Employing effective recruitment and retention strategies to engage a diverse pediatric population in genomics research

Underrepresentation in clinical genomics research limits the generalizability of findings and the benefits of scientific discoveries. We describe the impact of patient-centered, data-driven recruitment and retention strategies in a pediatric genome sequencing study. We collaborated with a stakeholde...

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Veröffentlicht in:	American journal of human genetics 2024-12, Vol.111 (12), p.2607-2617
Hauptverfasser:	Ramos, Michelle A., Bonini, Katherine E., Scarimbolo, Laura, Kelly, Nicole R., Insel, Beverly, Suckiel, Sabrina A., Brown, Kaitlyn, Di Biase, Miranda, Gallagher, Katie M., Lopez, Jessenia, Aguiñiga, Karla López, Marathe, Priya N., Maria, Estefany, Odgis, Jacqueline A., Rodriguez, Jessica E., Rodriguez, Michelle A., Ruiz, Nairovylex, Sebastin, Monisha, Yelton, Nicole M., Cunningham-Rundles, Charlotte, Gertner, Melvin, Laguerre, Irma, McDonald, Thomas V., McGoldrick, Patricia E., Robinson, Mimsie, Rubinstein, Arye, Shulman, Lisa H., Williams, Trinisha, Wolf, Steven M., Yozawitz, Elissa G., Zinberg, Randi E., Abul-Husn, Noura S., Bauman, Laurie J., Diaz, George A., Ferket, Bart S., Greally, John M., Jobanputra, Vaidehi, Gelb, Bruce D., Kenny, Eimear E., Wasserstein, Melissa P., Horowitz, Carol R.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adolescent Adult Child Child, Preschool diversity Female genome sequencing genomics Genomics - methods Humans Male Patient Selection pediatrics recruitment retention
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