Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire
Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with D...
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| Veröffentlicht in: | Journal of pediatric psychology 2009-01, Vol.34 (1), p.69-78 |
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| creator | Hendriksen, Jos G. M. Poysky, James T. Schrans, Debby G. M. Schouten, Eric G. W. Aldenkamp, Albert P. Vles, Johan S. H. |
| description | Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with DMD aged 5–18 years completed the PARS-III and Revised Rutter Scale. Results The α coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. Conclusions The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes. |
| doi_str_mv | 10.1093/jpepsy/jsn067 |
| format | Article |
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M. ; Poysky, James T. ; Schrans, Debby G. M. ; Schouten, Eric G. W. ; Aldenkamp, Albert P. ; Vles, Johan S. H.</creator><creatorcontrib>Hendriksen, Jos G. M. ; Poysky, James T. ; Schrans, Debby G. M. ; Schouten, Eric G. W. ; Aldenkamp, Albert P. ; Vles, Johan S. H.</creatorcontrib><description>Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with DMD aged 5–18 years completed the PARS-III and Revised Rutter Scale. Results The α coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. Conclusions The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.</description><identifier>ISSN: 0146-8693</identifier><identifier>EISSN: 1465-735X</identifier><identifier>DOI: 10.1093/jpepsy/jsn067</identifier><identifier>PMID: 18650207</identifier><identifier>CODEN: JPPSDW</identifier><language>eng</language><publisher>Atlanta, GA: Oxford University Press</publisher><subject>Activities of Daily Living - psychology ; Adaptation, Psychological ; Adolescent ; Adrenal Cortex Hormones - adverse effects ; Adrenal Cortex Hormones - therapeutic use ; Age Factors ; Anxiety - diagnosis ; Anxiety - psychology ; Biological and medical sciences ; Child ; Child clinical studies ; Child, Preschool ; Depression - diagnosis ; Depression - psychology ; Diseases of striated muscles. Neuromuscular diseases ; Duchenne muscular dystrophy ; Humans ; Male ; Mass Screening ; Medical sciences ; Muscular Dystrophy, Duchenne - drug therapy ; Muscular Dystrophy, Duchenne - psychology ; Neurology ; Peer Group ; Personality Assessment - statistics & numerical data ; Psychology. Psychoanalysis. Psychiatry ; Psychometrics - statistics & numerical data ; Psychopathology. Psychiatry ; psychosocial adjustment ; Quality of Life - psychology ; questionnaire study ; Reproducibility of Results ; Sick Role ; Social Adjustment ; Statistics as Topic ; Surveys and Questionnaires</subject><ispartof>Journal of pediatric psychology, 2009-01, Vol.34 (1), p.69-78</ispartof><rights>The Author 2008. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oxfordjournals.org 2008</rights><rights>2009 INIST-CNRS</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c431t-8cbfa725431a8747023fa605f5a4b186a7d5580daf4b5408cd72c3362c70cf983</citedby><cites>FETCH-LOGICAL-c431t-8cbfa725431a8747023fa605f5a4b186a7d5580daf4b5408cd72c3362c70cf983</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,1578,27901,27902</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&idt=21123980$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/18650207$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Hendriksen, Jos G. M.</creatorcontrib><creatorcontrib>Poysky, James T.</creatorcontrib><creatorcontrib>Schrans, Debby G. M.</creatorcontrib><creatorcontrib>Schouten, Eric G. W.</creatorcontrib><creatorcontrib>Aldenkamp, Albert P.</creatorcontrib><creatorcontrib>Vles, Johan S. H.</creatorcontrib><title>Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire</title><title>Journal of pediatric psychology</title><addtitle>J Pediatr Psychol</addtitle><description>Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with DMD aged 5–18 years completed the PARS-III and Revised Rutter Scale. Results The α coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. Conclusions The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.</description><subject>Activities of Daily Living - psychology</subject><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Adrenal Cortex Hormones - adverse effects</subject><subject>Adrenal Cortex Hormones - therapeutic use</subject><subject>Age Factors</subject><subject>Anxiety - diagnosis</subject><subject>Anxiety - psychology</subject><subject>Biological and medical sciences</subject><subject>Child</subject><subject>Child clinical studies</subject><subject>Child, Preschool</subject><subject>Depression - diagnosis</subject><subject>Depression - psychology</subject><subject>Diseases of striated muscles. Neuromuscular diseases</subject><subject>Duchenne muscular dystrophy</subject><subject>Humans</subject><subject>Male</subject><subject>Mass Screening</subject><subject>Medical sciences</subject><subject>Muscular Dystrophy, Duchenne - drug therapy</subject><subject>Muscular Dystrophy, Duchenne - psychology</subject><subject>Neurology</subject><subject>Peer Group</subject><subject>Personality Assessment - statistics & numerical data</subject><subject>Psychology. Psychoanalysis. Psychiatry</subject><subject>Psychometrics - statistics & numerical data</subject><subject>Psychopathology. Psychiatry</subject><subject>psychosocial adjustment</subject><subject>Quality of Life - psychology</subject><subject>questionnaire study</subject><subject>Reproducibility of Results</subject><subject>Sick Role</subject><subject>Social Adjustment</subject><subject>Statistics as Topic</subject><subject>Surveys and Questionnaires</subject><issn>0146-8693</issn><issn>1465-735X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2009</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqFkUFv1DAQhS1ERbeFI1fkC4hLWieOYy-3sgtspRYWiUorLpbXcbReEjt4HJX8C34yrhK1R07WeD6_Gb-H0OucXORkSS-PvelhvDyCIxV_hhZ5WbGMU7Z7jhYkFZmolvQUnQEcCSFlSasX6DQXFSMF4Qv0dwujPnjw2qoWX9XHAWJnXMTW4VvVGsD3Nh7wetAH45zBtwPooVUBr0eIwfeH8QOeJDoTg9V4my5NiDa9VK7Gq9Y6q5P0XbStjSP2DVZ4q0KakQXT-xDx98FAtN45ZYN5iU4a1YJ5NZ_n6O7zpx-rTXbz7cv16uom0yXNYyb0vlG8YKlQgpecFLRRFWENU-U-fU_xmjFBatWUe1YSoWteaEqrQnOim6Wg5-jdpNsH__thAdlZ0KZtlTN-AFlVItlLaAKzCdTBAwTTyD7YToVR5kQ-RCCnCOQUQeLfzMLDvjP1Ez17noC3M6AgOdME5bSFR67I84IuBUnc-4nzQ__fmfOOFqL58wir8EumLmdys_spd0x8XLPNV7ml_wAIErGd</recordid><startdate>20090101</startdate><enddate>20090101</enddate><creator>Hendriksen, Jos G. M.</creator><creator>Poysky, James T.</creator><creator>Schrans, Debby G. M.</creator><creator>Schouten, Eric G. W.</creator><creator>Aldenkamp, Albert P.</creator><creator>Vles, Johan S. H.</creator><general>Oxford University Press</general><scope>BSCLL</scope><scope>IQODW</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20090101</creationdate><title>Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire</title><author>Hendriksen, Jos G. M. ; Poysky, James T. ; Schrans, Debby G. M. ; Schouten, Eric G. W. ; Aldenkamp, Albert P. ; Vles, Johan S. H.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c431t-8cbfa725431a8747023fa605f5a4b186a7d5580daf4b5408cd72c3362c70cf983</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2009</creationdate><topic>Activities of Daily Living - psychology</topic><topic>Adaptation, Psychological</topic><topic>Adolescent</topic><topic>Adrenal Cortex Hormones - adverse effects</topic><topic>Adrenal Cortex Hormones - therapeutic use</topic><topic>Age Factors</topic><topic>Anxiety - diagnosis</topic><topic>Anxiety - psychology</topic><topic>Biological and medical sciences</topic><topic>Child</topic><topic>Child clinical studies</topic><topic>Child, Preschool</topic><topic>Depression - diagnosis</topic><topic>Depression - psychology</topic><topic>Diseases of striated muscles. Neuromuscular diseases</topic><topic>Duchenne muscular dystrophy</topic><topic>Humans</topic><topic>Male</topic><topic>Mass Screening</topic><topic>Medical sciences</topic><topic>Muscular Dystrophy, Duchenne - drug therapy</topic><topic>Muscular Dystrophy, Duchenne - psychology</topic><topic>Neurology</topic><topic>Peer Group</topic><topic>Personality Assessment - statistics & numerical data</topic><topic>Psychology. Psychoanalysis. Psychiatry</topic><topic>Psychometrics - statistics & numerical data</topic><topic>Psychopathology. Psychiatry</topic><topic>psychosocial adjustment</topic><topic>Quality of Life - psychology</topic><topic>questionnaire study</topic><topic>Reproducibility of Results</topic><topic>Sick Role</topic><topic>Social Adjustment</topic><topic>Statistics as Topic</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Hendriksen, Jos G. M.</creatorcontrib><creatorcontrib>Poysky, James T.</creatorcontrib><creatorcontrib>Schrans, Debby G. M.</creatorcontrib><creatorcontrib>Schouten, Eric G. W.</creatorcontrib><creatorcontrib>Aldenkamp, Albert P.</creatorcontrib><creatorcontrib>Vles, Johan S. H.</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of pediatric psychology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hendriksen, Jos G. M.</au><au>Poysky, James T.</au><au>Schrans, Debby G. M.</au><au>Schouten, Eric G. W.</au><au>Aldenkamp, Albert P.</au><au>Vles, Johan S. H.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire</atitle><jtitle>Journal of pediatric psychology</jtitle><addtitle>J Pediatr Psychol</addtitle><date>2009-01-01</date><risdate>2009</risdate><volume>34</volume><issue>1</issue><spage>69</spage><epage>78</epage><pages>69-78</pages><issn>0146-8693</issn><eissn>1465-735X</eissn><coden>JPPSDW</coden><abstract>Objective The primary aim of this study was to establish the psychometric properties and clinical utility of the Personal Adjustment and Role Skills Scale (PARS-III) for assessing psychosocial adjustment in males with Duchenne muscular dystrophy (DMD). Methods The parents of 287 male patients with DMD aged 5–18 years completed the PARS-III and Revised Rutter Scale. Results The α coefficients and factor analysis indicated good reliability and validity. Overall psychosocial adjustment was not significantly different in DMD compared to males with other chronic medical conditions and was positively associated with increases in age. A clinical cutoff score for screening in the DMD population is also reported. Conclusions The PARS-III is a reliable and valid index of youth psychosocial adjustment in DMD and can be used for both clinical screening and research purposes.</abstract><cop>Atlanta, GA</cop><pub>Oxford University Press</pub><pmid>18650207</pmid><doi>10.1093/jpepsy/jsn067</doi><tpages>10</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Activities of Daily Living - psychology Adaptation, Psychological Adolescent Adrenal Cortex Hormones - adverse effects Adrenal Cortex Hormones - therapeutic use Age Factors Anxiety - diagnosis Anxiety - psychology Biological and medical sciences Child Child clinical studies Child, Preschool Depression - diagnosis Depression - psychology Diseases of striated muscles. Neuromuscular diseases Duchenne muscular dystrophy Humans Male Mass Screening Medical sciences Muscular Dystrophy, Duchenne - drug therapy Muscular Dystrophy, Duchenne - psychology Neurology Peer Group Personality Assessment - statistics & numerical data Psychology. Psychoanalysis. Psychiatry Psychometrics - statistics & numerical data Psychopathology. Psychiatry psychosocial adjustment Quality of Life - psychology questionnaire study Reproducibility of Results Sick Role Social Adjustment Statistics as Topic Surveys and Questionnaires |
| title | Psychosocial Adjustment in Males with Duchenne Muscular Dystrophy: Psychometric Properties and Clinical Utility of a Parent-report Questionnaire |
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