Predictive genetic testing of children for adult-onset diseases and psychological harm

One of the central arguments given to resist testing currently healthy, asymptomatic children for adult-onset diseases is that they may be psychologically harmed by the knowledge gained from such tests. In this discussion I examine two of the most serious arguments: children who are tested may face...

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Veröffentlicht in:Journal of medical ethics 2008-04, Vol.34 (4), p.275-278
1. Verfasser: Malpas, P J
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creator Malpas, P J
description One of the central arguments given to resist testing currently healthy, asymptomatic children for adult-onset diseases is that they may be psychologically harmed by the knowledge gained from such tests. In this discussion I examine two of the most serious arguments: children who are tested may face limited futures, and that testing may result in damage to the child’s self esteem (where the test result returns a positive diagnosis). I claim that these arguments do not stand up to critical evaluation. In conclusion, whilst I do not suggest that all at-risk children should be tested for adult-onset diseases we ought to listen carefully to some parental requests for such testing because the putative psychological harms may not be as significant or likely as initially thought. This is because parents generally have the best interests of their children at heart and if they are properly supported and educated about predictive genetic testing and the possible consequences, then the risk of psychological harms occurring may be ameliorated.
doi_str_mv 10.1136/jme.2006.019802
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subjects Adult
Adults
Age of Onset
Bioethics
Child
Child psychology
Children
Children & youth
Diagnosis
Disease
Diseases
Families & family life
Female
Genetic diseases
Genetic Diseases, Inborn - diagnosis
Genetic Diseases, Inborn - psychology
Genetic Predisposition to Disease - psychology
Genetic screening
Genetic testing
Genetic Testing - ethics
Genetic Testing - psychology
Global Medical Ethics
Higher education
Human genetics
Humans
Huntington disease
Male
Medical genetics
Methods
Minors - psychology
Mutation
Parent-Child Relations
Parental Consent
Parents
Parents & parenting
Practice Guidelines as Topic
predictive genetic testing
psychological harm
Risk Assessment
Self Concept
Self esteem
Youths at risk
title Predictive genetic testing of children for adult-onset diseases and psychological harm
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