Should We Tell the Truth? Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection
Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs w...
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| Veröffentlicht in: | Qualitative health research 2009-06, Vol.19 (6), p.723-731 |
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| creator | Seki, Yukiko Yamazaki, Yoshihiko Mizota, Yuri Inoue, Yoji |
| description | Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs with iatrogenic HIV/AIDS. Semistructured interviews were conducted with 34 bereaved family members. Qualitative content analysis centered around three main issues: (a) family attitudes toward physician nondisclosure of HIV diagnosis; (b) family attitudes regarding the consequences of nondisclosure; and (c) family attitudes regarding the impact of nondisclosure on patient—family relationships. Our findings suggest that families favored disclosure because they felt that knowledge of the iatrogenic HIV infection would benefit the patient. |
| doi_str_mv | 10.1177/1049732309334250 |
| format | Article |
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Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection</title><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><source>SAGE Complete A-Z List</source><source>MEDLINE</source><source>Sociological Abstracts</source><creator>Seki, Yukiko ; Yamazaki, Yoshihiko ; Mizota, Yuri ; Inoue, Yoji</creator><creatorcontrib>Seki, Yukiko ; Yamazaki, Yoshihiko ; Mizota, Yuri ; Inoue, Yoji</creatorcontrib><description>Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs with iatrogenic HIV/AIDS. Semistructured interviews were conducted with 34 bereaved family members. Qualitative content analysis centered around three main issues: (a) family attitudes toward physician nondisclosure of HIV diagnosis; (b) family attitudes regarding the consequences of nondisclosure; and (c) family attitudes regarding the impact of nondisclosure on patient—family relationships. Our findings suggest that families favored disclosure because they felt that knowledge of the iatrogenic HIV infection would benefit the patient.</description><identifier>ISSN: 1049-7323</identifier><identifier>EISSN: 1552-7557</identifier><identifier>DOI: 10.1177/1049732309334250</identifier><identifier>PMID: 19332640</identifier><identifier>CODEN: QHREEM</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Acquired Immune Deficiency Syndrome ; AIDS ; Attitudes ; Bereavement ; Blood Diseases ; Content analysis ; Disclosure ; Family ; Family relations ; Health technology assessment ; Hemophilia ; Hemophilia A - therapy ; Hemophilia A - virology ; HIV ; HIV Infections - etiology ; HIV Infections - psychology ; Human immunodeficiency virus ; Humans ; Iatrogenesis ; Iatrogenic Disease ; Illnesses ; Infection ; Infections ; Interviews as Topic ; Japan ; Medical diagnosis ; Nondisclosure ; Pain ; Patients ; Relatives ; Remarriage ; Self Disclosure ; Terminal Illness ; Transfusion Reaction ; Truth ; Truth Disclosure ; Victims</subject><ispartof>Qualitative health research, 2009-06, Vol.19 (6), p.723-731</ispartof><rights>Copyright SAGE PUBLICATIONS, INC. 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Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection</title><title>Qualitative health research</title><addtitle>Qual Health Res</addtitle><description>Japanese families traditionally avoid disclosing diagnoses of terminal illnesses to patients, seeking to protect the patient from emotional pain and shock. Using awareness theory, in this study we aimed to investigate the attitudes toward disclosure among bereaved families of Japanese hemophiliacs with iatrogenic HIV/AIDS. Semistructured interviews were conducted with 34 bereaved family members. Qualitative content analysis centered around three main issues: (a) family attitudes toward physician nondisclosure of HIV diagnosis; (b) family attitudes regarding the consequences of nondisclosure; and (c) family attitudes regarding the impact of nondisclosure on patient—family relationships. Our findings suggest that families favored disclosure because they felt that knowledge of the iatrogenic HIV infection would benefit the patient.</description><subject>Acquired Immune Deficiency Syndrome</subject><subject>AIDS</subject><subject>Attitudes</subject><subject>Bereavement</subject><subject>Blood Diseases</subject><subject>Content analysis</subject><subject>Disclosure</subject><subject>Family</subject><subject>Family relations</subject><subject>Health technology assessment</subject><subject>Hemophilia</subject><subject>Hemophilia A - therapy</subject><subject>Hemophilia A - virology</subject><subject>HIV</subject><subject>HIV Infections - etiology</subject><subject>HIV Infections - psychology</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Iatrogenesis</subject><subject>Iatrogenic Disease</subject><subject>Illnesses</subject><subject>Infection</subject><subject>Infections</subject><subject>Interviews as Topic</subject><subject>Japan</subject><subject>Medical diagnosis</subject><subject>Nondisclosure</subject><subject>Pain</subject><subject>Patients</subject><subject>Relatives</subject><subject>Remarriage</subject><subject>Self Disclosure</subject><subject>Terminal Illness</subject><subject>Transfusion Reaction</subject><subject>Truth</subject><subject>Truth Disclosure</subject><subject>Victims</subject><issn>1049-7323</issn><issn>1552-7557</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2009</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><sourceid>BHHNA</sourceid><recordid>eNqFkUtr3DAUhUVoyKvdZ1UEhe6c6GlZq1KGJpkyMItMJksjy9exgm1NJTsw0B9fDTOQEChZ6aDz3SNdDkKXlFxRqtQ1JUIrzjjRnAsmyRE6o1KyTEmpPiWd7Gznn6LzGJ8JIYpwfoJOaeJZLsgZ-nvf-qmr8SPgFXQdHtskwjS2P_Bju8U3pnedg4jdgH-bjRnwrPUR8Oj3-KoFF_DCv0CNl0Pi0sU2hQXAa2dH10fsGzw3Y_BPMDiL7-ZrPB8aSJ4fPqPjxnQRvhzOC_Rw82s1u8sWy9v57Ocis2mpMWsqw0DkXJma1IU0eUW4Fpo0FQdiawWyKhTVytgKhKmppqSppbZ5EpYpyy_Q933uJvg_E8Sx7F206f9mAD_FMleMFVzQj0GqCia1-BCUimldyB347R347KcwpG1LqlnBlBJ5niiyp2zwMQZoyk1wvQnbkpJy13T5vuk08vUQPFU91K8Dh2oTkO2BaJ7gzav_C_wHjJyuCg</recordid><startdate>20090601</startdate><enddate>20090601</enddate><creator>Seki, Yukiko</creator><creator>Yamazaki, Yoshihiko</creator><creator>Mizota, Yuri</creator><creator>Inoue, Yoji</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7U4</scope><scope>BHHNA</scope><scope>DWI</scope><scope>WZK</scope><scope>7X8</scope></search><sort><creationdate>20090601</creationdate><title>Should We Tell the Truth? Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection</title><author>Seki, Yukiko ; Yamazaki, Yoshihiko ; Mizota, Yuri ; Inoue, Yoji</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c425t-fba2e4637ad0d85a6b039490fb3e0cd7e5b87197acbe4ad1910fd59c6910c27c3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2009</creationdate><topic>Acquired Immune Deficiency Syndrome</topic><topic>AIDS</topic><topic>Attitudes</topic><topic>Bereavement</topic><topic>Blood Diseases</topic><topic>Content analysis</topic><topic>Disclosure</topic><topic>Family</topic><topic>Family relations</topic><topic>Health technology assessment</topic><topic>Hemophilia</topic><topic>Hemophilia A - therapy</topic><topic>Hemophilia A - virology</topic><topic>HIV</topic><topic>HIV Infections - etiology</topic><topic>HIV Infections - psychology</topic><topic>Human immunodeficiency virus</topic><topic>Humans</topic><topic>Iatrogenesis</topic><topic>Iatrogenic Disease</topic><topic>Illnesses</topic><topic>Infection</topic><topic>Infections</topic><topic>Interviews as Topic</topic><topic>Japan</topic><topic>Medical diagnosis</topic><topic>Nondisclosure</topic><topic>Pain</topic><topic>Patients</topic><topic>Relatives</topic><topic>Remarriage</topic><topic>Self Disclosure</topic><topic>Terminal Illness</topic><topic>Transfusion Reaction</topic><topic>Truth</topic><topic>Truth Disclosure</topic><topic>Victims</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Seki, Yukiko</creatorcontrib><creatorcontrib>Yamazaki, Yoshihiko</creatorcontrib><creatorcontrib>Mizota, Yuri</creatorcontrib><creatorcontrib>Inoue, Yoji</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><jtitle>Qualitative health research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Seki, Yukiko</au><au>Yamazaki, Yoshihiko</au><au>Mizota, Yuri</au><au>Inoue, Yoji</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Should We Tell the Truth? 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| source | Applied Social Sciences Index & Abstracts (ASSIA); SAGE Complete A-Z List; MEDLINE; Sociological Abstracts |
| subjects | Acquired Immune Deficiency Syndrome AIDS Attitudes Bereavement Blood Diseases Content analysis Disclosure Family Family relations Health technology assessment Hemophilia Hemophilia A - therapy Hemophilia A - virology HIV HIV Infections - etiology HIV Infections - psychology Human immunodeficiency virus Humans Iatrogenesis Iatrogenic Disease Illnesses Infection Infections Interviews as Topic Japan Medical diagnosis Nondisclosure Pain Patients Relatives Remarriage Self Disclosure Terminal Illness Transfusion Reaction Truth Truth Disclosure Victims |
| title | Should We Tell the Truth? Why Families in Japan Chose to Tell Their Loved Ones They Were Victims of Iatrogenic HIV Infection |
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