Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida
Verhoef M, Barf HA, Vroege JA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Sex education, relationships, and sexuality in young adults with spina bifida. To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact...
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| Veröffentlicht in: | Archives of physical medicine and rehabilitation 2005-05, Vol.86 (5), p.979-987 |
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| container_title | Archives of physical medicine and rehabilitation |
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| creator | Verhoef, Marjolein Barf, Hans A. Vroege, Jos A. Post, Marcel W. van Asbeck, Floris W. Gooskens, Rob H. Prevo, Arie J. |
| description | Verhoef M, Barf HA, Vroege JA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Sex education, relationships, and sexuality in young adults with spina bifida.
To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact by young adults who have spina bifida (SB) with and without hydrocephalus (HC) in the Netherlands.
Cross-sectional.
Community.
Patients with SB occulta or aperta (N=157; 41% male; mean age, 20.8y; age range, 16–25y).
Not applicable.
Structured interview on sex education, relationships, sexual activities, and sexual functioning.
Although sex education had been provided to almost all patients, fewer than a quarter received information specific to people with SB. Of all patients, 25% had a partner, 70% desired sexual contact, 47% had had sexual contact, and 22% had had sexual intercourse during the last year. Only 52% were satisfied with their present sex life. Incontinence and lack of self-confidence were important obstacles. Compared with patients without HC (HC–), patients with HC (HC+) less often had a partner, were sexually less active, and more often had problems with sexual functioning. Predictors of not having sexual contact were having HC and being male.
Relationships and sexuality are important for young adults with SB. HC+ patients are less active and perceive more problems than HC– patients. Counseling in relationships and sexuality should be part of the regular care for this group. |
| doi_str_mv | 10.1016/j.apmr.2004.10.042 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_67826140</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><els_id>S0003999305000031</els_id><sourcerecordid>67826140</sourcerecordid><originalsourceid>FETCH-LOGICAL-c416t-11b2a0c3a4d93cd38e8af819c8ed4cde6469965ac98cd01830e11f4a9a8e5cd13</originalsourceid><addsrcrecordid>eNp9kEtv1DAQgC0EokvhD3BAvgCXZvHEjteWeilVeUhFSBQEnKypPaFeZZNgJ4j-exx2pd56moe-eehj7DmINQjQb7ZrHHdpXQuhSmMtVP2AraCRdWVq-PGQrYQQsrLWyiP2JOdtKXUj4TE7gsbYRqpmxT5d0V9-EWaPUxz6E_6Fuv9ZvoljPuHYB16IGbs43fLY85_D3P_iZ2Hupsy_x-mGX42xR_42tjHgU_aoxS7Ts0M8Zt_eXXw9_1Bdfn7_8fzssvIK9FQBXNcovEQVrPRBGjLYGrDeUFA-kFbaWt2gt8YHAUYKAmgVWjTU-ADymL3e7x3T8HumPLldzJ66Dnsa5uw2G9CmMcoU8tW9pN6YWoMSBaz3oE9DzolaN6a4w3TrQLhFt9u6RbdbdC-9orsMvThsn693FO5GDn4L8PIAYPbYtQl7H_MdV84rCwt3uueoWPsTKbnsI_WeQkzkJxeGeN8f_wDFvp1G</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>67826140</pqid></control><display><type>article</type><title>Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida</title><source>MEDLINE</source><source>Elsevier ScienceDirect Journals Complete</source><source>Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals</source><creator>Verhoef, Marjolein ; Barf, Hans A. ; Vroege, Jos A. ; Post, Marcel W. ; van Asbeck, Floris W. ; Gooskens, Rob H. ; Prevo, Arie J.</creator><creatorcontrib>Verhoef, Marjolein ; Barf, Hans A. ; Vroege, Jos A. ; Post, Marcel W. ; van Asbeck, Floris W. ; Gooskens, Rob H. ; Prevo, Arie J.</creatorcontrib><description>Verhoef M, Barf HA, Vroege JA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Sex education, relationships, and sexuality in young adults with spina bifida.
To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact by young adults who have spina bifida (SB) with and without hydrocephalus (HC) in the Netherlands.
Cross-sectional.
Community.
Patients with SB occulta or aperta (N=157; 41% male; mean age, 20.8y; age range, 16–25y).
Not applicable.
Structured interview on sex education, relationships, sexual activities, and sexual functioning.
Although sex education had been provided to almost all patients, fewer than a quarter received information specific to people with SB. Of all patients, 25% had a partner, 70% desired sexual contact, 47% had had sexual contact, and 22% had had sexual intercourse during the last year. Only 52% were satisfied with their present sex life. Incontinence and lack of self-confidence were important obstacles. Compared with patients without HC (HC–), patients with HC (HC+) less often had a partner, were sexually less active, and more often had problems with sexual functioning. Predictors of not having sexual contact were having HC and being male.
Relationships and sexuality are important for young adults with SB. HC+ patients are less active and perceive more problems than HC– patients. Counseling in relationships and sexuality should be part of the regular care for this group.</description><identifier>ISSN: 0003-9993</identifier><identifier>EISSN: 1532-821X</identifier><identifier>DOI: 10.1016/j.apmr.2004.10.042</identifier><identifier>PMID: 15895345</identifier><identifier>CODEN: APMHAI</identifier><language>eng</language><publisher>New York, NY: Elsevier Inc</publisher><subject>Adolescent ; Adult ; Biological and medical sciences ; Cerebrospinal fluid. Meninges. Spinal cord ; Cross-Sectional Studies ; Diseases of the osteoarticular system ; Female ; Humans ; Interviews as Topic ; Male ; Malformations and congenital and or hereditary diseases involving bones. Joint deformations ; Medical sciences ; Miscellaneous ; Nervous system (semeiology, syndromes) ; Neurology ; Radiotherapy. Instrumental treatment. Physiotherapy. Reeducation. Rehabilitation, orthophony, crenotherapy. Diet therapy and various other treatments (general aspects) ; Rehabilitation ; Sex Education ; Sexual Behavior ; Sexuality ; Spina bifida cystica ; Spina bifida occulta ; Spinal dysraphism ; Spinal Dysraphism - physiopathology ; Spinal Dysraphism - psychology</subject><ispartof>Archives of physical medicine and rehabilitation, 2005-05, Vol.86 (5), p.979-987</ispartof><rights>2005 American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation</rights><rights>2005 INIST-CNRS</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c416t-11b2a0c3a4d93cd38e8af819c8ed4cde6469965ac98cd01830e11f4a9a8e5cd13</citedby><cites>FETCH-LOGICAL-c416t-11b2a0c3a4d93cd38e8af819c8ed4cde6469965ac98cd01830e11f4a9a8e5cd13</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S0003999305000031$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,776,780,3537,27901,27902,65534</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=16784915$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/15895345$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Verhoef, Marjolein</creatorcontrib><creatorcontrib>Barf, Hans A.</creatorcontrib><creatorcontrib>Vroege, Jos A.</creatorcontrib><creatorcontrib>Post, Marcel W.</creatorcontrib><creatorcontrib>van Asbeck, Floris W.</creatorcontrib><creatorcontrib>Gooskens, Rob H.</creatorcontrib><creatorcontrib>Prevo, Arie J.</creatorcontrib><title>Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida</title><title>Archives of physical medicine and rehabilitation</title><addtitle>Arch Phys Med Rehabil</addtitle><description>Verhoef M, Barf HA, Vroege JA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Sex education, relationships, and sexuality in young adults with spina bifida.
To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact by young adults who have spina bifida (SB) with and without hydrocephalus (HC) in the Netherlands.
Cross-sectional.
Community.
Patients with SB occulta or aperta (N=157; 41% male; mean age, 20.8y; age range, 16–25y).
Not applicable.
Structured interview on sex education, relationships, sexual activities, and sexual functioning.
Although sex education had been provided to almost all patients, fewer than a quarter received information specific to people with SB. Of all patients, 25% had a partner, 70% desired sexual contact, 47% had had sexual contact, and 22% had had sexual intercourse during the last year. Only 52% were satisfied with their present sex life. Incontinence and lack of self-confidence were important obstacles. Compared with patients without HC (HC–), patients with HC (HC+) less often had a partner, were sexually less active, and more often had problems with sexual functioning. Predictors of not having sexual contact were having HC and being male.
Relationships and sexuality are important for young adults with SB. HC+ patients are less active and perceive more problems than HC– patients. Counseling in relationships and sexuality should be part of the regular care for this group.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Biological and medical sciences</subject><subject>Cerebrospinal fluid. Meninges. Spinal cord</subject><subject>Cross-Sectional Studies</subject><subject>Diseases of the osteoarticular system</subject><subject>Female</subject><subject>Humans</subject><subject>Interviews as Topic</subject><subject>Male</subject><subject>Malformations and congenital and or hereditary diseases involving bones. Joint deformations</subject><subject>Medical sciences</subject><subject>Miscellaneous</subject><subject>Nervous system (semeiology, syndromes)</subject><subject>Neurology</subject><subject>Radiotherapy. Instrumental treatment. Physiotherapy. Reeducation. Rehabilitation, orthophony, crenotherapy. Diet therapy and various other treatments (general aspects)</subject><subject>Rehabilitation</subject><subject>Sex Education</subject><subject>Sexual Behavior</subject><subject>Sexuality</subject><subject>Spina bifida cystica</subject><subject>Spina bifida occulta</subject><subject>Spinal dysraphism</subject><subject>Spinal Dysraphism - physiopathology</subject><subject>Spinal Dysraphism - psychology</subject><issn>0003-9993</issn><issn>1532-821X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2005</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kEtv1DAQgC0EokvhD3BAvgCXZvHEjteWeilVeUhFSBQEnKypPaFeZZNgJ4j-exx2pd56moe-eehj7DmINQjQb7ZrHHdpXQuhSmMtVP2AraCRdWVq-PGQrYQQsrLWyiP2JOdtKXUj4TE7gsbYRqpmxT5d0V9-EWaPUxz6E_6Fuv9ZvoljPuHYB16IGbs43fLY85_D3P_iZ2Hupsy_x-mGX42xR_42tjHgU_aoxS7Ts0M8Zt_eXXw9_1Bdfn7_8fzssvIK9FQBXNcovEQVrPRBGjLYGrDeUFA-kFbaWt2gt8YHAUYKAmgVWjTU-ADymL3e7x3T8HumPLldzJ66Dnsa5uw2G9CmMcoU8tW9pN6YWoMSBaz3oE9DzolaN6a4w3TrQLhFt9u6RbdbdC-9orsMvThsn693FO5GDn4L8PIAYPbYtQl7H_MdV84rCwt3uueoWPsTKbnsI_WeQkzkJxeGeN8f_wDFvp1G</recordid><startdate>20050501</startdate><enddate>20050501</enddate><creator>Verhoef, Marjolein</creator><creator>Barf, Hans A.</creator><creator>Vroege, Jos A.</creator><creator>Post, Marcel W.</creator><creator>van Asbeck, Floris W.</creator><creator>Gooskens, Rob H.</creator><creator>Prevo, Arie J.</creator><general>Elsevier Inc</general><general>Elsevier</general><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20050501</creationdate><title>Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida</title><author>Verhoef, Marjolein ; Barf, Hans A. ; Vroege, Jos A. ; Post, Marcel W. ; van Asbeck, Floris W. ; Gooskens, Rob H. ; Prevo, Arie J.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c416t-11b2a0c3a4d93cd38e8af819c8ed4cde6469965ac98cd01830e11f4a9a8e5cd13</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2005</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Biological and medical sciences</topic><topic>Cerebrospinal fluid. Meninges. Spinal cord</topic><topic>Cross-Sectional Studies</topic><topic>Diseases of the osteoarticular system</topic><topic>Female</topic><topic>Humans</topic><topic>Interviews as Topic</topic><topic>Male</topic><topic>Malformations and congenital and or hereditary diseases involving bones. Joint deformations</topic><topic>Medical sciences</topic><topic>Miscellaneous</topic><topic>Nervous system (semeiology, syndromes)</topic><topic>Neurology</topic><topic>Radiotherapy. Instrumental treatment. Physiotherapy. Reeducation. Rehabilitation, orthophony, crenotherapy. Diet therapy and various other treatments (general aspects)</topic><topic>Rehabilitation</topic><topic>Sex Education</topic><topic>Sexual Behavior</topic><topic>Sexuality</topic><topic>Spina bifida cystica</topic><topic>Spina bifida occulta</topic><topic>Spinal dysraphism</topic><topic>Spinal Dysraphism - physiopathology</topic><topic>Spinal Dysraphism - psychology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Verhoef, Marjolein</creatorcontrib><creatorcontrib>Barf, Hans A.</creatorcontrib><creatorcontrib>Vroege, Jos A.</creatorcontrib><creatorcontrib>Post, Marcel W.</creatorcontrib><creatorcontrib>van Asbeck, Floris W.</creatorcontrib><creatorcontrib>Gooskens, Rob H.</creatorcontrib><creatorcontrib>Prevo, Arie J.</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Archives of physical medicine and rehabilitation</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Verhoef, Marjolein</au><au>Barf, Hans A.</au><au>Vroege, Jos A.</au><au>Post, Marcel W.</au><au>van Asbeck, Floris W.</au><au>Gooskens, Rob H.</au><au>Prevo, Arie J.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida</atitle><jtitle>Archives of physical medicine and rehabilitation</jtitle><addtitle>Arch Phys Med Rehabil</addtitle><date>2005-05-01</date><risdate>2005</risdate><volume>86</volume><issue>5</issue><spage>979</spage><epage>987</epage><pages>979-987</pages><issn>0003-9993</issn><eissn>1532-821X</eissn><coden>APMHAI</coden><abstract>Verhoef M, Barf HA, Vroege JA, Post MW, van Asbeck FW, Gooskens RH, Prevo AJ. Sex education, relationships, and sexuality in young adults with spina bifida.
To assess the adequacy of sex education and to determine the incidence of various difficulties encountered in relationships and sexual contact by young adults who have spina bifida (SB) with and without hydrocephalus (HC) in the Netherlands.
Cross-sectional.
Community.
Patients with SB occulta or aperta (N=157; 41% male; mean age, 20.8y; age range, 16–25y).
Not applicable.
Structured interview on sex education, relationships, sexual activities, and sexual functioning.
Although sex education had been provided to almost all patients, fewer than a quarter received information specific to people with SB. Of all patients, 25% had a partner, 70% desired sexual contact, 47% had had sexual contact, and 22% had had sexual intercourse during the last year. Only 52% were satisfied with their present sex life. Incontinence and lack of self-confidence were important obstacles. Compared with patients without HC (HC–), patients with HC (HC+) less often had a partner, were sexually less active, and more often had problems with sexual functioning. Predictors of not having sexual contact were having HC and being male.
Relationships and sexuality are important for young adults with SB. HC+ patients are less active and perceive more problems than HC– patients. Counseling in relationships and sexuality should be part of the regular care for this group.</abstract><cop>New York, NY</cop><pub>Elsevier Inc</pub><pmid>15895345</pmid><doi>10.1016/j.apmr.2004.10.042</doi><tpages>9</tpages></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0003-9993 |
| ispartof | Archives of physical medicine and rehabilitation, 2005-05, Vol.86 (5), p.979-987 |
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| language | eng |
| recordid | cdi_proquest_miscellaneous_67826140 |
| source | MEDLINE; Elsevier ScienceDirect Journals Complete; Elektronische Zeitschriftenbibliothek - Frei zugängliche E-Journals |
| subjects | Adolescent Adult Biological and medical sciences Cerebrospinal fluid. Meninges. Spinal cord Cross-Sectional Studies Diseases of the osteoarticular system Female Humans Interviews as Topic Male Malformations and congenital and or hereditary diseases involving bones. Joint deformations Medical sciences Miscellaneous Nervous system (semeiology, syndromes) Neurology Radiotherapy. Instrumental treatment. Physiotherapy. Reeducation. Rehabilitation, orthophony, crenotherapy. Diet therapy and various other treatments (general aspects) Rehabilitation Sex Education Sexual Behavior Sexuality Spina bifida cystica Spina bifida occulta Spinal dysraphism Spinal Dysraphism - physiopathology Spinal Dysraphism - psychology |
| title | Sex Education, Relationships, and Sexuality in Young Adults With Spina Bifida |
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