Quality of Life of Women with Systemic Lupus Erythematosus or Rheumatoid Arthritis: Domains of Importance and Dissatisfaction
The aim of this study was to increase understanding of the domains of life that are important to Swedish women with chronic rheumatic disease and to describe their dissatisfaction with these domains. Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were inter...
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| Veröffentlicht in: | Quality of life research 1999-08, Vol.8 (5), p.411-416 |
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| creator | Archenholtz, B Burckhardt, C S Segesten, K |
| description | The aim of this study was to increase understanding of the domains of life that are important to Swedish women with chronic rheumatic disease and to describe their dissatisfaction with these domains. Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were interviewed by telephone regarding their quality of life using five open-ended questions. Content analysis of their responses revealed nine categories: Health/wellness, Family/friends, Work, House/home/living environment, Social support/functional services, Hobbies/cultural activities, Sufficient income, Independence, Integrity/identity. Areas of importance correspond closely to those areas with which they were most dissatisfied. Although the domains identified in both groups were the same, SLE patients expressed more dissatisfaction with their perceived control over their bodies and understanding about their condition on the part of physicians and people in general. RA patients were more dissatisfied with areas of their lives that threatened their independence. Health care providers should be aware of these areas of dissatisfaction so that they can plan strategies to maximize patient quality of life. |
| doi_str_mv | 10.1023/A:1008915115370 |
| format | Article |
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Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were interviewed by telephone regarding their quality of life using five open-ended questions. Content analysis of their responses revealed nine categories: Health/wellness, Family/friends, Work, House/home/living environment, Social support/functional services, Hobbies/cultural activities, Sufficient income, Independence, Integrity/identity. Areas of importance correspond closely to those areas with which they were most dissatisfied. Although the domains identified in both groups were the same, SLE patients expressed more dissatisfaction with their perceived control over their bodies and understanding about their condition on the part of physicians and people in general. RA patients were more dissatisfied with areas of their lives that threatened their independence. Health care providers should be aware of these areas of dissatisfaction so that they can plan strategies to maximize patient quality of life.</description><identifier>ISSN: 0962-9343</identifier><identifier>EISSN: 1573-2649</identifier><identifier>DOI: 10.1023/A:1008915115370</identifier><identifier>PMID: 10474282</identifier><language>eng</language><publisher>Netherlands: Rapid Communications of Oxford Ltd</publisher><subject>Activities of Daily Living ; Adult ; Aged ; Arthritis ; Arthritis, Rheumatoid - psychology ; Arthritis, Rheumatoid - rehabilitation ; Autoimmune diseases ; Chronic diseases ; Content analysis ; Fatigue ; Female ; Humans ; Internal-External Control ; Lupus ; Lupus Erythematosus, Systemic - psychology ; Lupus Erythematosus, Systemic - rehabilitation ; Middle Aged ; Personal Satisfaction ; Quality of Life ; Research studies ; Rheumatic diseases ; Rheumatoid arthritis ; Sweden ; Systemic lupus erythematosus ; University hospitals</subject><ispartof>Quality of life research, 1999-08, Vol.8 (5), p.411-416</ispartof><rights>Copyright 1999 Kluwer Academic Publishers</rights><rights>Kluwer Academic Publishers 1999</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c301t-c3293d89eefa4dc547335debf20988f1f705102bb389529ede54f45727443a993</citedby></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/4036905$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/4036905$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>314,776,780,799,27901,27902,57992,58225</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/10474282$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Archenholtz, B</creatorcontrib><creatorcontrib>Burckhardt, C S</creatorcontrib><creatorcontrib>Segesten, K</creatorcontrib><title>Quality of Life of Women with Systemic Lupus Erythematosus or Rheumatoid Arthritis: Domains of Importance and Dissatisfaction</title><title>Quality of life research</title><addtitle>Qual Life Res</addtitle><description>The aim of this study was to increase understanding of the domains of life that are important to Swedish women with chronic rheumatic disease and to describe their dissatisfaction with these domains. Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were interviewed by telephone regarding their quality of life using five open-ended questions. Content analysis of their responses revealed nine categories: Health/wellness, Family/friends, Work, House/home/living environment, Social support/functional services, Hobbies/cultural activities, Sufficient income, Independence, Integrity/identity. Areas of importance correspond closely to those areas with which they were most dissatisfied. Although the domains identified in both groups were the same, SLE patients expressed more dissatisfaction with their perceived control over their bodies and understanding about their condition on the part of physicians and people in general. RA patients were more dissatisfied with areas of their lives that threatened their independence. Health care providers should be aware of these areas of dissatisfaction so that they can plan strategies to maximize patient quality of life.</description><subject>Activities of Daily Living</subject><subject>Adult</subject><subject>Aged</subject><subject>Arthritis</subject><subject>Arthritis, Rheumatoid - psychology</subject><subject>Arthritis, Rheumatoid - rehabilitation</subject><subject>Autoimmune diseases</subject><subject>Chronic diseases</subject><subject>Content analysis</subject><subject>Fatigue</subject><subject>Female</subject><subject>Humans</subject><subject>Internal-External Control</subject><subject>Lupus</subject><subject>Lupus Erythematosus, Systemic - psychology</subject><subject>Lupus Erythematosus, Systemic - rehabilitation</subject><subject>Middle Aged</subject><subject>Personal Satisfaction</subject><subject>Quality of Life</subject><subject>Research studies</subject><subject>Rheumatic diseases</subject><subject>Rheumatoid arthritis</subject><subject>Sweden</subject><subject>Systemic lupus erythematosus</subject><subject>University hospitals</subject><issn>0962-9343</issn><issn>1573-2649</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>1999</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNpd0EtLAzEQB_Agiq3VsxeR4MHbap7dpLfS1gcsiC88LuluQlO6m5pkkT343d2l1YOXGYb5MQx_AM4xusGI0NvpBCMkJOYYc5qiAzDEPKUJGTN5CIZIjkkiKaMDcBLCGvUUkWMwwIiljAgyBN_PjdrY2EJnYGaN7vuHq3QNv2xcwdc2RF3ZAmbNtglw4du40pWKLnST8_BlpZt-tCWc-rjyNtowgXNXKVuH_tZjtXU-qrrQUNUlnNsQVGeMKqJ19Sk4MmoT9Nm-j8D73eJt9pBkT_ePs2mWFBTh2FUiaSmk1kaxsuAspZSXemkIkkIYbFLEuziWSyokJ1KXmjPDeEpSxqiSko7A9e7u1rvPRoeYVzYUerNRtXZNyNM-GoZwB6_-wbVrfN39lgtBBR0jwjp0uUfNstJlvvW2Ur7Nf1PtwMUOrEN0_m_PEB1LxOkPv0aDKg</recordid><startdate>19990801</startdate><enddate>19990801</enddate><creator>Archenholtz, B</creator><creator>Burckhardt, C S</creator><creator>Segesten, K</creator><general>Rapid Communications of Oxford Ltd</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>3V.</scope><scope>7RV</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope></search><sort><creationdate>19990801</creationdate><title>Quality of Life of Women with Systemic Lupus Erythematosus or Rheumatoid Arthritis: Domains of Importance and Dissatisfaction</title><author>Archenholtz, B ; Burckhardt, C S ; Segesten, K</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c301t-c3293d89eefa4dc547335debf20988f1f705102bb389529ede54f45727443a993</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>1999</creationdate><topic>Activities of Daily Living</topic><topic>Adult</topic><topic>Aged</topic><topic>Arthritis</topic><topic>Arthritis, Rheumatoid - psychology</topic><topic>Arthritis, Rheumatoid - rehabilitation</topic><topic>Autoimmune diseases</topic><topic>Chronic diseases</topic><topic>Content analysis</topic><topic>Fatigue</topic><topic>Female</topic><topic>Humans</topic><topic>Internal-External Control</topic><topic>Lupus</topic><topic>Lupus Erythematosus, Systemic - psychology</topic><topic>Lupus Erythematosus, Systemic - rehabilitation</topic><topic>Middle Aged</topic><topic>Personal Satisfaction</topic><topic>Quality of Life</topic><topic>Research studies</topic><topic>Rheumatic diseases</topic><topic>Rheumatoid arthritis</topic><topic>Sweden</topic><topic>Systemic lupus erythematosus</topic><topic>University hospitals</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Archenholtz, B</creatorcontrib><creatorcontrib>Burckhardt, C S</creatorcontrib><creatorcontrib>Segesten, K</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest One Sustainability</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>ABI/INFORM Global</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>Quality of life research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Archenholtz, B</au><au>Burckhardt, C S</au><au>Segesten, K</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Quality of Life of Women with Systemic Lupus Erythematosus or Rheumatoid Arthritis: Domains of Importance and Dissatisfaction</atitle><jtitle>Quality of life research</jtitle><addtitle>Qual Life Res</addtitle><date>1999-08-01</date><risdate>1999</risdate><volume>8</volume><issue>5</issue><spage>411</spage><epage>416</epage><pages>411-416</pages><issn>0962-9343</issn><eissn>1573-2649</eissn><abstract>The aim of this study was to increase understanding of the domains of life that are important to Swedish women with chronic rheumatic disease and to describe their dissatisfaction with these domains. Fifty women with Systemic Lupus Erythematosus (SLE) and 50 with Rheumatoid Arthritis (RA) were interviewed by telephone regarding their quality of life using five open-ended questions. Content analysis of their responses revealed nine categories: Health/wellness, Family/friends, Work, House/home/living environment, Social support/functional services, Hobbies/cultural activities, Sufficient income, Independence, Integrity/identity. Areas of importance correspond closely to those areas with which they were most dissatisfied. Although the domains identified in both groups were the same, SLE patients expressed more dissatisfaction with their perceived control over their bodies and understanding about their condition on the part of physicians and people in general. RA patients were more dissatisfied with areas of their lives that threatened their independence. Health care providers should be aware of these areas of dissatisfaction so that they can plan strategies to maximize patient quality of life.</abstract><cop>Netherlands</cop><pub>Rapid Communications of Oxford Ltd</pub><pmid>10474282</pmid><doi>10.1023/A:1008915115370</doi><tpages>6</tpages></addata></record> |
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| ispartof | Quality of life research, 1999-08, Vol.8 (5), p.411-416 |
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| source | Jstor Complete Legacy; MEDLINE; SpringerLink Journals - AutoHoldings |
| subjects | Activities of Daily Living Adult Aged Arthritis Arthritis, Rheumatoid - psychology Arthritis, Rheumatoid - rehabilitation Autoimmune diseases Chronic diseases Content analysis Fatigue Female Humans Internal-External Control Lupus Lupus Erythematosus, Systemic - psychology Lupus Erythematosus, Systemic - rehabilitation Middle Aged Personal Satisfaction Quality of Life Research studies Rheumatic diseases Rheumatoid arthritis Sweden Systemic lupus erythematosus University hospitals |
| title | Quality of Life of Women with Systemic Lupus Erythematosus or Rheumatoid Arthritis: Domains of Importance and Dissatisfaction |
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