Determinants of Life Quality in School-Age Children with Cerebral Palsy
Objective To characterize the quality of life of children with cerebral palsy from the parents’ and children’s perspectives. Study design Ninety-five children were recruited; a parent, and when feasible, the child also completed the Child Health Questionnaire and Pediatric Quality of Life Inventory....
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| Veröffentlicht in: | The Journal of pediatrics 2007-11, Vol.151 (5), p.470-475.e3 |
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| container_end_page | 475.e3 |
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| container_title | The Journal of pediatrics |
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| creator | Majnemer, Annette, PhD, OT Shevell, Michael, MD, CM Rosenbaum, Peter, MD, CM Law, Mary, PhD, OT Poulin, Chantal, MD |
| description | Objective To characterize the quality of life of children with cerebral palsy from the parents’ and children’s perspectives. Study design Ninety-five children were recruited; a parent, and when feasible, the child also completed the Child Health Questionnaire and Pediatric Quality of Life Inventory. A range of predictor variables was measured relating to impairments, activity limitations, personal and environmental factors. Results Mean age was 9.3 ± 2.1 years; 63.2% were male, and almost half had mild motor impairment (47% Gross Motor Function Classification System level I). Mean physical well-being (Child Health Questionnaire) was 39.6 ± 16.9 with 50% |
| doi_str_mv | 10.1016/j.jpeds.2007.04.014 |
| format | Article |
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Study design Ninety-five children were recruited; a parent, and when feasible, the child also completed the Child Health Questionnaire and Pediatric Quality of Life Inventory. A range of predictor variables was measured relating to impairments, activity limitations, personal and environmental factors. Results Mean age was 9.3 ± 2.1 years; 63.2% were male, and almost half had mild motor impairment (47% Gross Motor Function Classification System level I). Mean physical well-being (Child Health Questionnaire) was 39.6 ± 16.9 with 50% <40; and mean psychosocial well-being was 43.0 ± 11.3 with 53.8% <40. Similarly, with the Pediatric Quality of Life Inventory, 61% had summary scores <1 SD. Scores of parents and their children were significantly correlated (physical: r = .59, P < .0001; psychosocial: r = .39, P = .01); however, children rated themselves higher. Conclusions Results indicate that quality of life is highly variable in children with cerebral palsy, with about half experiencing a life quality similar to typically developing children. Motor and other activity limitations are indicators of physical but not psychosocial well-being. Family functioning, behavioral difficulties, and motivation are important predictors of social-emotional adaptation. Determinants of life quality may guide resource allocation and health promotion initiatives to optimize health of the child and family.</description><identifier>ISSN: 0022-3476</identifier><identifier>EISSN: 1097-6833</identifier><identifier>DOI: 10.1016/j.jpeds.2007.04.014</identifier><identifier>PMID: 17961687</identifier><identifier>CODEN: JOPDAB</identifier><language>eng</language><publisher>New York, NY: Mosby, Inc</publisher><subject>Biological and medical sciences ; Cerebral Palsy - psychology ; Child ; Child Behavior Disorders - psychology ; Cohort Studies ; Female ; General aspects ; Headache. Facial pains. Syncopes. Epilepsia. Intracranial hypertension. Brain oedema. Cerebral palsy ; Health Status ; Humans ; Interpersonal Relations ; Male ; Medical sciences ; Mental Health ; Mobility Limitation ; Multivariate Analysis ; Nervous system (semeiology, syndromes) ; Neurology ; Parents ; Pediatrics ; Quality of Life ; Stress, Psychological - epidemiology ; Surveys and Questionnaires</subject><ispartof>The Journal of pediatrics, 2007-11, Vol.151 (5), p.470-475.e3</ispartof><rights>Mosby, Inc.</rights><rights>2007 Mosby, Inc.</rights><rights>2007 INIST-CNRS</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c442t-21ab8f1919a637e2db94d514dbd7e1f0039d9fb49f9d5dede8ad7284668c6a153</citedby><cites>FETCH-LOGICAL-c442t-21ab8f1919a637e2db94d514dbd7e1f0039d9fb49f9d5dede8ad7284668c6a153</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jpeds.2007.04.014$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,45995</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=19236975$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/17961687$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Majnemer, Annette, PhD, OT</creatorcontrib><creatorcontrib>Shevell, Michael, MD, CM</creatorcontrib><creatorcontrib>Rosenbaum, Peter, MD, CM</creatorcontrib><creatorcontrib>Law, Mary, PhD, OT</creatorcontrib><creatorcontrib>Poulin, Chantal, MD</creatorcontrib><title>Determinants of Life Quality in School-Age Children with Cerebral Palsy</title><title>The Journal of pediatrics</title><addtitle>J Pediatr</addtitle><description>Objective To characterize the quality of life of children with cerebral palsy from the parents’ and children’s perspectives. Study design Ninety-five children were recruited; a parent, and when feasible, the child also completed the Child Health Questionnaire and Pediatric Quality of Life Inventory. A range of predictor variables was measured relating to impairments, activity limitations, personal and environmental factors. Results Mean age was 9.3 ± 2.1 years; 63.2% were male, and almost half had mild motor impairment (47% Gross Motor Function Classification System level I). Mean physical well-being (Child Health Questionnaire) was 39.6 ± 16.9 with 50% <40; and mean psychosocial well-being was 43.0 ± 11.3 with 53.8% <40. Similarly, with the Pediatric Quality of Life Inventory, 61% had summary scores <1 SD. Scores of parents and their children were significantly correlated (physical: r = .59, P < .0001; psychosocial: r = .39, P = .01); however, children rated themselves higher. Conclusions Results indicate that quality of life is highly variable in children with cerebral palsy, with about half experiencing a life quality similar to typically developing children. Motor and other activity limitations are indicators of physical but not psychosocial well-being. Family functioning, behavioral difficulties, and motivation are important predictors of social-emotional adaptation. Determinants of life quality may guide resource allocation and health promotion initiatives to optimize health of the child and family.</description><subject>Biological and medical sciences</subject><subject>Cerebral Palsy - psychology</subject><subject>Child</subject><subject>Child Behavior Disorders - psychology</subject><subject>Cohort Studies</subject><subject>Female</subject><subject>General aspects</subject><subject>Headache. Facial pains. Syncopes. Epilepsia. Intracranial hypertension. Brain oedema. Cerebral palsy</subject><subject>Health Status</subject><subject>Humans</subject><subject>Interpersonal Relations</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Mental Health</subject><subject>Mobility Limitation</subject><subject>Multivariate Analysis</subject><subject>Nervous system (semeiology, syndromes)</subject><subject>Neurology</subject><subject>Parents</subject><subject>Pediatrics</subject><subject>Quality of Life</subject><subject>Stress, Psychological - epidemiology</subject><subject>Surveys and Questionnaires</subject><issn>0022-3476</issn><issn>1097-6833</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2007</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqFkcFu1DAQhi1ERbeFJ0BCucAtYZw4dnwAqVpoQVqpoMLZcuwJ65B1tnYC2revw65UiUtPc_n-f0bfEPKaQkGB8vd90e_RxqIEEAWwAih7RlYUpMh5U1XPyQqgLPOKCX5OLmLsAUAygBfknArJKW_Eitx8wgnDznntp5iNXbZxHWbfZz246ZA5n92Z7TgO-dUvzNZbN9iAPvvrpm22xoBt0EP2TQ_x8JKcdWniq9O8JD-vP_9Yf8k3tzdf11eb3DBWTnlJddt0VFKpeSWwtK1ktqbMtlYg7QAqaWXXMtlJW1u02GgryoZx3hiuaV1dknfH3n0Y72eMk9q5aHAYtMdxjoo3aQ-vmwRWR9CEMcaAndoHt9PhoCioxZ_q1T9_avGngKnkL6XenOrndof2MXMSloC3J0BHo4cuaG9cfORkWXEpljs_HDlMMv44DCoah96gdQHNpOzonjjk4395Mzjv0srfeMDYj3PwybOiKpYK1N3y6uXTIJLDuqbVA7bho0M</recordid><startdate>20071101</startdate><enddate>20071101</enddate><creator>Majnemer, Annette, PhD, OT</creator><creator>Shevell, Michael, MD, CM</creator><creator>Rosenbaum, Peter, MD, CM</creator><creator>Law, Mary, PhD, OT</creator><creator>Poulin, Chantal, MD</creator><general>Mosby, Inc</general><general>Elsevier</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20071101</creationdate><title>Determinants of Life Quality in School-Age Children with Cerebral Palsy</title><author>Majnemer, Annette, PhD, OT ; Shevell, Michael, MD, CM ; Rosenbaum, Peter, MD, CM ; Law, Mary, PhD, OT ; Poulin, Chantal, MD</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c442t-21ab8f1919a637e2db94d514dbd7e1f0039d9fb49f9d5dede8ad7284668c6a153</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2007</creationdate><topic>Biological and medical sciences</topic><topic>Cerebral Palsy - psychology</topic><topic>Child</topic><topic>Child Behavior Disorders - psychology</topic><topic>Cohort Studies</topic><topic>Female</topic><topic>General aspects</topic><topic>Headache. Facial pains. Syncopes. Epilepsia. Intracranial hypertension. Brain oedema. Cerebral palsy</topic><topic>Health Status</topic><topic>Humans</topic><topic>Interpersonal Relations</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Mental Health</topic><topic>Mobility Limitation</topic><topic>Multivariate Analysis</topic><topic>Nervous system (semeiology, syndromes)</topic><topic>Neurology</topic><topic>Parents</topic><topic>Pediatrics</topic><topic>Quality of Life</topic><topic>Stress, Psychological - epidemiology</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Majnemer, Annette, PhD, OT</creatorcontrib><creatorcontrib>Shevell, Michael, MD, CM</creatorcontrib><creatorcontrib>Rosenbaum, Peter, MD, CM</creatorcontrib><creatorcontrib>Law, Mary, PhD, OT</creatorcontrib><creatorcontrib>Poulin, Chantal, MD</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>The Journal of pediatrics</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Majnemer, Annette, PhD, OT</au><au>Shevell, Michael, MD, CM</au><au>Rosenbaum, Peter, MD, CM</au><au>Law, Mary, PhD, OT</au><au>Poulin, Chantal, MD</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Determinants of Life Quality in School-Age Children with Cerebral Palsy</atitle><jtitle>The Journal of pediatrics</jtitle><addtitle>J Pediatr</addtitle><date>2007-11-01</date><risdate>2007</risdate><volume>151</volume><issue>5</issue><spage>470</spage><epage>475.e3</epage><pages>470-475.e3</pages><issn>0022-3476</issn><eissn>1097-6833</eissn><coden>JOPDAB</coden><abstract>Objective To characterize the quality of life of children with cerebral palsy from the parents’ and children’s perspectives. Study design Ninety-five children were recruited; a parent, and when feasible, the child also completed the Child Health Questionnaire and Pediatric Quality of Life Inventory. A range of predictor variables was measured relating to impairments, activity limitations, personal and environmental factors. Results Mean age was 9.3 ± 2.1 years; 63.2% were male, and almost half had mild motor impairment (47% Gross Motor Function Classification System level I). Mean physical well-being (Child Health Questionnaire) was 39.6 ± 16.9 with 50% <40; and mean psychosocial well-being was 43.0 ± 11.3 with 53.8% <40. Similarly, with the Pediatric Quality of Life Inventory, 61% had summary scores <1 SD. Scores of parents and their children were significantly correlated (physical: r = .59, P < .0001; psychosocial: r = .39, P = .01); however, children rated themselves higher. Conclusions Results indicate that quality of life is highly variable in children with cerebral palsy, with about half experiencing a life quality similar to typically developing children. Motor and other activity limitations are indicators of physical but not psychosocial well-being. Family functioning, behavioral difficulties, and motivation are important predictors of social-emotional adaptation. Determinants of life quality may guide resource allocation and health promotion initiatives to optimize health of the child and family.</abstract><cop>New York, NY</cop><pub>Mosby, Inc</pub><pmid>17961687</pmid><doi>10.1016/j.jpeds.2007.04.014</doi><tpages>6</tpages></addata></record> |
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| subjects | Biological and medical sciences Cerebral Palsy - psychology Child Child Behavior Disorders - psychology Cohort Studies Female General aspects Headache. Facial pains. Syncopes. Epilepsia. Intracranial hypertension. Brain oedema. Cerebral palsy Health Status Humans Interpersonal Relations Male Medical sciences Mental Health Mobility Limitation Multivariate Analysis Nervous system (semeiology, syndromes) Neurology Parents Pediatrics Quality of Life Stress, Psychological - epidemiology Surveys and Questionnaires |
| title | Determinants of Life Quality in School-Age Children with Cerebral Palsy |
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