The Congenital Diaphragmatic Hernia Study Group: a voluntary international registry
The Congenital Diaphragmatic Hernia Registry (CDHR) was established to collect data on all infants treated at participating institutions with congenital diaphragmatic hernia (CDH) to assess therapy and improve outcome. Since 1995, the CDHR has accumulated data on over 4000 infants. The collective ef...
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| Veröffentlicht in: | Seminars in pediatric surgery 2008-05, Vol.17 (2), p.90-97 |
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| creator | Tsao, KuoJen, MD Lally, Kevin P., MD |
| description | The Congenital Diaphragmatic Hernia Registry (CDHR) was established to collect data on all infants treated at participating institutions with congenital diaphragmatic hernia (CDH) to assess therapy and improve outcome. Since 1995, the CDHR has accumulated data on over 4000 infants. The collective efforts of the CDH Study Group have provided valuable information regarding the efficacy of various therapeutic interventions and have tried to establish predictors of outcome. Because CDH is an uncommon, heterogeneous structural anomaly with a wide spectrum of severity, individual institutions may vary significantly in their experiences and treatment approaches. International multicenter registries, like the CDHR, are useful to provide clinically relevant direction by accumulating far more data on a large patient population than any single institution might. |
| doi_str_mv | 10.1053/j.sempedsurg.2008.02.004 |
| format | Article |
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Since 1995, the CDHR has accumulated data on over 4000 infants. The collective efforts of the CDH Study Group have provided valuable information regarding the efficacy of various therapeutic interventions and have tried to establish predictors of outcome. Because CDH is an uncommon, heterogeneous structural anomaly with a wide spectrum of severity, individual institutions may vary significantly in their experiences and treatment approaches. International multicenter registries, like the CDHR, are useful to provide clinically relevant direction by accumulating far more data on a large patient population than any single institution might.</description><subject>Cohort Studies</subject><subject>Congenital diaphragmatic hernia</subject><subject>Congenital Diaphragmatic Hernia Study Group</subject><subject>Data Collection</subject><subject>Extracorporeal Membrane Oxygenation</subject><subject>Hernia, Diaphragmatic - diagnosis</subject><subject>Hernia, Diaphragmatic - mortality</subject><subject>Hernia, Diaphragmatic - surgery</subject><subject>Hernias, Diaphragmatic, Congenital</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Newborn</subject><subject>Outcome and Process Assessment (Health Care)</subject><subject>Outcome Assessment (Health Care)</subject><subject>Outcomes</subject><subject>Pediatrics</subject><subject>Postoperative Complications - diagnosis</subject><subject>Postoperative Complications - mortality</subject><subject>Prospective Studies</subject><subject>Pulmonary Surfactants - administration & dosage</subject><subject>Registries</subject><subject>Registry</subject><subject>Surgery</subject><subject>Survival Analysis</subject><subject>Syndrome</subject><issn>1055-8586</issn><issn>1532-9453</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2008</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqNkcFu1DAQhiMEakvpK6CcuCUd27HjcECChbZIlThskbhZrjPeekmcYDuV9u1xtCtV4oQPtg_fP6P5pihKAjUBzq73dcRxxj4uYVdTAFkDrQGaV8UF4YxWXcPZ6_wHzivJpTgv3sa4B6BCUH5WnBPJOi64vCi2D09Ybia_Q--SHsqvTs9PQe9GnZwp7zB4p8ttWvpDeRumZf5Y6vJ5GhafdDiUzqdMZHTyORtw52IKh3fFG6uHiFen97L4efPtYXNX3f-4_b75fF-ZpmOpMoJC25L1JkwTAa1o284aKnkjKW17itDbVphGMqkb_qitFbYh1kqgTPTssvhwrDuH6c-CManRRYPDoD1OS1QtNB3kgTMoj6AJU4wBrZqDG_MAioBahaq9ehGqVqEKqMpCc_T9qcfyOGL_EjwZzMCXI4B50meHQUXj0BvsXUCTVD-5_-ny6Z8iZnDeGT38xgPG_bRky0NURMUcUNt1seteQUI-_Bf7C-GBoWM</recordid><startdate>20080501</startdate><enddate>20080501</enddate><creator>Tsao, KuoJen, MD</creator><creator>Lally, Kevin P., MD</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20080501</creationdate><title>The Congenital Diaphragmatic Hernia Study Group: a voluntary international registry</title><author>Tsao, KuoJen, MD ; Lally, Kevin P., MD</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c493t-c620771620713a16076779fc28548227d2e0df76c4838a45baff6f41ff80236d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2008</creationdate><topic>Cohort Studies</topic><topic>Congenital diaphragmatic hernia</topic><topic>Congenital Diaphragmatic Hernia Study Group</topic><topic>Data Collection</topic><topic>Extracorporeal Membrane Oxygenation</topic><topic>Hernia, Diaphragmatic - diagnosis</topic><topic>Hernia, Diaphragmatic - mortality</topic><topic>Hernia, Diaphragmatic - surgery</topic><topic>Hernias, Diaphragmatic, Congenital</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Newborn</topic><topic>Outcome and Process Assessment (Health Care)</topic><topic>Outcome Assessment (Health Care)</topic><topic>Outcomes</topic><topic>Pediatrics</topic><topic>Postoperative Complications - diagnosis</topic><topic>Postoperative Complications - mortality</topic><topic>Prospective Studies</topic><topic>Pulmonary Surfactants - administration & dosage</topic><topic>Registries</topic><topic>Registry</topic><topic>Surgery</topic><topic>Survival Analysis</topic><topic>Syndrome</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Tsao, KuoJen, MD</creatorcontrib><creatorcontrib>Lally, Kevin P., MD</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Seminars in pediatric surgery</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Tsao, KuoJen, MD</au><au>Lally, Kevin P., MD</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The Congenital Diaphragmatic Hernia Study Group: a voluntary international registry</atitle><jtitle>Seminars in pediatric surgery</jtitle><addtitle>Semin Pediatr Surg</addtitle><date>2008-05-01</date><risdate>2008</risdate><volume>17</volume><issue>2</issue><spage>90</spage><epage>97</epage><pages>90-97</pages><issn>1055-8586</issn><eissn>1532-9453</eissn><abstract>The Congenital Diaphragmatic Hernia Registry (CDHR) was established to collect data on all infants treated at participating institutions with congenital diaphragmatic hernia (CDH) to assess therapy and improve outcome. Since 1995, the CDHR has accumulated data on over 4000 infants. The collective efforts of the CDH Study Group have provided valuable information regarding the efficacy of various therapeutic interventions and have tried to establish predictors of outcome. Because CDH is an uncommon, heterogeneous structural anomaly with a wide spectrum of severity, individual institutions may vary significantly in their experiences and treatment approaches. International multicenter registries, like the CDHR, are useful to provide clinically relevant direction by accumulating far more data on a large patient population than any single institution might.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>18395658</pmid><doi>10.1053/j.sempedsurg.2008.02.004</doi><tpages>8</tpages></addata></record> |
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| ispartof | Seminars in pediatric surgery, 2008-05, Vol.17 (2), p.90-97 |
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| language | eng |
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| source | MEDLINE; Access via ScienceDirect (Elsevier) |
| subjects | Cohort Studies Congenital diaphragmatic hernia Congenital Diaphragmatic Hernia Study Group Data Collection Extracorporeal Membrane Oxygenation Hernia, Diaphragmatic - diagnosis Hernia, Diaphragmatic - mortality Hernia, Diaphragmatic - surgery Hernias, Diaphragmatic, Congenital Humans Infant Infant, Newborn Outcome and Process Assessment (Health Care) Outcome Assessment (Health Care) Outcomes Pediatrics Postoperative Complications - diagnosis Postoperative Complications - mortality Prospective Studies Pulmonary Surfactants - administration & dosage Registries Registry Surgery Survival Analysis Syndrome |
| title | The Congenital Diaphragmatic Hernia Study Group: a voluntary international registry |
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