman, Robert</creator><creator>Costalas, Josephine</creator><creator>Montgomery, Susan</creator><creator>Bingler, Ruth</creator><general>Aspen Publishers, Inc</general><general>Lippincott Williams &amp; Wilkins, Inc</general><general>Lippincott Williams &amp; Wilkins Ovid Technologies</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T2</scope><scope>C1K</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>200110</creationdate><title>Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy</title><author>Daly, Mary B. ; Barsevick, Andrea ; Miller, Suzanne M. ; Buckman, Robert ; Costalas, Josephine ; Montgomery, Susan ; Bingler, Ruth</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3504-69b124673c3feb8960d4bf01611792be188b47ad4c3c0632291a62dda14596c83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2001</creationdate><topic>Adaptation, Psychological</topic><topic>BRCA2 Protein</topic><topic>Breast cancer</topic><topic>Breast Neoplasms - genetics</topic><topic>Breast Neoplasms - psychology</topic><topic>Chronic Disease</topic><topic>Communication</topic><topic>Families &amp; family life</topic><topic>Family Relations</topic><topic>Female</topic><topic>Genes</topic><topic>Genes, BRCA1</topic><topic>Genetic Counseling - standards</topic><topic>Genetic Predisposition to Disease</topic><topic>Genetic Testing</topic><topic>Health Knowledge, Attitudes, Practice</topic><topic>Heredity</topic><topic>Humans</topic><topic>Inservice Training</topic><topic>Interpersonal communication</topic><topic>Mutation</topic><topic>Neoplasm Proteins - genetics</topic><topic>Ovarian Neoplasms - genetics</topic><topic>Ovarian Neoplasms - psychology</topic><topic>Physician-Patient Relations</topic><topic>Transcription Factors - genetics</topic><topic>Truth Disclosure</topic><topic>United States</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Daly, Mary B.</creatorcontrib><creatorcontrib>Barsevick, Andrea</creatorcontrib><creatorcontrib>Miller, Suzanne M.</creatorcontrib><creatorcontrib>Buckman, Robert</creatorcontrib><creatorcontrib>Costalas, Josephine</creatorcontrib><creatorcontrib>Montgomery, Susan</creatorcontrib><creatorcontrib>Bingler, Ruth</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Health and Safety Science Abstracts (Full archive)</collection><collection>Environmental Sciences and Pollution Management</collection><collection>ProQuest Health &amp; Medical Complete (Alumni)</collection><collection>Nursing &amp; Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Family &amp; community health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Daly, Mary B.</au><au>Barsevick, Andrea</au><au>Miller, Suzanne M.</au><au>Buckman, Robert</au><au>Costalas, Josephine</au><au>Montgomery, Susan</au><au>Bingler, Ruth</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy</atitle><jtitle>Family &amp; community health</jtitle><addtitle>Fam Community Health</addtitle><date>2001-10</date><risdate>2001</risdate><volume>24</volume><issue>3</issue><spage>13</spage><epage>26</epage><pages>13-26</pages><issn>0160-6379</issn><eissn>1550-5057</eissn><coden>FCHEEK</coden><abstract>As the availability of tests to identify hereditary predisposition to chronic diseases continues to grow, a need has arisen to prepare individuals receiving genetic test results to share this highly sophisticated and value-laden information with other at-risk family members. Responding to this need, a communication skills-building intervention, based on Buckman's model of "Breaking Bad News," was developed for use in the setting of genetic testing for BRCA1 and BRCA2 mutations. Outcomes will include knowledge, attitudes, and health behavior on the part of both the proband and her first-degree relatives.</abstract><cop>United States</cop><pub>Aspen Publishers, Inc</pub><pmid>11563941</pmid><doi>10.1097/00003727-200110000-00004</doi><tpages>14</tpages></addata></record>
fulltext fulltext
identifier ISSN: 0160-6379
ispartof Family & community health, 2001-10, Vol.24 (3), p.13-26
issn 0160-6379
1550-5057
language eng
recordid cdi_proquest_miscellaneous_71181534
source Jstor Complete Legacy; MEDLINE; Journals@Ovid Complete
subjects Adaptation, Psychological
BRCA2 Protein
Breast cancer
Breast Neoplasms - genetics
Breast Neoplasms - psychology
Chronic Disease
Communication
Families & family life
Family Relations
Female
Genes
Genes, BRCA1
Genetic Counseling - standards
Genetic Predisposition to Disease
Genetic Testing
Health Knowledge, Attitudes, Practice
Heredity
Humans
Inservice Training
Interpersonal communication
Mutation
Neoplasm Proteins - genetics
Ovarian Neoplasms - genetics
Ovarian Neoplasms - psychology
Physician-Patient Relations
Transcription Factors - genetics
Truth Disclosure
United States
title Communicating Genetic Test Results to the Family: A Six-Step, Skills-Building Strategy
url https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2024-12-25T00%3A25%3A04IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-jstor_proqu&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Communicating%20Genetic%20Test%20Results%20to%20the%20Family:%20A%20Six-Step,%20Skills-Building%20Strategy&rft.jtitle=Family%20&%20community%20health&rft.au=Daly,%20Mary%20B.&rft.date=2001-10&rft.volume=24&rft.issue=3&rft.spage=13&rft.epage=26&rft.pages=13-26&rft.issn=0160-6379&rft.eissn=1550-5057&rft.coden=FCHEEK&rft_id=info:doi/10.1097/00003727-200110000-00004&rft_dat=%3Cjstor_proqu%3E44953989%3C/jstor_proqu%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=223365210&rft_id=info:pmid/11563941&rft_jstor_id=44953989&rfr_iscdi=true