Hereditary Multiple Exostosis and Pain

This study was undertaken to characterize pain in individuals with hereditary multiple exostosis (HME). Two hundred ninety-three patients with HME completed a questionnaire designed to assess pain as well as its impact on their life. Eighty-four percent of participants reported having pain, indicati...

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Veröffentlicht in:Journal of pediatric orthopaedics 2005-05, Vol.25 (3), p.369-376
Hauptverfasser: Darilek, Sandra, Wicklund, Catherine, Novy, Diane, Scott, Allison, Gambello, Michael, Johnston, Dennis, Hecht, Jacqueline
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container_end_page 376
container_issue 3
container_start_page 369
container_title Journal of pediatric orthopaedics
container_volume 25
creator Darilek, Sandra
Wicklund, Catherine
Novy, Diane
Scott, Allison
Gambello, Michael
Johnston, Dennis
Hecht, Jacqueline
description This study was undertaken to characterize pain in individuals with hereditary multiple exostosis (HME). Two hundred ninety-three patients with HME completed a questionnaire designed to assess pain as well as its impact on their life. Eighty-four percent of participants reported having pain, indicating that pain is a real problem in HME. Of those with pain, 55.1% had generalized pain. Two factors were found to be associated with pain outcomeHME-related complications and surgery. Individuals who had HME-related complications were five times more likely to have pain, while those who had surgery were 3.8 more likely to have pain. No differences were found between males and females with respect to pain, surgery, or HME-related complications. The results of this study indicate that the number of individuals with HME who have pain has been underestimated and that pain is a problem that must be addressed when caring for individuals with HME.
doi_str_mv 10.1097/01.bpo.0000150813.18673.ad
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subjects Adolescent
Adult
Biological and medical sciences
Child
Child, Preschool
Diseases of the osteoarticular system
Exostoses, Multiple Hereditary - complications
Female
Humans
Infant
Male
Medical sciences
Middle Aged
Outcome Assessment (Health Care)
Pain - etiology
Sickness Impact Profile
Tumors of striated muscle and skeleton
title Hereditary Multiple Exostosis and Pain
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