Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team
•The CF care model remains an evidence-based framework for excellence in clinical care that has evolved to address the changing healthcare needs of the CF community.•The core team structure continues to be of great importance but must be expanded to address the growing complexities of CF care; impor...
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Veröffentlicht in: | Journal of cystic fibrosis 2024-11, Vol.23 (6), p.1045-1054 |
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container_title | Journal of cystic fibrosis |
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creator | Brown, Rebekah F. Close, Charlotte T. Mailes, Molly G. Gonzalez, Luis J. Goetz, Danielle M. Filigno, Stephanie S. Preslar, Rebecca Tran, Quynh T. Hempstead, Sarah E. Lomas, Paula Brown, A. Whitney Flume, Patrick A. |
description | •The CF care model remains an evidence-based framework for excellence in clinical care that has evolved to address the changing healthcare needs of the CF community.•The core team structure continues to be of great importance but must be expanded to address the growing complexities of CF care; important additions include pharmacist, genetic counselor, and a mental health coordinator.•There is increased need for partnership with primary care providers to ensure that medical issues related to general health are addressed appropriately.
Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF. |
doi_str_mv | 10.1016/j.jcf.2024.09.011 |
format | Article |
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Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.</description><identifier>ISSN: 1569-1993</identifier><identifier>ISSN: 1873-5010</identifier><identifier>EISSN: 1873-5010</identifier><identifier>DOI: 10.1016/j.jcf.2024.09.011</identifier><identifier>PMID: 39327194</identifier><language>eng</language><publisher>Netherlands: Elsevier B.V</publisher><subject>Collaborative care ; Cystic fibrosis ; Cystic Fibrosis - therapy ; Foundations - organization & administration ; Humans ; Interdisciplinary team ; Patient Care Team - organization & administration</subject><ispartof>Journal of cystic fibrosis, 2024-11, Vol.23 (6), p.1045-1054</ispartof><rights>2024 European Cystic Fibrosis Society</rights><rights>Copyright © 2024 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c278t-fd88776f5fa35cfd931fe0da156a94d33a0233ec097d7c7dd19900f78c16dc23</cites><orcidid>0009-0002-0114-9336 ; 0000-0003-3632-4587 ; 0000-0003-3856-025X ; 0000-0001-5467-5423 ; 0000-0003-4757-1882 ; 0000-0002-1560-6879</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jcf.2024.09.011$$EHTML$$P50$$Gelsevier$$Hfree_for_read</linktohtml><link.rule.ids>314,780,784,3550,27924,27925,45995</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39327194$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Brown, Rebekah F.</creatorcontrib><creatorcontrib>Close, Charlotte T.</creatorcontrib><creatorcontrib>Mailes, Molly G.</creatorcontrib><creatorcontrib>Gonzalez, Luis J.</creatorcontrib><creatorcontrib>Goetz, Danielle M.</creatorcontrib><creatorcontrib>Filigno, Stephanie S.</creatorcontrib><creatorcontrib>Preslar, Rebecca</creatorcontrib><creatorcontrib>Tran, Quynh T.</creatorcontrib><creatorcontrib>Hempstead, Sarah E.</creatorcontrib><creatorcontrib>Lomas, Paula</creatorcontrib><creatorcontrib>Brown, A. Whitney</creatorcontrib><creatorcontrib>Flume, Patrick A.</creatorcontrib><creatorcontrib>CFF Care Model Committee</creatorcontrib><title>Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team</title><title>Journal of cystic fibrosis</title><addtitle>J Cyst Fibros</addtitle><description>•The CF care model remains an evidence-based framework for excellence in clinical care that has evolved to address the changing healthcare needs of the CF community.•The core team structure continues to be of great importance but must be expanded to address the growing complexities of CF care; important additions include pharmacist, genetic counselor, and a mental health coordinator.•There is increased need for partnership with primary care providers to ensure that medical issues related to general health are addressed appropriately.
Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.</description><subject>Collaborative care</subject><subject>Cystic fibrosis</subject><subject>Cystic Fibrosis - therapy</subject><subject>Foundations - organization & administration</subject><subject>Humans</subject><subject>Interdisciplinary team</subject><subject>Patient Care Team - organization & administration</subject><issn>1569-1993</issn><issn>1873-5010</issn><issn>1873-5010</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kEtPwzAQhC0EolD4AVxQjlwS1nFSx3BCFS-pEhL0brn2Glw1D-wEqf8eVykcOHDa1WpmtPMRckEho0Bn1-tsrW2WQ15kIDKg9ICc0IqztAQKh3EvZyKlQrAJOQ1hDUA58OqYTJhgOaeiOCFv823onU6sW_k2uJDYdmiM6l3bJF08jIvq0N8kr2jQusY170n_gYn-49TKY9Kjqs_IkVWbgOf7OSXLh_vl_CldvDw-z-8Wqc551afWVBXnM1taxUptjWDUIhgVv1aiMIwpyBlDDYIbrrkxsQmA5ZWmM6NzNiVXY2zn288BQy9rFzRuNqrBdgiSUQrFLgKilI5SHV8NHq3svKuV30oKcodSrmVEKXcoJQgZUUbP5T5-WNVofh0_7KLgdhRg7Pjl0MugHTYajfOoe2la90_8N9c9hM8</recordid><startdate>20241101</startdate><enddate>20241101</enddate><creator>Brown, Rebekah F.</creator><creator>Close, Charlotte T.</creator><creator>Mailes, Molly G.</creator><creator>Gonzalez, Luis J.</creator><creator>Goetz, Danielle M.</creator><creator>Filigno, Stephanie S.</creator><creator>Preslar, Rebecca</creator><creator>Tran, Quynh T.</creator><creator>Hempstead, Sarah E.</creator><creator>Lomas, Paula</creator><creator>Brown, A. 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Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.</abstract><cop>Netherlands</cop><pub>Elsevier B.V</pub><pmid>39327194</pmid><doi>10.1016/j.jcf.2024.09.011</doi><tpages>10</tpages><orcidid>https://orcid.org/0009-0002-0114-9336</orcidid><orcidid>https://orcid.org/0000-0003-3632-4587</orcidid><orcidid>https://orcid.org/0000-0003-3856-025X</orcidid><orcidid>https://orcid.org/0000-0001-5467-5423</orcidid><orcidid>https://orcid.org/0000-0003-4757-1882</orcidid><orcidid>https://orcid.org/0000-0002-1560-6879</orcidid><oa>free_for_read</oa></addata></record> |
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source | MEDLINE; Access via ScienceDirect (Elsevier) |
subjects | Collaborative care Cystic fibrosis Cystic Fibrosis - therapy Foundations - organization & administration Humans Interdisciplinary team Patient Care Team - organization & administration |
title | Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team |
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