Children with meningomyelocele become adults!
The survival for children with spina bifida has dramatically increased during the last 30 years. In Sweden today 40-50 adolescents with spina bifida are reaching adulthood each year the next 10 years. Children with spina bifida are from birth to adulthood followed by a multidisciplinary medical and...
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Veröffentlicht in: | Läkartidningen 2005-09, Vol.102 (37), p.2566-2570 |
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description | The survival for children with spina bifida has dramatically increased during the last 30 years. In Sweden today 40-50 adolescents with spina bifida are reaching adulthood each year the next 10 years. Children with spina bifida are from birth to adulthood followed by a multidisciplinary medical and paramedical team within the habilitation organisation. However, from the age of 18 this responsibility is discontinued, often with less readiness in adult medicine to meet the spina bifida adolescents and their special needs. Facing adolescence and adulthood both children and parents need a careful preparation from several points of view for the transition. It is also most important to prepare the adult medical disciplines about the special needs of this group. This process has to start early to reach successful management, including improvement in self-care. |
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In Sweden today 40-50 adolescents with spina bifida are reaching adulthood each year the next 10 years. Children with spina bifida are from birth to adulthood followed by a multidisciplinary medical and paramedical team within the habilitation organisation. However, from the age of 18 this responsibility is discontinued, often with less readiness in adult medicine to meet the spina bifida adolescents and their special needs. Facing adolescence and adulthood both children and parents need a careful preparation from several points of view for the transition. It is also most important to prepare the adult medical disciplines about the special needs of this group. 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In Sweden today 40-50 adolescents with spina bifida are reaching adulthood each year the next 10 years. Children with spina bifida are from birth to adulthood followed by a multidisciplinary medical and paramedical team within the habilitation organisation. However, from the age of 18 this responsibility is discontinued, often with less readiness in adult medicine to meet the spina bifida adolescents and their special needs. Facing adolescence and adulthood both children and parents need a careful preparation from several points of view for the transition. It is also most important to prepare the adult medical disciplines about the special needs of this group. This process has to start early to reach successful management, including improvement in self-care.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Child</subject><subject>Continuity of Patient Care</subject><subject>Humans</subject><subject>Meningomyelocele - mortality</subject><subject>Meningomyelocele - psychology</subject><subject>Meningomyelocele - rehabilitation</subject><subject>Patient Care Planning</subject><subject>Spina Bifida Cystica - mortality</subject><subject>Spina Bifida Cystica - psychology</subject><subject>Spina Bifida Cystica - rehabilitation</subject><subject>Sweden - epidemiology</subject><issn>0023-7205</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2005</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNo1jztPwzAURj2AaCn8BRQWtkjXdmzfjKjiUakSS_fIjxsaZCchToT676lEmc5ydPR9V2wNIGRpBKgVu835CwBQA9ywFdcCoAa5ZuX22MUwUV_8dPOxSNR3_eeQThQHT5EKR35IVNiwxDk_3rHr1sZM9xdu2OH15bB9L_cfb7vt874cjVGlC9yJCp2S2EpnpW-l51zXFTfe1wZAmaq2XiAqDhUGQySQo1SIELiu5IY9_WXHafheKM9N6vJ5TrQ9DUtuNGolUNZn8eEiLi5RaMapS3Y6Nf__5C_lG0js</recordid><startdate>20050912</startdate><enddate>20050912</enddate><creator>Mattsson, Sven</creator><creator>Gladh, Gunilla</creator><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>7X8</scope></search><sort><creationdate>20050912</creationdate><title>Children with meningomyelocele become adults!</title><author>Mattsson, Sven ; Gladh, Gunilla</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-p775-bd1b248b538f3ba3cf3c1169417cc97005749ac28851048d7ee281835880d1643</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>swe</language><creationdate>2005</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Child</topic><topic>Continuity of Patient Care</topic><topic>Humans</topic><topic>Meningomyelocele - mortality</topic><topic>Meningomyelocele - psychology</topic><topic>Meningomyelocele - rehabilitation</topic><topic>Patient Care Planning</topic><topic>Spina Bifida Cystica - mortality</topic><topic>Spina Bifida Cystica - psychology</topic><topic>Spina Bifida Cystica - rehabilitation</topic><topic>Sweden - epidemiology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mattsson, Sven</creatorcontrib><creatorcontrib>Gladh, Gunilla</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>MEDLINE - Academic</collection><jtitle>Läkartidningen</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mattsson, Sven</au><au>Gladh, Gunilla</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Children with meningomyelocele become adults!</atitle><jtitle>Läkartidningen</jtitle><addtitle>Lakartidningen</addtitle><date>2005-09-12</date><risdate>2005</risdate><volume>102</volume><issue>37</issue><spage>2566</spage><epage>2570</epage><pages>2566-2570</pages><issn>0023-7205</issn><abstract>The survival for children with spina bifida has dramatically increased during the last 30 years. In Sweden today 40-50 adolescents with spina bifida are reaching adulthood each year the next 10 years. Children with spina bifida are from birth to adulthood followed by a multidisciplinary medical and paramedical team within the habilitation organisation. However, from the age of 18 this responsibility is discontinued, often with less readiness in adult medicine to meet the spina bifida adolescents and their special needs. Facing adolescence and adulthood both children and parents need a careful preparation from several points of view for the transition. It is also most important to prepare the adult medical disciplines about the special needs of this group. This process has to start early to reach successful management, including improvement in self-care.</abstract><cop>Sweden</cop><pmid>16200903</pmid><tpages>5</tpages></addata></record> |
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ispartof | Läkartidningen, 2005-09, Vol.102 (37), p.2566-2570 |
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source | MEDLINE; EZB-FREE-00999 freely available EZB journals |
subjects | Adolescent Adult Child Continuity of Patient Care Humans Meningomyelocele - mortality Meningomyelocele - psychology Meningomyelocele - rehabilitation Patient Care Planning Spina Bifida Cystica - mortality Spina Bifida Cystica - psychology Spina Bifida Cystica - rehabilitation Sweden - epidemiology |
title | Children with meningomyelocele become adults! |
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