Validation of the Portuguese MDS‐UPDRS: Challenges to Obtain a Scale Applicable to Different Linguistic Cultures
Background The MDS‐UPDRS has been available in English since 2008, showing satisfactory clinimetric results and being proposed as the new official benchmark scale for Parkinson's disease (PD), being cited as a core instrument for PD in the National Institutes of Neurological Disorders and Strok...
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| Veröffentlicht in: | Movement disorders clinical practice (Hoboken, N.J.) N.J.), 2025-01, Vol.12 (1), p.34-42 |
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| creator | Soares, Tiago Vale, Thiago Cardoso Guedes, Leonor Correia Maciel, Ricardo Oliveira Antunes, Ana Patrícia Camargos, Sarah Valadas, Anabela Coelho, Miguel Godinho, Catarina Maia, Débora Lobo, Patrícia Maia, Raphael Teodoro, Tiago Rieder, Carlos Velon, Ana Graça Rosas, Maria José Calado, Ana Caniça, Verónica Vale, José Mendes, Alexandre Rodrigues, Ana Margarida Costa, Maria Manuela Lampreia, Tânia Ferraz, Henrique B. Tumas, Vitor Barbosa, Egberto Stebbins, Glenn T. Tilley, Barbara C. Luo, Sheng LaPelle, Nancy R. Goetz, Christopher G. Cardoso, Francisco Ferreira, Joaquim J. Soares, Tiago Coelho, Miguel Guedes, Leonor Valadas, Anabela Antunes, Ana Patrícia Lobo, Patrícia Teodoro, Tiago Godinho, Catarina Calado, Ana Dias, Sara Morgado, Joana Sequeira, João Vale, José Simões, Rita Alegria, Paulo Mendes, Alexandre Vila‐Chã, Nuno Martins, Joana Rosas, Maria José Vieira, Sara Velon, Ana Graça Veiga, Andreia Rodrigues, Ana Margarida Varandas, Sara Santos, Ana Filipa Machado, Célia Alves, José Costa, Maria Manuela Cunha, Carlota Massano, João Lampreia, Tânia Barbosa, Raquel Caniça, Verónica Queimado, Francisco Vale, Thiago Cardoso Maia, Raphael Doyle Maciel, Ricardo Oliveira Horta Maia, Débora Palma Camargos, Sarah Teixeira Ferraz, Henrique Ballalai Silva, Carolina Candeiras Saba, Roberta Arb Barcelos, Lorena Broseghini Borges, Vanderci Silva, Sónia Azevedo Barbosa, Egberto Reis Cury, Rubens Gisbert Limongi, João Carlos Papaterra Sallem, Flávio Augusto Sekeff Tumas, Vitor Novaretti, Nathalia Bezerra, Torben Cavalcante Santos‐Lobato, Bruno Lopes Brito, Manuelina Mariana Capellari Cunha, Ana Luiza Nunes Oliveira, Daniel Sabino Mello Rieder, Carlos Roberto Medeiros, Márcio Schneider |
| description | Background
The MDS‐UPDRS has been available in English since 2008, showing satisfactory clinimetric results and being proposed as the new official benchmark scale for Parkinson's disease (PD), being cited as a core instrument for PD in the National Institutes of Neurological Disorders and Stroke Common Data Elements program. For this reason, the MDS created guidelines for development of MDS‐UPDRS official, clinimetrically validated translations.
Objective
This study presents the formal process used to obtain the officially approved Portuguese version of the MDS‐UPDRS.
Methods
The study consisted of three phases: (1) Independent translation by Portuguese and Brazilian teams followed by a challenging consensus process that this article particularly emphasizes; (2) Cognitive pretest involving raters and patients from both Portugal and Brazil; (3) Validation test with a sample of 367 native Portuguese‐speaking PD patients.
Results
The overall factor structure of the Portuguese version was consistent with the English version based on a comparative fit index ≥0.96 for all four parts of the MDS‐UPDRS.
Conclusion
This version can be designated as the official Portuguese version of the MDS‐UPDRS. |
| doi_str_mv | 10.1002/mdc3.14236 |
| format | Article |
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Vale, Thiago Cardoso ; Guedes, Leonor Correia ; Maciel, Ricardo Oliveira ; Antunes, Ana Patrícia ; Camargos, Sarah ; Valadas, Anabela ; Coelho, Miguel ; Godinho, Catarina ; Maia, Débora ; Lobo, Patrícia ; Maia, Raphael ; Teodoro, Tiago ; Rieder, Carlos ; Velon, Ana Graça ; Rosas, Maria José ; Calado, Ana ; Caniça, Verónica ; Vale, José ; Mendes, Alexandre ; Rodrigues, Ana Margarida ; Costa, Maria Manuela ; Lampreia, Tânia ; Ferraz, Henrique B. ; Tumas, Vitor ; Barbosa, Egberto ; Stebbins, Glenn T. ; Tilley, Barbara C. ; Luo, Sheng ; LaPelle, Nancy R. ; Goetz, Christopher G. ; Cardoso, Francisco ; Ferreira, Joaquim J. ; Soares, Tiago ; Coelho, Miguel ; Guedes, Leonor ; Valadas, Anabela ; Antunes, Ana Patrícia ; Lobo, Patrícia ; Teodoro, Tiago ; Godinho, Catarina ; Calado, Ana ; Dias, Sara ; Morgado, Joana ; Sequeira, João ; Vale, José ; Simões, Rita ; Alegria, Paulo ; Mendes, Alexandre ; Vila‐Chã, Nuno ; Martins, Joana ; Rosas, Maria José ; Vieira, Sara ; Velon, Ana Graça ; Veiga, Andreia ; Rodrigues, Ana Margarida ; Varandas, Sara ; Santos, Ana Filipa ; Machado, Célia ; Alves, José ; Costa, Maria Manuela ; Cunha, Carlota ; Massano, João ; Lampreia, Tânia ; Barbosa, Raquel ; Caniça, Verónica ; Queimado, Francisco ; Vale, Thiago Cardoso ; Maia, Raphael Doyle ; Maciel, Ricardo Oliveira Horta ; Maia, Débora Palma ; Camargos, Sarah Teixeira ; Ferraz, Henrique Ballalai ; Silva, Carolina Candeiras ; Saba, Roberta Arb ; Barcelos, Lorena Broseghini ; Borges, Vanderci ; Silva, Sónia Azevedo ; Barbosa, Egberto Reis ; Cury, Rubens Gisbert ; Limongi, João Carlos Papaterra ; Sallem, Flávio Augusto Sekeff ; Tumas, Vitor ; Novaretti, Nathalia ; Bezerra, Torben Cavalcante ; Santos‐Lobato, Bruno Lopes ; Brito, Manuelina Mariana Capellari ; Cunha, Ana Luiza Nunes ; Oliveira, Daniel Sabino ; Mello Rieder, Carlos Roberto ; Medeiros, Márcio Schneider</creator><creatorcontrib>Soares, Tiago ; Vale, Thiago Cardoso ; Guedes, Leonor Correia ; Maciel, Ricardo Oliveira ; Antunes, Ana Patrícia ; Camargos, Sarah ; Valadas, Anabela ; Coelho, Miguel ; Godinho, Catarina ; Maia, Débora ; Lobo, Patrícia ; Maia, Raphael ; Teodoro, Tiago ; Rieder, Carlos ; Velon, Ana Graça ; Rosas, Maria José ; Calado, Ana ; Caniça, Verónica ; Vale, José ; Mendes, Alexandre ; Rodrigues, Ana Margarida ; Costa, Maria Manuela ; Lampreia, Tânia ; Ferraz, Henrique B. ; Tumas, Vitor ; Barbosa, Egberto ; Stebbins, Glenn T. ; Tilley, Barbara C. ; Luo, Sheng ; LaPelle, Nancy R. ; Goetz, Christopher G. ; Cardoso, Francisco ; Ferreira, Joaquim J. ; Soares, Tiago ; Coelho, Miguel ; Guedes, Leonor ; Valadas, Anabela ; Antunes, Ana Patrícia ; Lobo, Patrícia ; Teodoro, Tiago ; Godinho, Catarina ; Calado, Ana ; Dias, Sara ; Morgado, Joana ; Sequeira, João ; Vale, José ; Simões, Rita ; Alegria, Paulo ; Mendes, Alexandre ; Vila‐Chã, Nuno ; Martins, Joana ; Rosas, Maria José ; Vieira, Sara ; Velon, Ana Graça ; Veiga, Andreia ; Rodrigues, Ana Margarida ; Varandas, Sara ; Santos, Ana Filipa ; Machado, Célia ; Alves, José ; Costa, Maria Manuela ; Cunha, Carlota ; Massano, João ; Lampreia, Tânia ; Barbosa, Raquel ; Caniça, Verónica ; Queimado, Francisco ; Vale, Thiago Cardoso ; Maia, Raphael Doyle ; Maciel, Ricardo Oliveira Horta ; Maia, Débora Palma ; Camargos, Sarah Teixeira ; Ferraz, Henrique Ballalai ; Silva, Carolina Candeiras ; Saba, Roberta Arb ; Barcelos, Lorena Broseghini ; Borges, Vanderci ; Silva, Sónia Azevedo ; Barbosa, Egberto Reis ; Cury, Rubens Gisbert ; Limongi, João Carlos Papaterra ; Sallem, Flávio Augusto Sekeff ; Tumas, Vitor ; Novaretti, Nathalia ; Bezerra, Torben Cavalcante ; Santos‐Lobato, Bruno Lopes ; Brito, Manuelina Mariana Capellari ; Cunha, Ana Luiza Nunes ; Oliveira, Daniel Sabino ; Mello Rieder, Carlos Roberto ; Medeiros, Márcio Schneider ; MDS‐UPDRS Portuguese Validation Study Group</creatorcontrib><description>Background
The MDS‐UPDRS has been available in English since 2008, showing satisfactory clinimetric results and being proposed as the new official benchmark scale for Parkinson's disease (PD), being cited as a core instrument for PD in the National Institutes of Neurological Disorders and Stroke Common Data Elements program. For this reason, the MDS created guidelines for development of MDS‐UPDRS official, clinimetrically validated translations.
Objective
This study presents the formal process used to obtain the officially approved Portuguese version of the MDS‐UPDRS.
Methods
The study consisted of three phases: (1) Independent translation by Portuguese and Brazilian teams followed by a challenging consensus process that this article particularly emphasizes; (2) Cognitive pretest involving raters and patients from both Portugal and Brazil; (3) Validation test with a sample of 367 native Portuguese‐speaking PD patients.
Results
The overall factor structure of the Portuguese version was consistent with the English version based on a comparative fit index ≥0.96 for all four parts of the MDS‐UPDRS.
Conclusion
This version can be designated as the official Portuguese version of the MDS‐UPDRS.</description><identifier>ISSN: 2330-1619</identifier><identifier>EISSN: 2330-1619</identifier><identifier>DOI: 10.1002/mdc3.14236</identifier><identifier>PMID: 39460979</identifier><language>eng</language><publisher>Hoboken, USA: John Wiley & Sons, Inc</publisher><subject>Aged ; Brazil ; Clinimetrics ; Female ; Humans ; Male ; MDS‐UPDRS ; Middle Aged ; Parkinson Disease - diagnosis ; Parkinson's disease ; Portugal ; Psychometrics - methods ; rating scale ; Reproducibility of Results ; Severity of Illness Index ; Translations ; validation</subject><ispartof>Movement disorders clinical practice (Hoboken, N.J.), 2025-01, Vol.12 (1), p.34-42</ispartof><rights>2024 International Parkinson and Movement Disorder Society.</rights><rights>2025 International Parkinson and Movement Disorder Society</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c2466-92f16f50c1d616cfa2ed50a6885bbc72840baaa971753134eb6c94554b830e793</cites><orcidid>0000-0003-0027-280X ; 0000-0003-4214-5809 ; 0000-0003-0808-0116 ; 0000-0001-7466-1715 ; 0000-0001-6145-9868 ; 0000-0003-3950-5113 ; 0000-0001-9829-6783</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fmdc3.14236$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fmdc3.14236$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39460979$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Soares, Tiago</creatorcontrib><creatorcontrib>Vale, Thiago Cardoso</creatorcontrib><creatorcontrib>Guedes, Leonor Correia</creatorcontrib><creatorcontrib>Maciel, Ricardo Oliveira</creatorcontrib><creatorcontrib>Antunes, Ana Patrícia</creatorcontrib><creatorcontrib>Camargos, Sarah</creatorcontrib><creatorcontrib>Valadas, Anabela</creatorcontrib><creatorcontrib>Coelho, Miguel</creatorcontrib><creatorcontrib>Godinho, Catarina</creatorcontrib><creatorcontrib>Maia, Débora</creatorcontrib><creatorcontrib>Lobo, Patrícia</creatorcontrib><creatorcontrib>Maia, Raphael</creatorcontrib><creatorcontrib>Teodoro, Tiago</creatorcontrib><creatorcontrib>Rieder, Carlos</creatorcontrib><creatorcontrib>Velon, Ana Graça</creatorcontrib><creatorcontrib>Rosas, Maria José</creatorcontrib><creatorcontrib>Calado, Ana</creatorcontrib><creatorcontrib>Caniça, Verónica</creatorcontrib><creatorcontrib>Vale, José</creatorcontrib><creatorcontrib>Mendes, Alexandre</creatorcontrib><creatorcontrib>Rodrigues, Ana Margarida</creatorcontrib><creatorcontrib>Costa, Maria Manuela</creatorcontrib><creatorcontrib>Lampreia, Tânia</creatorcontrib><creatorcontrib>Ferraz, Henrique B.</creatorcontrib><creatorcontrib>Tumas, Vitor</creatorcontrib><creatorcontrib>Barbosa, Egberto</creatorcontrib><creatorcontrib>Stebbins, Glenn T.</creatorcontrib><creatorcontrib>Tilley, Barbara C.</creatorcontrib><creatorcontrib>Luo, Sheng</creatorcontrib><creatorcontrib>LaPelle, Nancy R.</creatorcontrib><creatorcontrib>Goetz, Christopher G.</creatorcontrib><creatorcontrib>Cardoso, Francisco</creatorcontrib><creatorcontrib>Ferreira, Joaquim J.</creatorcontrib><creatorcontrib>Soares, Tiago</creatorcontrib><creatorcontrib>Coelho, Miguel</creatorcontrib><creatorcontrib>Guedes, Leonor</creatorcontrib><creatorcontrib>Valadas, Anabela</creatorcontrib><creatorcontrib>Antunes, Ana Patrícia</creatorcontrib><creatorcontrib>Lobo, Patrícia</creatorcontrib><creatorcontrib>Teodoro, Tiago</creatorcontrib><creatorcontrib>Godinho, Catarina</creatorcontrib><creatorcontrib>Calado, Ana</creatorcontrib><creatorcontrib>Dias, Sara</creatorcontrib><creatorcontrib>Morgado, Joana</creatorcontrib><creatorcontrib>Sequeira, João</creatorcontrib><creatorcontrib>Vale, José</creatorcontrib><creatorcontrib>Simões, Rita</creatorcontrib><creatorcontrib>Alegria, Paulo</creatorcontrib><creatorcontrib>Mendes, Alexandre</creatorcontrib><creatorcontrib>Vila‐Chã, Nuno</creatorcontrib><creatorcontrib>Martins, Joana</creatorcontrib><creatorcontrib>Rosas, Maria José</creatorcontrib><creatorcontrib>Vieira, Sara</creatorcontrib><creatorcontrib>Velon, Ana Graça</creatorcontrib><creatorcontrib>Veiga, Andreia</creatorcontrib><creatorcontrib>Rodrigues, Ana Margarida</creatorcontrib><creatorcontrib>Varandas, Sara</creatorcontrib><creatorcontrib>Santos, Ana Filipa</creatorcontrib><creatorcontrib>Machado, Célia</creatorcontrib><creatorcontrib>Alves, José</creatorcontrib><creatorcontrib>Costa, Maria Manuela</creatorcontrib><creatorcontrib>Cunha, Carlota</creatorcontrib><creatorcontrib>Massano, João</creatorcontrib><creatorcontrib>Lampreia, Tânia</creatorcontrib><creatorcontrib>Barbosa, Raquel</creatorcontrib><creatorcontrib>Caniça, Verónica</creatorcontrib><creatorcontrib>Queimado, Francisco</creatorcontrib><creatorcontrib>Vale, Thiago Cardoso</creatorcontrib><creatorcontrib>Maia, Raphael Doyle</creatorcontrib><creatorcontrib>Maciel, Ricardo Oliveira Horta</creatorcontrib><creatorcontrib>Maia, Débora Palma</creatorcontrib><creatorcontrib>Camargos, Sarah Teixeira</creatorcontrib><creatorcontrib>Ferraz, Henrique Ballalai</creatorcontrib><creatorcontrib>Silva, Carolina Candeiras</creatorcontrib><creatorcontrib>Saba, Roberta Arb</creatorcontrib><creatorcontrib>Barcelos, Lorena Broseghini</creatorcontrib><creatorcontrib>Borges, Vanderci</creatorcontrib><creatorcontrib>Silva, Sónia Azevedo</creatorcontrib><creatorcontrib>Barbosa, Egberto Reis</creatorcontrib><creatorcontrib>Cury, Rubens Gisbert</creatorcontrib><creatorcontrib>Limongi, João Carlos Papaterra</creatorcontrib><creatorcontrib>Sallem, Flávio Augusto Sekeff</creatorcontrib><creatorcontrib>Tumas, Vitor</creatorcontrib><creatorcontrib>Novaretti, Nathalia</creatorcontrib><creatorcontrib>Bezerra, Torben Cavalcante</creatorcontrib><creatorcontrib>Santos‐Lobato, Bruno Lopes</creatorcontrib><creatorcontrib>Brito, Manuelina Mariana Capellari</creatorcontrib><creatorcontrib>Cunha, Ana Luiza Nunes</creatorcontrib><creatorcontrib>Oliveira, Daniel Sabino</creatorcontrib><creatorcontrib>Mello Rieder, Carlos Roberto</creatorcontrib><creatorcontrib>Medeiros, Márcio Schneider</creatorcontrib><creatorcontrib>MDS‐UPDRS Portuguese Validation Study Group</creatorcontrib><title>Validation of the Portuguese MDS‐UPDRS: Challenges to Obtain a Scale Applicable to Different Linguistic Cultures</title><title>Movement disorders clinical practice (Hoboken, N.J.)</title><addtitle>Mov Disord Clin Pract</addtitle><description>Background
The MDS‐UPDRS has been available in English since 2008, showing satisfactory clinimetric results and being proposed as the new official benchmark scale for Parkinson's disease (PD), being cited as a core instrument for PD in the National Institutes of Neurological Disorders and Stroke Common Data Elements program. For this reason, the MDS created guidelines for development of MDS‐UPDRS official, clinimetrically validated translations.
Objective
This study presents the formal process used to obtain the officially approved Portuguese version of the MDS‐UPDRS.
Methods
The study consisted of three phases: (1) Independent translation by Portuguese and Brazilian teams followed by a challenging consensus process that this article particularly emphasizes; (2) Cognitive pretest involving raters and patients from both Portugal and Brazil; (3) Validation test with a sample of 367 native Portuguese‐speaking PD patients.
Results
The overall factor structure of the Portuguese version was consistent with the English version based on a comparative fit index ≥0.96 for all four parts of the MDS‐UPDRS.
Conclusion
This version can be designated as the official Portuguese version of the MDS‐UPDRS.</description><subject>Aged</subject><subject>Brazil</subject><subject>Clinimetrics</subject><subject>Female</subject><subject>Humans</subject><subject>Male</subject><subject>MDS‐UPDRS</subject><subject>Middle Aged</subject><subject>Parkinson Disease - diagnosis</subject><subject>Parkinson's disease</subject><subject>Portugal</subject><subject>Psychometrics - methods</subject><subject>rating scale</subject><subject>Reproducibility of Results</subject><subject>Severity of Illness 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Mariana Capellari</creator><creator>Cunha, Ana Luiza Nunes</creator><creator>Oliveira, Daniel Sabino</creator><creator>Mello Rieder, Carlos Roberto</creator><creator>Medeiros, Márcio Schneider</creator><general>John Wiley & Sons, Inc</general><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>K9.</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-0027-280X</orcidid><orcidid>https://orcid.org/0000-0003-4214-5809</orcidid><orcidid>https://orcid.org/0000-0003-0808-0116</orcidid><orcidid>https://orcid.org/0000-0001-7466-1715</orcidid><orcidid>https://orcid.org/0000-0001-6145-9868</orcidid><orcidid>https://orcid.org/0000-0003-3950-5113</orcidid><orcidid>https://orcid.org/0000-0001-9829-6783</orcidid></search><sort><creationdate>202501</creationdate><title>Validation of the Portuguese MDS‐UPDRS: Challenges to Obtain a Scale Applicable to Different Linguistic Cultures</title><author>Soares, Tiago ; Vale, Thiago Cardoso ; Guedes, Leonor Correia ; Maciel, Ricardo Oliveira ; Antunes, Ana Patrícia ; Camargos, Sarah ; Valadas, Anabela ; Coelho, Miguel ; Godinho, Catarina ; Maia, Débora ; Lobo, Patrícia ; Maia, Raphael ; Teodoro, Tiago ; Rieder, Carlos ; Velon, Ana Graça ; Rosas, Maria José ; Calado, Ana ; Caniça, Verónica ; Vale, José ; Mendes, Alexandre ; Rodrigues, Ana Margarida ; Costa, Maria Manuela ; Lampreia, Tânia ; Ferraz, Henrique B. ; Tumas, Vitor ; Barbosa, Egberto ; Stebbins, Glenn T. ; Tilley, Barbara C. ; Luo, Sheng ; LaPelle, Nancy R. ; Goetz, Christopher G. ; Cardoso, Francisco ; Ferreira, Joaquim J. ; Soares, Tiago ; Coelho, Miguel ; Guedes, Leonor ; Valadas, Anabela ; Antunes, Ana Patrícia ; Lobo, Patrícia ; Teodoro, Tiago ; Godinho, Catarina ; Calado, Ana ; Dias, Sara ; Morgado, Joana ; Sequeira, João ; Vale, José ; Simões, Rita ; Alegria, Paulo ; Mendes, Alexandre ; Vila‐Chã, Nuno ; Martins, Joana ; Rosas, Maria José ; Vieira, Sara ; Velon, Ana Graça ; Veiga, Andreia ; Rodrigues, Ana Margarida ; Varandas, Sara ; Santos, Ana Filipa ; Machado, Célia ; Alves, José ; Costa, Maria Manuela ; Cunha, Carlota ; Massano, João ; Lampreia, Tânia ; Barbosa, Raquel ; Caniça, Verónica ; Queimado, Francisco ; Vale, Thiago Cardoso ; Maia, Raphael Doyle ; Maciel, Ricardo Oliveira Horta ; Maia, Débora Palma ; Camargos, Sarah Teixeira ; Ferraz, Henrique Ballalai ; Silva, Carolina Candeiras ; Saba, Roberta Arb ; Barcelos, Lorena Broseghini ; Borges, Vanderci ; Silva, Sónia Azevedo ; Barbosa, Egberto Reis ; Cury, Rubens Gisbert ; Limongi, João Carlos Papaterra ; Sallem, Flávio Augusto Sekeff ; Tumas, Vitor ; Novaretti, Nathalia ; Bezerra, Torben Cavalcante ; Santos‐Lobato, Bruno Lopes ; Brito, Manuelina Mariana Capellari ; Cunha, Ana Luiza Nunes ; Oliveira, Daniel Sabino ; Mello Rieder, Carlos Roberto ; Medeiros, Márcio Schneider</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c2466-92f16f50c1d616cfa2ed50a6885bbc72840baaa971753134eb6c94554b830e793</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2025</creationdate><topic>Aged</topic><topic>Brazil</topic><topic>Clinimetrics</topic><topic>Female</topic><topic>Humans</topic><topic>Male</topic><topic>MDS‐UPDRS</topic><topic>Middle Aged</topic><topic>Parkinson Disease - diagnosis</topic><topic>Parkinson's disease</topic><topic>Portugal</topic><topic>Psychometrics - methods</topic><topic>rating scale</topic><topic>Reproducibility of Results</topic><topic>Severity of Illness Index</topic><topic>Translations</topic><topic>validation</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Soares, Tiago</creatorcontrib><creatorcontrib>Vale, Thiago Cardoso</creatorcontrib><creatorcontrib>Guedes, Leonor Correia</creatorcontrib><creatorcontrib>Maciel, Ricardo Oliveira</creatorcontrib><creatorcontrib>Antunes, Ana Patrícia</creatorcontrib><creatorcontrib>Camargos, Sarah</creatorcontrib><creatorcontrib>Valadas, Anabela</creatorcontrib><creatorcontrib>Coelho, Miguel</creatorcontrib><creatorcontrib>Godinho, Catarina</creatorcontrib><creatorcontrib>Maia, Débora</creatorcontrib><creatorcontrib>Lobo, Patrícia</creatorcontrib><creatorcontrib>Maia, Raphael</creatorcontrib><creatorcontrib>Teodoro, Tiago</creatorcontrib><creatorcontrib>Rieder, Carlos</creatorcontrib><creatorcontrib>Velon, Ana Graça</creatorcontrib><creatorcontrib>Rosas, Maria José</creatorcontrib><creatorcontrib>Calado, Ana</creatorcontrib><creatorcontrib>Caniça, Verónica</creatorcontrib><creatorcontrib>Vale, José</creatorcontrib><creatorcontrib>Mendes, Alexandre</creatorcontrib><creatorcontrib>Rodrigues, Ana Margarida</creatorcontrib><creatorcontrib>Costa, Maria Manuela</creatorcontrib><creatorcontrib>Lampreia, Tânia</creatorcontrib><creatorcontrib>Ferraz, Henrique B.</creatorcontrib><creatorcontrib>Tumas, Vitor</creatorcontrib><creatorcontrib>Barbosa, Egberto</creatorcontrib><creatorcontrib>Stebbins, Glenn T.</creatorcontrib><creatorcontrib>Tilley, Barbara C.</creatorcontrib><creatorcontrib>Luo, Sheng</creatorcontrib><creatorcontrib>LaPelle, Nancy R.</creatorcontrib><creatorcontrib>Goetz, Christopher G.</creatorcontrib><creatorcontrib>Cardoso, Francisco</creatorcontrib><creatorcontrib>Ferreira, Joaquim J.</creatorcontrib><creatorcontrib>Soares, Tiago</creatorcontrib><creatorcontrib>Coelho, Miguel</creatorcontrib><creatorcontrib>Guedes, Leonor</creatorcontrib><creatorcontrib>Valadas, Anabela</creatorcontrib><creatorcontrib>Antunes, Ana Patrícia</creatorcontrib><creatorcontrib>Lobo, Patrícia</creatorcontrib><creatorcontrib>Teodoro, Tiago</creatorcontrib><creatorcontrib>Godinho, Catarina</creatorcontrib><creatorcontrib>Calado, Ana</creatorcontrib><creatorcontrib>Dias, Sara</creatorcontrib><creatorcontrib>Morgado, Joana</creatorcontrib><creatorcontrib>Sequeira, João</creatorcontrib><creatorcontrib>Vale, José</creatorcontrib><creatorcontrib>Simões, Rita</creatorcontrib><creatorcontrib>Alegria, Paulo</creatorcontrib><creatorcontrib>Mendes, Alexandre</creatorcontrib><creatorcontrib>Vila‐Chã, Nuno</creatorcontrib><creatorcontrib>Martins, Joana</creatorcontrib><creatorcontrib>Rosas, Maria José</creatorcontrib><creatorcontrib>Vieira, Sara</creatorcontrib><creatorcontrib>Velon, Ana Graça</creatorcontrib><creatorcontrib>Veiga, Andreia</creatorcontrib><creatorcontrib>Rodrigues, Ana Margarida</creatorcontrib><creatorcontrib>Varandas, Sara</creatorcontrib><creatorcontrib>Santos, Ana Filipa</creatorcontrib><creatorcontrib>Machado, Célia</creatorcontrib><creatorcontrib>Alves, José</creatorcontrib><creatorcontrib>Costa, Maria Manuela</creatorcontrib><creatorcontrib>Cunha, Carlota</creatorcontrib><creatorcontrib>Massano, João</creatorcontrib><creatorcontrib>Lampreia, Tânia</creatorcontrib><creatorcontrib>Barbosa, Raquel</creatorcontrib><creatorcontrib>Caniça, Verónica</creatorcontrib><creatorcontrib>Queimado, Francisco</creatorcontrib><creatorcontrib>Vale, Thiago Cardoso</creatorcontrib><creatorcontrib>Maia, Raphael Doyle</creatorcontrib><creatorcontrib>Maciel, Ricardo Oliveira Horta</creatorcontrib><creatorcontrib>Maia, Débora Palma</creatorcontrib><creatorcontrib>Camargos, Sarah Teixeira</creatorcontrib><creatorcontrib>Ferraz, Henrique Ballalai</creatorcontrib><creatorcontrib>Silva, Carolina Candeiras</creatorcontrib><creatorcontrib>Saba, Roberta Arb</creatorcontrib><creatorcontrib>Barcelos, Lorena Broseghini</creatorcontrib><creatorcontrib>Borges, Vanderci</creatorcontrib><creatorcontrib>Silva, Sónia Azevedo</creatorcontrib><creatorcontrib>Barbosa, Egberto Reis</creatorcontrib><creatorcontrib>Cury, Rubens Gisbert</creatorcontrib><creatorcontrib>Limongi, João Carlos Papaterra</creatorcontrib><creatorcontrib>Sallem, Flávio Augusto Sekeff</creatorcontrib><creatorcontrib>Tumas, Vitor</creatorcontrib><creatorcontrib>Novaretti, Nathalia</creatorcontrib><creatorcontrib>Bezerra, Torben Cavalcante</creatorcontrib><creatorcontrib>Santos‐Lobato, Bruno Lopes</creatorcontrib><creatorcontrib>Brito, Manuelina Mariana Capellari</creatorcontrib><creatorcontrib>Cunha, Ana Luiza Nunes</creatorcontrib><creatorcontrib>Oliveira, Daniel Sabino</creatorcontrib><creatorcontrib>Mello Rieder, Carlos Roberto</creatorcontrib><creatorcontrib>Medeiros, Márcio Schneider</creatorcontrib><creatorcontrib>MDS‐UPDRS Portuguese Validation Study Group</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>MEDLINE - Academic</collection><jtitle>Movement disorders clinical practice (Hoboken, N.J.)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Soares, Tiago</au><au>Vale, Thiago Cardoso</au><au>Guedes, Leonor Correia</au><au>Maciel, Ricardo Oliveira</au><au>Antunes, Ana Patrícia</au><au>Camargos, Sarah</au><au>Valadas, Anabela</au><au>Coelho, Miguel</au><au>Godinho, Catarina</au><au>Maia, Débora</au><au>Lobo, Patrícia</au><au>Maia, Raphael</au><au>Teodoro, Tiago</au><au>Rieder, Carlos</au><au>Velon, Ana Graça</au><au>Rosas, Maria José</au><au>Calado, Ana</au><au>Caniça, Verónica</au><au>Vale, José</au><au>Mendes, Alexandre</au><au>Rodrigues, Ana Margarida</au><au>Costa, Maria Manuela</au><au>Lampreia, Tânia</au><au>Ferraz, Henrique B.</au><au>Tumas, Vitor</au><au>Barbosa, Egberto</au><au>Stebbins, Glenn T.</au><au>Tilley, Barbara C.</au><au>Luo, Sheng</au><au>LaPelle, Nancy R.</au><au>Goetz, Christopher G.</au><au>Cardoso, Francisco</au><au>Ferreira, Joaquim J.</au><au>Soares, Tiago</au><au>Coelho, Miguel</au><au>Guedes, Leonor</au><au>Valadas, Anabela</au><au>Antunes, Ana Patrícia</au><au>Lobo, Patrícia</au><au>Teodoro, Tiago</au><au>Godinho, Catarina</au><au>Calado, Ana</au><au>Dias, Sara</au><au>Morgado, Joana</au><au>Sequeira, João</au><au>Vale, José</au><au>Simões, Rita</au><au>Alegria, Paulo</au><au>Mendes, Alexandre</au><au>Vila‐Chã, Nuno</au><au>Martins, Joana</au><au>Rosas, Maria José</au><au>Vieira, Sara</au><au>Velon, Ana Graça</au><au>Veiga, Andreia</au><au>Rodrigues, Ana Margarida</au><au>Varandas, Sara</au><au>Santos, Ana Filipa</au><au>Machado, Célia</au><au>Alves, José</au><au>Costa, Maria Manuela</au><au>Cunha, Carlota</au><au>Massano, João</au><au>Lampreia, Tânia</au><au>Barbosa, Raquel</au><au>Caniça, Verónica</au><au>Queimado, Francisco</au><au>Vale, Thiago Cardoso</au><au>Maia, Raphael Doyle</au><au>Maciel, Ricardo Oliveira Horta</au><au>Maia, Débora Palma</au><au>Camargos, Sarah Teixeira</au><au>Ferraz, Henrique Ballalai</au><au>Silva, Carolina Candeiras</au><au>Saba, Roberta Arb</au><au>Barcelos, Lorena Broseghini</au><au>Borges, Vanderci</au><au>Silva, Sónia Azevedo</au><au>Barbosa, Egberto Reis</au><au>Cury, Rubens Gisbert</au><au>Limongi, João Carlos Papaterra</au><au>Sallem, Flávio Augusto Sekeff</au><au>Tumas, Vitor</au><au>Novaretti, Nathalia</au><au>Bezerra, Torben Cavalcante</au><au>Santos‐Lobato, Bruno Lopes</au><au>Brito, Manuelina Mariana Capellari</au><au>Cunha, Ana Luiza Nunes</au><au>Oliveira, Daniel Sabino</au><au>Mello Rieder, Carlos Roberto</au><au>Medeiros, Márcio Schneider</au><aucorp>MDS‐UPDRS Portuguese Validation Study Group</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Validation of the Portuguese MDS‐UPDRS: Challenges to Obtain a Scale Applicable to Different Linguistic Cultures</atitle><jtitle>Movement disorders clinical practice (Hoboken, N.J.)</jtitle><addtitle>Mov Disord Clin Pract</addtitle><date>2025-01</date><risdate>2025</risdate><volume>12</volume><issue>1</issue><spage>34</spage><epage>42</epage><pages>34-42</pages><issn>2330-1619</issn><eissn>2330-1619</eissn><abstract>Background
The MDS‐UPDRS has been available in English since 2008, showing satisfactory clinimetric results and being proposed as the new official benchmark scale for Parkinson's disease (PD), being cited as a core instrument for PD in the National Institutes of Neurological Disorders and Stroke Common Data Elements program. For this reason, the MDS created guidelines for development of MDS‐UPDRS official, clinimetrically validated translations.
Objective
This study presents the formal process used to obtain the officially approved Portuguese version of the MDS‐UPDRS.
Methods
The study consisted of three phases: (1) Independent translation by Portuguese and Brazilian teams followed by a challenging consensus process that this article particularly emphasizes; (2) Cognitive pretest involving raters and patients from both Portugal and Brazil; (3) Validation test with a sample of 367 native Portuguese‐speaking PD patients.
Results
The overall factor structure of the Portuguese version was consistent with the English version based on a comparative fit index ≥0.96 for all four parts of the MDS‐UPDRS.
Conclusion
This version can be designated as the official Portuguese version of the MDS‐UPDRS.</abstract><cop>Hoboken, USA</cop><pub>John Wiley & Sons, Inc</pub><pmid>39460979</pmid><doi>10.1002/mdc3.14236</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0003-0027-280X</orcidid><orcidid>https://orcid.org/0000-0003-4214-5809</orcidid><orcidid>https://orcid.org/0000-0003-0808-0116</orcidid><orcidid>https://orcid.org/0000-0001-7466-1715</orcidid><orcidid>https://orcid.org/0000-0001-6145-9868</orcidid><orcidid>https://orcid.org/0000-0003-3950-5113</orcidid><orcidid>https://orcid.org/0000-0001-9829-6783</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 2330-1619 |
| ispartof | Movement disorders clinical practice (Hoboken, N.J.), 2025-01, Vol.12 (1), p.34-42 |
| issn | 2330-1619 2330-1619 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_3121064894 |
| source | MEDLINE; Wiley Online Library Journals |
| subjects | Aged Brazil Clinimetrics Female Humans Male MDS‐UPDRS Middle Aged Parkinson Disease - diagnosis Parkinson's disease Portugal Psychometrics - methods rating scale Reproducibility of Results Severity of Illness Index Translations validation |
| title | Validation of the Portuguese MDS‐UPDRS: Challenges to Obtain a Scale Applicable to Different Linguistic Cultures |
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