“Don't Give Up, Advocate for Yourself”: A Pilot Study Examining Healthcare Experiences of People with Mayer Rokitansky Küster Hauser Syndrome

Mayer Rokitansky Küster Hauser syndrome (MRKH) is characterized by the underdevelopment or absence of the uterus and upper vagina. Navigating healthcare interactions may present unique challenges for those with MRKH as there appears to be sparse clinical education and research available to healthcar...

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Veröffentlicht in:	Journal of pediatric & adolescent gynecology 2024-12
Hauptverfasser:	Marshall, Nisha, Rajesh, Zwetlana, Hunker, Kate, Merletti, Jessica, Garas, Melody, Clark, Ashley, Ball, Sunni Anne, Gibson, M.E. Sophie, Pukall, Caroline F.
Format:	Artikel
Sprache:	eng
Schlagworte:	Healthcare experience MRKH Patient experience Qualitative research
Online-Zugang:	Volltext
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