Caregiver time use in ALS

Caregiver time use in ALS

The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients'...

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Veröffentlicht in:Neurology 2006-09, Vol.67 (5), p.902-904
Hauptverfasser: CHIO, A, GAUTHIER, A, VIGNOLA, A, CALVO, A, GHIGLIONE, P, CAVALLO, E, TERRENI, A. A, MUTANI, R
Format: Artikel
Sprache:eng
Schlagworte:
Aged
Amyotrophic Lateral Sclerosis - nursing
Amyotrophic Lateral Sclerosis - psychology
Biological and medical sciences
Caregivers - supply & distribution
Endoscopy
Ent
Female
Humans
Injuries of the nervous system and the skull. Diseases due to physical agents
Investigative techniques, diagnostic techniques (general aspects)
Male
Medical sciences
Middle Aged
Multivariate Analysis
Neurology
Regression Analysis
Severity of Illness Index
Time Factors
Traumas. Diseases due to physical agents
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Zusammenfassung:The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.
ISSN:0028-3878
1526-632X
DOI:10.1212/01.wnl.0000233840.41688.df