Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test
Objectives: To evaluate the psychometric properties of the KINDL questionnaire in an Asian population. Methods: Consecutive patients with diabetes mellitus (DM) and healthy subjects were recruited to complete the English KINDL questionnaire. The inclusion criteria for patients were age 8-16 years, E...
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| Veröffentlicht in: | Quality of life research 2005-05, Vol.14 (4), p.1193-1200 |
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| creator | Wee, H L Lee, W W R Ravens-Sieberer, U Erhart, M Li, S C |
| description | Objectives: To evaluate the psychometric properties of the KINDL questionnaire in an Asian population. Methods: Consecutive patients with diabetes mellitus (DM) and healthy subjects were recruited to complete the English KINDL questionnaire. The inclusion criteria for patients were age 8-16 years, English-speaking, diagnosed with DM and absence of co-morbid conditions. Results: Thirty children with DM (mean age: 10.7 ± 1.35 years; 11M) and 39 healthy subjects (mean age: 10.6 ± 1.23 years, 17M) completed the child version whereas 31 adolescents with DM (mean age: 14.5 ± 1.48 years; 15M) and 32 healthy subjects (mean age: 14.3 ± 0.87 years, 16M) completed the adolescent version. Overall, children with DM reported better HRQoL than healthy children. Although this appeared counter-intuitive, several explanations are possible: (1) the development of resilience to the disease over time, (2) our subjects are well-managed, (3) response shift, (4) the provision of high quality medical care, (5) compared to normal children, diabetic subjects and their family pay greater attention to health issues. The reliability coefficients were (overall, scales): KINDL-Kid DM (0.79, 0.44-0.65), KINDL-Kid Healthy (0.71, 0.60-0.80), KINDL-Kiddo DM (0.77, 0.37-0.74) and KINDL-Kiddo Healthy (0.84, 0.21-0.79). Conclusions: The KINDL questionnaire appeared promising for use in Asian children. However, further validation in a sample more representative of the general population is required. |
| doi_str_mv | 10.1007/s11136-004-2957-2 |
| format | Article |
| fullrecord | <record><control><sourceid>jstor_proqu</sourceid><recordid>TN_cdi_proquest_miscellaneous_68071629</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><jstor_id>4039381</jstor_id><sourcerecordid>4039381</sourcerecordid><originalsourceid>FETCH-LOGICAL-c347t-4fa5d94147aaa8bc9f42bf83e377ead648a3aa59a61e2fc86ed8c822b5efc5ff3</originalsourceid><addsrcrecordid>eNpdkc1uEzEURi1ERUPhAZAQsrqA1YD_ZsZmV6WljYigVKVby5m5Jo4842B7Fn0bnoCH4MlwmggQG1uyz_fdKx2EXlDylhLSvkuUUt5UhIiKqbqt2CM0o3XLK9YI9RjNiGpYpbjgx-hpShtCiFSEPUHHtCGCKipm6Med8a432YURB4vzGvDF-M27tMZ3ENM_zx8Xn86Xv37iSxghug7P1873EcY3CV-B8Xld3YA3GXr8ZSqd-X4XXDoLeDGmHKcBxoxtiNiM-Cy5cl6H7eQfRr_HN5AmnxO2MQzY4GvnQ8a3kPIzdGSNT_D8cJ-grx8ubudX1fLz5WJ-tqw6LtpcCWvqXgkqWmOMXHXKCraykgNvWzB9I6ThxtTKNBSY7WQDvewkY6sabFdby0_Q633vNobvUxmsB5c68N6MEKakG0la2jBVwNP_wE2Y4lh201JyyZmkdYHoHupiSCmC1dvoBhPvNSV6507v3eniTu_caVYyrw7F02qA_m_iIKsAL_fAJuUQ__wLwhWXlP8GuK-gSg</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>883832815</pqid></control><display><type>article</type><title>Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test</title><source>MEDLINE</source><source>Jstor Complete Legacy</source><source>Springer Nature - Complete Springer Journals</source><creator>Wee, H L ; Lee, W W R ; Ravens-Sieberer, U ; Erhart, M ; Li, S C</creator><creatorcontrib>Wee, H L ; Lee, W W R ; Ravens-Sieberer, U ; Erhart, M ; Li, S C</creatorcontrib><description>Objectives: To evaluate the psychometric properties of the KINDL questionnaire in an Asian population. Methods: Consecutive patients with diabetes mellitus (DM) and healthy subjects were recruited to complete the English KINDL questionnaire. The inclusion criteria for patients were age 8-16 years, English-speaking, diagnosed with DM and absence of co-morbid conditions. Results: Thirty children with DM (mean age: 10.7 ± 1.35 years; 11M) and 39 healthy subjects (mean age: 10.6 ± 1.23 years, 17M) completed the child version whereas 31 adolescents with DM (mean age: 14.5 ± 1.48 years; 15M) and 32 healthy subjects (mean age: 14.3 ± 0.87 years, 16M) completed the adolescent version. Overall, children with DM reported better HRQoL than healthy children. Although this appeared counter-intuitive, several explanations are possible: (1) the development of resilience to the disease over time, (2) our subjects are well-managed, (3) response shift, (4) the provision of high quality medical care, (5) compared to normal children, diabetic subjects and their family pay greater attention to health issues. The reliability coefficients were (overall, scales): KINDL-Kid DM (0.79, 0.44-0.65), KINDL-Kid Healthy (0.71, 0.60-0.80), KINDL-Kiddo DM (0.77, 0.37-0.74) and KINDL-Kiddo Healthy (0.84, 0.21-0.79). Conclusions: The KINDL questionnaire appeared promising for use in Asian children. However, further validation in a sample more representative of the general population is required.</description><identifier>ISSN: 0962-9343</identifier><identifier>EISSN: 1573-2649</identifier><identifier>DOI: 10.1007/s11136-004-2957-2</identifier><identifier>PMID: 16041914</identifier><language>eng</language><publisher>Netherlands: Springer</publisher><subject>Adolescent ; Age ; Asian people ; Asians ; Child ; Child health services ; Children ; Children & youth ; Cross-Cultural Comparison ; Diabetes ; Diabetes complications ; Diabetes Mellitus - physiopathology ; Diseases ; Female ; Health Status ; Humans ; Male ; Pediatrics ; Pilot Projects ; Psychometrics ; Quality of Life ; Questionnaires ; Sickness Impact Profile ; Singapore ; Southeast Asian culture ; Surveys and Questionnaires ; Translations</subject><ispartof>Quality of life research, 2005-05, Vol.14 (4), p.1193-1200</ispartof><rights>Copyright 2005 Springer</rights><rights>Springer 2005</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c347t-4fa5d94147aaa8bc9f42bf83e377ead648a3aa59a61e2fc86ed8c822b5efc5ff3</citedby><cites>FETCH-LOGICAL-c347t-4fa5d94147aaa8bc9f42bf83e377ead648a3aa59a61e2fc86ed8c822b5efc5ff3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/4039381$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/4039381$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>314,777,781,800,27905,27906,57998,58231</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/16041914$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Wee, H L</creatorcontrib><creatorcontrib>Lee, W W R</creatorcontrib><creatorcontrib>Ravens-Sieberer, U</creatorcontrib><creatorcontrib>Erhart, M</creatorcontrib><creatorcontrib>Li, S C</creatorcontrib><title>Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test</title><title>Quality of life research</title><addtitle>Qual Life Res</addtitle><description>Objectives: To evaluate the psychometric properties of the KINDL questionnaire in an Asian population. Methods: Consecutive patients with diabetes mellitus (DM) and healthy subjects were recruited to complete the English KINDL questionnaire. The inclusion criteria for patients were age 8-16 years, English-speaking, diagnosed with DM and absence of co-morbid conditions. Results: Thirty children with DM (mean age: 10.7 ± 1.35 years; 11M) and 39 healthy subjects (mean age: 10.6 ± 1.23 years, 17M) completed the child version whereas 31 adolescents with DM (mean age: 14.5 ± 1.48 years; 15M) and 32 healthy subjects (mean age: 14.3 ± 0.87 years, 16M) completed the adolescent version. Overall, children with DM reported better HRQoL than healthy children. Although this appeared counter-intuitive, several explanations are possible: (1) the development of resilience to the disease over time, (2) our subjects are well-managed, (3) response shift, (4) the provision of high quality medical care, (5) compared to normal children, diabetic subjects and their family pay greater attention to health issues. The reliability coefficients were (overall, scales): KINDL-Kid DM (0.79, 0.44-0.65), KINDL-Kid Healthy (0.71, 0.60-0.80), KINDL-Kiddo DM (0.77, 0.37-0.74) and KINDL-Kiddo Healthy (0.84, 0.21-0.79). Conclusions: The KINDL questionnaire appeared promising for use in Asian children. However, further validation in a sample more representative of the general population is required.</description><subject>Adolescent</subject><subject>Age</subject><subject>Asian people</subject><subject>Asians</subject><subject>Child</subject><subject>Child health services</subject><subject>Children</subject><subject>Children & youth</subject><subject>Cross-Cultural Comparison</subject><subject>Diabetes</subject><subject>Diabetes complications</subject><subject>Diabetes Mellitus - physiopathology</subject><subject>Diseases</subject><subject>Female</subject><subject>Health Status</subject><subject>Humans</subject><subject>Male</subject><subject>Pediatrics</subject><subject>Pilot Projects</subject><subject>Psychometrics</subject><subject>Quality of Life</subject><subject>Questionnaires</subject><subject>Sickness Impact Profile</subject><subject>Singapore</subject><subject>Southeast Asian culture</subject><subject>Surveys and Questionnaires</subject><subject>Translations</subject><issn>0962-9343</issn><issn>1573-2649</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2005</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNpdkc1uEzEURi1ERUPhAZAQsrqA1YD_ZsZmV6WljYigVKVby5m5Jo4842B7Fn0bnoCH4MlwmggQG1uyz_fdKx2EXlDylhLSvkuUUt5UhIiKqbqt2CM0o3XLK9YI9RjNiGpYpbjgx-hpShtCiFSEPUHHtCGCKipm6Med8a432YURB4vzGvDF-M27tMZ3ENM_zx8Xn86Xv37iSxghug7P1873EcY3CV-B8Xld3YA3GXr8ZSqd-X4XXDoLeDGmHKcBxoxtiNiM-Cy5cl6H7eQfRr_HN5AmnxO2MQzY4GvnQ8a3kPIzdGSNT_D8cJ-grx8ubudX1fLz5WJ-tqw6LtpcCWvqXgkqWmOMXHXKCraykgNvWzB9I6ThxtTKNBSY7WQDvewkY6sabFdby0_Q633vNobvUxmsB5c68N6MEKakG0la2jBVwNP_wE2Y4lh201JyyZmkdYHoHupiSCmC1dvoBhPvNSV6507v3eniTu_caVYyrw7F02qA_m_iIKsAL_fAJuUQ__wLwhWXlP8GuK-gSg</recordid><startdate>20050501</startdate><enddate>20050501</enddate><creator>Wee, H L</creator><creator>Lee, W W R</creator><creator>Ravens-Sieberer, U</creator><creator>Erhart, M</creator><creator>Li, S C</creator><general>Springer</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88E</scope><scope>88G</scope><scope>8AO</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>M0C</scope><scope>M0S</scope><scope>M1P</scope><scope>M2M</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope></search><sort><creationdate>20050501</creationdate><title>Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test</title><author>Wee, H L ; Lee, W W R ; Ravens-Sieberer, U ; Erhart, M ; Li, S C</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c347t-4fa5d94147aaa8bc9f42bf83e377ead648a3aa59a61e2fc86ed8c822b5efc5ff3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2005</creationdate><topic>Adolescent</topic><topic>Age</topic><topic>Asian people</topic><topic>Asians</topic><topic>Child</topic><topic>Child health services</topic><topic>Children</topic><topic>Children & youth</topic><topic>Cross-Cultural Comparison</topic><topic>Diabetes</topic><topic>Diabetes complications</topic><topic>Diabetes Mellitus - physiopathology</topic><topic>Diseases</topic><topic>Female</topic><topic>Health Status</topic><topic>Humans</topic><topic>Male</topic><topic>Pediatrics</topic><topic>Pilot Projects</topic><topic>Psychometrics</topic><topic>Quality of Life</topic><topic>Questionnaires</topic><topic>Sickness Impact Profile</topic><topic>Singapore</topic><topic>Southeast Asian culture</topic><topic>Surveys and Questionnaires</topic><topic>Translations</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Wee, H L</creatorcontrib><creatorcontrib>Lee, W W R</creatorcontrib><creatorcontrib>Ravens-Sieberer, U</creatorcontrib><creatorcontrib>Erhart, M</creatorcontrib><creatorcontrib>Li, S C</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Psychology Database (Alumni)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>ABI/INFORM Global</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>ProQuest Psychology</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>Quality of life research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Wee, H L</au><au>Lee, W W R</au><au>Ravens-Sieberer, U</au><au>Erhart, M</au><au>Li, S C</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test</atitle><jtitle>Quality of life research</jtitle><addtitle>Qual Life Res</addtitle><date>2005-05-01</date><risdate>2005</risdate><volume>14</volume><issue>4</issue><spage>1193</spage><epage>1200</epage><pages>1193-1200</pages><issn>0962-9343</issn><eissn>1573-2649</eissn><abstract>Objectives: To evaluate the psychometric properties of the KINDL questionnaire in an Asian population. Methods: Consecutive patients with diabetes mellitus (DM) and healthy subjects were recruited to complete the English KINDL questionnaire. The inclusion criteria for patients were age 8-16 years, English-speaking, diagnosed with DM and absence of co-morbid conditions. Results: Thirty children with DM (mean age: 10.7 ± 1.35 years; 11M) and 39 healthy subjects (mean age: 10.6 ± 1.23 years, 17M) completed the child version whereas 31 adolescents with DM (mean age: 14.5 ± 1.48 years; 15M) and 32 healthy subjects (mean age: 14.3 ± 0.87 years, 16M) completed the adolescent version. Overall, children with DM reported better HRQoL than healthy children. Although this appeared counter-intuitive, several explanations are possible: (1) the development of resilience to the disease over time, (2) our subjects are well-managed, (3) response shift, (4) the provision of high quality medical care, (5) compared to normal children, diabetic subjects and their family pay greater attention to health issues. The reliability coefficients were (overall, scales): KINDL-Kid DM (0.79, 0.44-0.65), KINDL-Kid Healthy (0.71, 0.60-0.80), KINDL-Kiddo DM (0.77, 0.37-0.74) and KINDL-Kiddo Healthy (0.84, 0.21-0.79). Conclusions: The KINDL questionnaire appeared promising for use in Asian children. However, further validation in a sample more representative of the general population is required.</abstract><cop>Netherlands</cop><pub>Springer</pub><pmid>16041914</pmid><doi>10.1007/s11136-004-2957-2</doi><tpages>8</tpages></addata></record> |
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| subjects | Adolescent Age Asian people Asians Child Child health services Children Children & youth Cross-Cultural Comparison Diabetes Diabetes complications Diabetes Mellitus - physiopathology Diseases Female Health Status Humans Male Pediatrics Pilot Projects Psychometrics Quality of Life Questionnaires Sickness Impact Profile Singapore Southeast Asian culture Surveys and Questionnaires Translations |
| title | Validation of the English Version of the KINDL® Generic Children's Health-Related Quality of Life Instrument for an Asian Population: Results from a Pilot Test |
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