Assessing the understanding of biobank participants

Biobanks have been developed as a tool to better understand the genetic basis of disease by linking DNA samples to corresponding medical information. The broad scope of such projects presents a challenge to informed consent and participant understanding. To address this, 200 telephone interviews wer...

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Veröffentlicht in:	American journal of medical genetics. Part A 2009-02, Vol.149A (2), p.188-198
Hauptverfasser:	Ormond, K.E., Cirino, A.L., Helenowski, I.B., Chisholm, R.L., Wolf, W.A.
Format:	Artikel
Sprache:	eng
Schlagworte:	biobank Biological and medical sciences confidentiality Databases, Factual Databases, Nucleic Acid disclosure DNA bank ethics Ethics Committees, Research - ethics genebank genetic database Genetic Predisposition to Disease - genetics genetic research Humans informed consent Informed Consent - standards Interviews as Topic Medical genetics Medical sciences recontact research results therapeutic misconception
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