The National Alzheimer's Coordinating Center (NACC) database: An Alzheimer disease database
The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of patient information collected from the 29 Alzheimer disease centers (ADCs) funded by the National Institute on Aging. Each of the centers collects center-determined data elements on p...
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| Veröffentlicht in: | Alzheimer disease and associated disorders 2004-10, Vol.18 (4), p.270-277 |
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| container_title | Alzheimer disease and associated disorders |
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| creator | BEEKLY, Duane L RAMOS, Erin M VAN BELLE, Gerald DEITRICH, Woodrow CLARK, Amber D JACKA, Mary E KUKULL, Walter A |
| description | The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of patient information collected from the 29 Alzheimer disease centers (ADCs) funded by the National Institute on Aging. Each of the centers collects center-determined data elements on patients enrolled into its center and transmits a minimum dataset to NACC. Data are managed differently at each center depending on that center's research needs. The centers' data systems vary from a single personal computer running spreadsheet software to a network of servers running an advanced data management system such as Oracle. The challenge for NACC is to expand and adjust previously collected data elements into an integrated database that could be used for administrative as well as research purposes. In addition, NACC sought to allow the centers to have the flexibility they needed for data submission. To accomplish this task, NACC designed a database that contained separate specific datasets each with individual data elements. NACC also designed a data management system to easily collect and manage these data. The NACC web site (www.alz.washington.edu) was created to allow access to the data. |
| format | Article |
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Each of the centers collects center-determined data elements on patients enrolled into its center and transmits a minimum dataset to NACC. Data are managed differently at each center depending on that center's research needs. The centers' data systems vary from a single personal computer running spreadsheet software to a network of servers running an advanced data management system such as Oracle. The challenge for NACC is to expand and adjust previously collected data elements into an integrated database that could be used for administrative as well as research purposes. In addition, NACC sought to allow the centers to have the flexibility they needed for data submission. To accomplish this task, NACC designed a database that contained separate specific datasets each with individual data elements. NACC also designed a data management system to easily collect and manage these data. The NACC web site (www.alz.washington.edu) was created to allow access to the data.</description><identifier>ISSN: 0893-0341</identifier><identifier>EISSN: 1546-4156</identifier><identifier>PMID: 15592144</identifier><identifier>CODEN: ADADE2</identifier><language>eng</language><publisher>Hagerstown, MD: Lippincott Williams & Wilkins</publisher><subject>Alzheimer Disease - pathology ; Biological and medical sciences ; Brain - pathology ; Cardiovascular system ; Data Collection ; Databases, Factual ; Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases ; Errors of metabolism ; Female ; Humans ; Information Dissemination ; Information Systems ; Internet ; Investigative techniques, diagnostic techniques (general aspects) ; Lipids (lysosomal enzyme disorders, storage diseases) ; Male ; Medical sciences ; Metabolic diseases ; Neurology ; Radiodiagnosis. Nmr imagery. 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Each of the centers collects center-determined data elements on patients enrolled into its center and transmits a minimum dataset to NACC. Data are managed differently at each center depending on that center's research needs. The centers' data systems vary from a single personal computer running spreadsheet software to a network of servers running an advanced data management system such as Oracle. The challenge for NACC is to expand and adjust previously collected data elements into an integrated database that could be used for administrative as well as research purposes. In addition, NACC sought to allow the centers to have the flexibility they needed for data submission. To accomplish this task, NACC designed a database that contained separate specific datasets each with individual data elements. NACC also designed a data management system to easily collect and manage these data. The NACC web site (www.alz.washington.edu) was created to allow access to the data.</description><subject>Alzheimer Disease - pathology</subject><subject>Biological and medical sciences</subject><subject>Brain - pathology</subject><subject>Cardiovascular system</subject><subject>Data Collection</subject><subject>Databases, Factual</subject><subject>Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases</subject><subject>Errors of metabolism</subject><subject>Female</subject><subject>Humans</subject><subject>Information Dissemination</subject><subject>Information Systems</subject><subject>Internet</subject><subject>Investigative techniques, diagnostic techniques (general aspects)</subject><subject>Lipids (lysosomal enzyme disorders, storage diseases)</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Metabolic diseases</subject><subject>Neurology</subject><subject>Radiodiagnosis. Nmr imagery. 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Leukodystrophies. Prion diseases</topic><topic>Errors of metabolism</topic><topic>Female</topic><topic>Humans</topic><topic>Information Dissemination</topic><topic>Information Systems</topic><topic>Internet</topic><topic>Investigative techniques, diagnostic techniques (general aspects)</topic><topic>Lipids (lysosomal enzyme disorders, storage diseases)</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Metabolic diseases</topic><topic>Neurology</topic><topic>Radiodiagnosis. Nmr imagery. Nmr spectrometry</topic><toplevel>online_resources</toplevel><creatorcontrib>BEEKLY, Duane L</creatorcontrib><creatorcontrib>RAMOS, Erin M</creatorcontrib><creatorcontrib>VAN BELLE, Gerald</creatorcontrib><creatorcontrib>DEITRICH, Woodrow</creatorcontrib><creatorcontrib>CLARK, Amber D</creatorcontrib><creatorcontrib>JACKA, Mary E</creatorcontrib><creatorcontrib>KUKULL, Walter A</creatorcontrib><creatorcontrib>NIA-Alzheimer's Disease Centers</creatorcontrib><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>MEDLINE - Academic</collection><jtitle>Alzheimer disease and associated disorders</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>BEEKLY, Duane L</au><au>RAMOS, Erin M</au><au>VAN BELLE, Gerald</au><au>DEITRICH, Woodrow</au><au>CLARK, Amber D</au><au>JACKA, Mary E</au><au>KUKULL, Walter A</au><aucorp>NIA-Alzheimer's Disease Centers</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The National Alzheimer's Coordinating Center (NACC) database: An Alzheimer disease database</atitle><jtitle>Alzheimer disease and associated disorders</jtitle><addtitle>Alzheimer Dis Assoc Disord</addtitle><date>2004-10-01</date><risdate>2004</risdate><volume>18</volume><issue>4</issue><spage>270</spage><epage>277</epage><pages>270-277</pages><issn>0893-0341</issn><eissn>1546-4156</eissn><coden>ADADE2</coden><abstract>The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of patient information collected from the 29 Alzheimer disease centers (ADCs) funded by the National Institute on Aging. 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| identifier | ISSN: 0893-0341 |
| ispartof | Alzheimer disease and associated disorders, 2004-10, Vol.18 (4), p.270-277 |
| issn | 0893-0341 1546-4156 |
| language | eng |
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| source | MEDLINE; Journals@Ovid Complete |
| subjects | Alzheimer Disease - pathology Biological and medical sciences Brain - pathology Cardiovascular system Data Collection Databases, Factual Degenerative and inherited degenerative diseases of the nervous system. Leukodystrophies. Prion diseases Errors of metabolism Female Humans Information Dissemination Information Systems Internet Investigative techniques, diagnostic techniques (general aspects) Lipids (lysosomal enzyme disorders, storage diseases) Male Medical sciences Metabolic diseases Neurology Radiodiagnosis. Nmr imagery. Nmr spectrometry |
| title | The National Alzheimer's Coordinating Center (NACC) database: An Alzheimer disease database |
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