"Holding your breath": Interviews with young people who have undergone predictive genetic testing for Huntington disease

Guidelines recommend that predictive genetic testing for Huntington disease (HD) should be deferred until the age of majority (18 years in most countries). However, opposition to these guidelines exists, with some professionals arguing that testing may be beneficial for young people, and should be c...

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Veröffentlicht in:American journal of medical genetics. Part A 2007-09, Vol.143A (17), p.1984-1989
Hauptverfasser: Duncan, Rony E., Gillam, Lynn, Savulescu, Julian, Williamson, Robert, Rogers, John G., Delatycki, Martin B.
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Sprache:eng
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